That was such a shame you were put on Hu when you platelets were only 515. That is not much above normal which you probably new. I am one year older than you and still just on aspirin and I have never had symptoms. Age is not a good enough reason to go on Hu if you have no symptoms. And platelets are not too high as yours weren't. Makes me cross when patients get put straight on it. Hope you can sort this out. X
Are you sure it’s muscle pain? I had terrible back pain a few months ago and on the third night I could barely move. I went to the ER and it turned out I had a bladder infection which had spread to my kidneys. I hope you get to the bottom of this. Feel better.
My hematologist I had for 11 years told me he didn’t understand why i was so fatigued when he knew I was anemic and my platelets were in the 700’s. So I changed my doctor a little over a month ago and after all new tests, she said I had progressed and will probably need a bmt in the next 2-5 years. So I would suggest a 2nd opinion.
Never heard of HU causing this, but must say I am a bit surprised that you are on it with platelet levels so low. In the absence of symptoms like thrombosis, not sure whether the risk-benefit ratio makes sense. HU is a toxic drug with significant potential adverse effects. Right for some, but not for all. Can't say what is right for you, but perhaps a second opinion form a MPN Specialist would help.
Suspect your chiropractor is on the right track. If you are JAK2 positive, then you likely carry on overload of inflammatory cytokines. These cytokines are thought to be responsible for many of the secondary symptoms those of us with the mutation experience.
I have been using a Turmeric-Curcumin blend for the last three years to manage osteoarthritis. It works better than any NSAID I ever took with no bothersome side effects. I also have chronic back pain due to spinal deterioration and likely chronic inflammation. I see a massage therapist for the back pain - which keeps it manageable and I do not need to take any more meds for the back issues. It is important to find a therapist who is skilled in medical - therapeutic massage.
In my opinion it is linked , more to the medical process than to a certain product. You get infections and pains because your body tells you that there is not sufficient blood for it to work properly.
It's almost the same that happens when you eat a huge meal and then go out running a marathon directly afterwards ;)-- and the same reasons for the old rule about never to go swimming until half an hour after a meal.
The different is : medication signing lack of blood afflux is a reaction to a wrongly composed blood, while meal induced lack of blood afflux is true lack of blood afflux.
Sometimes you body have such or other "violent" reactions because your brain send mock signals -- like when you suddenly get gooseboops all over for no known reason--lol
Our medicins, all of them, create a sort of disorder in our blood-- permanently or periodic. And our bodies react .
My advice about your upper back and neck. As soon as you feel it coming-- dress warmly, A shawl is good (if you aren't too prissy ) -- you can also apply "heat creme (which is to be bought in every horse tack shop), but it does not work as well as the shawl because there is, in fact, not always sufficient blood to boost the veins and capillaries.
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) -- you can also apply "heat creme (which is to be bought in every horse tack shop), but it does not work as well as the shawl because there is, in fact, not always sufficient blood to boost the veins and capillaries.
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