Search
Search
About
Log in
Join
Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
Posts
Communities
857 public posts
Filter results
FlAIR trial screening advised for me follow up to previous posts.
My genetic tests so far are good 17p non deleted still waiting for IgVH.So first line treatment with
FCR
is also an option. Just wanted to update and thank everyone on this site for the education support and advice I have received.
My genetic tests so far are good 17p non deleted still waiting for IgVH.So first line treatment with
FCR
is also an option. Just wanted to update and thank everyone on this site for the education support and advice I have received.
annmcgowan
in
CLL Support
7 years ago
UPDATE ON: Help! 31yr old newly diagnosed CLL.
The doctor is reccomending
FCR
(I believe) chemo. He will have 6 rounds.
The doctor is reccomending
FCR
(I believe) chemo. He will have 6 rounds.
Jade263
in
CLL Support
7 years ago
In the arms of an angel
Here is the CLL journey of my father: October 2015- Dx with mild CLL (watch and wait) February 2016- started
FCR
due to B symptoms (8 cycles) September 2016- PR November 2016- CLL back and trial with Venetoclax April 2017- Leg lymph node growing and Zydelig June 2017- PCP caused by Zydelig July 2017
Here is the CLL journey of my father: October 2015- Dx with mild CLL (watch and wait) February 2016- started
FCR
due to B symptoms (8 cycles) September 2016- PR November 2016- CLL back and trial with Venetoclax April 2017- Leg lymph node growing and Zydelig June 2017- PCP caused by Zydelig July 2017
NickiePaG
in
CLL Support
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Pd, prostate and back
Hi I've had pd 15 years. Had back decompression operation March 2017, further back operation August 2017. Had them done privately, mainly because NHS in UK makes no concessions to my pd, refuses to treat the whole person and wouldn't let my wife give me strictly-timed pd drugs. To add to my problems
Hi I've had pd 15 years. Had back decompression operation March 2017, further back operation August 2017. Had them done privately, mainly because NHS in UK makes no concessions to my pd, refuses to treat the whole person and wouldn't let my wife give me strictly-timed pd drugs. To add to my problems
John3419
in
Cure Parkinson's
7 years ago
Life or death... Or IVIG.
I had
FCR
six years ago.... Cll/SLL Stage 4, Rai II. My
FCR
was stopped by the 5th month because I was so very toxic. Very aggressive
FCR
and I just never recovered. Always had flu like symptoms, so bad to keep me in bed. Then singles, pneumonia, skin cancer (melanomas) in 5 different places.
I had
FCR
six years ago.... Cll/SLL Stage 4, Rai II. My
FCR
was stopped by the 5th month because I was so very toxic. Very aggressive
FCR
and I just never recovered. Always had flu like symptoms, so bad to keep me in bed. Then singles, pneumonia, skin cancer (melanomas) in 5 different places.
Kimsome
in
CLL Support
7 years ago
Flu vaccine
Hello friends, I finished 6 rounds of
FCR
in March. I was so disappointed to discover last month that my white cell count and neuts were lower than when I was going through chemo. Had bloods checked last week and still the same.
Hello friends, I finished 6 rounds of
FCR
in March. I was so disappointed to discover last month that my white cell count and neuts were lower than when I was going through chemo. Had bloods checked last week and still the same.
Kenn123
in
CLL Support
7 years ago
Neutrophils staying low
My OH has just completed a 4th cycle of
FCR
- however each cycle has been reduced from the previous one, initially due to low platelet figures, now it's low neutrophils. Full set of blood tests today, so waiting to hear what happens next.
My OH has just completed a 4th cycle of
FCR
- however each cycle has been reduced from the previous one, initially due to low platelet figures, now it's low neutrophils. Full set of blood tests today, so waiting to hear what happens next.
shoppingtrolley
in
CLL Support
7 years ago
nausea returned 4 months post FCR
I had 4 series of
FCR
treatment and am 4 months out since the last one. After each series (3 days each) I experienced about 3-4 days of nausea. After that my only symptom was fatigue. Surprisingly, about 3 weeks ago the nausea returned and has not subsided since.
I had 4 series of
FCR
treatment and am 4 months out since the last one. After each series (3 days each) I experienced about 3-4 days of nausea. After that my only symptom was fatigue. Surprisingly, about 3 weeks ago the nausea returned and has not subsided since.
Hidden
in
CLL Support
7 years ago
Just putting a tentative toe in the on line world!
Although I am new to the on line community I was diagnosed as having CLL a bit over nine years ago now, was treated was chlorambucil and then with
FCR
the following year. I guess I was lucky in that I only needed three courses rather than the usual six for my white cell count to come right down.
Although I am new to the on line community I was diagnosed as having CLL a bit over nine years ago now, was treated was chlorambucil and then with
FCR
the following year. I guess I was lucky in that I only needed three courses rather than the usual six for my white cell count to come right down.
Patientgill
in
CLL Support
7 years ago
Ibrutinib as frontline??
I've read posts on here which seem to claim that the new immunotherapies such as Ibrutinib have a better outcome when used as a first treatment, instead of
FCR
. Also that the residual toxiticies of
FCR
, negatively affect ibrutinib.
I've read posts on here which seem to claim that the new immunotherapies such as Ibrutinib have a better outcome when used as a first treatment, instead of
FCR
. Also that the residual toxiticies of
FCR
, negatively affect ibrutinib.
bendintheroad1
in
CLL Support
7 years ago
Latest update....
We also discussed treatment and he has been denied
FCR
due to the fact he has had bowel cancer and skin cancer lesions......we will discuss treatments further in two months time when we see her, but she is looking at a mild type of treatment....i.e.
We also discussed treatment and he has been denied
FCR
due to the fact he has had bowel cancer and skin cancer lesions......we will discuss treatments further in two months time when we see her, but she is looking at a mild type of treatment....i.e.
Susiecarer
in
CLL Support
7 years ago
FCR after four years
I received 13 packs of Erytrocyt/Concentrate and 6 rounds of
FCR
. Only minor sideeffects and no infections. HB level was back after three rounds and MRD neg! Also after fifth and sixth round, with reduced dose, MRD neg and CR. Blood counts normal since then, better than years before.
I received 13 packs of Erytrocyt/Concentrate and 6 rounds of
FCR
. Only minor sideeffects and no infections. HB level was back after three rounds and MRD neg! Also after fifth and sixth round, with reduced dose, MRD neg and CR. Blood counts normal since then, better than years before.
seoul
in
CLL Support
7 years ago
3rd cycle FCR done
Had a very first and second cycles but just ended first week of third cycle
FCR
. The hospital part where I got the infusion of Rituxab went fine on Monday, but have been feeling much more tired and weak this time during this first week. Also nausea, but no sickness. Haven't had that previously.
Had a very first and second cycles but just ended first week of third cycle
FCR
. The hospital part where I got the infusion of Rituxab went fine on Monday, but have been feeling much more tired and weak this time during this first week. Also nausea, but no sickness. Haven't had that previously.
bendintheroad1
in
CLL Support
7 years ago
9 month check up post FCR and it seems it was worth the ride!
He used the words remission .. and complete. ..We all know what this means .. no guarantees .. but I felt so oooo grateful for
FCR
! Booked a holiday for September and feel well. Keep going everyone .. We can live well with CLL :)
He used the words remission .. and complete. ..We all know what this means .. no guarantees .. but I felt so oooo grateful for
FCR
! Booked a holiday for September and feel well. Keep going everyone .. We can live well with CLL :)
Bethan49
in
CLL Support
7 years ago
Bad rash after first CLL chemo.
Just started on a course of
FCR
26 days ago I came out in a rash all over my body. It started a few days after my chemo. It is unbearable now and consultant says he has no idea why. Cannot start my next treatment due to this painful rash.
Just started on a course of
FCR
26 days ago I came out in a rash all over my body. It started a few days after my chemo. It is unbearable now and consultant says he has no idea why. Cannot start my next treatment due to this painful rash.
Rugbyman13
in
CLL Support
7 years ago
To have or not to have....
Hi all I've got my appointment this morning to see if I need my 5th
FCR
. I must admit to feeling nervous and anxious because why shouldn't I have my 5th and 6th sessions, it's what I signed up for on the trial, it might make the difference between a long and a short remission!
Hi all I've got my appointment this morning to see if I need my 5th
FCR
. I must admit to feeling nervous and anxious because why shouldn't I have my 5th and 6th sessions, it's what I signed up for on the trial, it might make the difference between a long and a short remission!
sallyplest
in
CLL Support
7 years ago
FCR
I am just finishing the 2nd cycle of
FCR
for my CLL diagnosed 2011. Must say it's not been at all bad ... so far anyway. No sickness at all but did get anti-sick tabs and anti virals, oh and also anti kidney and chest infection tabs.
I am just finishing the 2nd cycle of
FCR
for my CLL diagnosed 2011. Must say it's not been at all bad ... so far anyway. No sickness at all but did get anti-sick tabs and anti virals, oh and also anti kidney and chest infection tabs.
bendintheroad1
in
CLL Support
7 years ago
Advice with starting FCR
After two years of wait and watch, I have to start treatment this week. Besides drinking lots of fluids what else do you recommend? What should I bring with me for these long treatments? I will be taking anti nausea and other medications to help reduce side effects. I am looking forward to saying
After two years of wait and watch, I have to start treatment this week. Besides drinking lots of fluids what else do you recommend? What should I bring with me for these long treatments? I will be taking anti nausea and other medications to help reduce side effects. I am looking forward to saying
Jemisavs5
in
CLL Support
7 years ago
Choices, choices!! FCR or Trial...?
Or the shorter
FCR
? How have others come to decide which path to tip toe down? (I'm definitely not rushing to get on either, tbh, and I know many of you will groan, but I'd wanted to do this holistically and have been really improving my diet, lifestyle etc) Any thoughts appreciated.
Or the shorter
FCR
? How have others come to decide which path to tip toe down? (I'm definitely not rushing to get on either, tbh, and I know many of you will groan, but I'd wanted to do this holistically and have been really improving my diet, lifestyle etc) Any thoughts appreciated.
AnjiP
in
CLL Support
7 years ago
High fever as side effect of Ibrutinib ?
I had 6 cycles of
FCR
5 years ago which gave me 5 years of a nice remission. For the last 2 years I am on monthly IVIG because of frequent pneumonias. Helped really good. Now my CLL has returned . 4 months ago a low grade fever started , about 37.5C .
I had 6 cycles of
FCR
5 years ago which gave me 5 years of a nice remission. For the last 2 years I am on monthly IVIG because of frequent pneumonias. Helped really good. Now my CLL has returned . 4 months ago a low grade fever started , about 37.5C .
GIDI
in
CLL Support
7 years ago
1
...
24
25
26
...
43
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
CLL Support
763 results
Cure Parkinson's
70 results
CLL America Support
7 results
View top 10 communities
Sort by
Most Relevant
Newest