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Golimumab
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Greetings from a newbie
Hi All, I’ve just joined this forum today whilst carrying out research for a documentary I’m producing on Lupus. I will give more information on another specific Post, but for now I‘d like to introduce myself. Firstly, I hope everyone is keep well at this difficult time for all – and more so for
Hi All, I’ve just joined this forum today whilst carrying out research for a documentary I’m producing on Lupus. I will give more information on another specific Post, but for now I‘d like to introduce myself. Firstly, I hope everyone is keep well at this difficult time for all – and more so for
SurferGuy
in
LUPUS UK
4 years ago
Anca vasculitis
Hi, I have anca vasculitis which started with a rash on my legs and arms in 2018 and now it has progressed and now have it in my lungs, on a high dosage of prednisone, 2 weeks of 60mg and now reduced to 40mg, until the doctors start me on other meds, Have been offered to do a trial if I qualify using
Hi, I have anca vasculitis which started with a rash on my legs and arms in 2018 and now it has progressed and now have it in my lungs, on a high dosage of prednisone, 2 weeks of 60mg and now reduced to 40mg, until the doctors start me on other meds, Have been offered to do a trial if I qualify using
Cookyboy1
in
Vasculitis UK
4 years ago
New Phase 3 Study Shows Positive Results for Benlysta® in Lupus Nephritis
December 17, 2019 The Lupus Research Alliance is thrilled to share exciting news from GSK that Benlysta (belimumab) demonstrated positive clinical trial results in treating lupus nephritis (LN), a common complication of lupus causing inflammation of the kidneys that can result in end-stage kidney disease
December 17, 2019 The Lupus Research Alliance is thrilled to share exciting news from GSK that Benlysta (belimumab) demonstrated positive clinical trial results in treating lupus nephritis (LN), a common complication of lupus causing inflammation of the kidneys that can result in end-stage kidney disease
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
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Treatment options, immunosuppressants..any ideas, suggestions or experiences pls....
Hi, I have tried azathioprine twice with no luck as my liver didnt like it and now I'm on mycophenolate 4 tablets daily, tried 5 but it dropped my immune system too low so 4 is the maximum I can tolerate but my disease just isnt well enough controlled and I'm having too much joint pain and general fatigue
Hi, I have tried azathioprine twice with no luck as my liver didnt like it and now I'm on mycophenolate 4 tablets daily, tried 5 but it dropped my immune system too low so 4 is the maximum I can tolerate but my disease just isnt well enough controlled and I'm having too much joint pain and general fatigue
Sara_A
in
LUPUS UK
4 years ago
Are you due to receive a biologic therapy in the next two weeks? Would you be happy to appear on TV?
Hi everyone, We've been contacted by a producer who is working on a Channel 4 programme for the documentary series, Dispatches. The programme is investigating how a potential US-UK trade deal could affect the availability of biologic treatments on the NHS. As part of the show, they would like to feature
Hi everyone, We've been contacted by a producer who is working on a Channel 4 programme for the documentary series, Dispatches. The programme is investigating how a potential US-UK trade deal could affect the availability of biologic treatments on the NHS. As part of the show, they would like to feature
Paul_Howard
LUPUS UK
in
LUPUS UK
5 years ago
Golimumab and leflunomide
I inject
golimumab
monthly and take 20mg leflunomide daily for psoriatic and osteoporosis. Also drugs alingside these because of the side effects. I've only been on
golimumab
for 6 months after benepali failed for some reason. 7 months ago I lost my dad and soulmate.
I inject
golimumab
monthly and take 20mg leflunomide daily for psoriatic and osteoporosis. Also drugs alingside these because of the side effects. I've only been on
golimumab
for 6 months after benepali failed for some reason. 7 months ago I lost my dad and soulmate.
Nicky_C
in
NRAS
5 years ago
Want to Stop Taking Methotrexate with Simponi (Golimumab)
Has anybody stopped taking Methotrexate when they are also on Simponi? I am currently on 25mg Methotrexate and for 2 days after I take it I feel terrible. I have stopped Methotrexate for 2 weeks now and feel so much better.
Has anybody stopped taking Methotrexate when they are also on Simponi? I am currently on 25mg Methotrexate and for 2 days after I take it I feel terrible. I have stopped Methotrexate for 2 weeks now and feel so much better.
Dingaan
in
NRAS
5 years ago
Fatigue in patients with systemic lupus erythematosus (SLE) is real.
Fatigue in patients with systemic lupus erythematosus (SLE) has been linked to anti-NR2 antibodies, which responds to treatment with belimumab, a study shows. (©ArtemidaPsy,Shutterstock.com) Whitney J. Palmer June 24, 2019 Patients with systemic lupus erythematosus (SLE) who have higher levels of
Fatigue in patients with systemic lupus erythematosus (SLE) has been linked to anti-NR2 antibodies, which responds to treatment with belimumab, a study shows. (©ArtemidaPsy,Shutterstock.com) Whitney J. Palmer June 24, 2019 Patients with systemic lupus erythematosus (SLE) who have higher levels of
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
New therapies for systemic lupus erythematosus - past imperfect, future tense
Source:
Nat Rev Rheumatol
New therapies for systemic lupus erythematosus - past imperfect, future tense; Murphy G, Isenberg D; Nature Reviews Rheumatology (Jun 2019) Tags: belimumab Lupus rituximab The failure of many new, mostly biologic, drugs to meet their primary end points in double-blind
Source:
Nat Rev Rheumatol
New therapies for systemic lupus erythematosus - past imperfect, future tense; Murphy G, Isenberg D; Nature Reviews Rheumatology (Jun 2019) Tags: belimumab Lupus rituximab The failure of many new, mostly biologic, drugs to meet their primary end points in double-blind
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Anyone used Belimumab to suppress their APS?
My new rheumatologist mentioned Rituximab (which I had a bad experience w/ in 2006), Plaquenil, and Belimumab as possible drugs to suppress my Lupus Anticoagulant. Anyone heard of it or tried it? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3198539/
My new rheumatologist mentioned Rituximab (which I had a bad experience w/ in 2006), Plaquenil, and Belimumab as possible drugs to suppress my Lupus Anticoagulant. Anyone heard of it or tried it? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3198539/
Holley
in
Hughes Syndrome APS Forum
5 years ago
4 Strikes (Biologics) and You're Out
I'm hoping like mad
Golimumab
works because if it doesn't I was under the wrong impression we could try other biologics until 1 worked for me. The alternative is for me to get worse or have to pay privately which will hit me hard. I look forward to hearing your comments.
I'm hoping like mad
Golimumab
works because if it doesn't I was under the wrong impression we could try other biologics until 1 worked for me. The alternative is for me to get worse or have to pay privately which will hit me hard. I look forward to hearing your comments.
Dingaan
in
NRAS
5 years ago
BEAT-Lupus Clinical Trial - Now Recruiting
Hi everyone, Researchers from the National Institute for Health Research (NIHR) are asking for people with systemic lupus erythematosus to consider joining a clinical trial that is testing a combination of rituximab and belimumab as a treatment for the disease. Professor Mike Ehrenstein, University College
Hi everyone, Researchers from the National Institute for Health Research (NIHR) are asking for people with systemic lupus erythematosus to consider joining a clinical trial that is testing a combination of rituximab and belimumab as a treatment for the disease. Professor Mike Ehrenstein, University College
Paul_Howard
LUPUS UK
in
LUPUS UK
6 years ago
Looking for advice please
Hello, I was diagnosed with SLE lupus overlap disease, raynauds and arthritis after the birth of my daughter nearly 5 years ago. I have tried and been on a combination of Methotrexate, mycophenolate, hydroxychloroquin (maximum dose), prednisolone, IV Epoprostenol infusion, amlopodene, sildenafil (maximum
Hello, I was diagnosed with SLE lupus overlap disease, raynauds and arthritis after the birth of my daughter nearly 5 years ago. I have tried and been on a combination of Methotrexate, mycophenolate, hydroxychloroquin (maximum dose), prednisolone, IV Epoprostenol infusion, amlopodene, sildenafil (maximum
Lisagill
in
LUPUS UK
6 years ago
Belimumab and Rituximab combo
Hello! I have SLE which and my rheumy has recently suggested Rituximab and Belimumab infusions combo (Rituxi every 6 months with Belimumab as maintenance in between, taken monthly). Has anyone had this done and what was your experience like? I am having a bad period of flare ups this year including many
Hello! I have SLE which and my rheumy has recently suggested Rituximab and Belimumab infusions combo (Rituxi every 6 months with Belimumab as maintenance in between, taken monthly). Has anyone had this done and what was your experience like? I am having a bad period of flare ups this year including many
LydiaG
in
LUPUS UK
6 years ago
Current and future therapies for SLE: obstacles and recommendations for the development of novel treatments
Current and future therapies for SLE: obstacles and recommendations for the development of novel treatments
Zahi Touma and Dafna D Gladman Author affiliations Centre for Prognosis Studies in the Rheumatic Diseases, University of Toronto, Lupus Clinic, Toronto Western Hospital, University Health
Current and future therapies for SLE: obstacles and recommendations for the development of novel treatments
Zahi Touma and Dafna D Gladman Author affiliations Centre for Prognosis Studies in the Rheumatic Diseases, University of Toronto, Lupus Clinic, Toronto Western Hospital, University Health
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Golimumab (Simponi)
Has anyone got any recent experience with above biologic, I'm so desperate for it to work as my previous treatment (rituximab) had no effect. The information leaflet says it can take up to 12 weeks to work, has anyone had it work any quicker?
Has anyone got any recent experience with above biologic, I'm so desperate for it to work as my previous treatment (rituximab) had no effect. The information leaflet says it can take up to 12 weeks to work, has anyone had it work any quicker?
premierscfc
in
NRAS
7 years ago
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults:
Executive Summary
Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults:
Executive Summary
Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
Belimumab?
HI all, i have been on rituximab for the past 2 years for lupus nephritis, but im still leaking protein. I have seen my rheumatologist today and she is going to see if i can have Belimumab. Ive read about it and there is some really scary side effects! Anyone else have Belimumab, and how do you feel
HI all, i have been on rituximab for the past 2 years for lupus nephritis, but im still leaking protein. I have seen my rheumatologist today and she is going to see if i can have Belimumab. Ive read about it and there is some really scary side effects! Anyone else have Belimumab, and how do you feel
Rach459
in
LUPUS UK
7 years ago
Hi I am new here
In 2010 also went on biologic injection
Golimumab
once a month. i had good days and bad days and was coping until two years ago when my lft's were deranged so they stopped the methotrexate. A few months later they tried me on a lower dose of methotrexate but liver results went up again.
In 2010 also went on biologic injection
Golimumab
once a month. i had good days and bad days and was coping until two years ago when my lft's were deranged so they stopped the methotrexate. A few months later they tried me on a lower dose of methotrexate but liver results went up again.
Rap-17
in
NRAS
7 years ago
Belimumab (Benlysta) approved for restricted use in NHS Scotland
We have some great World Lupus Day news for people with lupus in Scotland today. Following a resubmission, the Scottish Medicines Consortium (SMC) has published new advice accepting the restricted use of belimumab (Benlysta) in NHS Scotland. You can read the full story at http://www.lupusuk.org.uk/belimumab-approved-for-scotland
We have some great World Lupus Day news for people with lupus in Scotland today. Following a resubmission, the Scottish Medicines Consortium (SMC) has published new advice accepting the restricted use of belimumab (Benlysta) in NHS Scotland. You can read the full story at http://www.lupusuk.org.uk/belimumab-approved-for-scotland
Paul_Howard
LUPUS UK
in
LUPUS UK
7 years ago
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