Experiences with

Glioblastoma

hello, I am 23 and recently found out my dad has 2 months left to live after being diagnosed with a glioblastoma. This has all happened so quickly, from discovering the tumour on the 11th November, to having most of it removed on the 9th December, and now he has 2 months left with me💔.

My older brother passed away from a Glioblastoma in 2009. This article really has me thinking!

Brother in law has grade 4 Glioblastoma looking for non - Traditional treatments. He has had the tumor removed, all they could see, at the end of August, 2024. RedTexas

Hi My dad was diagnosed in Aug with glioblastoma , it was removed upto 90 percent and he finished three weeks of chemo. He is not advised tmz due to fragility and being non methylated . Any one else in the same situation.

my son has been in hospital and diagnosed with a grade 4 glioblastoma , he was operated on three days ago and told if it had been two days later we would have lost him.

My partner was diagnosed with a grade 4 GB in mid July and sadly passed away on 4th September. We’re just so shocked and struggling to come to terms with how quickly she deteriorated. She attended A&E, first in May following episodes of forgetfulness, feeling weak and shaky but was told it was anxiety

Researchers in Oxford are in the early stages of a planning a new clinical trial called Recurrent-GB for patients diagnosed with a Glioblastoma and would greatly appreciate any feedback on the trial design.

it targets glioblastoma, but it looks very promising as technique! https://www.sciencedaily.com/releases/2024/05/240501125736.htm

My Mum has stage 4 inoperable glioblastoma and in the last few days has started suffering from painful thigh muscles and teeth. Is this normal. She’s been taking paracetamol and ibuprofen to help with pain. I want to ask GP for advice tomorrow. Anyone experienced these pains with this cancer.

Living on my own ( husband died in 2021 of a glioblastoma- totally unexpected). Life is tough.

2 weeks ago my dad was diagnosed with a grade 4 glioblastoma and given a few months to live, with the option of chemo to possibly give him a little longer. He is deteriorating incredibly quickly and says he feels near the end.

If you are living in the UK and have had a glioblastoma diagnosis in the past ten years, we would be grateful if you could fill out the following survey. It will take approximately 10 minutes of your time: https://learn.az/6043gy1Nv This survey will be running throughout June 2024.

Our son was diagnosed with glioblastoma in 2022. After intensive treatment all cleared up but is now back. Tumor was on left side; he can't use his right arm at all, right leg has some movement. His speech is gone except for a few words now and then.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7468383/ I am wondering if I might have inherited PD because my Mom had glioblastoma? Has anyone else had a connection like that?

My husband died last year from a glioblastoma brain tumour. I have been feeling ill for quite some time and all of a sudden last Thursday it all came on really badly.

My brother has recently been diagnosed with a Glioblastoma grade 4. It's been alot to take in as I'm sure you can all understand. He starts Radiotherapy and Chemotherapy next Monday 22nd July. I have a few questions that I hope can be answered. Firstly I want to say how incredible you all are.

Hi, my dad was diagnosed with a glioblastoma about 4 weeks ago. He has gone from being a fairly healthy 58 year old man who travels around the UK and holidays a few times a year abroad to a man who sits on the sofa refusing to go out or do anything.

We were initially told she would have 12 weeks to live but that was completely untrue; the nurses on the ward she was on had presumed she had a glioblastoma when she did not. She is now in a care home at 67. She can say yes and no, occasionally hello, but most of her speech is gone.

He is currently conducting a clinical trial in glioblastoma, which combines standard treatments with the most intensive fasting and ketogenic diet protocol ever applied to a group of patients with advanced cancer.   Note: The above link seems to work only for those who registered on time...

But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021/02/2020-11_Mazzoleni-Expert-Insight.pdf