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Have you ever been treated with belimumab (Benlysta)? Please share your experiences!
Have you ever been treated with belimumab (Benlysta)? If you have, we'd like to hear from you. NICE is currently appraising the use of this medicine within NHS England and your experiences could help improve our stakeholder contribution. Please email
paul@lupusuk.org.uk
with an overview of your
Have you ever been treated with belimumab (Benlysta)? If you have, we'd like to hear from you. NICE is currently appraising the use of this medicine within NHS England and your experiences could help improve our stakeholder contribution. Please email
paul@lupusuk.org.uk
with an overview of your
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
Nice guidance
Very sad to read that Nice are not recommending Belimumab for active SLE on the nhs 🥲. Consultation closes end of this month .
Very sad to read that Nice are not recommending Belimumab for active SLE on the nhs 🥲. Consultation closes end of this month .
Harry19
in
LUPUS UK
3 years ago
Belimumab
Has anyone started Belimumab x
Has anyone started Belimumab x
Harry19
in
LUPUS UK
3 years ago
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Should You Get the COVID-19 Vaccine During a Disease Flare-Up?
Here’s what rheumatologists and other specialists are telling their patients about getting the vaccine even during higher than usual disease activity. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Arthritis Hand Wrist Pain If you live with
Here’s what rheumatologists and other specialists are telling their patients about getting the vaccine even during higher than usual disease activity. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Arthritis Hand Wrist Pain If you live with
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine
Rheumatologists and public health experts are urging most autoimmune and immunocompromised patients to get vaccinated as soon as they can. If you have concerns, consider discussing these questions with your doctor for reassuring answers. What to Ask Rheumatologist About COVID-19 Vaccine It’s understandable
Rheumatologists and public health experts are urging most autoimmune and immunocompromised patients to get vaccinated as soon as they can. If you have concerns, consider discussing these questions with your doctor for reassuring answers. What to Ask Rheumatologist About COVID-19 Vaccine It’s understandable
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Rheumatoid Arthritis and Heart Disease: Why You’re at Increased Risk
TNF inhibitors include adalimumab (Humira), certolizumab pegol (Cimzia), etanercept (Enbrel),
golimumab
(Simponi and Simponi Aria), and infliximab (Remicade), Other medications like JAK inhibitors [such as tofacitinib (Xeljanz), baricitinib (Olumiant), and upadacitinib (Rinvoq) and IL-6 inhibitors [
TNF inhibitors include adalimumab (Humira), certolizumab pegol (Cimzia), etanercept (Enbrel),
golimumab
(Simponi and Simponi Aria), and infliximab (Remicade), Other medications like JAK inhibitors [such as tofacitinib (Xeljanz), baricitinib (Olumiant), and upadacitinib (Rinvoq) and IL-6 inhibitors [
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the American College of Rheumatology
If you have a form of autoimmune or inflammatory arthritis or take immunosuppressant medication, chances are you’ve had questions about getting a COVID-19 vaccine. Here are some answers from a new resource from the American College of Rheumatology. Learn more about our FREE COVID-19 Patient Support
If you have a form of autoimmune or inflammatory arthritis or take immunosuppressant medication, chances are you’ve had questions about getting a COVID-19 vaccine. Here are some answers from a new resource from the American College of Rheumatology. Learn more about our FREE COVID-19 Patient Support
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Share you experiences of belimumab (Benlysta)
Hi everyone, You may be aware that LUPUS UK is a stakeholder in the current NICE appraisal process for belimumab (Benlysta), which we hope will result in more people with lupus having access to the treatment through the NHS. One of the patient representatives who will be attending the appraisal committee
Hi everyone, You may be aware that LUPUS UK is a stakeholder in the current NICE appraisal process for belimumab (Benlysta), which we hope will result in more people with lupus having access to the treatment through the NHS. One of the patient representatives who will be attending the appraisal committee
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
Belimumab and Pfizer Vaccine
I would like to know if there is any protocol on Belimumab and Covid vaccine. I have been offered a Belimumab therapy only a few weeks after Pfizer Vaccine and am feeling apprehensive about this. I have had my first vaccine with bad reaction especially to tongue and ulcer (Sjogren) and second vaccine
I would like to know if there is any protocol on Belimumab and Covid vaccine. I have been offered a Belimumab therapy only a few weeks after Pfizer Vaccine and am feeling apprehensive about this. I have had my first vaccine with bad reaction especially to tongue and ulcer (Sjogren) and second vaccine
Paprika60
in
LUPUS UK
3 years ago
Golimumab
So nurse visited Tuesday can’t have been in the house 10 mins was useless couldn’t wait to get out rushed my injection it stung as wasn’t out of the fridge long enough never asked if I had my flu jab I haven’t yet :( soo confused now
So nurse visited Tuesday can’t have been in the house 10 mins was useless couldn’t wait to get out rushed my injection it stung as wasn’t out of the fridge long enough never asked if I had my flu jab I haven’t yet :( soo confused now
Deejojo
in
NRAS
4 years ago
Golimumab
Anybody on here have these injections??? I start mine today :(
Anybody on here have these injections??? I start mine today :(
Deejojo
in
NRAS
4 years ago
Golimumab
Week here we go again ladies and Gents start My Injections again tomorrow I must say I’m feeling very Apprehensive as I don’t want to make myself Anymore Anxious about this COVID
Week here we go again ladies and Gents start My Injections again tomorrow I must say I’m feeling very Apprehensive as I don’t want to make myself Anymore Anxious about this COVID
Deejojo
in
NRAS
4 years ago
Golimumab
Well woopie got a call from healthcare at home this afternoon delivering my injections Tuesday:)
Well woopie got a call from healthcare at home this afternoon delivering my injections Tuesday:)
deejojo08
in
NRAS
4 years ago
NICE appraisal of belimumab (Benlysta) - please complete our anonymous online survey
The National Institute for Health and Care Excellence (NICE) are doing an appraisal of belimumab (Benlysta) to produce new guidance for its use in the treatment of adults with SLE in England. LUPUS UK is a registered consultee (stakeholder) and will be submitting evidence. To help with this and to
The National Institute for Health and Care Excellence (NICE) are doing an appraisal of belimumab (Benlysta) to produce new guidance for its use in the treatment of adults with SLE in England. LUPUS UK is a registered consultee (stakeholder) and will be submitting evidence. To help with this and to
Paul_Howard
LUPUS UK
in
LUPUS UK
4 years ago
Golimumab
Been two weeks and still not received my injections what’s going on ??? All my bloods were done
Been two weeks and still not received my injections what’s going on ??? All my bloods were done
deejojo08
in
NRAS
4 years ago
Biologics
Well just had a phone call from rheumatology I’m starting in my
golimumab
let’s see if this helps
Well just had a phone call from rheumatology I’m starting in my
golimumab
let’s see if this helps
deejojo08
in
NRAS
4 years ago
Benlysta Treatment Lowers Disease Activity for SLE Patients, Real-world Data Shows
MAY 29, 2020 Ines Martins, PhD Treatment with Benlysta (belimumab) induces meaningful and long-lasting reductions in systemic lupus erythematosus (SLE) disease activity, helping a significant proportion of patients achieve durable remission or a status of low disease activity, a study in a real-world
MAY 29, 2020 Ines Martins, PhD Treatment with Benlysta (belimumab) induces meaningful and long-lasting reductions in systemic lupus erythematosus (SLE) disease activity, helping a significant proportion of patients achieve durable remission or a status of low disease activity, a study in a real-world
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Would be grateful if anyone has experienced any of this could give me some advice x
Hi there hope you are all managing well. I am mum to a 20 year old diagnosed at 18 with lupus, raynaulds, livedo and a few others.. she manages relatively well however been having massive flare since beginning of march. Pain meds have been increased and making her so sick.. was eventually given kenolog
Hi there hope you are all managing well. I am mum to a 20 year old diagnosed at 18 with lupus, raynaulds, livedo and a few others.. she manages relatively well however been having massive flare since beginning of march. Pain meds have been increased and making her so sick.. was eventually given kenolog
Ambennett
in
LUPUS UK
4 years ago
Antidepressants and Biologics??
I went on Avanza (antidepressants) after starting
Golimumab
(biologic ) and prednisolone and everything was going pretty good until I had an allergic reaction to an antibiotic (Keflex) that caused temporary paralysis in my body.
I went on Avanza (antidepressants) after starting
Golimumab
(biologic ) and prednisolone and everything was going pretty good until I had an allergic reaction to an antibiotic (Keflex) that caused temporary paralysis in my body.
Mjkruger
in
NRAS
4 years ago
Greetings from a newbie
Hi All, I’ve just joined this forum today whilst carrying out research for a documentary I’m producing on Lupus. I will give more information on another specific Post, but for now I‘d like to introduce myself. Firstly, I hope everyone is keep well at this difficult time for all – and more so for
Hi All, I’ve just joined this forum today whilst carrying out research for a documentary I’m producing on Lupus. I will give more information on another specific Post, but for now I‘d like to introduce myself. Firstly, I hope everyone is keep well at this difficult time for all – and more so for
SurferGuy
in
LUPUS UK
4 years ago
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