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Experiences with
Eltrombopag
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Curious_Patient with ITP
He advised me again to continue taking
Eltrombopag
(75mg) and Warfarin (3mg) everyday as well as once-a-week (for a month) Rituximab. My concern is that after injecting Rituximab into my body, I feel much of muscle pain (as if my muscles/bones are being ripped).
He advised me again to continue taking
Eltrombopag
(75mg) and Warfarin (3mg) everyday as well as once-a-week (for a month) Rituximab. My concern is that after injecting Rituximab into my body, I feel much of muscle pain (as if my muscles/bones are being ripped).
Alex_MC
in
ITP Support Association
8 years ago
Starting a new therapy for Itp
Has anyone taken Promacta (
eltrombopag
) as a treatment for ITP? I am starting the pill on Monday and terribly anxious after reading the terrible side effects list. Sounds even worse than taking steroids which I have been doing daily for eight years.
Has anyone taken Promacta (
eltrombopag
) as a treatment for ITP? I am starting the pill on Monday and terribly anxious after reading the terrible side effects list. Sounds even worse than taking steroids which I have been doing daily for eight years.
22-patience
in
ITP Support Association
8 years ago
Miss
I hv bn dealing with ITP condition for a year and some month nw.started with prednislone then azithioprine and now am on
Eltrombopag
b my platelet is still nt stable jst constant ups and down.d last count was 4 before I strart
Eltrombopag
which increase it to 19 .am so fed up with this increase in
I hv bn dealing with ITP condition for a year and some month nw.started with prednislone then azithioprine and now am on
Eltrombopag
b my platelet is still nt stable jst constant ups and down.d last count was 4 before I strart
Eltrombopag
which increase it to 19 .am so fed up with this increase in
Abubakarjamila
in
ITP Support Association
9 years ago
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Drop in platelet count
She had lived quite safely on a very good count due to taking mycophenolate and
eltrombopag
. Unfortunately over the last couple of weeks her count has been dropping significantly and she has now been re-admitted to hospital for immunoglobulin infusions as her count is now at 19.
She had lived quite safely on a very good count due to taking mycophenolate and
eltrombopag
. Unfortunately over the last couple of weeks her count has been dropping significantly and she has now been re-admitted to hospital for immunoglobulin infusions as her count is now at 19.
Lindylou86
in
ITP Support Association
9 years ago
Diet for Breakfast when taking Revolade/Eltrombopag in the morning,
I am being put on a trial of Revolade/
Eltrombopag
. I still have my spleen and am still taking steroids. I am wondering what diet to follow. I understand that I have to have a low calcium diet, but seem to find different website that have fruit listed but they all seem to vary.
I am being put on a trial of Revolade/
Eltrombopag
. I still have my spleen and am still taking steroids. I am wondering what diet to follow. I understand that I have to have a low calcium diet, but seem to find different website that have fruit listed but they all seem to vary.
tinah1974
in
ITP Support Association
9 years ago
Cyclosporin
Hi all Having tried and failed with: Azathioprine, Rituximab, IvIG, N-Plate,
Eltrombopag
, Predisolone, MMF and Dexamethasone. I am tapering my prednisone so that I am off it shortly and will then begin Cyclosporin. Anyone any experience with this? Has it worked? Side effects?
Hi all Having tried and failed with: Azathioprine, Rituximab, IvIG, N-Plate,
Eltrombopag
, Predisolone, MMF and Dexamethasone. I am tapering my prednisone so that I am off it shortly and will then begin Cyclosporin. Anyone any experience with this? Has it worked? Side effects?
trev1679
in
ITP Support Association
10 years ago
Hair Loss - My daughter is on 1grm mycophenolate and 75mg Eltrombopag daily, been on this for about 18 months now.
She has recently noticed that her hair has started to fall out, it wasn't much at first but now when she washes her hair it is quite a noticeable amount that is coming out. Has anyone else been on this medication and noticed this as a side effect. I know she lost a lot of hair when when first got diagnosed
She has recently noticed that her hair has started to fall out, it wasn't much at first but now when she washes her hair it is quite a noticeable amount that is coming out. Has anyone else been on this medication and noticed this as a side effect. I know she lost a lot of hair when when first got diagnosed
Lindylou86
in
ITP Support Association
10 years ago
ITP and infections
My daughter who has ITP has recurring colds and chest infections and also urinary infections.The ITP is no longer getting her down as she has a stable count with the help of MMF and
Eltrombopag
but it is the constant colds and infections. Anyone else suffer like this. Thanks
My daughter who has ITP has recurring colds and chest infections and also urinary infections.The ITP is no longer getting her down as she has a stable count with the help of MMF and
Eltrombopag
but it is the constant colds and infections. Anyone else suffer like this. Thanks
Lindylou86
in
ITP Support Association
10 years ago
What is the success rate of romiplostim?? How long it should be taken???
Has anyone tried
eltrombopag
???
Has anyone tried
eltrombopag
???
grishma
in
ITP Support Association
10 years ago
Hi probably a really silly question but do other Itp sufferes think it will be ok to use Vicks Vaporub
She is 24 and her platelets are very stable at the moment as she is on a combination of
eltrombopag
and mycophenolate.
She is 24 and her platelets are very stable at the moment as she is on a combination of
eltrombopag
and mycophenolate.
Lindylou86
in
ITP Support Association
10 years ago
Hi my daughter has been on a combination of Eltrombopag and MMF for sometime (75mg eltrombopag 1gm MMF)
Her count has risen steadily to a very healthy 230 and it was decided to taper off the
Eltrombopag
to 50mg, within 2 weeks she has dropped to 103 (which is still good), has anyone else had this type of experience while on this combination, she is back up to 75mg
Eltrombopag
to try and get a higher
Her count has risen steadily to a very healthy 230 and it was decided to taper off the
Eltrombopag
to 50mg, within 2 weeks she has dropped to 103 (which is still good), has anyone else had this type of experience while on this combination, she is back up to 75mg
Eltrombopag
to try and get a higher
Lindylou86
in
ITP Support Association
11 years ago
Is eltrombopag available in UK yet? Also what are side effects please .
poppy5
in
ITP Support Association
11 years ago
Have just started on Revolade (Eltrombopag) just wondering if anyone has had good result with the drug and if they had any side effects
caza3
in
ITP Support Association
11 years ago
ITP & Eltrombopag to be called Revolade in the UK, Promacta in the USA
Has anyone had any experience with promacta? I am deciding if to take it or not?
Has anyone had any experience with promacta? I am deciding if to take it or not?
dp1204
in
ITP Support Association
11 years ago
MMF
Hi my daughter has been on a combination of
Eltrombopag
and MMF since December, her count has been nearly back to normal (hightest count being 112) since starting on this combination of medications, over the last month or so however her count is slowly dropping again going from 112, 85 and today 67.
Hi my daughter has been on a combination of
Eltrombopag
and MMF since December, her count has been nearly back to normal (hightest count being 112) since starting on this combination of medications, over the last month or so however her count is slowly dropping again going from 112, 85 and today 67.
lindylou45
in
ITP Support Association
11 years ago
Has anyone been/had treatment at The Royal Free? Also has anyone used eltrombopag?
A little worried about it :\ Also has anyone been given
eltrombopag
? How did you get on?
A little worried about it :\ Also has anyone been given
eltrombopag
? How did you get on?
pear-shaped
in
British Liver Trust
12 years ago
Has anyone been to the Royal Free? Also about eltrombopag...
A little worried about it :\ Also has anyone been given
eltrombopag
? How did you get on?
A little worried about it :\ Also has anyone been given
eltrombopag
? How did you get on?
pear-shaped
in
British Liver Trust
12 years ago
rituximab verus eltrombopag
i was hospitalized and given platlet transfusion....... whilst there i did some basic resreach (because was the weekend and consultant was avalible til monday) on the internet and discovered 2 other options that mite work for me n plates and
eltrombopag
i hadnt fully researched it because i didnt get
i was hospitalized and given platlet transfusion....... whilst there i did some basic resreach (because was the weekend and consultant was avalible til monday) on the internet and discovered 2 other options that mite work for me n plates and
eltrombopag
i hadnt fully researched it because i didnt get
catt1
in
ITP Support Association
12 years ago
Mycophenolate and Eltrombopag
Hi, my daughter (who is 23) who was diagnosed in April last year with ITP and had a brain bleed in October 2012, has had flunctuating platelets ranging between 0 and 6, and has been on various treatments has now been put on to a combination of mycophenolate and
eltrombopag
( as neither worked just by
Hi, my daughter (who is 23) who was diagnosed in April last year with ITP and had a brain bleed in October 2012, has had flunctuating platelets ranging between 0 and 6, and has been on various treatments has now been put on to a combination of mycophenolate and
eltrombopag
( as neither worked just by
lindylou45
in
ITP Support Association
12 years ago
Side effects of eltrombopag
Hi any info on
eltrombopag
would be much appreciated, side effects experienced. My 22 year old daughter starting to try and stabilise and increase her platelet count. So many drugs have been tried on her so far and not much success. Any info would be greatly appreciated . Thanks
Hi any info on
eltrombopag
would be much appreciated, side effects experienced. My 22 year old daughter starting to try and stabilise and increase her platelet count. So many drugs have been tried on her so far and not much success. Any info would be greatly appreciated . Thanks
lindylou45
in
ITP Support Association
12 years ago
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