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Ageing pet’s effect on my health
Our son has come home for a visit and is appalled at the smell of our old dog. She is incontinent and wears nappies or lies on sheets I change several times a day. She insists on sleeping in our room at night, or barks all night long. I love her dearly, but I have noticed I cough a lot when I get up
Our son has come home for a visit and is appalled at the smell of our old dog. She is incontinent and wears nappies or lies on sheets I change several times a day. She insists on sleeping in our room at night, or barks all night long. I love her dearly, but I have noticed I cough a lot when I get up
Mandy56
in
CLL Support
3 years ago
VACCINE ANTIBOBY TEST STUDY
During my monthly office visit in early March, my Dr. asked if would get another blood test off site to determine whether I had developed sufficient antibodies from my recent vaccinations. MSK is trying to collect data as to whether us CLL'ers can can get protection too. In my case YES! Moderna vaccine
During my monthly office visit in early March, my Dr. asked if would get another blood test off site to determine whether I had developed sufficient antibodies from my recent vaccinations. MSK is trying to collect data as to whether us CLL'ers can can get protection too. In my case YES! Moderna vaccine
steve5441
in
CLL Support
3 years ago
Nausea with FCR
Hi all was just looking for some advice. I have just finished day 5 of my first cycle of fcr. The first day I felt fine but every day since I have had terrible nausea and also physically been sick. Does anyone know if this stops now i have finished the 5 days oral chemo and any advice on how they coped
Hi all was just looking for some advice. I have just finished day 5 of my first cycle of fcr. The first day I felt fine but every day since I have had terrible nausea and also physically been sick. Does anyone know if this stops now i have finished the 5 days oral chemo and any advice on how they coped
Daisy1993
in
CLL Support
3 years ago
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NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England
HAIRBEAR_UK and @jm954 represented patients at a recent NICE appraisal of Acalabrutinib and NICE has now determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients
HAIRBEAR_UK and @jm954 represented patients at a recent NICE appraisal of Acalabrutinib and NICE has now determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients
Jm954
in
Leukaemia Support
3 years ago
NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Jm954
Administrator
in
CLL Support
3 years ago
Inevitable, but still a blow and a huge disappointment
Apologies for this post. It isn't a request for information, or a message of support. It is merely an offload, a way of exorcising some of the thoughts and release the pressure on my overactive brain at the moment. I think it may be referred to as a Blog. Over 10 years diagnosed with CLL and after
Apologies for this post. It isn't a request for information, or a message of support. It is merely an offload, a way of exorcising some of the thoughts and release the pressure on my overactive brain at the moment. I think it may be referred to as a Blog. Over 10 years diagnosed with CLL and after
Rich316
in
CLL Support
3 years ago
First Time Post: CLL in full relapse mode + vaccines and Calquence next line of defense.
Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018. Unfortunately my leukemia is back after nearly 2 years of remission with FCR. I’ve undergone the typical CLL tests and was ‘relieved’ to find it had not
Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018. Unfortunately my leukemia is back after nearly 2 years of remission with FCR. I’ve undergone the typical CLL tests and was ‘relieved’ to find it had not
TimDeeSeattle
in
CLL Support
3 years ago
blood results after 9 week fcr finished
hi all,,, went for my blood review today 9 week after cycle 6 fcr finished ,,wbc.106....plts 34.....HB.108.....neuts.0.5........ not to happy with these results can anyone help me with these as iam thinking does the body take time to recover after 6 months of FCR,,,,got a couple of mouth ulcers and feeling
hi all,,, went for my blood review today 9 week after cycle 6 fcr finished ,,wbc.106....plts 34.....HB.108.....neuts.0.5........ not to happy with these results can anyone help me with these as iam thinking does the body take time to recover after 6 months of FCR,,,,got a couple of mouth ulcers and feeling
kel555
in
CLL Support
3 years ago
Which vaccine is better for CLL patients, Pfizer or Astra Zeneca ?
After 5 years of slow raising , at 134000 WBC I had FCR chemo, only two cycles, as I reacted with high fever to Rituximab and blood count droped down to 8000 immediately, so twice the second day of Cyclofosfamid was cancelled and unfortunately I did suffer from Clostridium Difficile after each treatment
After 5 years of slow raising , at 134000 WBC I had FCR chemo, only two cycles, as I reacted with high fever to Rituximab and blood count droped down to 8000 immediately, so twice the second day of Cyclofosfamid was cancelled and unfortunately I did suffer from Clostridium Difficile after each treatment
Ankakoza
in
CLL Support
3 years ago
Scottish Medicines Agency has decided in favour of Venetoclax plus Obintuzumab for some patients.
may be used together with obinutuzumab as a fixed term treatment in two subgroups of patients with CLL who have not yet had any treatment for their CLL: - patients with del(17p)/TP53 mutation - patients without del(17p)/TP53 mutation who are not fit enough to receive the chemo - immunotherapy FCR (
fludarabine
may be used together with obinutuzumab as a fixed term treatment in two subgroups of patients with CLL who have not yet had any treatment for their CLL: - patients with del(17p)/TP53 mutation - patients without del(17p)/TP53 mutation who are not fit enough to receive the chemo - immunotherapy FCR (
fludarabine
Jm954
Administrator
in
CLL Support
4 years ago
Chest pain in CLL
Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and right side of my chest. Had my heart checked and all ok. Just wondering if anyone has had this problem Thank you
Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and right side of my chest. Had my heart checked and all ok. Just wondering if anyone has had this problem Thank you
Daisy1993
in
CLL Support
3 years ago
not sure
I all ,i started treatment august 2020 FCR, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as time went on it got worse ,i was due to start my 4 cycle so i went to my doctors for a review before treatment i told him about the cough and
I all ,i started treatment august 2020 FCR, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as time went on it got worse ,i was due to start my 4 cycle so i went to my doctors for a review before treatment i told him about the cough and
kel555
in
CLL Support
3 years ago
Astra Zeneca - any reactions?
Or is it just me? Had it yesterday, aged 61. Within minutes I felt peculiar, also throat and eyes aching. Perked up in the evening, though tired. Very tired and headachy today. Hopefully it just means it’s just doing it’s job. I am so much more sensitive to all kinds of things since FCR two and a
Or is it just me? Had it yesterday, aged 61. Within minutes I felt peculiar, also throat and eyes aching. Perked up in the evening, though tired. Very tired and headachy today. Hopefully it just means it’s just doing it’s job. I am so much more sensitive to all kinds of things since FCR two and a
Mandy56
in
CLL Support
3 years ago
How things have changed
Admiral of the Fleet Sir Michael Le Fanu GCB DSC, First Sea Lord and (briefly) Chief of the Defence Staff was diagnosed in May 1970 with CLL. He was treated at the King Edward VII Hospital in London under Sir Ronald Bodley-Scott with cortisone and blood transfusions (Cortisone and Soda as he described
Admiral of the Fleet Sir Michael Le Fanu GCB DSC, First Sea Lord and (briefly) Chief of the Defence Staff was diagnosed in May 1970 with CLL. He was treated at the King Edward VII Hospital in London under Sir Ronald Bodley-Scott with cortisone and blood transfusions (Cortisone and Soda as he described
SERVrider
in
CLL Support
4 years ago
unmutated
hi all is there any members who has had fcr who are unmutated had longer than 3 yrs remission just curious has one doctor says you can get remission up to 5 yrs plus and also which treatment would be best after fcr ,,thank you ,,kel
hi all is there any members who has had fcr who are unmutated had longer than 3 yrs remission just curious has one doctor says you can get remission up to 5 yrs plus and also which treatment would be best after fcr ,,thank you ,,kel
kel555
in
CLL Support
4 years ago
covid vaccine
hi all its been a while since last post iam on my 5 fcr this Tuesday and i can tell you this as been the hardest task i have ever done the constant worry of covid 19 as my blood counts drop after every cycle, round 3 put me in hospital with sepsis which i recovered i had a bad cough for 2 weeks before
hi all its been a while since last post iam on my 5 fcr this Tuesday and i can tell you this as been the hardest task i have ever done the constant worry of covid 19 as my blood counts drop after every cycle, round 3 put me in hospital with sepsis which i recovered i had a bad cough for 2 weeks before
kel555
in
CLL Support
4 years ago
Introduction
Hello, my wife was diagnosed with Stage 5 CLL in early November and commenced chemotheraphy with FCR on 16th November. She will be undergoing 6 cycles of chemo over 6 months. I joined this community as it seems to have excellent resources and a very supportive community. I am still on the journey to
Hello, my wife was diagnosed with Stage 5 CLL in early November and commenced chemotheraphy with FCR on 16th November. She will be undergoing 6 cycles of chemo over 6 months. I joined this community as it seems to have excellent resources and a very supportive community. I am still on the journey to
Tehtarek
in
CLL Support
4 years ago
NHS and CLL coverage: seeking advice
For those of you living in the UK we are moving to Scotland and I am seeking advice on NHS. Is this generally sufficient coverage for good care of CLL patients? Does one have access to quality services or is private insurance something we should really stretch to consider? My husband had FCR for CLL
For those of you living in the UK we are moving to Scotland and I am seeking advice on NHS. Is this generally sufficient coverage for good care of CLL patients? Does one have access to quality services or is private insurance something we should really stretch to consider? My husband had FCR for CLL
gingerlovesal
in
CLL Support
4 years ago
Treatment of Reynauds
I have had Reynauds for about 8 years. Despite wearing insulated gloves, having hand warmers etc I still get cold painful fingers. I've been offered medication but they don't work or the side effects are worse. The only relief I had 18 months ago was when I was receiving FCR for my CLL and miraculously
I have had Reynauds for about 8 years. Despite wearing insulated gloves, having hand warmers etc I still get cold painful fingers. I've been offered medication but they don't work or the side effects are worse. The only relief I had 18 months ago was when I was receiving FCR for my CLL and miraculously
Floxxy
in
CLL Support
4 years ago
Revisiting Ibrutinib , but then no Venetoclax?
I am a decade into the CLL journey with non mutated 11q deletion - woohoo! I went through FCR in 2014 and am now relapsing, so gearing up for the next round ... As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with Ibrutinib s my second line treatment, I cannot
I am a decade into the CLL journey with non mutated 11q deletion - woohoo! I went through FCR in 2014 and am now relapsing, so gearing up for the next round ... As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with Ibrutinib s my second line treatment, I cannot
Me2AsWell
in
CLL Support
4 years ago
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