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Experiences with
Hydroxycarbamide
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white capsules vs pink/green capsules Hydroxycarbamide
Hi all Have any of you had the plain white capsules of
Hydroxycarbamide
instead of the Pink/Green capsules ? I’ve been taking the pink/green capsules made by Bristol Myers Squibb for several years with increased doses from time to time.
Hi all Have any of you had the plain white capsules of
Hydroxycarbamide
instead of the Pink/Green capsules ? I’ve been taking the pink/green capsules made by Bristol Myers Squibb for several years with increased doses from time to time.
130396
in
MPN Voice
7 months ago
Polycythemia Vera Leg Cramps
I have PV for last 2 years and on Daily Multiple
Hydroxycarbamide
. Last 6 weeks get Leg Cramps in bed every night. Amy advice please as next Consultant Appt October.
I have PV for last 2 years and on Daily Multiple
Hydroxycarbamide
. Last 6 weeks get Leg Cramps in bed every night. Amy advice please as next Consultant Appt October.
Paraic2021
in
MPN Voice
9 months ago
kennel cough and hydroxycarbamide
can anyone tell me if it’s ok for my dog to have kennel cough vaccine with me being on hydroxy?
can anyone tell me if it’s ok for my dog to have kennel cough vaccine with me being on hydroxy?
Cokopops
in
MPN Voice
9 months ago
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Quick Question re. Taking Hydroxycarbamide.
Telephone appointment yesterday with Haematologist has resulted in her advice to take 2
Hydroxycarbamide
on Saturdays and Sundays till next telephone consult to hopefully reduce platelets but I forgot to ask if I should take them together or not. Thought I’d just ask what you all do.
Telephone appointment yesterday with Haematologist has resulted in her advice to take 2
Hydroxycarbamide
on Saturdays and Sundays till next telephone consult to hopefully reduce platelets but I forgot to ask if I should take them together or not. Thought I’d just ask what you all do.
azaelea
in
MPN Voice
8 months ago
Bloods
Some input needed please I am on
hydroxycarbamide
all was well now my hematocric is dropping and my platelets have risen to 457 in 6 weeks I am now just to take 2 x 500 pills a week till next bloodtest for iron etc then may have to change medication I am worried about anagrelide but was told interferon
Some input needed please I am on
hydroxycarbamide
all was well now my hematocric is dropping and my platelets have risen to 457 in 6 weeks I am now just to take 2 x 500 pills a week till next bloodtest for iron etc then may have to change medication I am worried about anagrelide but was told interferon
ChillyAsh34
in
MPN Voice
8 months ago
clotting whilst on warfarin for clots in lungs.
In the letter he said I was being referred to Royal Brompton Hospital as it seems I am still clotting even though on warfarin and my doses of
Hydroxycarbamide
have been increased to get my platelets under rangev now 346. 3 days after I got his letter I had a phone call from Brompton giving me an appointment
In the letter he said I was being referred to Royal Brompton Hospital as it seems I am still clotting even though on warfarin and my doses of
Hydroxycarbamide
have been increased to get my platelets under rangev now 346. 3 days after I got his letter I had a phone call from Brompton giving me an appointment
130396
in
MPN Voice
5 months ago
Modbury123
I have ET plus JAK2 I take 500gm
Hydroxycarbamide
plus Aspirin.
I have ET plus JAK2 I take 500gm
Hydroxycarbamide
plus Aspirin.
Modbury123
in
MPN Voice
7 months ago
Peginterferon alfa 2a or Hydroxycarbamide for PV?
My consultant has said I need to start treatment for PV and has asked me to choose between them. I'd really welcome any recommendations. I am new to this site, apologies uf this has been asked before.
My consultant has said I need to start treatment for PV and has asked me to choose between them. I'd really welcome any recommendations. I am new to this site, apologies uf this has been asked before.
Lyndjs
in
MPN Voice
8 months ago
Dry achey eyes
I have ET Calr diagnosed 5 years ago on
Hydroxycarbamide
. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
I have ET Calr diagnosed 5 years ago on
Hydroxycarbamide
. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
Pippapot
in
MPN Voice
10 months ago
antibiotics while on Hydroxycarbamide
Has anyone taken Antibiotics while on
Hydroxycarbamide
… Would appreciate any information ..
Has anyone taken Antibiotics while on
Hydroxycarbamide
… Would appreciate any information ..
Kilmichael
in
MPN Voice
11 months ago
Increase platelets
Hi everyone never posted before but regularly on here getting comfort from other people's experiences was diagnosed 2 years ago with et Jack positive currently take 10
hydroxycarbamide
week my platelets usually hover around the 550 mark but recent blood test reveals they jumped 100 had a sickness
Hi everyone never posted before but regularly on here getting comfort from other people's experiences was diagnosed 2 years ago with et Jack positive currently take 10
hydroxycarbamide
week my platelets usually hover around the 550 mark but recent blood test reveals they jumped 100 had a sickness
Annma
in
MPN Voice
10 months ago
NICE Final Guidance on Ruxolitinib for the treatment of Polycythaemia Vera
We therefore welcome the approval of Ruxolitinib as an additional treatment option for those PV patients in England who are either intolerant of or unresponsive to treatment with
Hydroxycarbamide
.
We therefore welcome the approval of Ruxolitinib as an additional treatment option for those PV patients in England who are either intolerant of or unresponsive to treatment with
Hydroxycarbamide
.
Mazcd
MPNVoice
in
MPN Voice
9 months ago
Newly diagnosed Myelofibrosis Stage 2
I was put on Ruxolitinib which works well for me and is definitely a much better drug than
Hydroxycarbamide
. My only concern currently is that my white blood cell count has gone down a lot and also neutrofils are below normal. This could lead to frequent infections, bacterial, viral and fungal.
I was put on Ruxolitinib which works well for me and is definitely a much better drug than
Hydroxycarbamide
. My only concern currently is that my white blood cell count has gone down a lot and also neutrofils are below normal. This could lead to frequent infections, bacterial, viral and fungal.
Searcher56
in
MPN Voice
9 months ago
Itching for answers....
I was diagnosed with Essential Thrombocythemiain 2010, have been on
Hydroxycarbamide
ever since.
I was diagnosed with Essential Thrombocythemiain 2010, have been on
Hydroxycarbamide
ever since.
quanglewangle
in
MPN Voice
6 months ago
Itching for answers....
I was diagnosed with Essential Thrombocythemiain 2010, have been on
Hydroxycarbamide
ever since.
I was diagnosed with Essential Thrombocythemiain 2010, have been on
Hydroxycarbamide
ever since.
quanglewangle
in
Atrial Fibrillation Support
6 months ago
Sore finger tips
I was diagnosed with PV almost 7 years ago and have been taking
hydroxycarbamide
( approximately 1000mg daily) and 75mg aspirin daily. I enjoy doing craft work so sore finger tips are particularly annoying. Many thanks in anticipation of replies. Turfbeg
I was diagnosed with PV almost 7 years ago and have been taking
hydroxycarbamide
( approximately 1000mg daily) and 75mg aspirin daily. I enjoy doing craft work so sore finger tips are particularly annoying. Many thanks in anticipation of replies. Turfbeg
Turfbeg
in
MPN Voice
10 months ago
Fatigue
I know they're unlikely to prescribe
Hydroxycarbamide
but I wondered if anyone else had been prescribed anything to help with fatigue. Thank you in advance 😊
I know they're unlikely to prescribe
Hydroxycarbamide
but I wondered if anyone else had been prescribed anything to help with fatigue. Thank you in advance 😊
LittleMsTired
in
MPN Voice
8 months ago
statins!
Well, I’m already taking
Hydroxycarbamide
to lower my platelets so this worries me. I am to see the pharmacist next week again to review the new and will discuss this concern, but has anyone had similar concerns, please?
Well, I’m already taking
Hydroxycarbamide
to lower my platelets so this worries me. I am to see the pharmacist next week again to review the new and will discuss this concern, but has anyone had similar concerns, please?
Michali45
in
MPN Voice
9 months ago
GI Issues
I started treated last year, due to count and age, with
Hydroxycarbamide
(9x500mg) per week. I started to experience digestive issues almost immediately but manageable.
I started treated last year, due to count and age, with
Hydroxycarbamide
(9x500mg) per week. I started to experience digestive issues almost immediately but manageable.
Paisley24
in
MPN Voice
10 months ago
Bloating and weight gain solutions anyone?
I read that
hydroxycarbamide
treatment is likely to produce a weight gain. Even though I am now on the smallest dose (500mg/day), dealing with a bloated tummy is so difficult. I should add that I have ET and have been on treatment now for close to 3 years.
I read that
hydroxycarbamide
treatment is likely to produce a weight gain. Even though I am now on the smallest dose (500mg/day), dealing with a bloated tummy is so difficult. I should add that I have ET and have been on treatment now for close to 3 years.
Hidden
in
MPN Voice
9 months ago
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