Possible great news might be coming, hopefully!

[GT33]

"Vaccine shown to prolong life of patients with aggressive brain cancer | Cancer research | The Guardian" amp.theguardian.com/science...

[Tansi75]

This is excellent news, a new weapon to add to the arsenal of treatments that need to be developed in order to enable a holistic approach to treatment 🙂

[Denni60]

Well that would be amazing news. Let's really hope. My chemo stopped because me liver had risen to level 5. Oncologist said it would never be level 1. But it is level 2. So I think i might be on a trial until they sort it out. How have you got on GT eith results.

[GT33 in reply to Denni60]

Hiya, I hope you do ok, always think positive and change lifestyle if able. I had a scan 3 months ago during my 6 month chemo tabs and ok, I had another 2 weeks ago and have a meeting/catch with specialist, to find out, how my head is doing internally on Thursday.

[Denni60 in reply to Denni60]

GT, I hope you're OK. Have not heard from you. Thinking of you

[GT33 in reply to Denni60]

Hiya, yes I'm ok, we just decided to go away for a bit after finishing 6 month treatment of heavy chemo.

[Denni60]

Good luck, hope you get the clearence you need.

[Mad4cats]

I was told that in order to have immunotherapy there needs to be a frozen tissue sample from the tumour.

As far as I know, I didn't have one when I had my craniotomy (biopsy and debulking) on 05/09, and was also told the cost would be 'in the region of hundreds of thousands'

What have others been advised / told?

[RMDF in reply to Mad4cats]

Hello, I'd ask your oncologist and the neurosurgeon that removed your tumor. When my husband was offered about different trials, the nurses conducting the paperwork for the trials had informed us that the tumor was disected into many samples so with our permission could be used for other trials, and learning about glioblastoma and would be frozen forever..so I'd reach out to those Drs. Wishing you the best.

[Mad4cats in reply to RMDF]

Thank you for taking the time to reply. I will certainly ask at my next medical appointment

best wishes to you and your husband

[OwlyOwly in reply to Mad4cats]

Was told my father wasn't suitable for this, due to age and type of GBM. Was also told £100,000's too.

It will help others in the future x

[hans777 in reply to OwlyOwly]

I was told 150,000 Pound, why wasn't your father suitable? As far as I understood this treatment suits for mutated and not mutates GBM tumors.

[Salsann1e]

random question….. does anyone get confused with day and night ? im constantly trying to fathom out whether it’s morning or ecebibgi live alone so no one to hlo

[Salsann1e]

and i cantvtypecanymore

[Mad4cats in reply to Salsann1e]

I'm sorry that your ability to communicate is affected

Has anyone suggested that you are referred to a speech and language therapist? This could be helpful, as they have knowledge of communication strategies and potentially devices, that may assist you

[GT33]

Sorry to hear how you are, can you perhaps also speak to your medical team to assist? As well as to watching to us?

[rlwremo]

So how would someone in the U.S. get access to this treatment?