Search
Search
About
Log in
Join
Experiences with
Hoyeraal-Hreidarsson syndrome
Posts
Communities
3,297 public posts
Filter results
Medical cannabis for RLS/PLMD
Has anybody tried and had good results with Medical Cannabis for RLS/PLMD. Looking at this in case Buprenorphine does not work. So far on 0.4 sublingual tablet, severe side effects during day and not working at night now!! Worked for first 3 nights. Beginning to think that husband cannot take any prescribed
Has anybody tried and had good results with Medical Cannabis for RLS/PLMD. Looking at this in case Buprenorphine does not work. So far on 0.4 sublingual tablet, severe side effects during day and not working at night now!! Worked for first 3 nights. Beginning to think that husband cannot take any prescribed
Ephemera
in
Restless Legs Syndrome
8 months ago
Dry Eyes
Are dry eyes a symptom of Fibromyalgia, I was diagnosed with fibromyalgia last year. I have been suffering with dry eyes for about 2 weeks.
Are dry eyes a symptom of Fibromyalgia, I was diagnosed with fibromyalgia last year. I have been suffering with dry eyes for about 2 weeks.
Mark1973
in
Fibromyalgia Action UK
8 months ago
Restless leg syndrome
I have been taking 1 or 2 mg ropinorole for about 5 years. It worked sometimes, my Doctor started giving me 5/325 hydrocodone which has helped me ALOT. It seems if I walk a lot or have a lot of stress my legs get bad at night. At least I know that I will make it through the night. I also take trazadone
I have been taking 1 or 2 mg ropinorole for about 5 years. It worked sometimes, my Doctor started giving me 5/325 hydrocodone which has helped me ALOT. It seems if I walk a lot or have a lot of stress my legs get bad at night. At least I know that I will make it through the night. I also take trazadone
Lynnygrl
in
Restless Legs Syndrome
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
pregabalin vs buprenorphine
I’ve been off pramipexole for a bit over two weeks. I had a fairly easy transition off it thanks to buprenorphine and cannabis, along with pointers picked up here about iron supplements, diet, etc. I started pregabalin but stopped taking it after 10 days or so because of the comments about it not fully
I’ve been off pramipexole for a bit over two weeks. I had a fairly easy transition off it thanks to buprenorphine and cannabis, along with pointers picked up here about iron supplements, diet, etc. I started pregabalin but stopped taking it after 10 days or so because of the comments about it not fully
707twitcher
in
Restless Legs Syndrome
8 months ago
Teva - short supply
Happy New Year everyone , Is anyone else finding it difficult to get 100mcg and 50 mcg Teva Levothyroxine ? I had a thyroidectomy 6 years ago and have been really well on this medication. I changed to Accent because independent pharmacist unable to source Teva . I was really unwell for 7 days on Accent
Happy New Year everyone , Is anyone else finding it difficult to get 100mcg and 50 mcg Teva Levothyroxine ? I had a thyroidectomy 6 years ago and have been really well on this medication. I changed to Accent because independent pharmacist unable to source Teva . I was really unwell for 7 days on Accent
CheerfulCharlie
in
Thyroid UK
8 months ago
Suboxone's side effects
Hi, I have been taking Suboxone for almost two and half months now without too much undesirable effects, but lately all of a sudden my blood pressure goes up to 170 systole after I take Suboxone and I also experience heart palpitation. My blood pressure usually ranges from 110 systole so I am not sure
Hi, I have been taking Suboxone for almost two and half months now without too much undesirable effects, but lately all of a sudden my blood pressure goes up to 170 systole after I take Suboxone and I also experience heart palpitation. My blood pressure usually ranges from 110 systole so I am not sure
halperinchen
in
Restless Legs Syndrome
8 months ago
SERTRALINE VERSUS TRAZODONE
I have been weaning myself off Sertraline and am now down from 75mg to 25mg daily. It has at times, been a torturous process. I was recommended by Sue to try Trazodone instead of Sertraline so that was why I began weaning off it. However, on reading the leaflet for Trazodone the side effects are quite
I have been weaning myself off Sertraline and am now down from 75mg to 25mg daily. It has at times, been a torturous process. I was recommended by Sue to try Trazodone instead of Sertraline so that was why I began weaning off it. However, on reading the leaflet for Trazodone the side effects are quite
Lettucenotforget
in
Restless Legs Syndrome
8 months ago
My profile
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
BillCapita
in
PMRGCAuk
8 months ago
Hello, nasal congestion every morning (&night if slow to go to sleep) as a result of ropinirole - anyone similar? How to fix
So, I developed rls suddenly, in the middle of one of the covid lockdowns. While it appears impossible to fully identify the cause, I suffer from hydrocephalus, so have had about 4 neurosurgical procedures. It is apparently common with those with my condition. It took about 4 nights to fully remove my
So, I developed rls suddenly, in the middle of one of the covid lockdowns. While it appears impossible to fully identify the cause, I suffer from hydrocephalus, so have had about 4 neurosurgical procedures. It is apparently common with those with my condition. It took about 4 nights to fully remove my
Sniffly
in
Restless Legs Syndrome
8 months ago
Conundrum Gastrin
Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research regarding the damage that Gastrin can do when it doesn't switch off (NET's tumours) because of low stomach acid and as the Gastrin is activated
Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research regarding the damage that Gastrin can do when it doesn't switch off (NET's tumours) because of low stomach acid and as the Gastrin is activated
Helliborous
in
Pernicious Anaemia Society
5 months ago
buprenorphine dose
I’m in the US, and just started a Suboxone Rx two weeks ago at dosage of 2/.5. I’d like to get lower dosage if I can, but I don’t see any US companies advertising the .2/.05 tablets that you have in UK. I’ve found that using 1/4 strip every other day works fine for me. I assume the long half-life
I’m in the US, and just started a Suboxone Rx two weeks ago at dosage of 2/.5. I’d like to get lower dosage if I can, but I don’t see any US companies advertising the .2/.05 tablets that you have in UK. I’ve found that using 1/4 strip every other day works fine for me. I assume the long half-life
707twitcher
in
Restless Legs Syndrome
8 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
8 months ago
Switched from Methadone at 10 mg to Buprenorphine 10 mcg
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
vikkitennis
in
Restless Legs Syndrome
8 months ago
Neupro Patch Weaning
I’ve read most of the forum’s input regarding Neupro Patches and relayed the information to the physician. He has decided to optimize the Gabapentin dose and discontinue the patch. A bit of history…….. the patch was started 12/19/23…10 days ago. Prior to that, ropinirole was weaning off (dose on
I’ve read most of the forum’s input regarding Neupro Patches and relayed the information to the physician. He has decided to optimize the Gabapentin dose and discontinue the patch. A bit of history…….. the patch was started 12/19/23…10 days ago. Prior to that, ropinirole was weaning off (dose on
Busunsc713
in
Restless Legs Syndrome
8 months ago
Escape from Augmentation
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
davchar23
in
Restless Legs Syndrome
8 months ago
Hydrocodone to Tramadol?
So the USA ran out of Hydrocodone 10/325 due to DEA putting limits on annual production. My last fill was 11-6-23. Luckily I had saved up 90 units for emergency (proof I'm not abusing) but that ran out yesterday. I asked my doc to prescribe tramadol hcl 50mg to get by until production resumes. Started
So the USA ran out of Hydrocodone 10/325 due to DEA putting limits on annual production. My last fill was 11-6-23. Luckily I had saved up 90 units for emergency (proof I'm not abusing) but that ran out yesterday. I asked my doc to prescribe tramadol hcl 50mg to get by until production resumes. Started
billy_in_slo
in
Restless Legs Syndrome
8 months ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
8 months ago
16 week midwife appointment
I went for my 16 week midwife appointment yesterday. All she did was BP and check my urine was kind of hoping she would check for babies heartbeat with the doppler but no. Is this normal? I have a high risk pregnancy for various reasons but main one being twins so just a bit worried. The rest of my appointments
I went for my 16 week midwife appointment yesterday. All she did was BP and check my urine was kind of hoping she would check for babies heartbeat with the doppler but no. Is this normal? I have a high risk pregnancy for various reasons but main one being twins so just a bit worried. The rest of my appointments
Tarasunny
in
Pregnancy and Parenting Support
10 months ago
autoimmunity
I went to Laurie Mischley’s alumni camp in August. One of the Labs that I decided to get done called Nuro zoomer I believe, had an interesting result. Turns out I have auto immunity to my glycine receptors. There’s not a whole lot about this online, but apparently in some cases it can cause parkinsonism
I went to Laurie Mischley’s alumni camp in August. One of the Labs that I decided to get done called Nuro zoomer I believe, had an interesting result. Turns out I have auto immunity to my glycine receptors. There’s not a whole lot about this online, but apparently in some cases it can cause parkinsonism
rebtar
in
Cure Parkinson's
10 months ago
Longest bout of RLS 13 days of no sleep
I’m exhausted! I twitch and full body movements every night until 3AM then wake up at 6. On top of the RLS, I have now developed an upper respiratory infection. I was prescribed cough syrup with phenegran and it made me have the worst ever attack. I have called the doctor and he gave me gabapentin and
I’m exhausted! I twitch and full body movements every night until 3AM then wake up at 6. On top of the RLS, I have now developed an upper respiratory infection. I was prescribed cough syrup with phenegran and it made me have the worst ever attack. I have called the doctor and he gave me gabapentin and
Bulldogmom2003
in
Restless Legs Syndrome
8 months ago
1
...
12
13
14
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1453 results
Fertility Network UK
360 results
PMRGCAuk
136 results
View top 10 communities
Sort by
Most Relevant
Newest