Experiences with

Heart valve diseases

Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking

Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read

Hi all! After seeing a cardiologist yesterday for the 3 month post Ablation check up....(just over a year after the procedure,) I'm told that during that procedure they found that I have a leak in one of the valves in my heart which has caused a slight murmer. Now, nobody told me any of this at the

Can anyone explain INR reading and their importance please? My wife needs to be at a 1.8 but is currently at a 1.6. They've put her on a shot to raise her level but we're not sure what that really means. We're very new to this new lifestyle change. 1 week ago she had mitral valve replacement. Thanks

Hello . I was diagnosed with mild to moderate MVR last November . No symptoms other than slight breathlessness . Yesterday on another echocardiogram I was informed I have AF - no symptoms at all . It has made me very anxious . Has anyone else experience of both ? I am 57 , very very fit , not overweight

Hi everyone , I had AF for about six years I was diagnosed after I was fond to have a leaky heart valve,I could manage my AF while I was only getting episodes say once a month but then once a week but for the last week I’m having them every day ,not sure how to cope ,perhaps some of you lovely people

Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake

Born with a bicuspid valve I guessed this day was coming…just not so soon! I will be 56 when they open my chest on August 15th. I would much rather have the TAVR procedure but at my age the long term planning doesn’t support that method at this time. So, OHD it is. I have significant procedural anxiety

my mother in law had open heart surgery 4 days ago, all went well heart is working well just a complication with kidneys and was put on dialysis but the kidneys slowly started to wake up, she hasn’t woke up from being sedated 4 days ago yet, she is unresponsive too, doctors have said about doing brain

I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.

hi all friendly people, went for my follow up Pulmonary appointment with consultant, LFT 40% Gained more weight and she was very happy advised to stay at 55.7kg or increase to 60kg much safer for surgery Have to go do Pulmonary Rehab for 6 weeks and then if all goes well will be deterred to multi

Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe

As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were

Good morning guys and gals.Hope everyone is as well as they can be. Well, here's the promised update from a couple of years ago but to be fair, nothing much had happened on the heart surgery front, I'd been in nsr and I have still been contributing replies. Settle down with a strong drink of choice,

I was diagnosed in 2018 with AF and prescribed bisoprolol and flecanide. Then I had a stroke in July 23. After 2 months I was finally allowed home. I had an episode of AF and was admitted for a 1 night stay where I was told I wasn't given apixaban due to y age of 38 at the time and being low risk. At

hi. Can anyone here give me some advice and hopefully some reassurance please. I’ve had AF since being diagnosed August 2022. First episode on the night coming home from a very strenuous and incident filled 2 week motor home ‘holiday’ in Scotland. Our first and probably our last. Not very restful!

Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA

CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem

I am 26 and on warfarin for a mechanical aortic valve inserted in April 23. I need to be tested very regularly, normally every 2 weeks atleast. It must be a blood test as the pin prick tests proved unreliable in my case. I spend hours and hours waiting at St Barts for a blood test which is where I am

Hi all, I'm just trying to get help with understanding how I should feel after the Op ? Does the values make a noise? Do you get to leave hospital after a week to recover at home? Also worried about taking that warfain for the rest of my life. I've been told very little about my illness. 1st