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Experiences with
Hydroxycarbamide
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Hello, I'm transitioning from hydroxyurea to jakafi and would like here from others who are on jakafi. What should I expect?
Should I be worried? Are the side effects bad?
Should I be worried? Are the side effects bad?
Cbreeze0182
in
MPN Voice
5 years ago
Pegasys update
Not an easy journey starting the meds but a whole lot better for me as Ruxolitinib and
Hydroxycarbamide
hardly touched my platelets Regards Graham
Not an easy journey starting the meds but a whole lot better for me as Ruxolitinib and
Hydroxycarbamide
hardly touched my platelets Regards Graham
Graham7694
in
MPN Voice
5 years ago
Can I ask my hairdresser to dye my hair if I take Hydroxycarbamide? I have had Polycythaemia Vera for 2 years.
Does anyone do this whilst taking
Hydroxycarbamide
and have you had side effects please?
Does anyone do this whilst taking
Hydroxycarbamide
and have you had side effects please?
SusiePlums
in
MPN Voice
5 years ago
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Alternative treatments for Busulfan
At the time, the main treatments were
Hydroxycarbamide
, followed by Anagrelide and Busulfan as a last resort. She was first treated with Hydrox but the side effects were severe and she was then treated with Anagrelide but after a period this was changed to Busulfan as her platelets increased.
At the time, the main treatments were
Hydroxycarbamide
, followed by Anagrelide and Busulfan as a last resort. She was first treated with Hydrox but the side effects were severe and she was then treated with Anagrelide but after a period this was changed to Busulfan as her platelets increased.
Folly41
in
MPN Voice
5 years ago
Thankyou!
Can I just thank everyone who replied to my query regarding
Hydroxycarbamide
or Anagrelide, lots of food for thought.
Can I just thank everyone who replied to my query regarding
Hydroxycarbamide
or Anagrelide, lots of food for thought.
Juliet46
in
MPN Voice
5 years ago
Horrendous stomach pain with hydroxycarbamide
Hi everyone has anyone on
hydroxycarbamide
1500 mg daily had stomach problems? I was at a gastroenterologist yesterday and told may have Diverticulitis possibly through the
hydroxycarbamide
!
Hi everyone has anyone on
hydroxycarbamide
1500 mg daily had stomach problems? I was at a gastroenterologist yesterday and told may have Diverticulitis possibly through the
hydroxycarbamide
!
PhilReade
in
MPN Voice
5 years ago
CBD Oil
I am looking into cbd oil and if it helps in anyway with my ET. I take hydroxyurea and asprin.? Anyone?
I am looking into cbd oil and if it helps in anyway with my ET. I take hydroxyurea and asprin.? Anyone?
Klys
in
MPN Voice
5 years ago
Anagrelide!
I haven’t gone back onto medication yet but my haematologist says I can consider anagrelide rather than
hydroxycarbamide
. What is anyone’s opinion on this ? I’ve heard there can be horrendous side effects . - Thankyou!
I haven’t gone back onto medication yet but my haematologist says I can consider anagrelide rather than
hydroxycarbamide
. What is anyone’s opinion on this ? I’ve heard there can be horrendous side effects . - Thankyou!
Juliet46
in
MPN Voice
5 years ago
Skin and Hydroxycarbamide
Good morning everyone, I have Et jak 2 diagnosed in 2000 and take
Hydroxycarbamide
since diagnosis. I have had skin cancer removed from my nose and have really dry patches and other sun blemishes on my face. Despite never being a sun worshipper and wearing a high factor sun scream and hat.
Good morning everyone, I have Et jak 2 diagnosed in 2000 and take
Hydroxycarbamide
since diagnosis. I have had skin cancer removed from my nose and have really dry patches and other sun blemishes on my face. Despite never being a sun worshipper and wearing a high factor sun scream and hat.
Bobthecob
in
MPN Voice
5 years ago
MNP using hydroxyurea and complaining about memory loss and fetigue
Hi, My mom was diagnosed with MNP a year ago and since then she is using hydroxyurea. Her platelet count is fine now but she is so concerned about memory loss and fetigue. Is there any supplement that can help her without interfering with hydroxyurea? Like gynsing or ginkgo ? Please help me I can’
Hi, My mom was diagnosed with MNP a year ago and since then she is using hydroxyurea. Her platelet count is fine now but she is so concerned about memory loss and fetigue. Is there any supplement that can help her without interfering with hydroxyurea? Like gynsing or ginkgo ? Please help me I can’
Lovelymom4
in
MPN Voice
5 years ago
Light Headed
Hi, I'm ET JAK 2 and on
Hydroxycarbamide
(500/1000 alternate days). I've recently experienced some random episodes of light headiness and wondered if anyone else has experienced the same. Kind regards Ian
Hi, I'm ET JAK 2 and on
Hydroxycarbamide
(500/1000 alternate days). I've recently experienced some random episodes of light headiness and wondered if anyone else has experienced the same. Kind regards Ian
Trueblue8
in
MPN Voice
5 years ago
Hydroxycarbamide and muscle pain
Treatment with
hydroxycarbamide
Treatment with
hydroxycarbamide
130396
in
MPN Voice
5 years ago
Hydroxyurea concerns
Hello, I am triple negative. My doc advised me to take asprin initially. Now with the latest report my platelets have almost touched 1 M. He has advised to start on hydroxyurea. I am really worried. Feeling little depressed too. Is life normal with these medicines or health deteriorates with these medication
Hello, I am triple negative. My doc advised me to take asprin initially. Now with the latest report my platelets have almost touched 1 M. He has advised to start on hydroxyurea. I am really worried. Feeling little depressed too. Is life normal with these medicines or health deteriorates with these medication
Orangemusic
in
MPN Voice
5 years ago
Hydroxyurea Question
I have been on Hydroxyurea for about 9 months and things seemed great until recently. Good news: platelets dropped from 1M to 350K. Bad news: my red and white cells have dipped below normal for the last two tests. I have a scheduled appointment next month. Should I reach out sooner? Is this normal on
I have been on Hydroxyurea for about 9 months and things seemed great until recently. Good news: platelets dropped from 1M to 350K. Bad news: my red and white cells have dipped below normal for the last two tests. I have a scheduled appointment next month. Should I reach out sooner? Is this normal on
MJL1977
in
MPN Voice
5 years ago
Burning Mouth Syndrome
Has anybody else suffered from burning red sore lips? Is this a reaction from Hydroxyurea? I have just been prescribed the generic version because of the backorders.
Has anybody else suffered from burning red sore lips? Is this a reaction from Hydroxyurea? I have just been prescribed the generic version because of the backorders.
dladydi
in
MPN Voice
5 years ago
Polycythaemia Vera
Interferon self injection or
Hydroxycarbamide
capsules. Has anyone had a similar experience and could share their experience? I must admit to be apprehensive of starting chemotherapy treatment, even the mention of that word scares you! Thanks in advance if you take the time to respond Cheers
Interferon self injection or
Hydroxycarbamide
capsules. Has anyone had a similar experience and could share their experience? I must admit to be apprehensive of starting chemotherapy treatment, even the mention of that word scares you! Thanks in advance if you take the time to respond Cheers
mrbrindle
in
MPN Voice
5 years ago
PV commercials on national TV
I am somewhat shocked at seeing PV commercials on national TV. The condition is not well known. Many nurses are unaware of it. The only explanation I can think of is big pharma came up with something very expensive. They would never have a commercial for Hydroxyurea due to the fact that it is dirt
I am somewhat shocked at seeing PV commercials on national TV. The condition is not well known. Many nurses are unaware of it. The only explanation I can think of is big pharma came up with something very expensive. They would never have a commercial for Hydroxyurea due to the fact that it is dirt
MPN123
in
MPN Voice
5 years ago
Weight gain on Hydroxyurea
Has anyone else had weight gain while taking Hydroxyurea? I have been on it 10 months and have gained 10 pounds. When I first started taking the drug I felt so bad and I thought if I ate something I would feel better... however I didn’t feel better and just put on weight . I have really been trying
Has anyone else had weight gain while taking Hydroxyurea? I have been on it 10 months and have gained 10 pounds. When I first started taking the drug I felt so bad and I thought if I ate something I would feel better... however I didn’t feel better and just put on weight . I have really been trying
Cookiebaker
in
MPN Voice
5 years ago
Sleeplessness after taking Hydroxycarbamide
Does anybody else have this problem (have only just started taking these)! Ratton 726
Does anybody else have this problem (have only just started taking these)! Ratton 726
Ratton726
in
MPN Voice
5 years ago
How did this happen ?
Any advice would be helpful especially re
Hydroxycarbamide
which I will be starting tomorrow! Thank you in advance for any advice/info! Ratton
Any advice would be helpful especially re
Hydroxycarbamide
which I will be starting tomorrow! Thank you in advance for any advice/info! Ratton
Ratton726
in
MPN Voice
5 years ago
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