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Turned down by the RHN
I recently emailed the admissions office at the Royal Hospital for Neuro-disability in Wandsworth, London to see if I met their criteria for referral as, over four years after my ABI, I have received no rehabilitation. The RHN is not an NHS hospital so it has the freedom to pick and choose who it treats
I recently emailed the admissions office at the Royal Hospital for Neuro-disability in Wandsworth, London to see if I met their criteria for referral as, over four years after my ABI, I have received no rehabilitation. The RHN is not an NHS hospital so it has the freedom to pick and choose who it treats
Skulls
in
Headway
11 months ago
Been Terminated from work after nearly 20 years
After having my accident ident at work and trying to go back I went back in April could not cope with knee and back pain, found out I had several knee
fractures
from the accident on crutches, my fibramalgia has got a lot worse, arms, legs, back everything hurts, brain fog severe depression Iam on Tramadol
After having my accident ident at work and trying to go back I went back in April could not cope with knee and back pain, found out I had several knee
fractures
from the accident on crutches, my fibramalgia has got a lot worse, arms, legs, back everything hurts, brain fog severe depression Iam on Tramadol
Tina56
in
Fibromyalgia Action UK
8 months ago
scleroderma and faecal incontinence
morning. I’m struggling with this at the moment and it’s limiting me to what I can do. I’ve seen a surgeon recently who mentioned a stoma as a last resort but I’m not sure about it. I’m not suitable for a rectal stimulator. I’m using pads and loperamide but wondered if anyone else has a similar problem
morning. I’m struggling with this at the moment and it’s limiting me to what I can do. I’ve seen a surgeon recently who mentioned a stoma as a last resort but I’m not sure about it. I’m not suitable for a rectal stimulator. I’m using pads and loperamide but wondered if anyone else has a similar problem
anne1
in
Scleroderma & Raynaud's UK (SRUK)
11 months ago
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endocrinologist or rheumatologist ...
Mum's endo retiring soon, so, feeling lack of continuity of care, plus she was after a second opinion, is a rheumatologist worth consulting? mainly a question about stacking forteo on prolia, that's the plan, as Mum had a prolia dose, then endo wanted to start forteo straight away, for at least 9
Mum's endo retiring soon, so, feeling lack of continuity of care, plus she was after a second opinion, is a rheumatologist worth consulting? mainly a question about stacking forteo on prolia, that's the plan, as Mum had a prolia dose, then endo wanted to start forteo straight away, for at least 9
MayGodBlessYou
in
Bone Health and Osteoporosis UK
11 months ago
forteo terrosa pen
there are few if any videos on administrating a dose of forteo. what's the volume of a single dose? are all the doses stored within the pen? it's it similar to insulin injecting?, because Mum will need to be shown m surely the nurses at the GP's will be able to do demonstrate and do the first shot
there are few if any videos on administrating a dose of forteo. what's the volume of a single dose? are all the doses stored within the pen? it's it similar to insulin injecting?, because Mum will need to be shown m surely the nurses at the GP's will be able to do demonstrate and do the first shot
MayGodBlessYou
in
Bone Health and Osteoporosis UK
11 months ago
GCA Symptoms?
I have severe osteoporosis with compression
fractures
and muscles are pulling tight around stomach and diaphragm. Swallowing is difficult, but I'm not afraid to swallow. Pills are most difficult and if anything is to get caught, it's a pill.
I have severe osteoporosis with compression
fractures
and muscles are pulling tight around stomach and diaphragm. Swallowing is difficult, but I'm not afraid to swallow. Pills are most difficult and if anything is to get caught, it's a pill.
Missus835
in
PMRGCAuk
2 months ago
In the spirit of sharing
I have no fragility
fractures
, that I know of. On a short walk yesterday, I fell. It was a middle of the day walk to the post office near my office. I did not notice the uneven sidewalk and took a tumble onto the pavement. I landed on my hands, scraped my left knee and hit my right knee.
I have no fragility
fractures
, that I know of. On a short walk yesterday, I fell. It was a middle of the day walk to the post office near my office. I did not notice the uneven sidewalk and took a tumble onto the pavement. I landed on my hands, scraped my left knee and hit my right knee.
rnb054
in
Bone Health and Osteoporosis UK
2 months ago
osteoporosis No!
got 3 spontaneous
2 thoracic t 8 t10 and 1 C5. My bone scan of lumber spine was normal. Lost 4 inches in height huge belly & dowager hump.
got 3 spontaneous
2 thoracic t 8 t10 and 1 C5. My bone scan of lumber spine was normal. Lost 4 inches in height huge belly & dowager hump.
Slum
in
Bone Health and Osteoporosis UK
1 year ago
osteoporosis No!
got 3 spontaneous
2 thoracic t 8 t10 and 1 C5. My bone scan of lumber spine was normal. Lost 4 inches in height huge belly & dowager hump.
got 3 spontaneous
2 thoracic t 8 t10 and 1 C5. My bone scan of lumber spine was normal. Lost 4 inches in height huge belly & dowager hump.
Slum
in
Bone Health and Osteoporosis UK
1 year ago
XGEVA and ONJ
I finished 10 cycles of doxytaxel and got XGEVA several times. The last two it was discontinued because I reported minor oddities in my teeth. These have gotten a little worse. I will be seeing my dentist but not for about a month. Questions, now that doxy is done (for now) do I still need the XGEVA
I finished 10 cycles of doxytaxel and got XGEVA several times. The last two it was discontinued because I reported minor oddities in my teeth. These have gotten a little worse. I will be seeing my dentist but not for about a month. Questions, now that doxy is done (for now) do I still need the XGEVA
spencoid2
in
Advanced Prostate Cancer
11 months ago
B12 Information
This is a link to an interesting video about B12 supplementation https://nutritionfacts.org/video/friday-favorites-do-vitamin-b12-supplements-cause-acne-bone-
fractures
-and-lung-cancer/?
This is a link to an interesting video about B12 supplementation https://nutritionfacts.org/video/friday-favorites-do-vitamin-b12-supplements-cause-acne-bone-
fractures
-and-lung-cancer/?
MoKayD
in
Pernicious Anaemia Society
1 year ago
Mould Issues
Has anyone experience with mould allergy/mycotoxins? My health is pretty good but I have a lingering oral problem (persistent leak/discharge from top left gum) and a few cognitive issues that come and go. I have turned every stone and latest MRI’s and CT scans still show nothing unremarkable but a
Has anyone experience with mould allergy/mycotoxins? My health is pretty good but I have a lingering oral problem (persistent leak/discharge from top left gum) and a few cognitive issues that come and go. I have turned every stone and latest MRI’s and CT scans still show nothing unremarkable but a
radd
in
Thyroid UK
11 months ago
Bone Scan Results at long last
PMR in 2020 still on steroids I’ve tapered down to 2 mg but can’t get any lower.Doctor seems happy with that.Ive had so much help and advise from this group, it’s who I turn to when I need more advise.I had a Bone Scan last September 2022 got the results last week after numerous phone calls.I have
fractures
PMR in 2020 still on steroids I’ve tapered down to 2 mg but can’t get any lower.Doctor seems happy with that.Ive had so much help and advise from this group, it’s who I turn to when I need more advise.I had a Bone Scan last September 2022 got the results last week after numerous phone calls.I have
fractures
Brears
in
PMRGCAuk
11 months ago
About Radiation After Radical Prostatectomy
Do Physicians only recommend radiation for non metastatic men? and only recently in Oligo metastatic patients? Do they use radiation as a tool to bring psa down in metastatic men? and or radiation is only used as palliative for bones and pain? My apologies, If I’m not processing this thoroughly
Do Physicians only recommend radiation for non metastatic men? and only recently in Oligo metastatic patients? Do they use radiation as a tool to bring psa down in metastatic men? and or radiation is only used as palliative for bones and pain? My apologies, If I’m not processing this thoroughly
Shorehousejam
in
Advanced Prostate Cancer
11 months ago
Restless Leg Syndrome
The pain in my legs has now gone during the day but at night I get about 2-3 hours of restful sleep (if I'm lucky) and then the pain
fractures
my sleep into small periods. When I take CBD I get about 4 hours of sleep. Either way, this is not enough sleep to keep me going in the long run.
The pain in my legs has now gone during the day but at night I get about 2-3 hours of restful sleep (if I'm lucky) and then the pain
fractures
my sleep into small periods. When I take CBD I get about 4 hours of sleep. Either way, this is not enough sleep to keep me going in the long run.
buddy99
in
Thyroid UK
8 months ago
osteoporosis in hips but normal bone density in spine
I have just been told I have osteoporosis in my hips with a T score of -2.6. I am 49 and on long term steroids so assuming this is the cause. A number of years ago I was prescribed oral biphosphanates that I didn’t tolerate following an osteopenic result on dexa scan I am not sure if anyone can answer
I have just been told I have osteoporosis in my hips with a T score of -2.6. I am 49 and on long term steroids so assuming this is the cause. A number of years ago I was prescribed oral biphosphanates that I didn’t tolerate following an osteopenic result on dexa scan I am not sure if anyone can answer
GlasgowHen
in
Bone Health and Osteoporosis UK
11 months ago
Adalimumab
Adalimumab I have been using this for my Ra for 3 months and I’ve gained 9 pounds. Have other people ad this y RA is under control now and have had no other side effects Many thanks in advance Sally
Adalimumab I have been using this for my Ra for 3 months and I’ve gained 9 pounds. Have other people ad this y RA is under control now and have had no other side effects Many thanks in advance Sally
Salbremner
in
Arthritis Action
11 months ago
Darolutamide
Can anyone here advice on SE of this drug please. I have been on Zoladex this last 6 months & have a PSA of 1.03 now, coming off Firmagon before that. Now the MO advises a 3 month break & then start Darolutamide tablets. Thanks for any input.
Can anyone here advice on SE of this drug please. I have been on Zoladex this last 6 months & have a PSA of 1.03 now, coming off Firmagon before that. Now the MO advises a 3 month break & then start Darolutamide tablets. Thanks for any input.
ARIES29
in
Advanced Prostate Cancer
11 months ago
Lost height does funny things!
Six years ago I had 8 spinal
fractures
, thought to be because the local little hospital had not realised you don’t just stop Prolia without offering relay medication. Life changed over night and I’ve come to accept giving up the work I loved and the resulting disability.
Six years ago I had 8 spinal
fractures
, thought to be because the local little hospital had not realised you don’t just stop Prolia without offering relay medication. Life changed over night and I’ve come to accept giving up the work I loved and the resulting disability.
Posy-White
in
Bone Health and Osteoporosis UK
6 months ago
update on statins, Leflunomide & biphosphates
Up until 48 hours before I was determined to resist biphosphonates unless she could convince me I was in the area of osteoporosis, but some movement the previous day took me back to square 1 on the
fractures
- horrible pain, struggling to walk, so I had a different mindset!
Up until 48 hours before I was determined to resist biphosphonates unless she could convince me I was in the area of osteoporosis, but some movement the previous day took me back to square 1 on the
fractures
- horrible pain, struggling to walk, so I had a different mindset!
Japsquar
in
PMRGCAuk
2 months ago
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