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Antihistamine Use for Insect Bites
I thought it was about time I posted, and first explain I’m on the home straight of my journey through the 7 year FLAIR trial, with my last review due this December, and I’m still in good remission (I’m in the FCR Chemoimmunotherapy arm of the trial) . . . I’ve found out in the last two years that I’
I thought it was about time I posted, and first explain I’m on the home straight of my journey through the 7 year FLAIR trial, with my last review due this December, and I’m still in good remission (I’m in the FCR Chemoimmunotherapy arm of the trial) . . . I’ve found out in the last two years that I’
Ernest2
in
CLL Support
3 years ago
Just when you thought CLL was enough to deal with! advice on BTK inhibitors and Heart Attack Meds interactions?
Since my last post, informing that I had come out of a 4 year remission, after FCR, I have been monitored for my ALC and lymph node enlargement. After 6 months my ALC had reached 24 and some spleen and node enlargement . My Haematology team suggested I would not need treatment this year. However,
Since my last post, informing that I had come out of a 4 year remission, after FCR, I have been monitored for my ALC and lymph node enlargement. After 6 months my ALC had reached 24 and some spleen and node enlargement . My Haematology team suggested I would not need treatment this year. However,
Rich316
in
CLL Support
3 years ago
Is FCR a treatment of the past?
Hello, I’m about to have my first line of treatment and there are so many options out there. (Very lucky) i have all the good mutation markers. I am leaning towards have venetoclax to start with , what’s the thoughts on this? as want to give my body the best opportunity possible. Is this the right path
Hello, I’m about to have my first line of treatment and there are so many options out there. (Very lucky) i have all the good mutation markers. I am leaning towards have venetoclax to start with , what’s the thoughts on this? as want to give my body the best opportunity possible. Is this the right path
Driverps1
in
CLL Support
3 years ago
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Cll and Ulcer Colitis
Hi everyone, I’m about to have my first treatment for cll. I also have ulcer colitis. Has anyone else had the same situation? Be good to hear feedback on any complications with having ulcer colitis and getting venetoclax medication. My doctor did say that one patient of hers had FCR treatment and it
Hi everyone, I’m about to have my first treatment for cll. I also have ulcer colitis. Has anyone else had the same situation? Be good to hear feedback on any complications with having ulcer colitis and getting venetoclax medication. My doctor did say that one patient of hers had FCR treatment and it
Driverps1
in
CLL Support
3 years ago
Long-Term Data Showcase the Clinical Utility of Fixed-Duration Venetoclax/Obinutuzumab in Treatment-Naïve CLL
We also know that some intensive chemoimmunotherapies increase the risk of specific malignancies, such as secondary acute myeloid leukemia after an FCR [
fludarabine
, cyclophosphamide, and rituximab (Rituxan)] treatment, so we have a particular focus of looking at secondary malignancies.
We also know that some intensive chemoimmunotherapies increase the risk of specific malignancies, such as secondary acute myeloid leukemia after an FCR [
fludarabine
, cyclophosphamide, and rituximab (Rituxan)] treatment, so we have a particular focus of looking at secondary malignancies.
lankisterguy
Volunteer
in
CLL Support
3 years ago
BUPA's get-out clause for cancer
Has anyone had any experience with Bupa cancer cover in the UK? Bupa Cancer promise is that it is not limited by time or costs. However, after one year on Ibrutinib, they have decided to increase my premium by 50%. And it gets worse, each year I am likely to face 50% increases because I lose my no-claims
Has anyone had any experience with Bupa cancer cover in the UK? Bupa Cancer promise is that it is not limited by time or costs. However, after one year on Ibrutinib, they have decided to increase my premium by 50%. And it gets worse, each year I am likely to face 50% increases because I lose my no-claims
MovingForward4423
in
CLL Support
3 years ago
Treatment advised (after 21 years w & w)
I am 66 year old male Royal Marsden patient UK. Treatment has been advised (which has come as a big shock to me as it has never mentioned before) mostly because I have a really huge spleen. Apparently extending over to the right side of my abdomen and well below my navel on the left side. This was on
I am 66 year old male Royal Marsden patient UK. Treatment has been advised (which has come as a big shock to me as it has never mentioned before) mostly because I have a really huge spleen. Apparently extending over to the right side of my abdomen and well below my navel on the left side. This was on
ornstin
in
CLL Support
3 years ago
Venetoclax
Not sure you would remember but I posted on here just over 2 years ago after a dreadful experience with FCR. My numbers have been steadily going up and it was decided that I start another treatment. As you can imagine I was very apprehensive after my last experience. Well, I started Venetoclax just
Not sure you would remember but I posted on here just over 2 years ago after a dreadful experience with FCR. My numbers have been steadily going up and it was decided that I start another treatment. As you can imagine I was very apprehensive after my last experience. Well, I started Venetoclax just
Racing1961
in
CLL Support
3 years ago
Looking for alternatives with BTK C481 resistant CLL
Looking for alternatives. I have had 3 prior treatments from FCR to other chemo to Veneclax and Imbrutnib which was working great until my counts went up again. Turns out I have developed a BTK mutation. Been seeking out trials and wanted to try loxo-305 (Pirtobrutinib) but it was all filled up and they
Looking for alternatives. I have had 3 prior treatments from FCR to other chemo to Veneclax and Imbrutnib which was working great until my counts went up again. Turns out I have developed a BTK mutation. Been seeking out trials and wanted to try loxo-305 (Pirtobrutinib) but it was all filled up and they
micg
in
CLL Support
3 years ago
Antibody testing
Does anyone know if we can ask for testing anywhere? I had FCR in 2018 and of course have had both jabs. I’d love to know if I have any antibodies. Thanks
Does anyone know if we can ask for testing anywhere? I had FCR in 2018 and of course have had both jabs. I’d love to know if I have any antibodies. Thanks
Mandy56
in
CLL Support
3 years ago
MBL is now CLL
Hi all, My MBL has progressed to CLL stage 1 after 8 years which I am struggling to come to terms with. I am now 51. Small glands in neck and groin and possibly a slightly enlarged spleen my lymphocytes were around 12-14 For couple of years but shot up to 24 recently. I am getting scams in 3 months.
Hi all, My MBL has progressed to CLL stage 1 after 8 years which I am struggling to come to terms with. I am now 51. Small glands in neck and groin and possibly a slightly enlarged spleen my lymphocytes were around 12-14 For couple of years but shot up to 24 recently. I am getting scams in 3 months.
Billy_Oz
in
CLL Support
3 years ago
Neutrophils have bottomed out.
I am supposed to have finished my 4th round of FCR last week but the start of it was delayed for a week because my ANC was .5 (2-7.5 is normal). Blood was checked again last week and it actually dropped to .4. Here we are now two weeks after I was supposed to start round 4 and my neutrophils now read
I am supposed to have finished my 4th round of FCR last week but the start of it was delayed for a week because my ANC was .5 (2-7.5 is normal). Blood was checked again last week and it actually dropped to .4. Here we are now two weeks after I was supposed to start round 4 and my neutrophils now read
CallmeT
in
CLL Support
3 years ago
New guy here, just want to share my story.
I had the option of taking the
Fludarabine
and Cyclophosphamide orally at home so I took this rather than having to do daily trips to the hospital. On the morning of my Rituximab IV I felt great, like really great, and it seemed unreal that I was about to undergo a serious poisoning of the body.
I had the option of taking the
Fludarabine
and Cyclophosphamide orally at home so I took this rather than having to do daily trips to the hospital. On the morning of my Rituximab IV I felt great, like really great, and it seemed unreal that I was about to undergo a serious poisoning of the body.
CallmeT
in
CLL Support
3 years ago
What’s the next step.
Hi folks Bloods have doubled over past few months and was Tod yesterday I’ve relapsed. I’m 8 years post FCR and now being prepped to commence one of three options in the next few weeks after ct scan etc. Options are 1/ Venetoclax. 2 years 2/ Ibrutinib indefinitely. Or 3 Acalabrutinib indefinitely.
Hi folks Bloods have doubled over past few months and was Tod yesterday I’ve relapsed. I’m 8 years post FCR and now being prepped to commence one of three options in the next few weeks after ct scan etc. Options are 1/ Venetoclax. 2 years 2/ Ibrutinib indefinitely. Or 3 Acalabrutinib indefinitely.
Billys60
in
CLL Support
3 years ago
Strange case of CLL remission
He only did the FIRST chemo session, day 1 Rituximab, then half a dose of
Fludarabine
before a severe tumor lysis syndrome kicked in that almost costed him his life. He stopped the treatment and was on a partial remission for 8 years!
He only did the FIRST chemo session, day 1 Rituximab, then half a dose of
Fludarabine
before a severe tumor lysis syndrome kicked in that almost costed him his life. He stopped the treatment and was on a partial remission for 8 years!
mkawass
in
CLL Support
3 years ago
Australian current treatment legislation
Is it correct that in Australia currently for a SLL /CLL patient, if you are NOT 17p del but still unmutated igvh and mutated tp53 ( meaning FCR is unlikely to be effective) , you will still need to go through FCR before having an option like ventoclax or or a BTK inhibitor?
Is it correct that in Australia currently for a SLL /CLL patient, if you are NOT 17p del but still unmutated igvh and mutated tp53 ( meaning FCR is unlikely to be effective) , you will still need to go through FCR before having an option like ventoclax or or a BTK inhibitor?
Waves01
in
CLL Support
3 years ago
any ideas
hi post 3mnths fcr haveing realy bad mouth sores as there anyone one else these nasty things ,,,hb 112 ...plts ..51...neuts ,,,0.3 still low ,,thankyou
hi post 3mnths fcr haveing realy bad mouth sores as there anyone one else these nasty things ,,,hb 112 ...plts ..51...neuts ,,,0.3 still low ,,thankyou
kel555
in
CLL Support
3 years ago
Health Canada approves Ibrutinib plus Rituximab for First Line Treatment of Patients with Chronic Lymphocytic Leukemia (CLL)
This latest approval is based on the Phase 3 ECOG1912 study (also referred to as E1912) that demonstrated newly diagnosed patients age 70 or younger (median age of 58) treated with IMBRUVICA® plus rituximab had significantly improved progression-free survival (PFS) compared to patients treated with
fludarabine
This latest approval is based on the Phase 3 ECOG1912 study (also referred to as E1912) that demonstrated newly diagnosed patients age 70 or younger (median age of 58) treated with IMBRUVICA® plus rituximab had significantly improved progression-free survival (PFS) compared to patients treated with
fludarabine
AussieNeil
Partner
in
CLL Support
4 years ago
NICE Recommends Acalabrutinib for treating CLL for certain groups
NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated chronic lymphocytic leukaemia (CLL) in adults, [u]BUT ONLY IF[/u]: * there is a 17p deletion or TP53 mutation, or * there is no 17p deletion or TP53 mutation, and
fludarabine
plus cyclophosphamide and rituximab
NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated chronic lymphocytic leukaemia (CLL) in adults, [u]BUT ONLY IF[/u]: * there is a 17p deletion or TP53 mutation, or * there is no 17p deletion or TP53 mutation, and
fludarabine
plus cyclophosphamide and rituximab
Jm954
Administrator
in
CLL Support
3 years ago
bmb showing partial remission after 6mnths fcr treatment
hi all ive had my bone marrow results which shows. pr. partial remission after 6 cycles of fcr finished in Jan 2021...unmutated,,,bloods show ..hb..112...plts.55...neuts..0.7 ..wbc..2.0...my question his,,is this a bad thing the p.r.and as anyone else who is un mutated had the same ,,,thank you ..kell
hi all ive had my bone marrow results which shows. pr. partial remission after 6 cycles of fcr finished in Jan 2021...unmutated,,,bloods show ..hb..112...plts.55...neuts..0.7 ..wbc..2.0...my question his,,is this a bad thing the p.r.and as anyone else who is un mutated had the same ,,,thank you ..kell
kel555
in
CLL Support
3 years ago
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