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Richter’s Transformation
A reminder to everyone going through the treatment process. Currently, Richter's cancer is not considered an incurable cancer or one with a poor prognosis. It is currently considered an aggressive lymphoma. Mortality is the same as that of diffuse large B-cell lymphoma. The greater the tumor uptake,
A reminder to everyone going through the treatment process. Currently, Richter's cancer is not considered an incurable cancer or one with a poor prognosis. It is currently considered an aggressive lymphoma. Mortality is the same as that of diffuse large B-cell lymphoma. The greater the tumor uptake,
Priss69
in
CLL Support
9 months ago
Awful chronic nausea
I have had PMR for over 11years and still on 11mgs. I have never been pain free. This morning I had a gastroscopy because I have been suffering worsening nausea over the last 18 months or so. At first I didn’t realise it was all connected because it came and went. Now it is daily and has been making
I have had PMR for over 11years and still on 11mgs. I have never been pain free. This morning I had a gastroscopy because I have been suffering worsening nausea over the last 18 months or so. At first I didn’t realise it was all connected because it came and went. Now it is daily and has been making
suzy1959
in
PMRGCAuk
7 months ago
My Condition and OP - Update.
Hello all. Was having a lie-in this morning - The phone rang and it was the urology waiting list people. I was informed my op to see if the BCG treatment had worked or not, is scheduled for the 8th of October. I doubt very much the BCG will have worked - I think my urology/oncology nurse thinks
Hello all. Was having a lie-in this morning - The phone rang and it was the urology waiting list people. I was informed my op to see if the BCG treatment had worked or not, is scheduled for the 8th of October. I doubt very much the BCG will have worked - I think my urology/oncology nurse thinks
Ern007
in
Lung Conditions Community Forum
9 months ago
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FND SUCKS
Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain all over, abdominal pain, constipation that lasted sometimes 17 days with no help from anything, slirred speech, loss of the ability to walk flat( I walk on my tipsy toes) and need a cane, walker or scooter to get around
Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain all over, abdominal pain, constipation that lasted sometimes 17 days with no help from anything, slirred speech, loss of the ability to walk flat( I walk on my tipsy toes) and need a cane, walker or scooter to get around
Luv2teezeu
in
Functional Neurological Disorder - FND Hope
3 months ago
oncologist Today
Hi Everyone , ok so John went back to oncologist to hear the plan . She wants him to have a biopsy on biggest lymph node to see if cancer as changed into small cell as its different treatment , then she suggests to go with chemo first before Lu 177 and also another option is to change his medication
Hi Everyone , ok so John went back to oncologist to hear the plan . She wants him to have a biopsy on biggest lymph node to see if cancer as changed into small cell as its different treatment , then she suggests to go with chemo first before Lu 177 and also another option is to change his medication
palser1
in
Advanced Prostate Cancer
9 months ago
missed yall
I hope everyone is well or doing the best they can. I took a bit of a break just out doing my best 😊 Had an anxiety attack last night before bed but there were some circumstances that kinda led up to it that I let get the best of me. Plus I’ve missed a few doses of meds 🙄 I think that when I am
I hope everyone is well or doing the best they can. I took a bit of a break just out doing my best 😊 Had an anxiety attack last night before bed but there were some circumstances that kinda led up to it that I let get the best of me. Plus I’ve missed a few doses of meds 🙄 I think that when I am
Mskitty21
in
Anxiety and Depression Support
5 months ago
B12 sublingual
Hi, I suppose this has been addressed before, but....Is there any reason not to take sublingual B12 around the same time as ndt? Usually I space the sublingual B12 a couple hours away from ndt but figured the B12 is bypassing the digestive system & the ndt is not. My TSH, FT4&3 are all good. Since
Hi, I suppose this has been addressed before, but....Is there any reason not to take sublingual B12 around the same time as ndt? Usually I space the sublingual B12 a couple hours away from ndt but figured the B12 is bypassing the digestive system & the ndt is not. My TSH, FT4&3 are all good. Since
terebol
in
Thyroid UK
8 months ago
Folic Acid does not cause PA
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
MEguy
in
Thyroid UK
8 months ago
A bit disappointed
I’ve seen my haematologist today. My blood results were pretty good, all in normal levels except a bit anaemic, so the EPO dose has been increased. I’ve been on peg interferon for 8 weeks. However, I requested quite a few weeks ago for referral to Professor Harrison at Guys, my doctor was reluctant
I’ve seen my haematologist today. My blood results were pretty good, all in normal levels except a bit anaemic, so the EPO dose has been increased. I’ve been on peg interferon for 8 weeks. However, I requested quite a few weeks ago for referral to Professor Harrison at Guys, my doctor was reluctant
lizzziep
in
MPN Voice
9 months ago
Human stem cell transplantation for Parkinson’s disease: A systematic review
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Farooqji
in
Cure Parkinson's
3 months ago
Radio sensitizers and Microbiome
I'm about to start a slightly novel radiotherapy - we will add in distant retroperitoneal nodes. 28 treatments = 70gy. I have a two part question: 1. Has anyone an opinion or experience with using supplements as radiosensitizers. Google "radiosensitizers and prostate cancer - NIH". Lots of studies
I'm about to start a slightly novel radiotherapy - we will add in distant retroperitoneal nodes. 28 treatments = 70gy. I have a two part question: 1. Has anyone an opinion or experience with using supplements as radiosensitizers. Google "radiosensitizers and prostate cancer - NIH". Lots of studies
pj1121
in
Advanced Prostate Cancer
9 months ago
Prostate Biopsy
Hello everyone, I have had 2 biopsies in the last 2 years (the last one was in January 2023) with the latest one showing 1 out of 12 cores positive for Gleason 3+3 and another core suspicious for cancer. It was also noted on my last MRI that I had a bladder outlet obstruction. My PSA went as high as
Hello everyone, I have had 2 biopsies in the last 2 years (the last one was in January 2023) with the latest one showing 1 out of 12 cores positive for Gleason 3+3 and another core suspicious for cancer. It was also noted on my last MRI that I had a bladder outlet obstruction. My PSA went as high as
ironmanburg
in
Prostate Cancer Network
9 months ago
Antidepressant question
I am currently on 2.5 mg Lexapro. Its great and takes the edge off. However, I did have some panic attacks and my doc mentioned 5 mg might be a better standard low dose. I want to take 5 mg but I am scared of serotonin syndrome or any side effects with increasing dose. Any advise? I have taken lexapro
I am currently on 2.5 mg Lexapro. Its great and takes the edge off. However, I did have some panic attacks and my doc mentioned 5 mg might be a better standard low dose. I want to take 5 mg but I am scared of serotonin syndrome or any side effects with increasing dose. Any advise? I have taken lexapro
christyssn123
in
Anxiety and Depression Support
5 months ago
ADAA Story of Triumph: I Didn't Shower for Weeks
"I remember when I couldn’t drive, I remember when I couldn’t work, I remember when I couldn’t sleep by myself because I was afraid, I remember when I couldn’t get out of the bed, I remember having panic attacks from the time I woke up to the time I went to sleep," Kellene says. "Anxiety and depression
"I remember when I couldn’t drive, I remember when I couldn’t work, I remember when I couldn’t sleep by myself because I was afraid, I remember when I couldn’t get out of the bed, I remember having panic attacks from the time I woke up to the time I went to sleep," Kellene says. "Anxiety and depression
ADAATeamRachel
Partner
in
Anxiety and Depression Support
6 months ago
My 3 Arrows Heme Iron has finally arrived! How do I dose it?
It seemed to take a long time to arrive. But it's finally here. At my last blood test my iron was low, not deficient and not low enough for a doctor to comment. But lower than I want and I struggle to keep Ferritin half decent. I've never had good Ferritin. So how do you take your 3 Arrows Heme
It seemed to take a long time to arrive. But it's finally here. At my last blood test my iron was low, not deficient and not low enough for a doctor to comment. But lower than I want and I struggle to keep Ferritin half decent. I've never had good Ferritin. So how do you take your 3 Arrows Heme
FancyPants54
in
Thyroid UK
8 months ago
Don't think I can cope anymore
No one seems to understand I have one sister who doesn't want to understand mental health and lung and breast cancer and just one friend who struggles with his own issues I'm not eating much and sleeping badly plus I've got the stress of selling my house I really don't know who to turn to just scared
No one seems to understand I have one sister who doesn't want to understand mental health and lung and breast cancer and just one friend who struggles with his own issues I'm not eating much and sleeping badly plus I've got the stress of selling my house I really don't know who to turn to just scared
Iamhealthy123
in
Lung Conditions Community Forum
9 months ago
SIBO/IMO investigations
Hello, community. I have a putative diagnosis of SIBO-IMO and would like to know of other people's recent experience of SIBO testing /investigations. Thank you. I'm new to this forum but have been on HU for many years. I have Lupus, Raynaud's, Erythromelalgia; IBS-c and Muscular Dystrophy (FSHD-1
Hello, community. I have a putative diagnosis of SIBO-IMO and would like to know of other people's recent experience of SIBO testing /investigations. Thank you. I'm new to this forum but have been on HU for many years. I have Lupus, Raynaud's, Erythromelalgia; IBS-c and Muscular Dystrophy (FSHD-1
skylark15
in
IBS Network
8 months ago
Constant Pain
Hi I have constant pain,and have had for some years now,stomach pain that is . I was told I had IBS,then Perineal pain,now I’m being told I have Diverticulosis. I don’t understand it whatsoever all I know is my stomach pain is getting worse,and hard to cope with. Quite honestly I don’t think the health
Hi I have constant pain,and have had for some years now,stomach pain that is . I was told I had IBS,then Perineal pain,now I’m being told I have Diverticulosis. I don’t understand it whatsoever all I know is my stomach pain is getting worse,and hard to cope with. Quite honestly I don’t think the health
Breathless1943
in
IBS Network
8 months ago
Bubbling sensations in the rectum area and very low gurgling sounds, has anyone had the same?
I have had blood tests and a colonoscopy. Everything is fine apart from high iron levels. But I was just wondering if anyone has had the same sensations/symptoms in the subject line? Any advice or reply from someone that has had the same symptoms would be appreciated. I have also just had a FIT test
I have had blood tests and a colonoscopy. Everything is fine apart from high iron levels. But I was just wondering if anyone has had the same sensations/symptoms in the subject line? Any advice or reply from someone that has had the same symptoms would be appreciated. I have also just had a FIT test
DavidT565
in
IBS Network
8 months ago
Momelotinib for Myelofibrosis
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Cazbolac
in
MPN Voice
3 months ago
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