Search
Search
About
Log in
Join
Experiences with
Elagolix
Posts
Communities
26 public posts
Filter results
10th year
Ten years ago I had my Gleason 9 prostate removed. PSA was .1 for a while. It crept up over .2, and I began taking lupron. The drug brought PSA back down to >.01 for a year or so. As the level started going up again, I received whole pelvis bed radiation, moving PSA to undetectable. After a year or so
Ten years ago I had my Gleason 9 prostate removed. PSA was .1 for a while. It crept up over .2, and I began taking lupron. The drug brought PSA back down to >.01 for a year or so. As the level started going up again, I received whole pelvis bed radiation, moving PSA to undetectable. After a year or so
Jvaughan0
in
Advanced Prostate Cancer
22 days ago
any one on ORGOVYX® (relugolix) after orchiectomy ?
let me know your experience with ORGOVYX® (relugolix) after orchiectomy. I am not taking relugolix and searching for someone who fit into this criteria and their experience
let me know your experience with ORGOVYX® (relugolix) after orchiectomy. I am not taking relugolix and searching for someone who fit into this criteria and their experience
God_Loves_Me
in
Advanced Prostate Cancer
24 days ago
Relugolix
Hi ladies,I was prescribed this drug last week and was looking for some reviews/experiences from those of you who have taken this medication. I know we all react differently to medications, but I am quite nervous to start it with it only being new to the market for endo/fibroids, wanting to do some
Hi ladies,I was prescribed this drug last week and was looking for some reviews/experiences from those of you who have taken this medication. I know we all react differently to medications, but I am quite nervous to start it with it only being new to the market for endo/fibroids, wanting to do some
Kirsty360
in
Endometriosis UK
1 month ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Relugolix/Orgovyx or Enzalutamide/Xtandi?
Good morning, all. I have updated my profile with my husband's history. But, long story short, he has been on ADT vacation for 13 months following succesful treatment of metastatic disease with Triplet Therapy (six rounds of Docetaxel, Lupron, and first Abieraterone plus Prednisone and then he switched
Good morning, all. I have updated my profile with my husband's history. But, long story short, he has been on ADT vacation for 13 months following succesful treatment of metastatic disease with Triplet Therapy (six rounds of Docetaxel, Lupron, and first Abieraterone plus Prednisone and then he switched
FaithOverFear104
in
Advanced Prostate Cancer
2 months ago
Agonists vs. antagonists (the latter not to be confused with a character in a novel!)
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
bluesnjazz
in
Advanced Prostate Cancer
3 months ago
Combine standard care with alternative care
The University of Maryland reported two cases of terminated PCs by combining standard care treatment with an alternative treatment. By reducing the PSAs to less than 3, the clioquinol + zinc killed more cancer than testosterone could renew, therefore termination. My PSA in three months went from 58
The University of Maryland reported two cases of terminated PCs by combining standard care treatment with an alternative treatment. By reducing the PSAs to less than 3, the clioquinol + zinc killed more cancer than testosterone could renew, therefore termination. My PSA in three months went from 58
agnut
in
Fight Prostate Cancer
5 months ago
Relugolix and Apalutamide
Any experience with elevated AST and ALT after being treated with Relugolix and Apalutamide? My AST and ALT were normal on Relugolix for 6 weeks.....added Apalutamide and after 4 weeks my AST and ALT are now 3X previous level. I feel fine. Oncologist is wanting to stop the one of the drugs.....I convinced
Any experience with elevated AST and ALT after being treated with Relugolix and Apalutamide? My AST and ALT were normal on Relugolix for 6 weeks.....added Apalutamide and after 4 weeks my AST and ALT are now 3X previous level. I feel fine. Oncologist is wanting to stop the one of the drugs.....I convinced
GoLowPSA
in
Advanced Prostate Cancer
6 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
7 months ago
8/4/23 Update questions for MO
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
alperk
in
Advanced Prostate Cancer
9 months ago
Latest from PubMed
1. Efficacy in urinary symptom burden, psychological distress, and self-efficacy of education-enhanced interventions in prostate cancer patients: a systematic review and meta-analyses. Martín-Núñez J, Raya-Benítez J, López-López L, Calvache-Mateo A, Heredia-Ciuró A, Navas-Otero A, Valenza MC. Support
1. Efficacy in urinary symptom burden, psychological distress, and self-efficacy of education-enhanced interventions in prostate cancer patients: a systematic review and meta-analyses. Martín-Núñez J, Raya-Benítez J, López-López L, Calvache-Mateo A, Heredia-Ciuró A, Navas-Otero A, Valenza MC. Support
Magnus1964
in
Advanced Prostate Cancer
11 months ago
sudden stop in PSA decline
I‘ve been doing IADT, and started relugolix in December 2022, with PSA 7.48, and each monthly PSA decline since then was significant and reassuring. Here’s the history: December 7.48 January 0.94 February 0.49 March 0.24 April 0.09 [i]
May 0.09
[/i
I‘ve been doing IADT, and started relugolix in December 2022, with PSA 7.48, and each monthly PSA decline since then was significant and reassuring. Here’s the history: December 7.48 January 0.94 February 0.49 March 0.24 April 0.09 [i]
May 0.09
[/i
lokibear0803
in
Fight Prostate Cancer
1 year ago
Best use of Psa to guide intermittent hormone therapy
presently on relugolix + Darolutamide for local reccurrence and will go off these drugs if Psa is less than .65 three months ago tested and go back on when Psa reaches 3-5.. Seems it will be about 6months and hopefully 6 months off, Tentative protocol so far. Input from all and for all welcomed. Thanks
presently on relugolix + Darolutamide for local reccurrence and will go off these drugs if Psa is less than .65 three months ago tested and go back on when Psa reaches 3-5.. Seems it will be about 6months and hopefully 6 months off, Tentative protocol so far. Input from all and for all welcomed. Thanks
rococo
in
Advanced Prostate Cancer
1 year ago
trying to decide on a potential new strategy
Making a decision regarding making a treatment strategy decision ,if I have a BCR, while on a long-term 2nd/3rd generation “lutamide” monotherapy. History: After failure on AS, Dr Myers put me on Xtandi monotherapy feb 2016. After immediately dropping to a an undectectable PSA and staying there till
Making a decision regarding making a treatment strategy decision ,if I have a BCR, while on a long-term 2nd/3rd generation “lutamide” monotherapy. History: After failure on AS, Dr Myers put me on Xtandi monotherapy feb 2016. After immediately dropping to a an undectectable PSA and staying there till
podsart
in
Advanced Prostate Cancer
1 year ago
Recently diagnosed- Stage 4 at 45 yrs old.
Hey all! I’m an active 45 year old Australian, dad of 10 and 12 year old, living in Vermont USA, and I just recently got diagnosed with stage 4 prostate cancer. Mets to lymph nodes, several vertebrea, hip, rib etc. Gleason 9 and a relatively low PSA at 6.7 which is unusual. Apparently the sign
Hey all! I’m an active 45 year old Australian, dad of 10 and 12 year old, living in Vermont USA, and I just recently got diagnosed with stage 4 prostate cancer. Mets to lymph nodes, several vertebrea, hip, rib etc. Gleason 9 and a relatively low PSA at 6.7 which is unusual. Apparently the sign
dochelem
in
Advanced Prostate Cancer
1 year ago
Relugolix/Orgovyx with pelvic radiation?
My PSA is increasing once again beyond the detectable level. 9 years ago had RPT. 6 years ago had follow up PBRT only upon a detectable psa rise. See history in profile. My recent PSA is at 0.364. I have a PSMA PET scan scheduled at UCSF in April. Should the scan show metastasis in the pelvic
My PSA is increasing once again beyond the detectable level. 9 years ago had RPT. 6 years ago had follow up PBRT only upon a detectable psa rise. See history in profile. My recent PSA is at 0.364. I have a PSMA PET scan scheduled at UCSF in April. Should the scan show metastasis in the pelvic
bitittle
in
Advanced Prostate Cancer
1 year ago
agonist versus antagonist issue
Switching to Degarelix or maybe the oral version after 5 months of monthly goserelin implant ? With the evidence on cardio and other risks reduced with using an antagonist such as degarelix or relugolix what’s the view on the benefits of doing this when having already started in the RT plus goserelin
Switching to Degarelix or maybe the oral version after 5 months of monthly goserelin implant ? With the evidence on cardio and other risks reduced with using an antagonist such as degarelix or relugolix what’s the view on the benefits of doing this when having already started in the RT plus goserelin
SimMartin
in
Advanced Prostate Cancer
1 year ago
Relugolix (Orgovyx) - 3 free bottles unopened
I no longer use Relugolix and have three unopened bottles of 120mg tablets with each bottle containing 30 tablets (a 90 day supply if taking 1 tablet daily). Expiration dates are: 02/23/23, 3/22/23 and 05/03/23. I'm happy to send them to anyone in the U.S. who needs them (just reimburse me for shipping
I no longer use Relugolix and have three unopened bottles of 120mg tablets with each bottle containing 30 tablets (a 90 day supply if taking 1 tablet daily). Expiration dates are: 02/23/23, 3/22/23 and 05/03/23. I'm happy to send them to anyone in the U.S. who needs them (just reimburse me for shipping
novatimo
in
Advanced Prostate Cancer
1 year ago
Starting relugolix / Orgovyx
My healthcare provider indicated they wouldn't prescribe Orgovyx and to use Lupron instead. Has anyone dealt with this? Are there ways to get the meds cheaper from Canada or elsewhere? Any insight would be great. My rationale is that Orgovyx may have fewer side effects, and concerned as I still go
My healthcare provider indicated they wouldn't prescribe Orgovyx and to use Lupron instead. Has anyone dealt with this? Are there ways to get the meds cheaper from Canada or elsewhere? Any insight would be great. My rationale is that Orgovyx may have fewer side effects, and concerned as I still go
plato123
in
Advanced Prostate Cancer
1 year ago
Orgovyx & Xtandi
Has Anyone Used This Combination and What Thoughts Does Anyone Have Regarding the combination. One MO at Moffitt has suggested that I avoid due to moderate interaction causing an increase in relugolix in your body. Brief info on where I am. PSMA-PET 11/22/22, metastatic spots 2 ribs, 3 vertebrae, numerous
Has Anyone Used This Combination and What Thoughts Does Anyone Have Regarding the combination. One MO at Moffitt has suggested that I avoid due to moderate interaction causing an increase in relugolix in your body. Brief info on where I am. PSMA-PET 11/22/22, metastatic spots 2 ribs, 3 vertebrae, numerous
Wynnsts
in
Advanced Prostate Cancer
1 year ago
On the Possible Advantages & Dangers of Making Certain Dosing Decisions
According to Pylarify PSMA scan at beginning of 2022, I am mCSPC (lymph nodes only, but beyond oligo), and am now on the oral ADT antagonist Relugolix (Orgovyx) and Apalutamide, both of which my oncologist recommends that I stay on for as long as they work for me. I’ve also been fortunate enough to
According to Pylarify PSMA scan at beginning of 2022, I am mCSPC (lymph nodes only, but beyond oligo), and am now on the oral ADT antagonist Relugolix (Orgovyx) and Apalutamide, both of which my oncologist recommends that I stay on for as long as they work for me. I’ve also been fortunate enough to
SeattleDan
in
Advanced Prostate Cancer
1 year ago
1
2
Next page
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
19 results
Endometriosis UK
5 results
Fight Prostate Cancer
2 results
Sort by
Most Relevant
Newest