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Heart transplant
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Long time on wait list
Hoping to hear from people who waited a long time for a liver transplant. Husband has been on the list for 15 months now, and I'm not sure either of us can stand this much longer. He's been called once, about 3 months ago, so at least they haven't forgotten about him, but it's so hard watching him get
Hoping to hear from people who waited a long time for a liver transplant. Husband has been on the list for 15 months now, and I'm not sure either of us can stand this much longer. He's been called once, about 3 months ago, so at least they haven't forgotten about him, but it's so hard watching him get
Talpa120
in
British Liver Trust
2 years ago
How bad is it?
Does anyone understand BNP levels mine is 2963ng/L I think normal is between 0.0. 150. I think it indicates heart failure but not sure. Before I can have echocardiogram privately I need referral from GP who would you believe it is off sick!!
Does anyone understand BNP levels mine is 2963ng/L I think normal is between 0.0. 150. I think it indicates heart failure but not sure. Before I can have echocardiogram privately I need referral from GP who would you believe it is off sick!!
Florence-Nightingale
in
AF Association
2 years ago
nerve damage to the neck following open heart surgery
my husband had open heart surgery in June. He now has problems with his right hand and leg, we think a nerve may be trapped in his neck Anyone else experienced this please
my husband had open heart surgery in June. He now has problems with his right hand and leg, we think a nerve may be trapped in his neck Anyone else experienced this please
Cowans
in
British Heart Foundation
2 years ago
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Error with meds
Hi. I forgot to take my meds yesterday morning. Didn't realise until I felt strange and was about to take my evening meds at 10.30pm. So I took morning meds. I now need to take meds again in order to bring back to morning dose over two days. I am fine taking flecainide and blood thinner since I take
Hi. I forgot to take my meds yesterday morning. Didn't realise until I felt strange and was about to take my evening meds at 10.30pm. So I took morning meds. I now need to take meds again in order to bring back to morning dose over two days. I am fine taking flecainide and blood thinner since I take
Marilyn1959
in
AF Association
2 years ago
protecting against infection
Since I had my kidney transplant 2 years ago during Covid and I’m over 70 years old,I have had to be particularly careful about getting infections. Now that Covid is subsiding and people are going back to normal, I’m not sure how careful I need to continue to be. Before transplant, I had a robust immune
Since I had my kidney transplant 2 years ago during Covid and I’m over 70 years old,I have had to be particularly careful about getting infections. Now that Covid is subsiding and people are going back to normal, I’m not sure how careful I need to continue to be. Before transplant, I had a robust immune
ProudAmma
in
Kidney Transplant
2 years ago
Terrified
As per my previous post I’ve recently had lots of blood tests due to being tired all the time. I rang to see if the results were in and have been told the GP has referred me to Cardiologist for an echocardiogram. I hope to speak to GP in the morning subject to getting a telephone consultation. I have
As per my previous post I’ve recently had lots of blood tests due to being tired all the time. I rang to see if the results were in and have been told the GP has referred me to Cardiologist for an echocardiogram. I hope to speak to GP in the morning subject to getting a telephone consultation. I have
Florence-Nightingale
in
AF Association
2 years ago
17 days post quad bypass surgery
i use medical marijuana for chronic pain from 5 spinal fusion surgeries. been using this alone for 3 years. i am suffering from a combination of chronic and acute pain with my heart surgery . i have found using opioids and MMJ is making the present pain much easier to deal with. yesterday i went to the
i use medical marijuana for chronic pain from 5 spinal fusion surgeries. been using this alone for 3 years. i am suffering from a combination of chronic and acute pain with my heart surgery . i have found using opioids and MMJ is making the present pain much easier to deal with. yesterday i went to the
coral2222
in
British Heart Foundation
2 years ago
Daily use of metoprolol?
Hello, Recently diagnosed with afib, cardiologist prescribed blood thinner and metoprolol 50mg daily. Now, my BP is 120/80 , my resting heart rate is 55, and the frequency of my afib is every 8 to 10 days, I know this is a question for my cardiologist but I would like to know from the experience of
Hello, Recently diagnosed with afib, cardiologist prescribed blood thinner and metoprolol 50mg daily. Now, my BP is 120/80 , my resting heart rate is 55, and the frequency of my afib is every 8 to 10 days, I know this is a question for my cardiologist but I would like to know from the experience of
zxal0000
in
AF Association
2 years ago
NT-proBNP Level query
Trying to line up a few questions for a Cardio call in December and cannot seem to find this bit out. My last Se N-term pro BNP conc result was 444 ng/L, is this the same as pg/mL? It came back as abnormal with normal given as 0-400, I`m 66, so could I have Heart failure as no one has said I have.
Trying to line up a few questions for a Cardio call in December and cannot seem to find this bit out. My last Se N-term pro BNP conc result was 444 ng/L, is this the same as pg/mL? It came back as abnormal with normal given as 0-400, I`m 66, so could I have Heart failure as no one has said I have.
gentryman
in
AF Association
2 years ago
Did I have a misdiagnosed heart attack?
I went to the ED a while back for flu-like symptoms and fever after a surgery. They admitted me due to elevated troponin levels (243) and tachycardia at rest (118bpm). I had an EKG, echo, and chest xray, but was only told they looked "fine". I was eventually discharged with the one word diagnosis "pericarditis
I went to the ED a while back for flu-like symptoms and fever after a surgery. They admitted me due to elevated troponin levels (243) and tachycardia at rest (118bpm). I had an EKG, echo, and chest xray, but was only told they looked "fine". I was eventually discharged with the one word diagnosis "pericarditis
jpickens
in
Sudden Cardiac Arrest & Heart Attack
2 years ago
Preparations afoot for my stem cell transplant
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
Scaredy_cat
in
MPN Voice
1 year ago
Palpitations at night
I had a third ablation nearly three weeks ago and am in sinus rhythm, but I'm having trouble sleeping because of an uncomfortable thumping heart when I go to bed, that keeps me awake for a while, though it's OK in the mornings. After the ablation my consultant told me to halve my Bisoprolol dose,
I had a third ablation nearly three weeks ago and am in sinus rhythm, but I'm having trouble sleeping because of an uncomfortable thumping heart when I go to bed, that keeps me awake for a while, though it's OK in the mornings. After the ablation my consultant told me to halve my Bisoprolol dose,
bugswhiskers
in
AF Association
2 years ago
Preemptive kidney transplant experience and results
Everywhere I read, everyone agrees that a preemptive transplant from a living donor is the best you can hope for when you have stage 5 kidney failure. I would like to hear about your experience if you went through transplant before needing dyalisis. What were your GFR, your BUN and your creatinine
Everywhere I read, everyone agrees that a preemptive transplant from a living donor is the best you can hope for when you have stage 5 kidney failure. I would like to hear about your experience if you went through transplant before needing dyalisis. What were your GFR, your BUN and your creatinine
hope1419
in
Kidney Transplant
2 years ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
1 year ago
Sudden rise in Tacrolimus
I received a kidney transplant in July 2021. Everything has gone swimmingly. I caught a mild case of Covid at the end of July and received a multiclonal antibody infusion. When I went for my August bloodwork, my Tacrolimus trough, which had been running 5-7, was suddenly 9.6. When I did my bloodwork
I received a kidney transplant in July 2021. Everything has gone swimmingly. I caught a mild case of Covid at the end of July and received a multiclonal antibody infusion. When I went for my August bloodwork, my Tacrolimus trough, which had been running 5-7, was suddenly 9.6. When I did my bloodwork
ILMA54
in
Kidney Transplant
2 years ago
A Simple explanation of the inaccuracies of eGFR
Please note I don’t condone what they are preaching just hope this better explains why, as so many have wondered. Estimated GFR: time for a critical appraisalEsteban Porrini et al. Nat Rev Nephrol. 2019 Mar. Show details Abstract PubMed PMID Full text linksCiteErratum inAuthor Correction
Please note I don’t condone what they are preaching just hope this better explains why, as so many have wondered. Estimated GFR: time for a critical appraisalEsteban Porrini et al. Nat Rev Nephrol. 2019 Mar. Show details Abstract PubMed PMID Full text linksCiteErratum inAuthor Correction
Blackknight1989
in
Kidney Disease
2 years ago
Amlodipine Side Effects, short and long term
I am on 10mg amlodipine (this dosage was prescribed right off the bat) several years ago, to be taken with 100mg labetalol twice a day. I felt terrible at first but better now, though frequently tired. I'm wondering if these meds are too much and the cause of my fatigue (I am 69 y.o.) I am also being
I am on 10mg amlodipine (this dosage was prescribed right off the bat) several years ago, to be taken with 100mg labetalol twice a day. I felt terrible at first but better now, though frequently tired. I'm wondering if these meds are too much and the cause of my fatigue (I am 69 y.o.) I am also being
Cats8019
in
High Blood Pressure Support
2 years ago
Any help?
I am pretty much at my wits end with insomnia. My Father recently passed away, and I have struggled with ànxiety for many years. I actually live in Thailand, and have been seeing a psychiatrist for years, and I have been prescribed 0.5 MG clonazepam 2 times a day, and 2mg clonazepam at night, but
I am pretty much at my wits end with insomnia. My Father recently passed away, and I have struggled with ànxiety for many years. I actually live in Thailand, and have been seeing a psychiatrist for years, and I have been prescribed 0.5 MG clonazepam 2 times a day, and 2mg clonazepam at night, but
patez
in
Mental Health Support
2 years ago
Today is #WorldHeartDay ❤️
Today is #WorldHeartDay, the perfect time to register for our upcoming online educational event ❤️ From 14 October, join us and other patients from all over the world for #PatientsDay2022! Receive access to the latest patient information from the Arrhythmia Experts. Highlights of the event will include
Today is #WorldHeartDay, the perfect time to register for our upcoming online educational event ❤️ From 14 October, join us and other patients from all over the world for #PatientsDay2022! Receive access to the latest patient information from the Arrhythmia Experts. Highlights of the event will include
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
2 years ago
Are Anticoagulants necessary?
I was diagnosed with PAF over two years ago following two episodes of fast AF which lasted for less than six hours. I was given IV Metoprolol in A&E and discharged on Bisoprolol 1.25mg daily. I have been well and active since but my cardiologist is keen for me to take anticoagulants as my CHADsVASc
I was diagnosed with PAF over two years ago following two episodes of fast AF which lasted for less than six hours. I was given IV Metoprolol in A&E and discharged on Bisoprolol 1.25mg daily. I have been well and active since but my cardiologist is keen for me to take anticoagulants as my CHADsVASc
anxiousgran
in
AF Association
2 years ago
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