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Hoyeraal-Hreidarsson syndrome
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Methadone
Hello, 3 days ago I started methadone. Started with 2.5 mg on the first night. It didn’t help my rls completely, so the next night I took a whole pill, 5 mg. From an rls perspective, working great. I am not getting breakthrough rls, which is awesome! But I am not sleeping well. I have many short
Hello, 3 days ago I started methadone. Started with 2.5 mg on the first night. It didn’t help my rls completely, so the next night I took a whole pill, 5 mg. From an rls perspective, working great. I am not getting breakthrough rls, which is awesome! But I am not sleeping well. I have many short
Lespenney
in
Restless Legs Syndrome
7 months ago
Does anyone have any direct experience of Targinact?
Hi Everyone, this is my first post but I've been reading everything on this forum for a while now. I'm in real trouble with augmentation after taking ropinirole for 11 years. I successfully tapered off and was completely free of it by April 2023, however the RLS remained severe, and in October I decided
Hi Everyone, this is my first post but I've been reading everything on this forum for a while now. I'm in real trouble with augmentation after taking ropinirole for 11 years. I successfully tapered off and was completely free of it by April 2023, however the RLS remained severe, and in October I decided
Claire_lc
in
Restless Legs Syndrome
7 months ago
What is an ICM?
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
4 months ago
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Ropinerol withdrawal.... what now?
So after 15 years I'm off Requip. I'm now 4 days in with zero meds for RLS. A few contradictions of how long it takes to fully leave your system, however, I was hoping that my RLS would magically disappear along with my meds. Unfortunately, thats not been the case. Cannabis didn't help, it just left
So after 15 years I'm off Requip. I'm now 4 days in with zero meds for RLS. A few contradictions of how long it takes to fully leave your system, however, I was hoping that my RLS would magically disappear along with my meds. Unfortunately, thats not been the case. Cannabis didn't help, it just left
Boofoo71
in
Restless Legs Syndrome
7 months ago
Oxycodone - the way forward or a dead end?
I have only posted here briefly once but I have been following this great forum for some time. My story is very familiar. Have had RLS for 14 years, was prescribed all the available RLS medication: Ropinirole, Pramipexole (both miraculous at the beginning) Neupro patch ( never tolerated it), Gabapentin
I have only posted here briefly once but I have been following this great forum for some time. My story is very familiar. Have had RLS for 14 years, was prescribed all the available RLS medication: Ropinirole, Pramipexole (both miraculous at the beginning) Neupro patch ( never tolerated it), Gabapentin
etchea33
in
Restless Legs Syndrome
7 months ago
extra fluid 24 weeks
hi all, I had a private scan yesterday, baby is active on scan and can feel movement not all day at the moment, I'm 24+4 but the sonographer put the fluid index is 39 and stayed in scan report this is polyhydramnios, has any one had this? I'm booking my gtt in so I'm aware it could be due to that, they
hi all, I had a private scan yesterday, baby is active on scan and can feel movement not all day at the moment, I'm 24+4 but the sonographer put the fluid index is 39 and stayed in scan report this is polyhydramnios, has any one had this? I'm booking my gtt in so I'm aware it could be due to that, they
AngelMum1
in
Pregnancy and Parenting Support
10 months ago
Manometry studies
Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on line to see what’s involved but was wondering if anyone who as gone through this test could tell me what it’s like? My Gastroenterologist as requested
Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on line to see what’s involved but was wondering if anyone who as gone through this test could tell me what it’s like? My Gastroenterologist as requested
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
10 months ago
Ropinirole vs Buprenorphine!
I had a phone call from 1 Dr. who told me that Ropinirole would cure my RLS and was annoyed that I wouldn't take them. He decided to get the head of the Surgery to phone me to try to put pressure on me ! I did say that the 10 mcg had helped me a little bit but I would like a stronger patch . A few day's
I had a phone call from 1 Dr. who told me that Ropinirole would cure my RLS and was annoyed that I wouldn't take them. He decided to get the head of the Surgery to phone me to try to put pressure on me ! I did say that the 10 mcg had helped me a little bit but I would like a stronger patch . A few day's
Danni54
in
Restless Legs Syndrome
7 months ago
RESTLESS LEGS SYN
hello everyone I first experienced RLS 40 years ago most GPs had no idea and prescribed sedatives which were totally wrong for this condition I have managed it through other things ie walking on cold floor massage and been successful 5O % of the time until recently and the symptoms have worsened …a
hello everyone I first experienced RLS 40 years ago most GPs had no idea and prescribed sedatives which were totally wrong for this condition I have managed it through other things ie walking on cold floor massage and been successful 5O % of the time until recently and the symptoms have worsened …a
2024legs
in
Restless Legs Syndrome
7 months ago
Low dose Naltrexone or Suboxone. I'm seeing my doctor this week. Which one is best
After many years of RLS and coping quite well. First the dreaded mirapexin and then tramadol nothing is working at the moment. I was on 0.09 mg mirapexin. Now I'm on 50mg tram. Even if I take 100mgs it's not working so I'm obviously augmenting. Even Kratom isn't helping. I made an appointment with my
After many years of RLS and coping quite well. First the dreaded mirapexin and then tramadol nothing is working at the moment. I was on 0.09 mg mirapexin. Now I'm on 50mg tram. Even if I take 100mgs it's not working so I'm obviously augmenting. Even Kratom isn't helping. I made an appointment with my
Coeso
in
Restless Legs Syndrome
7 months ago
Sorbolene Lotion experience and my RLS
I was prescribed Sorbolene Lotion for my lower legs for dry skin - had very bad dry skin that was basically permanent. Anyway, I found that my restless legs disappeared after applying the cream. The cream is essentially just a moisturiser - says it has glycerine and vitamin E in it. I was applying it
I was prescribed Sorbolene Lotion for my lower legs for dry skin - had very bad dry skin that was basically permanent. Anyway, I found that my restless legs disappeared after applying the cream. The cream is essentially just a moisturiser - says it has glycerine and vitamin E in it. I was applying it
bernardnz
in
Restless Legs Syndrome
7 months ago
Restless leg syndrone
I am new on this forum and am suffering like hell with augmentation. I've had RLS slightly since I was 27 now 74. GP diagnosed cramp in those early days and told me to drink tonic water. Things got worse and saw a neurologist (at my expense) some 12 years ago and put me on Rotigotine patch 1mg. Things
I am new on this forum and am suffering like hell with augmentation. I've had RLS slightly since I was 27 now 74. GP diagnosed cramp in those early days and told me to drink tonic water. Things got worse and saw a neurologist (at my expense) some 12 years ago and put me on Rotigotine patch 1mg. Things
Marmot2
in
Restless Legs Syndrome
7 months ago
Bfp at home many times, but extreme low beta hcg blood test and was worried much doubt from dr but then boom! 6 to 2000's
OK so had many urine bfps since day 4 past fresh double transfer, then went for bloods, and only had a reading of 6.3 everyone at fertility clinic said not good and likely not a viable pregnancy, i couldnt believe it i felt so sad etc as thought what they told me, and also how can we believe the home
OK so had many urine bfps since day 4 past fresh double transfer, then went for bloods, and only had a reading of 6.3 everyone at fertility clinic said not good and likely not a viable pregnancy, i couldnt believe it i felt so sad etc as thought what they told me, and also how can we believe the home
Flutterbby
in
Fertility Network UK
10 months ago
hopful2
I saw Dr Scott Cooper this morning and I am hopeful that he will help me. He was familiar with augmentation and was very thorough is his examination. He has ordered a full iron panel and checking B12 and magnesium levels. In all he is doing 3 panels. He is also doing nerve conductivity test. He said
I saw Dr Scott Cooper this morning and I am hopeful that he will help me. He was familiar with augmentation and was very thorough is his examination. He has ordered a full iron panel and checking B12 and magnesium levels. In all he is doing 3 panels. He is also doing nerve conductivity test. He said
6236
in
Restless Legs Syndrome
7 months ago
My hcg bloods are extremely low (6.34)
Can anyone provide reassurance things will be OK if any ladies have had or know of anyone who has had very low beta hcg results? It was 6.34 today @ 3 weeks. But that's very bad. 😔they will retest Friday, feeling sad, o\s.
Can anyone provide reassurance things will be OK if any ladies have had or know of anyone who has had very low beta hcg results? It was 6.34 today @ 3 weeks. But that's very bad. 😔they will retest Friday, feeling sad, o\s.
Flutterbby
in
Fertility Network UK
10 months ago
Phenelzine
it worked for me incredibly well. No restless legs going on2 years. Phenelzine is a maoMao inhibitor with the differencethaydifference that it only raises dopamine in the central nervous central system. LIfe changer for me, but make you talk to a drDr, so many medicines can interact.
it worked for me incredibly well. No restless legs going on2 years. Phenelzine is a maoMao inhibitor with the differencethaydifference that it only raises dopamine in the central nervous central system. LIfe changer for me, but make you talk to a drDr, so many medicines can interact.
toobs1234
in
Restless Legs Syndrome
7 months ago
UK Hospitals-Dopamine Agonists
I just had an appointment with a head pharmacist at St George's hospital in Tooting, London about my next MS drug treatment.We somehow got onto the subject of RLS and he surprised me by actually knowing about the disease and that dopamine agonists are bad news. He said that St George's do NOT prescribe
I just had an appointment with a head pharmacist at St George's hospital in Tooting, London about my next MS drug treatment.We somehow got onto the subject of RLS and he surprised me by actually knowing about the disease and that dopamine agonists are bad news. He said that St George's do NOT prescribe
Joolsg
in
Restless Legs Syndrome
7 months ago
The answer I received from my concern about the treatments on the RLS Foundation website
My email to Karla Dzienkowski, who is Executive Director of the Restless Legs Syndrome Foundation: Recently a post on the forum indicated that Dr. John Winkleman has set up a site for health professionals to learn about RLS at rlscurbside.org/resources/. Naturally I went out there and was quite disturbed
My email to Karla Dzienkowski, who is Executive Director of the Restless Legs Syndrome Foundation: Recently a post on the forum indicated that Dr. John Winkleman has set up a site for health professionals to learn about RLS at rlscurbside.org/resources/. Naturally I went out there and was quite disturbed
SueJohnson
in
Restless Legs Syndrome
7 months ago
Duloxetine - restless legs
Hi, I am on Duloxetine 60 mg and Trazadone 100 mg. Since going on the Duloxetine my RLS seems to be worse. I don’t really want to give it up right now as I have only been on it 3 weeks and since I have tried several anti-depressants I want to give this one a fair go. The Trazadone helps me sleep a
Hi, I am on Duloxetine 60 mg and Trazadone 100 mg. Since going on the Duloxetine my RLS seems to be worse. I don’t really want to give it up right now as I have only been on it 3 weeks and since I have tried several anti-depressants I want to give this one a fair go. The Trazadone helps me sleep a
Chamie
in
Restless Legs Syndrome
7 months ago
The problem with Buprenorphine, BTBD9 and serotonin syndrome
This is for those of you who are really struggling with the remedies for RLS. Apologies for not referencing all my research but I’ve been completely wiped out for weeks now. However I wanted to share some insights I’ve had recently and hope it inspires thoughts and research. Adenosine is a chemical
This is for those of you who are really struggling with the remedies for RLS. Apologies for not referencing all my research but I’ve been completely wiped out for weeks now. However I wanted to share some insights I’ve had recently and hope it inspires thoughts and research. Adenosine is a chemical
Typicallygaslit
in
Restless Legs Syndrome
8 months ago
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