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Treatment Needed?
Hi All, My last CBC report (03 days back) was very depressing. My WBC has raised to almost 2 hundred thousand (200,000). RBC still just above 4 and HG just above 12. ALC 98% (198). But still no significant weight loss. night sweat, lymph nodes are there. One of my oncologist is of the view that now should
Hi All, My last CBC report (03 days back) was very depressing. My WBC has raised to almost 2 hundred thousand (200,000). RBC still just above 4 and HG just above 12. ALC 98% (198). But still no significant weight loss. night sweat, lymph nodes are there. One of my oncologist is of the view that now should
AAli
in
CLL Support
9 years ago
Latest news on the COMPLEMENT 2 trial, duvelisib (IPI-145), TGR-1202 and a novel SYK inhibitor TAK-659 presented at EHA and ICML
with relapsed chronic lymphocytic leukemia (CLL), when compared to
fludarabine
and cyclophosphamide alone (FC)[/i] http://www.hematologytimes.com/p_article.do?
with relapsed chronic lymphocytic leukemia (CLL), when compared to
fludarabine
and cyclophosphamide alone (FC)[/i] http://www.hematologytimes.com/p_article.do?
AussieNeil
Partner
in
CLL Support
9 years ago
Melanoma Risk Increased in CLL/SLL Patients
[/i] Hematology Times (free membership) http://www.cancernetwork.com/news/melanoma-risk-increased-cll-sll-patients [i]Looking specifically at patients who survived CLL/SLL, the researchers found that the risk for melanoma was doubled to tripled among patients who received infused
fludarabine
-containing
[/i] Hematology Times (free membership) http://www.cancernetwork.com/news/melanoma-risk-increased-cll-sll-patients [i]Looking specifically at patients who survived CLL/SLL, the researchers found that the risk for melanoma was doubled to tripled among patients who received infused
fludarabine
-containing
AussieNeil
Partner
in
CLL Support
9 years ago
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Husband returning to treatment
After 10 months of well-managed anemia (PRCA), using cyclosporine, my husband's WBC is rising, and he's likely to need CLL treatment again (he had 2 rounds of FCR 2 years ago). We're looking for CLL treatment options that will be less likely to trigger the anemia/blood transfusions.
After 10 months of well-managed anemia (PRCA), using cyclosporine, my husband's WBC is rising, and he's likely to need CLL treatment again (he had 2 rounds of FCR 2 years ago). We're looking for CLL treatment options that will be less likely to trigger the anemia/blood transfusions.
LAinNYC
in
CLL Support
9 years ago
Why they draw 10 tubes of our bloods and comments on chemo from patients
Friends, This week the CLL Society Inc. finally learned why they need so much blood of ours every time we are seen at a research center. We learned what a biorepository is and how it is changing how CLL research is done. Donna Neuberg, Sc. D. from Dana Farber Cancer Institute is the director of biostatistics
Friends, This week the CLL Society Inc. finally learned why they need so much blood of ours every time we are seen at a research center. We learned what a biorepository is and how it is changing how CLL research is done. Donna Neuberg, Sc. D. from Dana Farber Cancer Institute is the director of biostatistics
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
Low Platelets
I have just completed my fifth year in remission following four rounds of FCR (2009/10). My latest clinic appointment yesterday showed no significant enlarged nodes, lymphocytes 1.58 and all other blood results well in the normal range except for platelets. These now read 96 and were 112 in April
I have just completed my fifth year in remission following four rounds of FCR (2009/10). My latest clinic appointment yesterday showed no significant enlarged nodes, lymphocytes 1.58 and all other blood results well in the normal range except for platelets. These now read 96 and were 112 in April
Sharastani
in
CLL Support
9 years ago
The countdown begins
Had my hemp visit yesterday and my WBC is stable at 150k but my platelets have dropped to 127k. Pretty disappointed as all my other numbers have been pretty good all along. We are going to wait 3 months before we make any decisions but if it continues I am looking at treatment in the next 6-12 months
Had my hemp visit yesterday and my WBC is stable at 150k but my platelets have dropped to 127k. Pretty disappointed as all my other numbers have been pretty good all along. We are going to wait 3 months before we make any decisions but if it continues I am looking at treatment in the next 6-12 months
Petey613
in
CLL Support
9 years ago
UK - NICE Guidance for NHS England & Wales use of obinutuzumab in combination with chlorambucil for untreated chronic lymphocytic leukaemia
guidance details on the NICE website here:http://www.nice.org.uk/guidance/ta343 [i]Obinutuzumab (Gazyvaro), given with a drug called chlorambucil, is recommended as a possible treatment for adults with untreated chronic lymphocytic leukaemia only if: they have other conditions that make full-dose
fludarabine
guidance details on the NICE website here:http://www.nice.org.uk/guidance/ta343 [i]Obinutuzumab (Gazyvaro), given with a drug called chlorambucil, is recommended as a possible treatment for adults with untreated chronic lymphocytic leukaemia only if: they have other conditions that make full-dose
fludarabine
HAIRBEAR_UK
Administrator
in
CLL Support
9 years ago
UK - NICE Guidance for NHS use of Ofatumumab in combination with chlorambucil or bendamustine for untreated chronic lymphocytic leukaemia -
date: June 2015 You can access full guidance details on the NICE website here: http://www.nice.org.uk/guidance/ta344 [i]Ofatumumab (Arzerra) given with a drug called chlorambucil is recommended as a possible treatment for people with untreated chronic lymphocytic leukaemia if treatments containing
fludarabine
date: June 2015 You can access full guidance details on the NICE website here: http://www.nice.org.uk/guidance/ta344 [i]Ofatumumab (Arzerra) given with a drug called chlorambucil is recommended as a possible treatment for people with untreated chronic lymphocytic leukaemia if treatments containing
fludarabine
HAIRBEAR_UK
Administrator
in
CLL Support
9 years ago
Checkpoint Inhibitors - the Programmed Death 1 and Ligand (PD-1/PD-L1) checkpoints and their promise for CLL/SLL
In the last few years, we've seen amazing advances in the approvals of safer, more effective non chemo treatments for CLL/SLL. That momentum doesn't look as if it will stop any time soon, which is a huge improvement on the situation of just a few years ago, when FCR was the only improved treatment to
In the last few years, we've seen amazing advances in the approvals of safer, more effective non chemo treatments for CLL/SLL. That momentum doesn't look as if it will stop any time soon, which is a huge improvement on the situation of just a few years ago, when FCR was the only improved treatment to
AussieNeil
Partner
in
CLL Support
9 years ago
Rituximab hailed as a breakthrough for millions with Chronic Fatigue
A couple of days ago Sue (wroxham) mentioned yuppie flu in response to Ducksoup's post 'Fatigue, frustration and Community':https://healthunlocked.com/cllsupport/posts/131979723/fatigue-frustration-and-community So I was very interested to read two New Scientist articles from early this month, commencing
A couple of days ago Sue (wroxham) mentioned yuppie flu in response to Ducksoup's post 'Fatigue, frustration and Community':https://healthunlocked.com/cllsupport/posts/131979723/fatigue-frustration-and-community So I was very interested to read two New Scientist articles from early this month, commencing
AussieNeil
Partner
in
CLL Support
9 years ago
The Future Role of FCR and new data on venetoclax and rituximab
Dear friends, This week on the CLL Society website we bring the second part of our interview with Professor Michael Hallek of Koln, Germany, the director of the German CLL Study Group and a major CLL researcher and thinker. He starts by discussing his “fast boat” adaptive trial strategy (similar in
Dear friends, This week on the CLL Society website we bring the second part of our interview with Professor Michael Hallek of Koln, Germany, the director of the German CLL Study Group and a major CLL researcher and thinker. He starts by discussing his “fast boat” adaptive trial strategy (similar in
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
Dr Jeff Sharman - How I Treat My Patients With CLL Who Are Fit or Otherwise Healthy
In this one page overview from Clinical Care Options Oncology March 2015 (free membership), Dr Sharman explains how he categorises fit and otherwise healthy patients into low, intermediate and high treatment risk categories and chooses what he considers is the appropriate treatment for each category:
In this one page overview from Clinical Care Options Oncology March 2015 (free membership), Dr Sharman explains how he categorises fit and otherwise healthy patients into low, intermediate and high treatment risk categories and chooses what he considers is the appropriate treatment for each category:
AussieNeil
Partner
in
CLL Support
9 years ago
Chest infections
Following six rounds of fcr ending in february this year i have been plagued with one chest infection after another and a constant bad cough. I now have tinnitus. Has anyone else had anything similar and is this a normal symptom on cll. I would appreciate your comments.
Following six rounds of fcr ending in february this year i have been plagued with one chest infection after another and a constant bad cough. I now have tinnitus. Has anyone else had anything similar and is this a normal symptom on cll. I would appreciate your comments.
d011y
in
CLL Support
9 years ago
Suppressed bone marrow after FCR
Hello, I would appreciate Community opinions on the following case. Diagnosed with CLL in May 2010, I had 6 cycles of FCR between September 2012 and February 2013. Since then my Hgb has required supplementing with blood transfusions every 3 weeks (so I have had 40+ transfusions of 2 or 3 units). Iron
Hello, I would appreciate Community opinions on the following case. Diagnosed with CLL in May 2010, I had 6 cycles of FCR between September 2012 and February 2013. Since then my Hgb has required supplementing with blood transfusions every 3 weeks (so I have had 40+ transfusions of 2 or 3 units). Iron
Maldenite
in
CLL Support
9 years ago
FLAIR Trial - ErnieUK Final Round 6 FCR Surprises
I write this Post four weeks now after completing my final Round 6 of the FCR treatment. That’s from taking the last chemotherapy pill. As always please correct me on any errors/omissions and share your own experiences. Round 6 has thrown me a couple of surprises I wasn’t expecting. Please excuse
I write this Post four weeks now after completing my final Round 6 of the FCR treatment. That’s from taking the last chemotherapy pill. As always please correct me on any errors/omissions and share your own experiences. Round 6 has thrown me a couple of surprises I wasn’t expecting. Please excuse
Ernest2
in
CLL Support
9 years ago
Continuing FCR
Hello. I know everyone is different - that seems to be the key phrase in being treated for CLL ☺️ - but can anyone say what their experiences of 2nd, 3rd rounds etc. of FCR were like, compared to their first,please? My husband had no reactions to the Rituximab infusion in hospital, was very nauseous
Hello. I know everyone is different - that seems to be the key phrase in being treated for CLL ☺️ - but can anyone say what their experiences of 2nd, 3rd rounds etc. of FCR were like, compared to their first,please? My husband had no reactions to the Rituximab infusion in hospital, was very nauseous
Fran57
in
CLL Support
9 years ago
How Long To Wait For Trials and Treatments ?
A question I’ve wanted to ask you all for a long time: How long should we wait for trials and new treatments, and how to decide that the time is right to sign up, or not to wait any longer for what isn’t quite yet available? As I’m at the end of round 6 FCR (more of that later) the penny drops that
A question I’ve wanted to ask you all for a long time: How long should we wait for trials and new treatments, and how to decide that the time is right to sign up, or not to wait any longer for what isn’t quite yet available? As I’m at the end of round 6 FCR (more of that later) the penny drops that
Ernest2
in
CLL Support
9 years ago
Ofatumumab (Arzerra®) is accepted for restricted use within NHS Scotland.
Ofatumumab is used in combination with another cancer medicine, chlorambucil, to treat CLL in previously untreated patients who cannot receive therapy based on
fludarabine
.
Ofatumumab is used in combination with another cancer medicine, chlorambucil, to treat CLL in previously untreated patients who cannot receive therapy based on
fludarabine
.
HAIRBEAR_UK
Administrator
in
CLL Support
9 years ago
How Monoclonal Antibodies produce lasting antitumour effects
This Hematology times article examines research into how CD 20 Monoclonal Antibodies such as Mabthera®/Rituximab/Rituxan (the R in FCR) and obinutuzumab/GAZYVA®, trigger macrophages to engulf and destroy our B-CLL cells when we are treated with immunochemotherapy. What's exciting about this (mouse model
This Hematology times article examines research into how CD 20 Monoclonal Antibodies such as Mabthera®/Rituximab/Rituxan (the R in FCR) and obinutuzumab/GAZYVA®, trigger macrophages to engulf and destroy our B-CLL cells when we are treated with immunochemotherapy. What's exciting about this (mouse model
AussieNeil
Partner
in
CLL Support
9 years ago
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