Search
Search
About
Log in
Join
Experiences with
Glioblastoma
Posts
Communities
96 public posts
Filter results
travel
Hi, After 2 years of treatment, my dr said it would be ok to fly, I’m wanting to fly long haul to visit family, As anyone flown long haul with stable
glioblastoma
, and how were they Also struggling to find insurance, any recommendations Thanks in advance
Hi, After 2 years of treatment, my dr said it would be ok to fly, I’m wanting to fly long haul to visit family, As anyone flown long haul with stable
glioblastoma
, and how were they Also struggling to find insurance, any recommendations Thanks in advance
AA1955
in
Glioblastoma Support
1 year ago
Hello everyone
I was the main carer for my best friend who was diagnosed and died of
glioblastoma
multiforme. He died in March. Also this year, I have changed job which did not work out and I decided to resign during probation, and just started my new job Monday. I am in a highly stressful profession.
I was the main carer for my best friend who was diagnosed and died of
glioblastoma
multiforme. He died in March. Also this year, I have changed job which did not work out and I decided to resign during probation, and just started my new job Monday. I am in a highly stressful profession.
Za_i
in
Anxiety Support
11 months ago
Five Common Supplements That Have Shown Benefit In Glioblastoma Studies
antitumor effect against some
glioblastoma
cells.
antitumor effect against some
glioblastoma
cells.
chartist
in
Glioblastoma Support
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Anyone else being seen at Royal Marsden Sutton?
My husband developed a
glioblastoma
very suddenly 2 yrs ago and died within 3 months. Still coping with the aftermath. My own PMF is pretty stable and being controlled with ruxolitinib and transfusions. Counts look OK, but I feel fatigued a lot of the time.
My husband developed a
glioblastoma
very suddenly 2 yrs ago and died within 3 months. Still coping with the aftermath. My own PMF is pretty stable and being controlled with ruxolitinib and transfusions. Counts look OK, but I feel fatigued a lot of the time.
Rachelthepotter
in
MPN Voice
1 year ago
Update on failing Enzalutamide
I met a leading oncology researcher whose brother-in-law had just being diagnosed with
glioblastoma
. When I asked him about 'alternative' treatments, he said, 'It's funny, I used to tell people that was all quackery.
I met a leading oncology researcher whose brother-in-law had just being diagnosed with
glioblastoma
. When I asked him about 'alternative' treatments, he said, 'It's funny, I used to tell people that was all quackery.
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
Looking for support - glioblastoma
Hi, My 72 year old wife was recently diagnosed with a grade 4 glioma /
glioblastoma
. Short history is one hospital wanted to dive right in and do surgery. A 2nd opinion initially ruled it as inoperable after a biopsy.
Hi, My 72 year old wife was recently diagnosed with a grade 4 glioma /
glioblastoma
. Short history is one hospital wanted to dive right in and do surgery. A 2nd opinion initially ruled it as inoperable after a biopsy.
rlwremo
in
Glioblastoma Support
1 year ago
And so it goes.
The tumor was extracted and tested and was found to be a
glioblastoma
. So I have two different types of cancer.
The tumor was extracted and tested and was found to be a
glioblastoma
. So I have two different types of cancer.
PabloK
in
Advanced Prostate Cancer
1 year ago
Micro-robots could deliver drugs to brain and organs
“We’ll draw conclusions from that experiment and get back to clinical trials in 2025 to test it out on a brain affected by
glioblastoma
[a form of an aggressive brain tumor]. In this case, we will be adding medication.”
“We’ll draw conclusions from that experiment and get back to clinical trials in 2025 to test it out on a brain affected by
glioblastoma
[a form of an aggressive brain tumor]. In this case, we will be adding medication.”
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Update - not good
She was "diagsnosed" with
glioblastoma
shortly before Christmas though the official biopsy results didn't come back until mid February. I wrote this before she passed, wanting to think of her in the present. I hope you all don't mind me sharing a few things about her.
She was "diagsnosed" with
glioblastoma
shortly before Christmas though the official biopsy results didn't come back until mid February. I wrote this before she passed, wanting to think of her in the present. I hope you all don't mind me sharing a few things about her.
rlwremo
in
Glioblastoma Support
1 year ago
GLIOBLASTOMA
GLIOBLASTOMA
To my fellow sufferers to whom I convey my deepest heartfelt sympathy with a massive dose of positivism, good luck to you all. I had my surgical operation on the 4th October 2022. The prognosis revealed a
glioblastoma
.
GLIOBLASTOMA
To my fellow sufferers to whom I convey my deepest heartfelt sympathy with a massive dose of positivism, good luck to you all. I had my surgical operation on the 4th October 2022. The prognosis revealed a
glioblastoma
.
dicky70
in
Glioblastoma Support
2 years ago
Possible great news might be coming, hopefully!
"Vaccine shown to prolong life of patients with aggressive brain cancer | Cancer research | The Guardian" https://amp.theguardian.com/science/2022/nov/17/vaccine-shown-to-prolong-life-patients-aggressive-brain-cancer-trial-
glioblastoma
"Vaccine shown to prolong life of patients with aggressive brain cancer | Cancer research | The Guardian" https://amp.theguardian.com/science/2022/nov/17/vaccine-shown-to-prolong-life-patients-aggressive-brain-cancer-trial-
glioblastoma
GT33
in
Glioblastoma Support
2 years ago
Next NoSilverBullet Zoom session Monday 6th of Feb. Dr Matthew Phillips: "Fasting & Dietary Strategies as Therapies in Parkinson’s".
He is currently conducting a clinical trial involving that combines intensive fasting with a ketogenic diet alongside standard treatments in patients with
glioblastoma
multiforme.
He is currently conducting a clinical trial involving that combines intensive fasting with a ketogenic diet alongside standard treatments in patients with
glioblastoma
multiforme.
Michel0220
in
Cure Parkinson's
2 years ago
glioblastoma IDH wild type
I just want some positivity please as my husband(age41) suddenly been diagnosed with
glioblastoma
IDH wild type, unmethylated. Anyone here with the same diagnosis?
I just want some positivity please as my husband(age41) suddenly been diagnosed with
glioblastoma
IDH wild type, unmethylated. Anyone here with the same diagnosis?
TD2022
in
Glioblastoma Support
2 years ago
Posting this information in case it is useful for anyone else
As well as my NHS treatment, I recently had a private appointment with a Dr specialising in the treatment of
glioblastoma
. One of the things he recommended is the prescription of fluoxetine ( prozac), which I have now started.
As well as my NHS treatment, I recently had a private appointment with a Dr specialising in the treatment of
glioblastoma
. One of the things he recommended is the prescription of fluoxetine ( prozac), which I have now started.
Mad4cats
in
Glioblastoma Support
2 years ago
2 Year GBM survivor
I was diagnosed with
Glioblastoma
in October 2020. I was not eligible for surgery as the tumour was diffuse. I had the normal Radio / Chemo treatment followed by 1 year of 5day per month chemo. I also had one session of Dendritic Cell Immunotherapy with Immacura.
I was diagnosed with
Glioblastoma
in October 2020. I was not eligible for surgery as the tumour was diffuse. I had the normal Radio / Chemo treatment followed by 1 year of 5day per month chemo. I also had one session of Dendritic Cell Immunotherapy with Immacura.
popG
in
Glioblastoma Support
2 years ago
Glioblastoma brain tumor
Hi there, I had my grade 4
Glioblastoma
tumor removed about 6 weeks ago, in the beginning of September. The doctor told me the chemo and radiation will give me permanent short term memory loss, and only a few more months of life, so I have zero interest in treatments.
Hi there, I had my grade 4
Glioblastoma
tumor removed about 6 weeks ago, in the beginning of September. The doctor told me the chemo and radiation will give me permanent short term memory loss, and only a few more months of life, so I have zero interest in treatments.
Spinninghands123
in
Glioblastoma Support
2 years ago
Grieving my son
I lost my beautiful 29 year old son to
glioblastoma
last year. Im interested in connecting with others who have lost a loved one to this disease. If any one would have any questions for me, I would be happy to answer. You really learm alot about brain cancer once you have gone through it.
I lost my beautiful 29 year old son to
glioblastoma
last year. Im interested in connecting with others who have lost a loved one to this disease. If any one would have any questions for me, I would be happy to answer. You really learm alot about brain cancer once you have gone through it.
Hobiecat16
in
Glioblastoma Support
2 years ago
new to this
Three weeks after the 1 year mark of her sons death, my sister was diagnosed with
glioblastoma
, (aug. 2022), Tumor removal was 4 cm. She is currently having radiation and chemotherapy. As of today she is only experiencing mild nausea from treatment.
Three weeks after the 1 year mark of her sons death, my sister was diagnosed with
glioblastoma
, (aug. 2022), Tumor removal was 4 cm. She is currently having radiation and chemotherapy. As of today she is only experiencing mild nausea from treatment.
Bowie92
in
Glioblastoma Support
2 years ago
Painful Mets to ribs. Radiation or operation.
My sister was diagnosed 3 weeks before hubby with
Glioblastoma
cancer. She is still with us, but drs do not expect her to make Xmas. Sorry for any typo errors, in pieces, sobbing my heart out as quietly as possible so as to not wake hubby. Thanks in advance
My sister was diagnosed 3 weeks before hubby with
Glioblastoma
cancer. She is still with us, but drs do not expect her to make Xmas. Sorry for any typo errors, in pieces, sobbing my heart out as quietly as possible so as to not wake hubby. Thanks in advance
Hidden
in
Advanced Prostate Cancer
2 years ago
anger
yesterday was the first time since my sister has been diagnosed with
glioblastoma
that she was full on angry . She is in her 3rd week of treatment and found a minor bald spot in the area that was operated on. I don’t live in the same state as her so I decided to call her to help her through it.
yesterday was the first time since my sister has been diagnosed with
glioblastoma
that she was full on angry . She is in her 3rd week of treatment and found a minor bald spot in the area that was operated on. I don’t live in the same state as her so I decided to call her to help her through it.
Bowie92
in
Glioblastoma Support
2 years ago
1
2
3
...
5
Next page
Filter results
Clear filters
Posted in
All communities
Glioblastoma Support
51 results
Advanced Prostate Cancer
21 results
Cure Parkinson's
6 results
View top 10 communities
Sort by
Most Relevant
Newest