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Kerfufalmelodious
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
Kerfufalmelodious
in
PMRGCAuk
1 month ago
do fractures heal while on prolia ?
my Mum had a scan for possible fracture, had a scheduled dose of prolia, then at endo appointment, endo said she has a compression fracture. every day i find i have another question about this wretched drug, i probably should've called endo before the shot, but his instructions weren't specific.
my Mum had a scan for possible fracture, had a scheduled dose of prolia, then at endo appointment, endo said she has a compression fracture. every day i find i have another question about this wretched drug, i probably should've called endo before the shot, but his instructions weren't specific.
MayGodBlessYou
in
Bone Health and Osteoporosis UK
11 months ago
endocrinologist or rheumatologist ...
Mum's endo retiring soon, so, feeling lack of continuity of care, plus she was after a second opinion, is a rheumatologist worth consulting? mainly a question about stacking forteo on prolia, that's the plan, as Mum had a prolia dose, then endo wanted to start forteo straight away, for at least 9
Mum's endo retiring soon, so, feeling lack of continuity of care, plus she was after a second opinion, is a rheumatologist worth consulting? mainly a question about stacking forteo on prolia, that's the plan, as Mum had a prolia dose, then endo wanted to start forteo straight away, for at least 9
MayGodBlessYou
in
Bone Health and Osteoporosis UK
11 months ago
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forteo terrosa pen
there are few if any videos on administrating a dose of forteo. what's the volume of a single dose? are all the doses stored within the pen? it's it similar to insulin injecting?, because Mum will need to be shown m surely the nurses at the GP's will be able to do demonstrate and do the first shot
there are few if any videos on administrating a dose of forteo. what's the volume of a single dose? are all the doses stored within the pen? it's it similar to insulin injecting?, because Mum will need to be shown m surely the nurses at the GP's will be able to do demonstrate and do the first shot
MayGodBlessYou
in
Bone Health and Osteoporosis UK
11 months ago
forteo compared with terrosa
i'm still looking it up,but has anyone had experience using terrosa?, i think it's the australia-distributed version of forteo. thanks
i'm still looking it up,but has anyone had experience using terrosa?, i think it's the australia-distributed version of forteo. thanks
MayGodBlessYou
in
Bone Health and Osteoporosis UK
11 months ago
Carbomer eye gel
Good morning. I was at the ophthalmologist yesterday getting umpteen scans and things due to taking hydroxychloroquine. I have very dry eyes once the UV starts to increase (usually February so bang on time). The ophthalmologist gave me carbomer eye gel to use before I go to bed and told me to continue
Good morning. I was at the ophthalmologist yesterday getting umpteen scans and things due to taking hydroxychloroquine. I have very dry eyes once the UV starts to increase (usually February so bang on time). The ophthalmologist gave me carbomer eye gel to use before I go to bed and told me to continue
Whippet_lady
in
LUPUS UK
3 months ago
prolia and forteo at the same time
well last week Mum's endo suggested forteo for 6-18mth, after 6 years prolia, then back to prolia. this was motivated due to possible vertebra fracture, he didn't push it, said to look it up, so i did, i was sort of keen for change, though thinking to stick to what you know, Mum also not keen on
well last week Mum's endo suggested forteo for 6-18mth, after 6 years prolia, then back to prolia. this was motivated due to possible vertebra fracture, he didn't push it, said to look it up, so i did, i was sort of keen for change, though thinking to stick to what you know, Mum also not keen on
MayGodBlessYou
in
Osteoporosis Support
11 months ago
thoughts, suggestions, experiences - prolia followed by forteo, endo said
he is a good endo, very bookish and conservative, clever specialist, ordered (another) scan - m.r.i - as possible fracture higher up than first x-ray taken. he reckons
after 6 years prolia
, do
forteo
no longer than eighteen months, can
review
at (did he say 6 months?) /a year
he is a good endo, very bookish and conservative, clever specialist, ordered (another) scan - m.r.i - as possible fracture higher up than first x-ray taken. he reckons
after 6 years prolia
, do
forteo
no longer than eighteen months, can
review
at (did he say 6 months?) /a year
MayGodBlessYou
in
Osteoporosis Support
1 year ago
(PART 5) Update re Forsteo suddenly stopped.
The very helpful ladies at the ROS set about finding out if NHS England have changed the dosage period for
Forsteo
from 24 months to 18. ( This is what we were told by our local Rheumatology department) They )The ROS) could find no evidence of this but today, I spoke to a pharmacist who stated it is
The very helpful ladies at the ROS set about finding out if NHS England have changed the dosage period for
Forsteo
from 24 months to 18. ( This is what we were told by our local Rheumatology department) They )The ROS) could find no evidence of this but today, I spoke to a pharmacist who stated it is
Angelicspirit
in
Bone Health and Osteoporosis UK
1 year ago
Progress report after two years on Forsteo and ongoing treatment
Forsteo
was started in October 2020. I had no side effects from
Forsteo
apart from initial nausea.
Forsteo
was started in October 2020. I had no side effects from
Forsteo
apart from initial nausea.
MollyStark
in
Bone Health and Osteoporosis UK
2 years ago
Blood tests, Evenity, Forteo etc.
What blood tests do you have taken while you are on Evenity, Forteo etc. and how often? Eg. Calcium, Vitamin D, Renal etc. Thanks
What blood tests do you have taken while you are on Evenity, Forteo etc. and how often? Eg. Calcium, Vitamin D, Renal etc. Thanks
cmoc
in
Bone Health and Osteoporosis UK
1 year ago
Forteo & kidney stones
I recently had kidney stone surgery, where each kidney was full of large kidney stones (too large to pass naturally, which was the reason for the surgery). In January I completed 2 years of Forteo injections, and wonder if the cause of all of those kidney stones were caused by the Forteo injections
I recently had kidney stone surgery, where each kidney was full of large kidney stones (too large to pass naturally, which was the reason for the surgery). In January I completed 2 years of Forteo injections, and wonder if the cause of all of those kidney stones were caused by the Forteo injections
GDCM
in
Osteoporosis Support
1 year ago
The risk of doing nothing
, I have a cousin who is 93. She was diagnosed with osteoporosis many years ago started Fosamax and because of some side effects stopped taking the medication. I spoke to her recently about her osteoporosis and she told me that she was 5‘4“ in her prime and she now is 4 foot 11. She is legally blind
, I have a cousin who is 93. She was diagnosed with osteoporosis many years ago started Fosamax and because of some side effects stopped taking the medication. I spoke to her recently about her osteoporosis and she told me that she was 5‘4“ in her prime and she now is 4 foot 11. She is legally blind
Finnegan777
in
Osteoporosis Support
1 year ago
AFTER FORTEO
Has anyone taken Fosamax after Forteo with good results instead of going on Prolia? Also, has anyone taken Prolia and not have side effects? all we hear are the horror stories, there must be some good stories. Is it because people who are doing well don’t go on the website?
Has anyone taken Fosamax after Forteo with good results instead of going on Prolia? Also, has anyone taken Prolia and not have side effects? all we hear are the horror stories, there must be some good stories. Is it because people who are doing well don’t go on the website?
Finnegan777
in
Osteoporosis Support
1 year ago
Severe Osteoporosis - Understanding the scan report and treatment
As a WF, age 60 - the last several years have seen some big health scares / diagnoses: FYI: After a torn shoulder rotator cuff injury in Oct 2022 and PT making the pain worse, my orthopedic Dr finally suggested an MRI. Results did not have good news. He then suggested a surgical repair with "bone
As a WF, age 60 - the last several years have seen some big health scares / diagnoses: FYI: After a torn shoulder rotator cuff injury in Oct 2022 and PT making the pain worse, my orthopedic Dr finally suggested an MRI. Results did not have good news. He then suggested a surgical repair with "bone
RAD23
in
Bone Health and Osteoporosis UK
1 year ago
Hylo Forte or Carbomer Gel?
I have been using hypromellose eye drops for a while because, particularly from Spring to autumn, I have itchy, gritty, dry eyes. This year they're worse than ever making my vision very blurred and no amount of hypromellose will fix it. Last week I went to get my eyes tested, thinking the blurred vision
I have been using hypromellose eye drops for a while because, particularly from Spring to autumn, I have itchy, gritty, dry eyes. This year they're worse than ever making my vision very blurred and no amount of hypromellose will fix it. Last week I went to get my eyes tested, thinking the blurred vision
Whippet_lady
in
LUPUS UK
1 year ago
After Forteo
has anyone been on Forteo for two years and then not taken anything else afterwards? I am interested in knowing if they experienced bone loss after Forteo with no additional meds I do not want to take any more medication but I am told I will lose any gains if I don’t
has anyone been on Forteo for two years and then not taken anything else afterwards? I am interested in knowing if they experienced bone loss after Forteo with no additional meds I do not want to take any more medication but I am told I will lose any gains if I don’t
Finnegan777
in
Osteoporosis Support
1 year ago
Eye watering
I had my acoustic neuroma surgery in 2018. I have been using Hylo Forte eye drops to keep my eye moist. Surgery was performed on right side and my right eye has always been good. But from past two days that eye is constantly watering. Does anyone know why?
I had my acoustic neuroma surgery in 2018. I have been using Hylo Forte eye drops to keep my eye moist. Surgery was performed on right side and my right eye has always been good. But from past two days that eye is constantly watering. Does anyone know why?
Frooti
in
Acoustic Neuroma Support
1 year ago
Looking for guidance
I am 72, very active and in good health (so far). Only prescription med I take is Livalo 2mg (for cholesterol). I also take high dose vitamin D every other week plus calcium and magnesium. My latest dexa scan was in January of this year. T-score for AP spine -3.7, femoral neck (left) -2.7, total hip
I am 72, very active and in good health (so far). Only prescription med I take is Livalo 2mg (for cholesterol). I also take high dose vitamin D every other week plus calcium and magnesium. My latest dexa scan was in January of this year. T-score for AP spine -3.7, femoral neck (left) -2.7, total hip
rnb054
in
Osteoporosis Support
2 years ago
prednisone, methotrexate, forteo
I am 6 years into pmr. This is my third try on methotrexate. Gone from 18 mg to 15&1/2mg. In 4 months. Might be having trouble at 15& 1/2 time will tell. (That is where I keep getting stuck) Just went thru terrible 5 month ordeal with new fractures in spine. I finally decided to face my fear and go
I am 6 years into pmr. This is my third try on methotrexate. Gone from 18 mg to 15&1/2mg. In 4 months. Might be having trouble at 15& 1/2 time will tell. (That is where I keep getting stuck) Just went thru terrible 5 month ordeal with new fractures in spine. I finally decided to face my fear and go
Linny3
in
PMRGCAuk
2 years ago
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