Experiences with

Glioblastoma

My partner was diagnosed with a grade 4 GB in mid July and sadly passed away on 4th September. We’re just so shocked and struggling to come to terms with how quickly she deteriorated. She attended A&E, first in May following episodes of forgetfulness, feeling weak and shaky but was told it was anxiety

it targets glioblastoma, but it looks very promising as technique! https://www.sciencedaily.com/releases/2024/05/240501125736.htm

Researchers in Oxford are in the early stages of a planning a new clinical trial called Recurrent-GB for patients diagnosed with a Glioblastoma and would greatly appreciate any feedback on the trial design.

My Mum has stage 4 inoperable glioblastoma and in the last few days has started suffering from painful thigh muscles and teeth. Is this normal. She’s been taking paracetamol and ibuprofen to help with pain. I want to ask GP for advice tomorrow. Anyone experienced these pains with this cancer.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7468383/ I am wondering if I might have inherited PD because my Mom had glioblastoma? Has anyone else had a connection like that?

If you are living in the UK and have had a glioblastoma diagnosis in the past ten years, we would be grateful if you could fill out the following survey. It will take approximately 10 minutes of your time: https://learn.az/6043gy1Nv This survey will be running throughout June 2024.

Our son was diagnosed with glioblastoma in 2022. After intensive treatment all cleared up but is now back. Tumor was on left side; he can't use his right arm at all, right leg has some movement. His speech is gone except for a few words now and then.

2 weeks ago my dad was diagnosed with a grade 4 glioblastoma and given a few months to live, with the option of chemo to possibly give him a little longer. He is deteriorating incredibly quickly and says he feels near the end.

My husband died last year from a glioblastoma brain tumour. I have been feeling ill for quite some time and all of a sudden last Thursday it all came on really badly.

My brother has recently been diagnosed with a Glioblastoma grade 4. It's been alot to take in as I'm sure you can all understand. He starts Radiotherapy and Chemotherapy next Monday 22nd July. I have a few questions that I hope can be answered. Firstly I want to say how incredible you all are.

But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021/02/2020-11_Mazzoleni-Expert-Insight.pdf

He is currently conducting a clinical trial in glioblastoma, which combines standard treatments with the most intensive fasting and ketogenic diet protocol ever applied to a group of patients with advanced cancer.   Note: The above link seems to work only for those who registered on time...

Hi, my dad was diagnosed with a glioblastoma about 4 weeks ago. He has gone from being a fairly healthy 58 year old man who travels around the UK and holidays a few times a year abroad to a man who sits on the sofa refusing to go out or do anything.

My 63 year old mom was diagnosed with glioblastoma grade 4, had a successful surgery with 99.99% taken out. On Monday we go to an oncologist who will tell her and my dad what this diagnosis actually means. So far, they know it's "bad news" but they didn't want to read or hear anything about it.

Hello, I am an elderly woman caring for a person who is being treated for grade 4 glioblastoma. I am interested in all things good health and am very concerned about what to expect about the effects of this disease.

Clinical hypothyroidism has been shown in multiple reports specifically to slow the clinical course of renal cell carcinoma (16), breast cancer (17), glioblastoma (18), and head-and-neck cancers (19).

I care for a family member who has grade 4 glioblastoma. I am looking for more information

Please suggest medicines to relieve recurrent headaches due to progression and resultant edema.

My dad has glioblastoma in his left frontal lobe. His right arm/hand is now completely paralysed and his speech is getting poorer every week. It’s taken 5 months to finally start treatment due to stroke misdiagnosis. Due to location they cannot de bulk the tumour.

We have been made aware of a grant giving organisation, The Jay C trust, who are allocating grants of up to £500 to those diagnosed with Glioblastoma, living in Birmingham or Surrey postcode areas.