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Ibrutinib
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CLL + Trisomy 8
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and
Ibrutinib
trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and
Ibrutinib
trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
RyStock
in
CLL America Support
3 years ago
Ibrutinib to Acalabrutinib
After more than 4.5 years on
Ibrutinib
, I was switched to Acalabrutinub 6 days ago. I started having diarrhea the 6th night and had a headache about 4:00 a.m. Has anyone experienced the same problems- and how long did they last? Any comments will be appreciated.
After more than 4.5 years on
Ibrutinib
, I was switched to Acalabrutinub 6 days ago. I started having diarrhea the 6th night and had a headache about 4:00 a.m. Has anyone experienced the same problems- and how long did they last? Any comments will be appreciated.
Agatesup
in
CLL Support
3 years ago
First results of a head-to-head trial of acalabrutinib versus ibrutinib in previously treated chronic lymphocytic leukemia.
It's worth having a look at if trying to decide between
Ibrutinib
or Acalabrutinib. https://meetinglibrary.asco.org/record/201554/abstract Jackie
It's worth having a look at if trying to decide between
Ibrutinib
or Acalabrutinib. https://meetinglibrary.asco.org/record/201554/abstract Jackie
Jm954
Administrator
in
CLL Support
3 years ago
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Mutated p53 gene
My dad has been told he has a mutated p53 gene (i think that’s right) and that his treatment will be either
ibrutinib
or another drug I can’t remember the name of at the minute. Has anyone any advice/information about this treatment and what to expect? Is it different from chemotherapy?
My dad has been told he has a mutated p53 gene (i think that’s right) and that his treatment will be either
ibrutinib
or another drug I can’t remember the name of at the minute. Has anyone any advice/information about this treatment and what to expect? Is it different from chemotherapy?
Tomaitch21
in
CLL Support
3 years ago
When Ibrutinib side effects become too much
I’m wondering what were the breaking points when people taking
Ibrutinib
decided it was time to make a change to another drug or drug combo and did this alleviate side effects. In particular, the muscle pain and stiffness.
I’m wondering what were the breaking points when people taking
Ibrutinib
decided it was time to make a change to another drug or drug combo and did this alleviate side effects. In particular, the muscle pain and stiffness.
Mprm
in
CLL Support
3 years ago
Roundup
You do need to show medical treatment, in my case
ibrutinib
. I also had a secondary bladder cancer developed. The payouts are not that big, so no one is getting rich. The average is probably 25k.
You do need to show medical treatment, in my case
ibrutinib
. I also had a secondary bladder cancer developed. The payouts are not that big, so no one is getting rich. The average is probably 25k.
barger1951
in
CLL Support
3 years ago
Obinutumab plus venetoclax in cll
My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started
ibrutinib
in 2016 and stopped
ibrutinib
in mid 2018,in 2020 end due to fast multiplication of tlc and enlarged spleen and lymphnodes our doc suggested
My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started
ibrutinib
in 2016 and stopped
ibrutinib
in mid 2018,in 2020 end due to fast multiplication of tlc and enlarged spleen and lymphnodes our doc suggested
Rameshchag
in
CLL Support
3 years ago
Obinutuzumab and venetoclax in relapsed cll,
My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started
ibrutinib
in 2016 and stopped
ibrutinib
in mid 2018,in 2020 end due to fast multiplication of tlc and enlarged spleen and lymphnodes our doc suggested
My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started
ibrutinib
in 2016 and stopped
ibrutinib
in mid 2018,in 2020 end due to fast multiplication of tlc and enlarged spleen and lymphnodes our doc suggested
Rameshchag
in
CLL America Support
3 years ago
Ibrutinib and low platelet
Hello, my father have been taking
ibrutinib
for a month. His WBC has decreased but his platelet count has decreased and doktor stopped
ibrutinib
for test. Does anyone have any experience with this? Can it be increased with herbal medicines or foods?
Hello, my father have been taking
ibrutinib
for a month. His WBC has decreased but his platelet count has decreased and doktor stopped
ibrutinib
for test. Does anyone have any experience with this? Can it be increased with herbal medicines or foods?
Elnaazz
in
CLL Support
3 years ago
Tophaceous Gout and CLL Drugs
I noticed on the prescribing information of Venclexta there is significant mention of gout and problems like this, and I honestly haven’t gone back to check
Ibrutinib
, but these things all started with what our local ER classified as bouts of cellulitis, which was plausible due to the potential for
Ibrutinib
I noticed on the prescribing information of Venclexta there is significant mention of gout and problems like this, and I honestly haven’t gone back to check
Ibrutinib
, but these things all started with what our local ER classified as bouts of cellulitis, which was plausible due to the potential for
Ibrutinib
KevinCLLITP
in
CLL Support
3 years ago
Ibrutinib combinations in CLL therapy: scientific rationale and clinical results
While single-agent
ibrutinib
was a remarkable addition to the CLL pharmacopeia, results from combinations of
ibrutinib
and other agents have been even more promising.
While single-agent
ibrutinib
was a remarkable addition to the CLL pharmacopeia, results from combinations of
ibrutinib
and other agents have been even more promising.
Jm954
Administrator
in
CLL Support
3 years ago
My Antibody Test Was Negative Despite Pfizer Vaccine. I Am Wondering If I Should Try Another One.
I am two months into
Ibrutinib
, which is improving my blood counts with almost no side effects. Yay! I did not start
Ibrutinib
until after I was "fully vaccinated."
I am two months into
Ibrutinib
, which is improving my blood counts with almost no side effects. Yay! I did not start
Ibrutinib
until after I was "fully vaccinated."
cllboy
in
CLL Support
3 years ago
Stopping medication temporarily
should I stop taking
ibrutinib
before a colonoscopy as I believe it thins the blood.
should I stop taking
ibrutinib
before a colonoscopy as I believe it thins the blood.
FranceMary
in
CLL Support
3 years ago
Venetoclax
When add venetoclax to
Ibrutinib
in Cll Treatment
When add venetoclax to
Ibrutinib
in Cll Treatment
Chinhdo
in
CLL Support
3 years ago
Is there anybody with CIFIDS/ME on ibrutinib?
I am very anxious to speak with someone who can validate my experiences on
ibrutinib
. People with chronic fatigue immune deficiency syndrome can be more susceptible to CLL or other forms of lymphoma. I am post COVID to boot but I am having severe muscle fatigue and walking is very difficult.
I am very anxious to speak with someone who can validate my experiences on
ibrutinib
. People with chronic fatigue immune deficiency syndrome can be more susceptible to CLL or other forms of lymphoma. I am post COVID to boot but I am having severe muscle fatigue and walking is very difficult.
denmanjemima
in
CLL Support
3 years ago
Ibrutinib and covid vaccination
Hello, I have a brother 56 years old who uses
Ibrutinib
daily for 1 year and he is feeling well. I wonder if he should take a break from the medicine before covid vaccination or after or if he must take some action for exempel blodtest in connection with covid vaccination.
Hello, I have a brother 56 years old who uses
Ibrutinib
daily for 1 year and he is feeling well. I wonder if he should take a break from the medicine before covid vaccination or after or if he must take some action for exempel blodtest in connection with covid vaccination.
Green202
in
CLL Support
3 years ago
prophylactic Drugs and ibrutinib
Hi friends, the doctor has prescribed Trimethoprim ,Allopurinol, and Valasiklovir ,Flukonazol, drugs for my father along with
ibrutinib
. Does anyone have any experience with this? And did your doctor prescribe these drugs in addition to your medications?
Hi friends, the doctor has prescribed Trimethoprim ,Allopurinol, and Valasiklovir ,Flukonazol, drugs for my father along with
ibrutinib
. Does anyone have any experience with this? And did your doctor prescribe these drugs in addition to your medications?
Elnaazz
in
CLL Support
3 years ago
Important SARS-CoV-2 and Covid-19 information for Chronic Lymphocytic Leukaemia/CLL patients
However, vaccination is very strongly recommended for them, even for those taking a BTK inhibitor like
ibrutinib
or acalabrutinib which may impair their vaccination response further.
However, vaccination is very strongly recommended for them, even for those taking a BTK inhibitor like
ibrutinib
or acalabrutinib which may impair their vaccination response further.
CLLerinOz
Volunteer
in
CLL Support
2 years ago
I have CLL and PV , anyone has thw same condition?
Have CLL , on
Ibrutinib
32 months, IGVH unmutated and TP53 mutation. Last week i have been diagnosed with PV (Jak2 negative , CALR + and BMB confirmation) . I will switch to Acalabrutinib , get aspirine and plhebotomies if needed by the moment. No Symptons My Dr says it is rare to have both.
Have CLL , on
Ibrutinib
32 months, IGVH unmutated and TP53 mutation. Last week i have been diagnosed with PV (Jak2 negative , CALR + and BMB confirmation) . I will switch to Acalabrutinib , get aspirine and plhebotomies if needed by the moment. No Symptons My Dr says it is rare to have both.
antonb
in
CLL America Support
3 years ago
Captivate Trial MRD status
My treatment ended in May 2019....
Ibrutinib
for 12 months and Venetoclax for 9. I just received several test results including Flow Citometry and I am still MRD negative after 2 years. This trial was simply awesome and a life saver.
My treatment ended in May 2019....
Ibrutinib
for 12 months and Venetoclax for 9. I just received several test results including Flow Citometry and I am still MRD negative after 2 years. This trial was simply awesome and a life saver.
lamboman
in
CLL Support
3 years ago
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