Light Headed

[Trueblue8]

Hi, I'm ET JAK 2 and on Hydroxycarbamide (500/1000 alternate days). I've recently experienced some random episodes of light headiness and wondered if anyone else has experienced the same. Kind regards Ian

[h2ogal]

Usually happens to me if I don't drink enough water. I try to get 2 liters in every day. Hope this helps

[Trueblue8 in reply to h2ogal]

Thanks for your reply. That's a good point about the water as I probably don't drink enough! I will try and drink more and see what happens.

[Aneliv9]

What lightheadedness feel like???

[Trueblue8 in reply to Aneliv9]

I sometimes feel dizzy

[NewBloom]

Hi, I have PV JAK2 and often become light headed and vertigo. Had it pre dignoses but was much worse then. It comes and goes with or without raised blood counts but seems a little worse when platelets go higher or if a little dehydrated I've just learnt to live with it.

[Trueblue8 in reply to NewBloom]

Hi, thanks for your reply. I'm due another check up in November so will see what bloods are doing. The dehydration is an interesting one as to be honest I probably don't drink enough water! I will try to drink more and see if this makes any difference.

[jillydabrat]

Hi there, I often get moments of dizziness, even sitting up then laying down causes dizziness. Getting up to quickly or turning to quickly does it every time. I have just put it down to part of my illness so I will be interested to hear what your haematologist says. Good luck

[Trueblue8 in reply to jillydabrat]

Thanks for your reply it's much appreciated.

[Bobthecob]

HI Trueblue, I have et jak2 and I take 1000 Hydroxycarbamide a day. When my platelets are high I notice dizziness more, however I do experience light heaviness. Sometimes I can be walking along and find myself veering off to the right or left. Hope this helps

[Trueblue8 in reply to Bobthecob]

Hi thanks for your reply it's much appreciated

[Johnsb]

Happens to me, sometimes I'm just a little fatigued. Have checked my BP and Gluose levels and they are ok. Not sure why it happens but it does.

[Trueblue8 in reply to Johnsb]

Thanks for your reply it's much appreciated

[NewBloom]

Hi, I have PV and this symptom comes and goes all the time. I'm not sure what causes it. I can be scarry but I think I've just become used to it. Had many test and nothing found. Hope you feel better soon x

[Trueblue8 in reply to NewBloom]

Hi, thanks so much for your reply it's much appreciated. Many of the people who've replied say that hydration helps so I will definitely try to drink more water. Thanks again

[carlyjo]

Hi there.Just saw this .yes -I get this intermittently too . .have tried to work out when and why but can't . I too have raised my hydration and think it helps. (ET /MPL mutation ) Reassuring to hear it's probably just par for the course .Hope that helps 😊

[Trueblue8 in reply to carlyjo]

Hi, thanks for your reply. I've had quite a few people saying they have experienced similar symptoms. The common theme seems to be the hydration so I must try and drink more!

[krotsida]

I have the same feeling I will try to drink more water also.

Thank all.