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Any advice would be appreciated
Three years ago my dear friend was diagnosed with metastisized prostate cancer. Stage 8. Cancer had spread to bone but not to lymph nodes or organs. HealthUnlocked helped me, as primary support person, to navigate options, to formulate useful questions for our medical team, to anticipate treatment side
Three years ago my dear friend was diagnosed with metastisized prostate cancer. Stage 8. Cancer had spread to bone but not to lymph nodes or organs. HealthUnlocked helped me, as primary support person, to navigate options, to formulate useful questions for our medical team, to anticipate treatment side
SupportP
in
Advanced Prostate Cancer
1 year ago
Pluvicto and tongue and taste issues
Previously posted the below message. Just had third Pluvicto infusion (6/9) and tongue and taste issue has gotten worse. Tried all suggestions from Oral Medicine at Dana and suggestions on HealthUnlocked. Has anyone experienced this issue and if so, any further suggestions. Your input always appreciated
Previously posted the below message. Just had third Pluvicto infusion (6/9) and tongue and taste issue has gotten worse. Tried all suggestions from Oral Medicine at Dana and suggestions on HealthUnlocked. Has anyone experienced this issue and if so, any further suggestions. Your input always appreciated
TTJJ1
in
Advanced Prostate Cancer
1 year ago
Zoladex and HRT
I was diagnosed with endo in 2021, it was removed from my abdominal wall but my pain never fully left. Just 4 months later my symptoms returned and the pain was as bad as it was pre-op. Here I am, 19 months later in significant daily pain. I am signed off sick from work for the 3rd week, and it seems
I was diagnosed with endo in 2021, it was removed from my abdominal wall but my pain never fully left. Just 4 months later my symptoms returned and the pain was as bad as it was pre-op. Here I am, 19 months later in significant daily pain. I am signed off sick from work for the 3rd week, and it seems
Ccn2018
in
Endometriosis UK
1 year ago
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Mitochondria, sugar, red lights and Doxazosin
My scientist friend, who is working on a vibrotactile coordinated reset prototype for me, drew my attention to an article in New Scientist - which is very interesting https://www.newscientist.com/article/mg25734290-100-restoring-the-brains-mitochondria-could-slow-ageing-and-end-dementia/ Quick take
My scientist friend, who is working on a vibrotactile coordinated reset prototype for me, drew my attention to an article in New Scientist - which is very interesting https://www.newscientist.com/article/mg25734290-100-restoring-the-brains-mitochondria-could-slow-ageing-and-end-dementia/ Quick take
WinnieThePoo
in
Cure Parkinson's
1 year ago
testosterone boosters after ADT?
I finished SBRT in September and a six month course of ADT in March. I asked my endocrinologist about zinc and Vitamin D to aid T recovery, and he said it probably wouldn’t help, but won’t hurt anything. I saw some “testosterone support” from Wieder at the store and am considering it. It augments
I finished SBRT in September and a six month course of ADT in March. I asked my endocrinologist about zinc and Vitamin D to aid T recovery, and he said it probably wouldn’t help, but won’t hurt anything. I saw some “testosterone support” from Wieder at the store and am considering it. It augments
Mike404
in
Prostate Cancer Network
1 year ago
advice/opinions please
over the last few years my TSH has always been outside reference range. The GP has normally said borderline. They have usually been 4.5 and higher but less than 10. Last year in March was 5.3, borderline. Then I had a repeat in June 2022 and it came back as 3.4 no further action which was highly unusual
over the last few years my TSH has always been outside reference range. The GP has normally said borderline. They have usually been 4.5 and higher but less than 10. Last year in March was 5.3, borderline. Then I had a repeat in June 2022 and it came back as 3.4 no further action which was highly unusual
Ozzy77
in
Thyroid UK
1 year ago
Right Bundle Branch Block(RBBB)
I have now added a Cardiologist to my list of doctors. During a pre-op checkup for surgery on my Left knee, It was discovered that I have a complete RBBB. My research shows that Eligard/ ADT can be a possible cause. Is anyone else dealing with this? I have an Echocardiogram set for this coming Tuesday
I have now added a Cardiologist to my list of doctors. During a pre-op checkup for surgery on my Left knee, It was discovered that I have a complete RBBB. My research shows that Eligard/ ADT can be a possible cause. Is anyone else dealing with this? I have an Echocardiogram set for this coming Tuesday
B8ssist
in
Advanced Prostate Cancer
1 year ago
How long should PSA go down after SBRT
Before Treatment, 3+4 gleason, PSA 2.7 on Avodart. 9 months after ViewRay SBRT treatment, no ADT, PSA are the following: 8/9/2022 2.7 ng/ml Before Treatment 9/24/2022 Treatment finished 12/2/2022 .92 ng/ml 3/2/2023 .40 ng/ml 6/9/2023 .49 ng/ml How low should PSA go down before
Before Treatment, 3+4 gleason, PSA 2.7 on Avodart. 9 months after ViewRay SBRT treatment, no ADT, PSA are the following: 8/9/2022 2.7 ng/ml Before Treatment 9/24/2022 Treatment finished 12/2/2022 .92 ng/ml 3/2/2023 .40 ng/ml 6/9/2023 .49 ng/ml How low should PSA go down before
Yearofthecow
in
Prostate Cancer Network
1 year ago
Blood test results in advance of endo appointment + what are the MHRA guidelines for NDT?
Thank you SO SO much everyone who responded to my post last week about NDT absorption and how I should approach my endo to ask for NDT rather than synthetic T4/T3 therapy. Your responses have made the world of difference. I have my blood test results taken last Friday ready for endo this Thursday (
Thank you SO SO much everyone who responded to my post last week about NDT absorption and how I should approach my endo to ask for NDT rather than synthetic T4/T3 therapy. Your responses have made the world of difference. I have my blood test results taken last Friday ready for endo this Thursday (
Reefseeker
in
Thyroid UK
1 year ago
Update and Feeling Kicked…..
Thank you to everyone who helped me with my last post on this board regarding DNR. I’m relieved to say that my father was released and is possibly back on track to regain some of the weight lost at hospital. Still waiting to hear if it’s lymphoma. As for me I am feeling kinda kicked down this week.
Thank you to everyone who helped me with my last post on this board regarding DNR. I’m relieved to say that my father was released and is possibly back on track to regain some of the weight lost at hospital. Still waiting to hear if it’s lymphoma. As for me I am feeling kinda kicked down this week.
RoseFlowerDew
in
Pernicious Anaemia Society
1 year ago
Gains seen in Parkinson’s with Symbyx’s red light therapy helmet
Studies show positive results. Symbyx Biome’s red/infrared light therapy helmet, improves motor function in Parkinson’s disease, according to data from a small clinical trial. https://parkinsonsnewstoday.com/news/gains-seen-parkinsons-with-symbyxs-red-light-therapy-helmet/
Studies show positive results. Symbyx Biome’s red/infrared light therapy helmet, improves motor function in Parkinson’s disease, according to data from a small clinical trial. https://parkinsonsnewstoday.com/news/gains-seen-parkinsons-with-symbyxs-red-light-therapy-helmet/
Baron1
in
Cure Parkinson's
1 year ago
Happy Days are here again - PSA post IMRT
Hey y'all, I had labs done at AIS as I was there for a post op check after the 28 IMRTs. T under 10 and PSA dropped again from 5.2 to
3.89
💙
,
but I normally go thru Kaiser and this was Quest Labs. I think Kaiser sends out PSA to another lab. This PSA is the lowest in a year PTH
Hey y'all, I had labs done at AIS as I was there for a post op check after the 28 IMRTs. T under 10 and PSA dropped again from 5.2 to
3.89
💙
,
but I normally go thru Kaiser and this was Quest Labs. I think Kaiser sends out PSA to another lab. This PSA is the lowest in a year PTH
dockam
in
Advanced Prostate Cancer
11 months ago
I need help please
Hi Feb 2023 my husband PSA was 7.4 considered non urgent by our GP Private MRI showed stage 5 prostrate cancer in situ of right hand side Biopsy showed a a Gleason score of 9 Bone scans clear CT scans clear No node involved Diagnosis TP3a Prostectomy nine weeks ago The results were not great
Hi Feb 2023 my husband PSA was 7.4 considered non urgent by our GP Private MRI showed stage 5 prostrate cancer in situ of right hand side Biopsy showed a a Gleason score of 9 Bone scans clear CT scans clear No node involved Diagnosis TP3a Prostectomy nine weeks ago The results were not great
Goggiealoud
in
Advanced Prostate Cancer
1 year ago
Finally, a reason to celebrate :-)
For months now my *** has been dragging around this deep gloomy feeling. While everyone else seems to be Joyfully celebrating their holidays. Part of my gloominess is "SAD" Seasonal affective disorder. I try antidepressants, light therapy, and exorcising ,,, oops exercising. And it helps but the other
For months now my *** has been dragging around this deep gloomy feeling. While everyone else seems to be Joyfully celebrating their holidays. Part of my gloominess is "SAD" Seasonal affective disorder. I try antidepressants, light therapy, and exorcising ,,, oops exercising. And it helps but the other
Boston001
in
Anxiety and Depression Support
1 year ago
Diarrhea and gas after radiation...
In 2019 I had 37 fractions of IMRT. First three years i had no issues to speak of concerning bowels. Last year I had a colonoscopy which showed enlarged blood vessels which was causing the occasional blood in my stool. My question is this...how many of you have had diarrhea and gas show up a few years
In 2019 I had 37 fractions of IMRT. First three years i had no issues to speak of concerning bowels. Last year I had a colonoscopy which showed enlarged blood vessels which was causing the occasional blood in my stool. My question is this...how many of you have had diarrhea and gas show up a few years
KarkMuzio
in
Advanced Prostate Cancer
11 months ago
THYROID HORMONE RESISTANCE 🤔
Hi everyone ❤️ I'm trying to understand why I've not recovered since my full thyroidectomy in 2019, I was like many of us thrust on T4 🙄 after finding out it contains lactose (lactose intolerant and have colitis) I got on lactose free T4 but still had the same problem, (mannitol) i got on T3 but still
Hi everyone ❤️ I'm trying to understand why I've not recovered since my full thyroidectomy in 2019, I was like many of us thrust on T4 🙄 after finding out it contains lactose (lactose intolerant and have colitis) I got on lactose free T4 but still had the same problem, (mannitol) i got on T3 but still
birkie
in
Thyroid UK
1 year ago
propranolol
hello. I had an awful anxiety attack that started on Sunday. I used to have them in the past as well as depression but taking sertraline 3 times a week helped keep things under control. I’m menopausal and on HRT and I think it’s related. I spoke to a GP who prescribed propranolol for the physical symptoms
hello. I had an awful anxiety attack that started on Sunday. I used to have them in the past as well as depression but taking sertraline 3 times a week helped keep things under control. I’m menopausal and on HRT and I think it’s related. I spoke to a GP who prescribed propranolol for the physical symptoms
wdwfan1973
in
Anxiety Support
1 year ago
Red nose after Raynaud’s diagnosis
Morning all 😀 I was diagnosed with Raynaud’s last winter and have since been experiencing horrible nose and cheek issues. m when I get hot or if I eat hot food my nose and cheeks pulsate and go bright red. It then goes almost back to normal as I cool down!! this has left me with a redder than normal
Morning all 😀 I was diagnosed with Raynaud’s last winter and have since been experiencing horrible nose and cheek issues. m when I get hot or if I eat hot food my nose and cheeks pulsate and go bright red. It then goes almost back to normal as I cool down!! this has left me with a redder than normal
Tor1972
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Femseven conti patches
Hi,Has anyone been prescribed femseven conti patches? I've been prescribed these by the nurse at the GP surgery as an alternative to evorel as they were making me bleed and my anxiety was really bad. I've read on the packet they could increase fibroids so not sure I should be taking them. I'm on 3
Hi,Has anyone been prescribed femseven conti patches? I've been prescribed these by the nurse at the GP surgery as an alternative to evorel as they were making me bleed and my anxiety was really bad. I've read on the packet they could increase fibroids so not sure I should be taking them. I'm on 3
Sheep2
in
Endometriosis UK
1 year ago
Recommendation re supplements
Hi allI'm fairly new to the forum and I'm finding all your info and wealth of experience extremely helpful. Have learnt that addressing possible nutritional deficiencies is important before Thyroid hormone therapy can be optimally effective. I have Hashimotos and recently posted full thyroid panel results
Hi allI'm fairly new to the forum and I'm finding all your info and wealth of experience extremely helpful. Have learnt that addressing possible nutritional deficiencies is important before Thyroid hormone therapy can be optimally effective. I have Hashimotos and recently posted full thyroid panel results
Hollybushroad
in
Thyroid UK
1 year ago
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