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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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MRD Results.
MRD results are in after 3 rounds of
FCR
. I am wondering if any other members of this group achieved MRD after partial treatment and what your MRD numbers were. I achieved a 1% according to my Dr. any info would be greatly appreciated. Thanks in advance
MRD results are in after 3 rounds of
FCR
. I am wondering if any other members of this group achieved MRD after partial treatment and what your MRD numbers were. I achieved a 1% according to my Dr. any info would be greatly appreciated. Thanks in advance
BEN61
in
CLL America Support
6 years ago
Fcr and flu jab
Should I have a flu jab while on
fcr
?
Should I have a flu jab while on
fcr
?
dandelup
in
CLL Support
6 years ago
Post 4 cycles FCR side effects
FCR
vasculitis & fungal pneumonia after 4 cycle
FCR
vasculitis & fungal pneumonia after 4 cycle
Mathild
in
CLL Support
6 years ago
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Fcr update
It’s now two weeks since my first session of chemo. On day four I felt exhausted and really nauseous so slept on and off most of the day,day five I managed to pass out and fall down the stairs and ended up in hospital as I banged my head, was allowed out the following day after a night on a drip . Since
It’s now two weeks since my first session of chemo. On day four I felt exhausted and really nauseous so slept on and off most of the day,day five I managed to pass out and fall down the stairs and ended up in hospital as I banged my head, was allowed out the following day after a night on a drip . Since
dandelup
in
CLL Support
6 years ago
Test Results FCR- Remission!
After 3 rounds of
FCR
, I am finished with treatment. I am hoping I have a long remission. I see my oncologist next month for check up then hopefully back to routine blood work. Will keep port in thru the winter. Hopefully get thru the next 6 months avoiding germs/illness. 🎉🎉🎉
After 3 rounds of
FCR
, I am finished with treatment. I am hoping I have a long remission. I see my oncologist next month for check up then hopefully back to routine blood work. Will keep port in thru the winter. Hopefully get thru the next 6 months avoiding germs/illness. 🎉🎉🎉
GMa27
in
CLL Support
6 years ago
Ibrutinib
He had headaches with
FCR
. Any advice on how to best comfort him or make life easier during Ibrutinib?
He had headaches with
FCR
. Any advice on how to best comfort him or make life easier during Ibrutinib?
Zappymom12
in
CLL Support
6 years ago
Newbie
I’m 63, finished
FCR
in November 2015, just started ibrutinib week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol Anyway. Hope symptoms get better after these first couple of weeks. Randy
I’m 63, finished
FCR
in November 2015, just started ibrutinib week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol Anyway. Hope symptoms get better after these first couple of weeks. Randy
gesch83ag
in
CLL Support
6 years ago
Cheap Ibrutinib?
We are doing the bone marrow this week and we will know for sure, but our doctor assumes Ibrutinib, combination or
FCR
, I prefer the first. However the cost is insane, I found many websites selling online,, especially from India.
We are doing the bone marrow this week and we will know for sure, but our doctor assumes Ibrutinib, combination or
FCR
, I prefer the first. However the cost is insane, I found many websites selling online,, especially from India.
paula_dae
in
CLL Support
6 years ago
50 yr old son had 6 cycles of FCR in 2017. In complete remission over a year. Recent wbc and platelets way down. What is happening?
Back to onco-hemo dr in 2weeks. BWB biopsy will be needed if counts do not go up. Son feels fine. Any thoughts?
Back to onco-hemo dr in 2weeks. BWB biopsy will be needed if counts do not go up. Son feels fine. Any thoughts?
jumper23
in
CLL Support
6 years ago
First dose over
it’s not uncommon though, but to anyone out there that’s about to start
fcr
in the near future the experience is not too bad.
it’s not uncommon though, but to anyone out there that’s about to start
fcr
in the near future the experience is not too bad.
dandelup
in
CLL Support
6 years ago
28 Days on Ibrutinib
Despite these symptoms my bloods were not to bad, certainly not at the stage they were in 2010 when I began
FCR
. For some months my consultant said I needed treatment and in May he said there was a trial of Venentoclax and Ibrutinib to be started in August.
Despite these symptoms my bloods were not to bad, certainly not at the stage they were in 2010 when I began
FCR
. For some months my consultant said I needed treatment and in May he said there was a trial of Venentoclax and Ibrutinib to be started in August.
Mick491
in
CLL Support
6 years ago
adverse reaction to aromatherapy?
I have had 5 sessions of
FCR
so far and wonder if it has left my lungs super sensitive?
I have had 5 sessions of
FCR
so far and wonder if it has left my lungs super sensitive?
Mandy56
in
CLL Support
6 years ago
2 nd fcr day over
A big thank you for all your good wishes and advice, I sailed through second day no reactions at all, now a break till October once again thank you for all your kind words of support.
A big thank you for all your good wishes and advice, I sailed through second day no reactions at all, now a break till October once again thank you for all your kind words of support.
dandelup
in
CLL Support
6 years ago
Just a quick question re fcr
Starting
FCR
next week I presume I will have a picc line fitted? Just one of the many questions I forgot to ask yesterday at my appointment
Starting
FCR
next week I presume I will have a picc line fitted? Just one of the many questions I forgot to ask yesterday at my appointment
dandelup
in
CLL Support
6 years ago
Just got my FISH results
I am starting
FCR
treatment next week. Could someone let me know what to expect? I am trying to stay positive, knowing there are good treatment options, but have also read about the relapse rates etc. Not sure what the current state of play is, so any info would be appreciated. Many thanks.
I am starting
FCR
treatment next week. Could someone let me know what to expect? I am trying to stay positive, knowing there are good treatment options, but have also read about the relapse rates etc. Not sure what the current state of play is, so any info would be appreciated. Many thanks.
fugazi
in
CLL Support
6 years ago
Completely lost appetite
Very soon I am going to start my first cycle of
FCR
. The problem is that there is loss of appetite not due to fear of therapy but due to my progressive CLL.I want to know ,if any had such an experience ,when my symptoms will resolve? Will that happen after the whole course of treatment or sooner ?
Very soon I am going to start my first cycle of
FCR
. The problem is that there is loss of appetite not due to fear of therapy but due to my progressive CLL.I want to know ,if any had such an experience ,when my symptoms will resolve? Will that happen after the whole course of treatment or sooner ?
MoSamir
in
CLL Support
6 years ago
Big day update
Now back from hospital I got selected for
fcr
which I was hoping to avoid, but going to approach it in a positive manor try and keep infection free and look forward to March when it will be finished.
Now back from hospital I got selected for
fcr
which I was hoping to avoid, but going to approach it in a positive manor try and keep infection free and look forward to March when it will be finished.
dandelup
in
CLL Support
6 years ago
Ibrutinib in September
Hi ,after just under 2 years remission after
FCR
, I am now starting ibrutinib in September.Just wondered how long people on here have been taking this?Thanks Martin
Hi ,after just under 2 years remission after
FCR
, I am now starting ibrutinib in September.Just wondered how long people on here have been taking this?Thanks Martin
Stacky66
in
CLL Support
6 years ago
One year on from FCR - and I feel great
For me, a teacher returning to his 23rd 'Start of the year' this year I am reminded that this time a year ago I was having the last of my 6 cycles of
FCR
.
For me, a teacher returning to his 23rd 'Start of the year' this year I am reminded that this time a year ago I was having the last of my 6 cycles of
FCR
.
MattGGibson
in
CLL Support
6 years ago
Venetoclax and mouth sores
Beginning of July I had a Bone Marrow Biopsy and it came back with NO CLL/SLL I had failed
FCR
and went on to Venetoclax & Obinutuzumab. Obinutuzumab finished in Feb 2018.
Beginning of July I had a Bone Marrow Biopsy and it came back with NO CLL/SLL I had failed
FCR
and went on to Venetoclax & Obinutuzumab. Obinutuzumab finished in Feb 2018.
Eliotf
in
CLL Support
6 years ago
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