Pd, prostate and back: Hi I've had pd 1... - Cure Parkinson's

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Pd, prostate and back

John3419 profile image
5 Replies

Hi

I've had pd 15 years. Had back decompression operation March 2017, further back operation August 2017. Had them done privately, mainly because NHS in UK makes no concessions to my pd, refuses to treat the whole person and wouldn't let my wife give me strictly-timed pd drugs.

To add to my problems, the urology dept. here have found an enlarged prostate. Bladder is ok as they established using a painful cystometrogram test, but they (being a dept. of young men) had no idea of the discomfort such tests cause me for weeks.

Getting to the point, they want to do a biopsy of the prostate to establish it is non-cancerous. My question is: is it necessary? Most men carry prostate cancer with them to the grave. I'm tired of being messed-about with, and would prefer 5 good years to 10 crappy ones (there's a high risk of infection doing a biopsy).

The other thing is: any solutions to incontinence? Using tena pants at present but my poor wife hit 'overload' weeks ago. Hopefully if I tell the urologists I'm not having a biopsy they'll just give me pills or something to shrink the prostate?

Finally, anyone have experience with Madopar CR?

The parkinsons specialist reckons this will give me more time at night (currently using Toviaz) but I've noticed I've started freezing a lot and wonder if this could be due to Madopar??Many many thanks for replies

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John3419
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laglag profile image
laglag

My 84 yr old dad doesn't have PD, I do, but he had an enlarged prostrate and it was causing his bladder to hold urine and he was going a lot, but small amounts, so he had laser surgery in March to shrink it and it worked wonders. He was in the ihospital one night and had very little pain, if any. He was very apprehensive, but said it was the best thing he ever did. Hope this helps. We live in the US.

John3419 profile image
John3419 in reply tolaglag

Hi laglag

Thanks for the reply. I like the sound of laser surgery - but dont forget I am in the good old uk! Could I ask which country you reside in and approx. cost of the treatment? Thanks in anticipatio!

laglag profile image
laglag in reply toJohn3419

We live in the United States in the state of Indiana. Insurance paid for everything. I will ask my dad if he saw the cost of the operation but unfortunately, I imagine it was quite expensive. In the UK, do you have to pay for your meds?

park_bear profile image
park_bear

What is your PSA? (prostate specific antigen established by blood test)

Enlarged prostate is common and not a good indication of prostate cancer.

Prostate biopsy without proper equipment is shooting in the dark and inappropriate.

The proper equipment is ultrasound with color doppler augmentation to detect inappropriate vascularization. Here is an example:

google.com/imgres?imgurl=ht...

Targeted biopsy of suspicious areas makes sense. If early stage cancer is found you should consider minimally invasive treatments such as cryotherapy which leave continence and potency intact: pioa.org/about-prostate-can...

Jennyjenny2 profile image
Jennyjenny2

RECIPE TO SHRINK PROSTATE This recipe was given to us and worked for a friend of ours.

1/2 litre water

1 clove grated garlic

1/2 knob grated ginger

1/2 teasp turmeric powder

1/2 teasp ground cloves

Simmer for 5 mins, leave to cool for 5 mins, strain then add 1/2 teasp honey.

Makes 2 glasses - drink 1 glass per day in the morning.

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