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Glioblastoma
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My amazing husband
My husband Dave merry died on Monday 4th July from
glioblastoma
❤️ We had ten weeks together from diagnoses ❤️ We loved we laughed and cried ❤️ I will love him and miss him for ever ❤️
My husband Dave merry died on Monday 4th July from
glioblastoma
❤️ We had ten weeks together from diagnoses ❤️ We loved we laughed and cried ❤️ I will love him and miss him for ever ❤️
Damned66
in
Glioblastoma Support
2 years ago
Organ donation and Glioblastoma
Apologies for the morbid topic but is anyone aware of a
glioblastoma
patient being able to donate organs? The organ donation website rules anyone out with active cancer but I’ve also read that
Glioblastoma
patients can make good candidates for donation if they don’t suffer other health conditions.
Apologies for the morbid topic but is anyone aware of a
glioblastoma
patient being able to donate organs? The organ donation website rules anyone out with active cancer but I’ve also read that
Glioblastoma
patients can make good candidates for donation if they don’t suffer other health conditions.
Isla74
in
Glioblastoma Support
2 years ago
Confused, shocked, unsure
My Aunt was diagnosed in May 2022 with Stage 4
Glioblastoma
. 2 tumors were present. She had a biopsy taken where they discovered another tumor was present within a matter of 2 weeks. Following this she was was told there was no surgery options available as they are too deep.
My Aunt was diagnosed in May 2022 with Stage 4
Glioblastoma
. 2 tumors were present. She had a biopsy taken where they discovered another tumor was present within a matter of 2 weeks. Following this she was was told there was no surgery options available as they are too deep.
earthtome
in
Glioblastoma Support
2 years ago
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Dad has brain cancer, heart issues, and now PSA has increased. Concerned about medication complications..
Five weeks later, he was diagnosed with Primary Central Nervous System Large B Cell Lymphoma (brain cancer) after brain surgery (for what we were told was
Glioblastoma
) revealed that he had lymphoma in his brain. He began chemo + immunotherapy immediately (methotrexate and rituximab).
Five weeks later, he was diagnosed with Primary Central Nervous System Large B Cell Lymphoma (brain cancer) after brain surgery (for what we were told was
Glioblastoma
) revealed that he had lymphoma in his brain. He began chemo + immunotherapy immediately (methotrexate and rituximab).
Lynsi13
in
Advanced Prostate Cancer
2 years ago
Small cell glioblastoma
Hi there my husband who is 56 was diagnosed in Feb with a grade 4
glioblastoma
tumour (and it is also the small cell one which apparently is very rare) has now had a cranetomy and 6 weeks of radiotherapy and chemotherapy - he now feels awful and is struggling as we all are - any help gratefully received
Hi there my husband who is 56 was diagnosed in Feb with a grade 4
glioblastoma
tumour (and it is also the small cell one which apparently is very rare) has now had a cranetomy and 6 weeks of radiotherapy and chemotherapy - he now feels awful and is struggling as we all are - any help gratefully received
Tangothecat
in
Glioblastoma Support
2 years ago
Doxycycline
This general approach, using FDA-approved antibiotics to target mitochondria, was effective in killing CSCs originating from many different cancer types, including DCIS, breast (ER(+) and ER(-)), prostate, ovarian, lung and pancreatic cancers, as well as melanoma and
glioblastoma
, among others.
This general approach, using FDA-approved antibiotics to target mitochondria, was effective in killing CSCs originating from many different cancer types, including DCIS, breast (ER(+) and ER(-)), prostate, ovarian, lung and pancreatic cancers, as well as melanoma and
glioblastoma
, among others.
pca2004
in
Fight Prostate Cancer
2 years ago
Glioblastoma Recurrence
My 69 year old wife has evidence of tumour progression (recurrence following surgery, 6 weeks radiochemotherapy and 6 cycles of adjuvant temezolomide) on her latest MRI. One of the options for treatment we have been asked to consider is Lomustine chemo in conjunction with Avastin. Avastin side effects
My 69 year old wife has evidence of tumour progression (recurrence following surgery, 6 weeks radiochemotherapy and 6 cycles of adjuvant temezolomide) on her latest MRI. One of the options for treatment we have been asked to consider is Lomustine chemo in conjunction with Avastin. Avastin side effects
WN20
in
Glioblastoma Support
2 years ago
New Introduction
My wife was diagnosed with stage 4
Glioblastoma
in May 2021, had successful debulking early June followed by the 'gold standard' 6 weeks of radiochemotheraypy and 6 cycles of adjuvant temezolomide.
My wife was diagnosed with stage 4
Glioblastoma
in May 2021, had successful debulking early June followed by the 'gold standard' 6 weeks of radiochemotheraypy and 6 cycles of adjuvant temezolomide.
WN20
in
Glioblastoma Support
2 years ago
NEWS! Scientists develop nanoparticles that can cross the blood-brain barrier
When these particles were coated with the targeting peptide, they were able to effectively kill
glioblastoma
tumour cells in the tissue model."
When these particles were coated with the targeting peptide, they were able to effectively kill
glioblastoma
tumour cells in the tissue model."
PDWarrior1900
in
Cure Parkinson's
2 years ago
Glioblastoma Caregiver
My wife, 77, and I learned on March 30, 2022 that she has gliobllastoma. We have no idea what we are facing. Life expectancy? Surgery? Medications? Palliative care? We wish to learn and receive, as well as offer, support to others also facing this disease.
My wife, 77, and I learned on March 30, 2022 that she has gliobllastoma. We have no idea what we are facing. Life expectancy? Surgery? Medications? Palliative care? We wish to learn and receive, as well as offer, support to others also facing this disease.
Piper16
in
Glioblastoma Support
2 years ago
Was anyone not offered any treatment?
My mum was diagnosed last year with stage 4
glioblastoma
to the left side, whichever came completely out of the blue. She was a fit, healthy late 70's lady who was physically still good when diagnosed, but her speech was sometimes a little off.
My mum was diagnosed last year with stage 4
glioblastoma
to the left side, whichever came completely out of the blue. She was a fit, healthy late 70's lady who was physically still good when diagnosed, but her speech was sometimes a little off.
Peterdog
in
Glioblastoma Support
2 years ago
Comforting a Glioblastoma patient
How do I comfort a 24 year old boy who has
Glioblastoma
Stage IV. He has had many treatments. He has a seizure a week ago and he came home and is very angry. I just want to know what to say to him to comfort him. I find myself staring into space when he says something like I'm gonna die.
How do I comfort a 24 year old boy who has
Glioblastoma
Stage IV. He has had many treatments. He has a seizure a week ago and he came home and is very angry. I just want to know what to say to him to comfort him. I find myself staring into space when he says something like I'm gonna die.
Bran777
in
Glioblastoma Support
2 years ago
Steroid use in Glioblastoma Battle
Good Morning Everyone. I was just wondering what kind of steroid doses people are on for countering the swelling on the brain around the tumour. My dad (a 78 year old diagnosed in October) had to stop radiotherapy 5 sessions into a course of 15 in January after an initially successful debulking. We cut
Good Morning Everyone. I was just wondering what kind of steroid doses people are on for countering the swelling on the brain around the tumour. My dad (a 78 year old diagnosed in October) had to stop radiotherapy 5 sessions into a course of 15 in January after an initially successful debulking. We cut
Hast23388
in
Glioblastoma Support
2 years ago
Best attitude or action to take
I am new to the section, I have recently, in the start of March 2022, had a surgery to remove the brain tumour,, quite large
glioblastoma
, on the left side. I start my additional treatments ( 6 weeks) on April 4th, Chemo & Radiation + Tablet daily.
I am new to the section, I have recently, in the start of March 2022, had a surgery to remove the brain tumour,, quite large
glioblastoma
, on the left side. I start my additional treatments ( 6 weeks) on April 4th, Chemo & Radiation + Tablet daily.
GT33
in
Glioblastoma Support
2 years ago
Acceptance?
My brother-in-law was diagnosed with a brain tumor (
glioblastoma
) in Nov 2021. In Dec 2021 tumor measured 3.9 cm. At that time, Surgery to remove tumor was done. Chemo/radiation treatment has been completed. The tumor has now merged with 2 smaller ones.
My brother-in-law was diagnosed with a brain tumor (
glioblastoma
) in Nov 2021. In Dec 2021 tumor measured 3.9 cm. At that time, Surgery to remove tumor was done. Chemo/radiation treatment has been completed. The tumor has now merged with 2 smaller ones.
Hidden
in
Glioblastoma Support
2 years ago
Other experiences of late stage glioblastoma
My husband of thirty years who is a little older than me and in his mid 60s has
glioblastoma
. He began hospice and palliative care at home in mid-October and they didn’t think he would make Christmas. He has done really well but I am exhausted. The cancer is definitely taking hold of him now.
My husband of thirty years who is a little older than me and in his mid 60s has
glioblastoma
. He began hospice and palliative care at home in mid-October and they didn’t think he would make Christmas. He has done really well but I am exhausted. The cancer is definitely taking hold of him now.
Endstage
in
Glioblastoma Support
2 years ago
Trying to cope…
In October 2021, my dad was diagnosed with a terminal
Glioblastoma
. In the same week, we also found out my mum had bowel cancer. Both underwent a operation. Mum is now hopefully all clear and hasn’t needed any chemo. Dad hasn’t been as lucky and now lives in a care home, receiving palliative care.
In October 2021, my dad was diagnosed with a terminal
Glioblastoma
. In the same week, we also found out my mum had bowel cancer. Both underwent a operation. Mum is now hopefully all clear and hasn’t needed any chemo. Dad hasn’t been as lucky and now lives in a care home, receiving palliative care.
Shanice1997
in
Glioblastoma Support
3 years ago
Shining a light on Protein Aggregation in Parkinson's Disease
Niacin is also currently being used in clinical trials in Parkinson's disease and
glioblastoma
. In the central nervous system, vitamin B3 has long been recognized as a key mediator of neuronal development and survival.
Niacin is also currently being used in clinical trials in Parkinson's disease and
glioblastoma
. In the central nervous system, vitamin B3 has long been recognized as a key mediator of neuronal development and survival.
SilentEchoes
in
Cure Parkinson's
2 years ago
Decision making of a patient with stage 4 glioblastoma
I want to know if a person with a stage 4
glioblastoma
who has had radiation therapy is capable of deciding if family members can be updated on his condition? What info can a doctor share with the personal representative if the patient objects?
I want to know if a person with a stage 4
glioblastoma
who has had radiation therapy is capable of deciding if family members can be updated on his condition? What info can a doctor share with the personal representative if the patient objects?
LoveBallad
in
Glioblastoma Support
3 years ago
Stage 4 Prostate Cancer, Quadruple bypass, & now a brain tumor!
Still, having been faced with something as scary as
glioblastoma
and even now brain cancer.. it makes me thankful that my dad's prostate cancer has been so "well behaved." (For lack of a better term.)
Still, having been faced with something as scary as
glioblastoma
and even now brain cancer.. it makes me thankful that my dad's prostate cancer has been so "well behaved." (For lack of a better term.)
Lynsi13
in
Advanced Prostate Cancer
3 years ago
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