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Can PMR last for 5years+?
Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR 95.3, ESR 71 which came down quickly after 15mg pred. Reduced to 5mg first year which continued for a further 3 years, then down to 2.5mg in the 5th year. From March 2023, neck and shoulder problems and flare December 2023
Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR 95.3, ESR 71 which came down quickly after 15mg pred. Reduced to 5mg first year which continued for a further 3 years, then down to 2.5mg in the 5th year. From March 2023, neck and shoulder problems and flare December 2023
Phoebe12345
in
PMRGCAuk
2 months ago
I was starting to feel a little better, then........
Following the advice given in reply to my first email 3 months ago and using all the knowledge I have learnt from the questions and answers in the blog, I spoke to my GP and she agreed that I should increase my Levo from 75mcg to 100mcg. She also suggested that I should try Magnesium in the evening
Following the advice given in reply to my first email 3 months ago and using all the knowledge I have learnt from the questions and answers in the blog, I spoke to my GP and she agreed that I should increase my Levo from 75mcg to 100mcg. She also suggested that I should try Magnesium in the evening
man1412
in
Thyroid UK
2 months ago
Hyperthyroidism with possible pancreatic pain
I am hoping someone on here might be able to help. I have been diagnosed with hyperthryoidism in May and have been suffering terrible nausea and sudden stomach pain at the top of my chest behind the ribs radiating to the back on the left. I have been loosing a lot of muscle (I suspect Graves as loosing
I am hoping someone on here might be able to help. I have been diagnosed with hyperthryoidism in May and have been suffering terrible nausea and sudden stomach pain at the top of my chest behind the ribs radiating to the back on the left. I have been loosing a lot of muscle (I suspect Graves as loosing
eatingbiscuits
in
Thyroid UK
2 months ago
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New results, scared doctor will dismiss me
Hi everyone, So, my levothyroxine was put up to 88mcg at the end of November. I tested in March and results were: TSH 1.270 µUI/mL 0.380 - 5.330 T4 (free) 1.16 ng/dL 0.54 - 1.24 (88% through range) T3 (free) 3.79 pg/mL 2.50 - 3.90 (92% through range) I always test before 9am, fasted, no
Hi everyone, So, my levothyroxine was put up to 88mcg at the end of November. I tested in March and results were: TSH 1.270 µUI/mL 0.380 - 5.330 T4 (free) 1.16 ng/dL 0.54 - 1.24 (88% through range) T3 (free) 3.79 pg/mL 2.50 - 3.90 (92% through range) I always test before 9am, fasted, no
catpotter44
in
Thyroid UK
2 months ago
Recent Hyperthyroid diagnosis
Hello, newbie here looking for advice I was diagnosed with Hyperthyroidism at the beginning of the month . My blood test results are, Serum TSH: 0.02 range 0.3-4.5 FT4: 36.4 range 11-22 FT3: 9.7 range 3.1-6.8 TSH <1.0 range 1-1.8 I haven’t spoken to my gp since my results have come in but
Hello, newbie here looking for advice I was diagnosed with Hyperthyroidism at the beginning of the month . My blood test results are, Serum TSH: 0.02 range 0.3-4.5 FT4: 36.4 range 11-22 FT3: 9.7 range 3.1-6.8 TSH <1.0 range 1-1.8 I haven’t spoken to my gp since my results have come in but
Hidden
in
Thyroid UK
2 months ago
The liver and high blood pressure
Can anyone help here? My blood pressure is too high but the medicines I've taken for this are not helping at all. One was a beta blocker, the other (more recent) an ACE inhibitor called Rampiril. It seems likely that I'm not metabolising certain drugs as I used to but need to get the blood pressure
Can anyone help here? My blood pressure is too high but the medicines I've taken for this are not helping at all. One was a beta blocker, the other (more recent) an ACE inhibitor called Rampiril. It seems likely that I'm not metabolising certain drugs as I used to but need to get the blood pressure
Daphnis61
in
British Liver Trust
2 years ago
Advice re calcium, K2 and vit D
Blood tests show normal levels of calcium, should I now take extra given the pred.? Also how much Vit D and K vit, reading through I have managed to get confused. Today decided not to take AA until I have a dexa scan, which many on here have advised. Iron and VitB12 low (recently gone pescatarian,
Blood tests show normal levels of calcium, should I now take extra given the pred.? Also how much Vit D and K vit, reading through I have managed to get confused. Today decided not to take AA until I have a dexa scan, which many on here have advised. Iron and VitB12 low (recently gone pescatarian,
Fatsiajaponica
in
PMRGCAuk
2 months ago
Update from symptoms etc...
OK guys, to give you a bit of an update. Nurse from surgery called this afternoon and has asked me to do a weeks worth of BP readings, done at rest twice daily. I also have a blood test booked to recheck thyroid levels and dependant on results of BP could have an ECG too. Was expecting more of a follow
OK guys, to give you a bit of an update. Nurse from surgery called this afternoon and has asked me to do a weeks worth of BP readings, done at rest twice daily. I also have a blood test booked to recheck thyroid levels and dependant on results of BP could have an ECG too. Was expecting more of a follow
petsitter71
in
British Heart Foundation
2 months ago
Too little Pred?
hello all- new here and am still working to understand PMR. I have a ton of blood tests done and my father has RA. I just turned 50 and am a very active, flexible former gymnast. I work out 6 times a week and have done Pilates and/or yoga and elliptical daily. My symptoms came on quickly about 6 weeks
hello all- new here and am still working to understand PMR. I have a ton of blood tests done and my father has RA. I just turned 50 and am a very active, flexible former gymnast. I work out 6 times a week and have done Pilates and/or yoga and elliptical daily. My symptoms came on quickly about 6 weeks
Hwle
in
PMRGCAuk
2 months ago
MY REMEDIES FOR MY RLS
I haven't been on this site very often in the past few months... work, life and other things going on but mostly because I finally settled in and started 100 mg of Gabapentin at night and this has helped tremendously. I know 300 mg is the start dosage but 100 mg takes care of 90% of my night symptoms
I haven't been on this site very often in the past few months... work, life and other things going on but mostly because I finally settled in and started 100 mg of Gabapentin at night and this has helped tremendously. I know 300 mg is the start dosage but 100 mg takes care of 90% of my night symptoms
Reb0013
in
Restless Legs Syndrome
2 months ago
Sudden diagnosis of CKD3 a few months following adrenalectomy
My wife was borderline cushing's disease back in fall. For years she had a nodule on her adrenal gland that was creating significant health issues. Had surgery to remove the one gland back in November, and then was on a course of hydrocortisone for about 4 months (gradually decreasing dosage until done
My wife was borderline cushing's disease back in fall. For years she had a nodule on her adrenal gland that was creating significant health issues. Had surgery to remove the one gland back in November, and then was on a course of hydrocortisone for about 4 months (gradually decreasing dosage until done
three4rd
in
Kidney Disease
2 months ago
Complete Remission
My Complete Blood Count (CBC) results state the normal range for Lymphocytes is 850-3900 cells/uL. The NCCN CLL guidelines for Complete Remission (CR) states Lymphocytes must be less than 5000 cells/uL. Why is 5000 cells/uL an acceptable NCCN CLL CR level for Lymphocytes when the maximum for the Complete
My Complete Blood Count (CBC) results state the normal range for Lymphocytes is 850-3900 cells/uL. The NCCN CLL guidelines for Complete Remission (CR) states Lymphocytes must be less than 5000 cells/uL. Why is 5000 cells/uL an acceptable NCCN CLL CR level for Lymphocytes when the maximum for the Complete
leftysfsl1945
in
CLL Support
2 months ago
How rare is it to be diagnosed with PMR at age 45?
I am writing to ask advice from this excellent Forum which has been such a help to me in the 3 years since I was eventually diagnosed with PMR, having had a nightmare obtaining help and support due to Covid, lockdowns, lack of face to face appointments etc. My own journey remains a struggle, but I'm
I am writing to ask advice from this excellent Forum which has been such a help to me in the 3 years since I was eventually diagnosed with PMR, having had a nightmare obtaining help and support due to Covid, lockdowns, lack of face to face appointments etc. My own journey remains a struggle, but I'm
LeonardCohen
in
PMRGCAuk
2 months ago
Can b complex with biotin cause elevated T4?
Hello, I had to have a thyroid blood test due to imminent surgery so only had 3 days notice. I had stopped my b complex (PinkTribe liposomal b complex) 3 days before the test. The result of the T4 was 25 (11 - 21) whereas the test I had about 3 weeks ago at my Gp, when I had stopped the b complex,
Hello, I had to have a thyroid blood test due to imminent surgery so only had 3 days notice. I had stopped my b complex (PinkTribe liposomal b complex) 3 days before the test. The result of the T4 was 25 (11 - 21) whereas the test I had about 3 weeks ago at my Gp, when I had stopped the b complex,
Pinkpetite
in
Thyroid UK
2 months ago
Blood test help - trial T3 or get vitamins up first?
Please bear with the first part of this it is relevant: In late 2021 I was in a job which had become very stressful and was suffering some odd symptoms – in particular I tended to spike a fever for 12-24 hours with no obvious illness, low resting heart rate, very dry skin, extreme tiredness. I had the
Please bear with the first part of this it is relevant: In late 2021 I was in a job which had become very stressful and was suffering some odd symptoms – in particular I tended to spike a fever for 12-24 hours with no obvious illness, low resting heart rate, very dry skin, extreme tiredness. I had the
housefairy
in
Thyroid UK
2 months ago
Balance &memory
In the past 6 months ive noticed i have been forgetting silly things like the names of items & place names , along with items i need for my grocery shop. I am aware the menopause can get these symptoms of memory loss / confusion . i do not know if im the other side of this or still in it & GP wont even
In the past 6 months ive noticed i have been forgetting silly things like the names of items & place names , along with items i need for my grocery shop. I am aware the menopause can get these symptoms of memory loss / confusion . i do not know if im the other side of this or still in it & GP wont even
caz1967
in
Women's Health
2 months ago
"News of a potential blood test gives early diagnosis hope for Parkinson's" (RLS research needed?)
Researchers have developed a blood test to predict patients who would 'develop Parkinson’s - up to seven years before symptoms began'. Could similar research bring potential benefits for RLS? 'The markers were directly linked to inflammation and degradation of proteins and could be used to develop new
Researchers have developed a blood test to predict patients who would 'develop Parkinson’s - up to seven years before symptoms began'. Could similar research bring potential benefits for RLS? 'The markers were directly linked to inflammation and degradation of proteins and could be used to develop new
ChrisColumbus
in
Restless Legs Syndrome
2 months ago
Asimple blood test could predict Parkinson’s disease seven years before symptoms appear with 100% accuracy
https://www.msn.com/en-ca/health/other/major-breakthrough-in-battle-to-treat-and-prevent-parkinson-s/ar-BB1os1Ok
https://www.msn.com/en-ca/health/other/major-breakthrough-in-battle-to-treat-and-prevent-parkinson-s/ar-BB1os1Ok
Farooqji
in
Cure Parkinson's
2 months ago
Hashimoto's blood test and cortisol tests
I have been asked by my GP Surgery to provide them with the list of blood tests I believe are correct for a patient with Hashimoto's. I don't seem to be able to find it. Would someone be kind enough to show me where I may find it please? Is it the same as under active blood test or are there 'extras'
I have been asked by my GP Surgery to provide them with the list of blood tests I believe are correct for a patient with Hashimoto's. I don't seem to be able to find it. Would someone be kind enough to show me where I may find it please? Is it the same as under active blood test or are there 'extras'
D911
in
Thyroid UK
2 months ago
Blood Tests to show if Calcium is being absorbed into the bones and not elsewhere....
Does anyone know if there's blood test than can tell if the calcium supplements are in fact going to the right place ( the bones) and not being absorbed into the bloodstream, if so what's it called? I have been diagnosed, via the DEXA scan, with severe osteoporosis, but I don't understand the explanation
Does anyone know if there's blood test than can tell if the calcium supplements are in fact going to the right place ( the bones) and not being absorbed into the bloodstream, if so what's it called? I have been diagnosed, via the DEXA scan, with severe osteoporosis, but I don't understand the explanation
Cheerleader123
in
Bone Health and Osteoporosis UK
2 months ago
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