Upcoming appointment with MDS questions

[idahostate]

I have an upcoming appointment with MDS this week and was thinking of asking them about having a Dat scan done along with having my vitamin B and D and also insulin levels checked. Has anyone had these checked before and do you think it is worth it? Also would you have any other questions to ask?

Diagnosed 2 and a half years ago taking c/l 25/100 3x a day which I have a hard time with. Too much dyskinesia in the facial muscles. Maybe another med? Also have soft speech and swallowing problems. Going to therapy for speech and swallow which is helping , but still have a lot of mucus buildup in the throat. I exercise vigorously 5 days a week which I am pretty sure is helping me out. Starting to have some sleep problems now though that I didn't have before .

If anyone could think of any other questions , I would appreciate it.

Thank you,

Lou

[park_bear]

The Datscan is not particularly reliable and makes sense only if there is doubt as to your diagnosis.

Among the B Vitamins, B6, B12 and B9 are probably the most important ones to get checked, in order of importance.

[idahostate in reply to park_bear]

Thanks park_bear I will ask for tests.

[mach262 in reply to park_bear]

Agree with Park Bear, I had a DATscan to get a diagnosis as no response to drugs. More important were the memory tests as this is affected in several procedures particularly invasive ones

[LeharLover62 in reply to park_bear]

It is nice to have at least an MRI as a baseline to compare against, should you be hospitalized or have more serious progression down the road. We never reference hubbies DAT.

[Jmellano]

IT was the DATscan that convined me I had PD. I went to 11 neurologists and they all said I had PD based on subjective tests and the fact I did not respond to levodopa (I have no tremor)DATscan showed a smaller lit up area on right side of my brain which controls left side of body . I drag my left foot