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Deep brain stimulation (DBS)
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With new DBS patients, how often should you get 'programming' from your Dr?
hardtop03
in
Cure Parkinson's
12 years ago
Considering DBS. If you have had it, your input is greatly appreciated
My neurologist broached the subject of
DBS
surgery for the first time last visit. My wearing off periods are getting longer and I do get some pretty bad tremors during those times. I have a few friends who have had the surgery.
My neurologist broached the subject of
DBS
surgery for the first time last visit. My wearing off periods are getting longer and I do get some pretty bad tremors during those times. I have a few friends who have had the surgery.
wordworks2001
in
Cure Parkinson's
12 years ago
So finally....
the date for my
DBS
...November 15th....I never thought I would say this but I am looking forward to getting screwed and drilled:))
the date for my
DBS
...November 15th....I never thought I would say this but I am looking forward to getting screwed and drilled:))
SuKas
in
Cure Parkinson's
12 years ago
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Another Week on the Road
I did meet John, a fellow PDer who had
DBS
this past summer. He looks good and feels good,a real testament to the procedure. I also did some research about medical cannabis and posted a question about it on this site. I watched a few You Tube videos about the subject.
I did meet John, a fellow PDer who had
DBS
this past summer. He looks good and feels good,a real testament to the procedure. I also did some research about medical cannabis and posted a question about it on this site. I watched a few You Tube videos about the subject.
wordworks2001
in
Cure Parkinson's
12 years ago
Does anyone have steppage gait?
Has
DBS
changed it?
Has
DBS
changed it?
etterus
in
Cure Parkinson's
12 years ago
How does one find the best DBS programmers?
Programmers hold the key to successful
DBS
, yet so little known about who they are and where to find them. Does anyone have advice about a directory or "Angie's List" that includes
DBS
programmers? How about when one is traveling-- where are they?
Programmers hold the key to successful
DBS
, yet so little known about who they are and where to find them. Does anyone have advice about a directory or "Angie's List" that includes
DBS
programmers? How about when one is traveling-- where are they?
Jash
in
Cure Parkinson's
12 years ago
Has DBS changed your anxiety/depression either way?
If so do you know if the placements were in the subthalamic nucleus or globus pallidus?
If so do you know if the placements were in the subthalamic nucleus or globus pallidus?
etterus
in
Cure Parkinson's
12 years ago
Post DBS - physical symptoms of Anxiety. Anyone? Anyone?
DBS
done in Feb 2012 - had numbness in toes soon after it was turned on. Have had the
DBS
steadily for 3 months now. Prescribing meds for anxiety? I never had these physical manifestations of anxiety before. Could lead/contact be the cause? Docs say no.
DBS
done in Feb 2012 - had numbness in toes soon after it was turned on. Have had the
DBS
steadily for 3 months now. Prescribing meds for anxiety? I never had these physical manifestations of anxiety before. Could lead/contact be the cause? Docs say no.
cepd
in
Cure Parkinson's
12 years ago
waiting......
Chilling while waiting for my drilling is killing my patience and fueling my anxiety:PP (yeah I know, punning at this time too...proves I am a nutso:PP))) (Still waiting for my appt with the
DBS
surgeon)
Chilling while waiting for my drilling is killing my patience and fueling my anxiety:PP (yeah I know, punning at this time too...proves I am a nutso:PP))) (Still waiting for my appt with the
DBS
surgeon)
SuKas
in
Cure Parkinson's
12 years ago
I've read on here about several people having real time MRI DBS Surgery,
but can find no info on it outside of trials being done. Anyone know anymore?
but can find no info on it outside of trials being done. Anyone know anymore?
wynn7
in
Cure Parkinson's
12 years ago
has any one else started expeincing siezures,a year or so after dbs surgery??
rhougham
in
Cure Parkinson's
12 years ago
So I had my DBS evaluations
I am sposed to wait for 2 weeks for my result but I think I am going to be okayed for the surgery...lets see...My journey towards
DBS
continues:)
I am sposed to wait for 2 weeks for my result but I think I am going to be okayed for the surgery...lets see...My journey towards
DBS
continues:)
SuKas
in
Cure Parkinson's
12 years ago
For those wondering what happens during DBS surgery, a great video to educate you.
http://www.youtube.com/watch?v=Flov7Q6pQNk&feature=youtube_gdata_player
http://www.youtube.com/watch?v=Flov7Q6pQNk&feature=youtube_gdata_player
WayneP
in
Cure Parkinson's
12 years ago
"New" Cuban stereotaxic surgery...what about it?
Does it involve destruction of brain tissue (like Pallidotomy and Thalamotomy, which I understand are considered inferior to
DBS
)? Doesn't it involve implantation of embryonic stem cells, and if so, isn't that still, ah, in the experimental stage? Is it tested properly?
Does it involve destruction of brain tissue (like Pallidotomy and Thalamotomy, which I understand are considered inferior to
DBS
)? Doesn't it involve implantation of embryonic stem cells, and if so, isn't that still, ah, in the experimental stage? Is it tested properly?
Parkinson_Schmarkinson
in
Cure Parkinson's
12 years ago
I qualify for the DBS surgery (which scares me to death) & wonder if the Neupro patch could delay the surgery. Am on 4mg. so far.
wynn7
in
Cure Parkinson's
12 years ago
We have a question about DBS. Hi all! My husband is considering getting DBS. We are concerened with a situation that Export had yesterday.
First we didn't know some
DBS
didn't come without a control for the person it is in. We didn't know that the issue of the battery going dead was that complitated. We thought it would give advance notice somehow. 1.) How old is your
DBS
Export?
First we didn't know some
DBS
didn't come without a control for the person it is in. We didn't know that the issue of the battery going dead was that complitated. We thought it would give advance notice somehow. 1.) How old is your
DBS
Export?
lmbanni
in
Cure Parkinson's
12 years ago
DBS Evaluations......
on September 10th...where I will be evaluated for physcal, that is being ON n OFF meds and memory test...as for psych, as I am already under treatment for depression, i a=don't need that....will let u guys know how that went...still a couple of weeks away...
on September 10th...where I will be evaluated for physcal, that is being ON n OFF meds and memory test...as for psych, as I am already under treatment for depression, i a=don't need that....will let u guys know how that went...still a couple of weeks away...
SuKas
in
Cure Parkinson's
12 years ago
who has had problems with not being able to go to the bathroom both ways? Did the drs know what was wrong or did it become a big mystery?
It was after he was put under general anesthisia for the MRI that they need for the
DBS
. He was completely put under with the intibation tube in his throat so he'd be perfectly still. When he woke they had him pee and eat and then let him go home. Once he got home he could no longer pee.
It was after he was put under general anesthisia for the MRI that they need for the
DBS
. He was completely put under with the intibation tube in his throat so he'd be perfectly still. When he woke they had him pee and eat and then let him go home. Once he got home he could no longer pee.
lmbanni
in
Cure Parkinson's
12 years ago
DBS HOW CAN I TELL IF ITS NOT WORKING. ANY ONE WHO'S HAS HAD A DBS STOP'T WORKINGPLEASE TELL ME ABOUT IT .
EXPORT HERE CAN HARDLY MOVE BEEN LIKE THIS FOR 36 HOURS .AND I DON'T KNOW WHY . I AM VERY WEEK IT WOULD HAPPEN ON A BANK HOLIDAY I LIVE ON MY OWN AND WOULD LIKE SOME IDEAS OF WHAT IT COULD BE YOURS EXPORT.
EXPORT HERE CAN HARDLY MOVE BEEN LIKE THIS FOR 36 HOURS .AND I DON'T KNOW WHY . I AM VERY WEEK IT WOULD HAPPEN ON A BANK HOLIDAY I LIVE ON MY OWN AND WOULD LIKE SOME IDEAS OF WHAT IT COULD BE YOURS EXPORT.
export
in
Cure Parkinson's
12 years ago
Hi EXPORT again in the uk .I keep getting fob off about my DBS not working . Just seen my GP PHONED WALTON CENTER WHAT NEXT ?
GOOD OLD N-H-S any one know what my next step should be . As i have run out number . NO ONE IS AT HOME THE LIGHT ARE ON BUT NOT LISTENING BLESS . YOURS EXPORT . PS PISS 'T OFF
GOOD OLD N-H-S any one know what my next step should be . As i have run out number . NO ONE IS AT HOME THE LIGHT ARE ON BUT NOT LISTENING BLESS . YOURS EXPORT . PS PISS 'T OFF
export
in
Cure Parkinson's
12 years ago
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