yesterday was the first time since my sister has been diagnosed with glioblastoma that she was full on angry . She is in her 3rd week of treatment and found a minor bald spot in the area that was operated on. I don’t live in the same state as her so I decided to call her to help her through it. However she was so angry and just kept yelling that she is going to die , that she is the one with the death sentence hanging over her, and that this isn’t fair. Which it isn’t I know. She wouldn’t listen to anything I had to say. I got angry back and told her to stop feeling sorry for herself. Well that didn’t go over well as you can imagine. She became so infuriated that she screamed at me some more then hung the phone up. I know I’m not the one going through this but on every level I am going through this with her. I dont want her feeling sorry for herself and giving up when it’s only just begun . I want her to fight back and be strong. This was probably one of the firsts of many angry outbursts I will experience. Being so far away , what can I do to help work her through these emotions. This SUCKS!
anger: yesterday was the first time... - Glioblastoma Support
anger
Hi,.I totally understand what you're going thru as well, my husband has and will continue to go thru all the glioblastoma stages, his was removed this past May, went thru radiation and chemo pills, and continues with chemo pills on a monthly basis. His last mri was good, next one in Nov.
As far as emotional support, listen and listen, we went thru the same thing, its very hard to be a person looking in, true we ourselves aren't the one with the disease, but we do carry the emotional path along with the person who does. Its hard to sit and watch while there's nothing you can do,. except listen and help whenever possible. If you would like to message me, thats fine, I tried.. not to familiar with how to get around this site yet.
Stay Strong and Positive!!
I’m sorry if this sounds harsh but speaking to you from her point of view as a glioblastoma grade 4 host ai think you need to get over it it’s awful that you are watching from the sidelines not knowing how to deal with the rage and anger that is pouring out of her Take a step back let her rant let her rage she needs your support and love without judgment give her somewhere where she feels safe and allowed to share her feelings. Without judgment. I’ve lived for 7 years with glioblastoma please share this hope with her. I’m sorry if I sound harsh in my advice as I know how difficult it is for loved ones and carers but as patients we need to have the space and security to let rip sometimes it makes me angry I do have talking therapy to help me perhaps that would help her?
Hi Who said that. Do you mind me asking what type of tumour do you have, my husband recently diagnosed with glioblastoma IDH-1 wild type unmethylated
Hello and thank you for posting on the group. Managing personality changes in a loved one can be very tough. We have some information on coping with personality changes on our website, which I hope will be useful: thebraintumourcharity.org/l.... Please do reach out to us, if you need to talk things through. Our Support and Information Line is open Mon-Fri 9-5: 0808 800 0004. Best wishes, The Support Team.
Hi I recently had brain surgery, I am also angry. Why did this happen. Your sister is on a rollercoaster of emotions. I have good days and bad days where I cry all the time. It is very upsetting. I would apologise try and give her hope. It is very difficult. I keep feeling that I will die I live with a husband. My son his Girlfriend three grand daughters tbe youngest who is 3. How do I explain to her that I might not live to see her and the others. Get married
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