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Pd, prostate and back
Hi I've had pd 15 years. Had back decompression operation March 2017, further back operation August 2017. Had them done privately, mainly because NHS in UK makes no concessions to my pd, refuses to treat the whole person and wouldn't let my wife give me strictly-timed pd drugs. To add to my problems
Hi I've had pd 15 years. Had back decompression operation March 2017, further back operation August 2017. Had them done privately, mainly because NHS in UK makes no concessions to my pd, refuses to treat the whole person and wouldn't let my wife give me strictly-timed pd drugs. To add to my problems
John3419
in
Cure Parkinson's
7 years ago
Arm swing
I am very concerned about my arm swing. I began Sinemet 100 mgrs 1-1-1 with no effect after 3 weeks. Have you recovered your arm swing after treatment?
I am very concerned about my arm swing. I began Sinemet 100 mgrs 1-1-1 with no effect after 3 weeks. Have you recovered your arm swing after treatment?
MGP201
in
Cure Parkinson's
7 years ago
Dual Diagnosis?
I'm new here and I'm writing about my sister. She has both bipolar and Parkinsons and was diagnosed with the latter 3 years ago. She was getting better. Now she seems worse. She supposedly has one of the best neurologists in the country associated with the U of M in Miami, FL. She's been trying
I'm new here and I'm writing about my sister. She has both bipolar and Parkinsons and was diagnosed with the latter 3 years ago. She was getting better. Now she seems worse. She supposedly has one of the best neurologists in the country associated with the U of M in Miami, FL. She's been trying
aloha24
in
Cure Parkinson's
7 years ago
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Sinemet shortage
I recently went to the pharmacy to pick up my medication, in which I usually get a 90 days supply, but the pharmacist told me that I can only have a 30 day supply because of the extreme shortage of Sinemet. Has anyone else experienced this, and is it possibly because there are more people being diagnosed
I recently went to the pharmacy to pick up my medication, in which I usually get a 90 days supply, but the pharmacist told me that I can only have a 30 day supply because of the extreme shortage of Sinemet. Has anyone else experienced this, and is it possibly because there are more people being diagnosed
jt12
in
Cure Parkinson's
7 years ago
I have PD and dystonia. These two movement disorders seem to work against each other.
Sinemet for PD triggers dystonic twisting and pain from muscle spasms in my neck and right upper extremities
Sinemet for PD triggers dystonic twisting and pain from muscle spasms in my neck and right upper extremities
Karenjowi
in
Cure Parkinson's
7 years ago
One of the best articles I have seen on sinemet and its side effects. It covers it all and explains it. Also requip and mirapex
http://mentalhealthdaily.com/2016/02/11/sinemet-carbidopa-levodopa-side-effects-adverse-reactions-list/ At the end of the article there's a link for the same kind of information on requip and mirapex
http://mentalhealthdaily.com/2016/02/11/sinemet-carbidopa-levodopa-side-effects-adverse-reactions-list/ At the end of the article there's a link for the same kind of information on requip and mirapex
parkie13
in
Cure Parkinson's
7 years ago
invlountary movment and parkinson medicines
hello i take sinemet & paraximole after i took sinemet i start with invlountary movment wich continue up to 1 hour can the time of dystonia increase in the future while im using sinemet or its just one hour after using the sinemet does change the time of the medicine is useful ..
hello i take sinemet & paraximole after i took sinemet i start with invlountary movment wich continue up to 1 hour can the time of dystonia increase in the future while im using sinemet or its just one hour after using the sinemet does change the time of the medicine is useful ..
jack-carpenter
in
Cure Parkinson's
7 years ago
Reason for taking sinemet
I am calling for response to your experience with sinemet. I was prescribed lowest strength to be taken 3 x a day. I have a tremor dominant form. I find the med does not reduce the tremor plus it makes me feel dizzy and nauseous and tired even though I only take half a pill. If I skip a day I don't
I am calling for response to your experience with sinemet. I was prescribed lowest strength to be taken 3 x a day. I have a tremor dominant form. I find the med does not reduce the tremor plus it makes me feel dizzy and nauseous and tired even though I only take half a pill. If I skip a day I don't
racerCP
in
Cure Parkinson's
7 years ago
Mild Parkinson Syndrome
I was diagnosed with above at Mayo clinic last year. No meds but must exercise. Lately experience stiff legs. My neurologist asked if I wanted to try sinemet. So, I have the prescription and plan to take. He said take one pill day for one month then two a day. Anyone else NOT on meds. Anyone diagnosed
I was diagnosed with above at Mayo clinic last year. No meds but must exercise. Lately experience stiff legs. My neurologist asked if I wanted to try sinemet. So, I have the prescription and plan to take. He said take one pill day for one month then two a day. Anyone else NOT on meds. Anyone diagnosed
Mary1208
in
Cure Parkinson's
7 years ago
marijuana
My husband with Parkinson's has days when he feels totally as though he has hit a wall.(on a camping trip he woke up thinking he was being bombed by North Korea during such an event) It seems to be stress related. He walks around confused and has trouble breathing.Last night he couldn't relax.this had
My husband with Parkinson's has days when he feels totally as though he has hit a wall.(on a camping trip he woke up thinking he was being bombed by North Korea during such an event) It seems to be stress related. He walks around confused and has trouble breathing.Last night he couldn't relax.this had
rhyspeace12
in
Cure Parkinson's
7 years ago
AOSD - Read what it did to my wife
Hi, where do I start. My wife for a long time has had recurrent Lung Infections, Pneumonia, Pleurisy etc. In 2013 she was unable to work for 6 months due to Pleurisy and that is where this story begins. Investigations began as to how a young woman (39 at the time) kept getting chest infections. My
Hi, where do I start. My wife for a long time has had recurrent Lung Infections, Pneumonia, Pleurisy etc. In 2013 she was unable to work for 6 months due to Pleurisy and that is where this story begins. Investigations began as to how a young woman (39 at the time) kept getting chest infections. My
AOSD
in
NRAS
7 years ago
Droopy eyelid and sinemet
I've been on sinemet for about a month and it works well. However, my left eyelid now has a droop to it. Could this be from the Sinemet? Will it go away now that I'm on the neupro patch? (Trying it for the first time today. Not optimistic.) Anyway, just curious about the eyelid droop. I think
I've been on sinemet for about a month and it works well. However, my left eyelid now has a droop to it. Could this be from the Sinemet? Will it go away now that I'm on the neupro patch? (Trying it for the first time today. Not optimistic.) Anyway, just curious about the eyelid droop. I think
Ikeeptrying
in
Restless Legs Syndrome
7 years ago
Rotigotine patch
My Neurologist has advised me to have a Rotigotine Patch increased to 4mg after two weeks, I already take Sinemet plus 25/100 , any thoughts on this, Many thanks for any advice.
My Neurologist has advised me to have a Rotigotine Patch increased to 4mg after two weeks, I already take Sinemet plus 25/100 , any thoughts on this, Many thanks for any advice.
ramondo4
in
Cure Parkinson's
7 years ago
How getting a pneumonia vaccination has led to unstable PD treatment for me
My internist reminded that I hadn't had a pneumonia vaccination since 2004 and I am about 69 years old and at risk due to PD, the aspiration issue. I got the damn vaccination and then 2 days later I had a hot swollen red area on my arm below the IM injecton site that the doctor diagnosed cellulitis a
My internist reminded that I hadn't had a pneumonia vaccination since 2004 and I am about 69 years old and at risk due to PD, the aspiration issue. I got the damn vaccination and then 2 days later I had a hot swollen red area on my arm below the IM injecton site that the doctor diagnosed cellulitis a
BUZZ1397
in
Cure Parkinson's
7 years ago
instant release sinemet
A while back someone posted how they crushed a sinemet tablet and took it with something to get a quicker release. When my hubby forgets to take his meds and goes into "off time" it takes him about a hour and 1/2 after taking his med to get back "on". Anone remember the post. I can't find it Thanks
A while back someone posted how they crushed a sinemet tablet and took it with something to get a quicker release. When my hubby forgets to take his meds and goes into "off time" it takes him about a hour and 1/2 after taking his med to get back "on". Anone remember the post. I can't find it Thanks
cjsg
in
Cure Parkinson's
7 years ago
Shortnese of breath
Please, help me. I have shortness of breath. I almost can not breath. What medicine can I use? I do not know for Shure it is belong to PD? I PD patient from 2009, I take 2 sinemet 25-100- regular and ER, every 2 hours. Amantodine, bavlofen and Benadril 1 tablet ervery 4 hours Thank you
Please, help me. I have shortness of breath. I almost can not breath. What medicine can I use? I do not know for Shure it is belong to PD? I PD patient from 2009, I take 2 sinemet 25-100- regular and ER, every 2 hours. Amantodine, bavlofen and Benadril 1 tablet ervery 4 hours Thank you
Natalia2
in
Thyroid UK
7 years ago
Mucuna + Xadago - safe to take together?
Hello -- apologies for the cross posting as I will also be listing this on Neurotalk. Does anyone know whether it is safe to take mucuna powder and Xadago at the same time? Or if not at the exact same moment, to be on both substances at the same time (eg taking Xadago once per day and taking mucuna
Hello -- apologies for the cross posting as I will also be listing this on Neurotalk. Does anyone know whether it is safe to take mucuna powder and Xadago at the same time? Or if not at the exact same moment, to be on both substances at the same time (eg taking Xadago once per day and taking mucuna
rainbow676
in
Cure Parkinson's
7 years ago
Side effects of madopar
Have just been prescribed madopar to help with the symptoms of " off" periods in addition to Sinemet and azilect .is madopar really helping the symptoms and any side effects
Have just been prescribed madopar to help with the symptoms of " off" periods in addition to Sinemet and azilect .is madopar really helping the symptoms and any side effects
Keinan
in
Cure Parkinson's
7 years ago
Dangers of neupro patch
Dx'd at 27 Started 4 mg nuepro patch 3 years ago when I was 36 Side effects were extreme Impulse control disorder issues big time Major behavioral changes Experienced extreme hypomania (bipolar disorder)symptoms Quit using nuepro patch year and half after starting it Went through over a
Dx'd at 27 Started 4 mg nuepro patch 3 years ago when I was 36 Side effects were extreme Impulse control disorder issues big time Major behavioral changes Experienced extreme hypomania (bipolar disorder)symptoms Quit using nuepro patch year and half after starting it Went through over a
k100
in
Cure Parkinson's
7 years ago
Problems with breathing
I wonder if anybody has sudden episodes of feeling out of breath Is this the result of sinemet wearing off or too much of it
I wonder if anybody has sudden episodes of feeling out of breath Is this the result of sinemet wearing off or too much of it
Julia0710
in
Cure Parkinson's
7 years ago
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