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5 years of Sinemet and Dyskinesia
I've been diagnosed PD 5 years. Slowed a little and stiffèned a little. No tremor. Ìm concerned about sinemet side effects. I use diet and physical activity to help symptoms. I take1 siñemet in a day if I'm about to undertake an arduous activity otherwise none. I am quite happy with this regime for
I've been diagnosed PD 5 years. Slowed a little and stiffèned a little. No tremor. Ìm concerned about sinemet side effects. I use diet and physical activity to help symptoms. I take1 siñemet in a day if I'm about to undertake an arduous activity otherwise none. I am quite happy with this regime for
CuriousMe12
in
Cure Parkinson's
1 year ago
sinemet
I take 20 sinemet tablets a day. Does anyone else take this many? to what benefit?
I take 20 sinemet tablets a day. Does anyone else take this many? to what benefit?
Parklove
in
Multiple System Atrophy Trust
1 year ago
Levodopa absorption
having a third trial with Sinemet. It worked well for right leg tremor for three years since diagnosis. Neuro said my brain changed and it stopped working. Tremor came back with depression and anxiety. Mood is much better since Vilazadone added. I’ve been on Neupro patch for 8 months and my motor symptoms
having a third trial with Sinemet. It worked well for right leg tremor for three years since diagnosis. Neuro said my brain changed and it stopped working. Tremor came back with depression and anxiety. Mood is much better since Vilazadone added. I’ve been on Neupro patch for 8 months and my motor symptoms
Hidden
in
Cure Parkinson's
1 year ago
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Anyone out there trying the Dr. Tass Vibratory therapy with a board or gloves?
Hello, I built a buzz board using an Arduino controller. I have been using it every day for about three weeks for about 1-2 hours a day. I have noticed some positive effects but don’t know where to start cutting my med (Sinemet). It seems I get more “Time on”, and even mental clarity, but it has
Hello, I built a buzz board using an Arduino controller. I have been using it every day for about three weeks for about 1-2 hours a day. I have noticed some positive effects but don’t know where to start cutting my med (Sinemet). It seems I get more “Time on”, and even mental clarity, but it has
Tryguy
in
Cure Parkinson's
1 year ago
Thinning hair when taking Sinemet
My wife has PSP and has been taking Levadopa brand name Sinemet for nearly a year but currently on a low dosage. For many months her hair has been getting thinner and thinner. I have just been advised that this is a reasonably common side effect of taking the drugs. I also understand that if you come
My wife has PSP and has been taking Levadopa brand name Sinemet for nearly a year but currently on a low dosage. For many months her hair has been getting thinner and thinner. I have just been advised that this is a reasonably common side effect of taking the drugs. I also understand that if you come
Wombatz
in
PSP Association
1 year ago
Safinamide
hello I was diagnosed with PD in Nov 2019 and in May 2020 my right hand tremor was getting hard to tolerate as its amplitude had increased and it moved to include my left leg and chin. In May 2020, somewhat anxiously, I started on 1 yellow pill (Sinemet plus) at 8am, 1pm, and 6pm. Within 4-8 weeks
hello I was diagnosed with PD in Nov 2019 and in May 2020 my right hand tremor was getting hard to tolerate as its amplitude had increased and it moved to include my left leg and chin. In May 2020, somewhat anxiously, I started on 1 yellow pill (Sinemet plus) at 8am, 1pm, and 6pm. Within 4-8 weeks
Tomkins
in
Cure Parkinson's
1 year ago
mucuna or sinemet?
why should it be different to take levodopa from mucuna or take it from sinemet? Isn't it the same chemical formula? L-DOPA/Formula : C9H11NO4
why should it be different to take levodopa from mucuna or take it from sinemet? Isn't it the same chemical formula? L-DOPA/Formula : C9H11NO4
michelagvolpe
in
Cure Parkinson's
1 year ago
Parkinson’s and Cat’ Claw
I have PD for 12 years, I have tried about 35 different supplements with unclear results Doing better with Cat’s Claw one spoon daily (included in jar) and WorX stem cell support Was able to decease Sinemet from qid to tid Better sleep Improved constipationp Less tremors
I have PD for 12 years, I have tried about 35 different supplements with unclear results Doing better with Cat’s Claw one spoon daily (included in jar) and WorX stem cell support Was able to decease Sinemet from qid to tid Better sleep Improved constipationp Less tremors
healthyheart7
in
Cure Parkinson's
1 year ago
PD Meds Not Working
Anyone out there been unable to tolerate PD meds? I was diagnosed in 2019 and my MDS prescribed the standard carb/levodopa and it made my symptoms worse. So I started taking a variety of supplements and that was working until recently when my symptoms got worse. My MDS put me on Sinemet and my symptoms
Anyone out there been unable to tolerate PD meds? I was diagnosed in 2019 and my MDS prescribed the standard carb/levodopa and it made my symptoms worse. So I started taking a variety of supplements and that was working until recently when my symptoms got worse. My MDS put me on Sinemet and my symptoms
PeggyDay
in
Cure Parkinson's
1 year ago
Transitioning off pramipexole
I keep reading the absolute hell many people experience transitioning from pramipexole (or some other drug) to gabapentin. The worst seems to be when one is essentially finished with pramipexole but have taken very little gabapentin. My question is this: why can't you transition off pramipexole by
I keep reading the absolute hell many people experience transitioning from pramipexole (or some other drug) to gabapentin. The worst seems to be when one is essentially finished with pramipexole but have taken very little gabapentin. My question is this: why can't you transition off pramipexole by
robertff3401
in
Restless Legs Syndrome
1 year ago
sinemet duration
I’ve been taking sinemet for 14 years, I started at the time of my dx taking 1 pill every 4-5 hours for probably the first 10 years or so and then began taking a little more a little closer together and today I take 1 1/2 pills every 3 hours starting at 6:30 am and taking my last dose of the day at 3
I’ve been taking sinemet for 14 years, I started at the time of my dx taking 1 pill every 4-5 hours for probably the first 10 years or so and then began taking a little more a little closer together and today I take 1 1/2 pills every 3 hours starting at 6:30 am and taking my last dose of the day at 3
Mimi828
in
Cure Parkinson's
1 year ago
Parkinsons? Or not?
My husband Peter has had a cervical spinal cord injury for 11 years now. This badly affects his mobility, upper body and hand function. He suffers from spasticity and very tight muscles. He can walk with aids but uses a wheelchair outdoors. Some months ago he started getting dizziness/lightheadedness
My husband Peter has had a cervical spinal cord injury for 11 years now. This badly affects his mobility, upper body and hand function. He suffers from spasticity and very tight muscles. He can walk with aids but uses a wheelchair outdoors. Some months ago he started getting dizziness/lightheadedness
Mo51
in
Cure Parkinson's
1 year ago
DBS and Sinemet
I had the DBS surgery last October. After DBS, Sinemet made my PD symptoms worse...especially balance (It's like I am constantly falling forward and my legs are trying to keep up). I told my neurologist about it and she thought is odd that Sinemet would do that. I feel better without the Sinemet.
I had the DBS surgery last October. After DBS, Sinemet made my PD symptoms worse...especially balance (It's like I am constantly falling forward and my legs are trying to keep up). I told my neurologist about it and she thought is odd that Sinemet would do that. I feel better without the Sinemet.
DeanGreen
in
Cure Parkinson's
1 year ago
Two part question about really bad "OFF" time.
My wife is experiencing some horrible symptoms, starting with her mouth. Lots of puckering. lip smacking, tongue tapping and clicking from the pallet, and the tongue feels like it is numb and burning on the sides. She often feels like she can't maneuver her mouth, making swallowing very difficult.
My wife is experiencing some horrible symptoms, starting with her mouth. Lots of puckering. lip smacking, tongue tapping and clicking from the pallet, and the tongue feels like it is numb and burning on the sides. She often feels like she can't maneuver her mouth, making swallowing very difficult.
manoa
in
Cure Parkinson's
1 year ago
Miraculous Story of a person who underwent stem cell transplant in 1999
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
Farooqji
in
Cure Parkinson's
1 year ago
PSP “ offered”me one-day lull - just one day!
Hi, Everyone!Some weeks ago I wake up in the morning without feeling any of the symptoms of PSP. No freezing of gait, nothing. I felt myself a completely new person, the way I was when Many years before. Unfortunately this event only last for one single day. I will speak about this next consultations
Hi, Everyone!Some weeks ago I wake up in the morning without feeling any of the symptoms of PSP. No freezing of gait, nothing. I felt myself a completely new person, the way I was when Many years before. Unfortunately this event only last for one single day. I will speak about this next consultations
BluesHealer
in
PSP Association
1 year ago
Pramipexole to Sinemet to ?
I've previously posted that I had been using pramipexole (P) for over 30 years, had only learned about augmentation recently and was in the process of transitioning off P to Sinemet (S)(recommended by my PCP). The transition went very well, however, an allergic reaction to S (a rash developed) made
I've previously posted that I had been using pramipexole (P) for over 30 years, had only learned about augmentation recently and was in the process of transitioning off P to Sinemet (S)(recommended by my PCP). The transition went very well, however, an allergic reaction to S (a rash developed) made
robertff3401
in
Restless Legs Syndrome
1 year ago
Allergic Reaction to Sinemet?
I posted previously that after being on Pramipexole for over 30 years, I, at the direction of my PCP, completed about 2 weeks ago a transition over an 8 week period from P to Sinemet (100 carbidopa-200 levodopa). The transition went smoothly and I am now on two tablets, one taken at 3 pm and a second
I posted previously that after being on Pramipexole for over 30 years, I, at the direction of my PCP, completed about 2 weeks ago a transition over an 8 week period from P to Sinemet (100 carbidopa-200 levodopa). The transition went smoothly and I am now on two tablets, one taken at 3 pm and a second
robertff3401
in
Restless Legs Syndrome
1 year ago
Stopping Azilect to change to Macuna? I need help.
Dopamine agonists worsen RLS over time (proven) and I believe in my case may have caused it. Finding this out has changed my opinion of Azilect. I was hopeful it might be Neuroprotective because of it being a Mao-B inhibitor but, it’s causing worsened RLS is the antithesis of Neuroprotective. (On a
Dopamine agonists worsen RLS over time (proven) and I believe in my case may have caused it. Finding this out has changed my opinion of Azilect. I was hopeful it might be Neuroprotective because of it being a Mao-B inhibitor but, it’s causing worsened RLS is the antithesis of Neuroprotective. (On a
Little_apple
in
Cure Parkinson's
1 year ago
Transitioning off pramapezole
I am 90 years old and have been on pramipexole for over 30 years. Although I was aware that the pramipexole was becoming less effective (I had gone from 0.25 mg/day to 1.0 mg/day over those 30 years), I had done almost no research on RLS and was unaware of augmentation. Then I discovered this website
I am 90 years old and have been on pramipexole for over 30 years. Although I was aware that the pramipexole was becoming less effective (I had gone from 0.25 mg/day to 1.0 mg/day over those 30 years), I had done almost no research on RLS and was unaware of augmentation. Then I discovered this website
robertff3401
in
Restless Legs Syndrome
1 year ago
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