Search
Search
About
Log in
Join
Experiences with
Deep brain stimulation (DBS)
Posts
Communities
1,049 public posts
Filter results
DBS on the leg trial
https://parkinsonsnewstoday.com/news/noninvasive-way-deep-brain-stimulation-parkinsons-trial/
https://parkinsonsnewstoday.com/news/noninvasive-way-deep-brain-stimulation-parkinsons-trial/
MARC1
in
Cure Parkinson's
9 months ago
Heart pacemaker and DBS
Are there individuals or patients who have had heart pacemakers and
DBS
? Any thoughts, suggestions or comments. and are making use of them?
Are there individuals or patients who have had heart pacemakers and
DBS
? Any thoughts, suggestions or comments. and are making use of them?
surdug1
in
British Heart Foundation
11 months ago
Heart pacemaker and DBS
Are there individuals or patients who have had heart pacemakers and
DBS
? Any thoughts, suggestions or comments.
Are there individuals or patients who have had heart pacemakers and
DBS
? Any thoughts, suggestions or comments.
surdug1
in
Cure Parkinson's
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Understanding listening time at certain Db?
What safe level of
Dbs
could I potentially go to, and just do the gigs without earplugs for 8 hours total per week? Many thanks for any insight on this.
What safe level of
Dbs
could I potentially go to, and just do the gigs without earplugs for 8 hours total per week? Many thanks for any insight on this.
Fulltimemuso
in
Tinnitus UK
8 months ago
Too much C\L worsens symptoms?
Dx 6 years ago
DBS
3 years ago . lately take extra dose for some occasions, my body becomes more tense, stiffer and slower no dskynesia though then I take another dose to address it ,sometimes work sometimes don’t, it confuses me, Does anyone have experience to share?
Dx 6 years ago
DBS
3 years ago . lately take extra dose for some occasions, my body becomes more tense, stiffer and slower no dskynesia though then I take another dose to address it ,sometimes work sometimes don’t, it confuses me, Does anyone have experience to share?
limcheeese22
in
Cure Parkinson's
11 months ago
Working full-time with a DBS
DBS
Deep Brain Stimulation. 1) Are there any warriors who have received
DBS
and are still employed full-time? 2) Are there any IT/computers warriors who have received
DBS
and are still working? Just wondering if that's humanly possible. Thank you for your time.
DBS
Deep Brain Stimulation. 1) Are there any warriors who have received
DBS
and are still employed full-time? 2) Are there any IT/computers warriors who have received
DBS
and are still working? Just wondering if that's humanly possible. Thank you for your time.
surdug1
in
Cure Parkinson's
1 year ago
DBS in restless legs syndrome: a new therapeutic approach
has anyone any information on Deep Brain Stimulation (
DBS
) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al Might it help some of us ?
has anyone any information on Deep Brain Stimulation (
DBS
) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al Might it help some of us ?
thorp
in
Restless Legs Syndrome
1 year ago
Let's share your DBS settings
I start first. Vendor: Medtronics Right STN: 4.5 - 4.9v STN (2+1 interleaving) Left STN :3.6v STN double mono polar Frequency: 125hz pulse width: 90 μs
I start first. Vendor: Medtronics Right STN: 4.5 - 4.9v STN (2+1 interleaving) Left STN :3.6v STN double mono polar Frequency: 125hz pulse width: 90 μs
limcheeese22
in
Cure Parkinson's
10 months ago
DBS and balance
My left side is amore severe than right hence the voltage is higher and more contact points . My body tends to tilt to the right’ and I tend to fall backward on the right, My neurologist tried to reduce the frequency, it helps with the balance but not so good at reducing stiffness. Any insight?
My left side is amore severe than right hence the voltage is higher and more contact points . My body tends to tilt to the right’ and I tend to fall backward on the right, My neurologist tried to reduce the frequency, it helps with the balance but not so good at reducing stiffness. Any insight?
limcheeese22
in
Cure Parkinson's
11 months ago
DBS effectiveness.
Was
DBS
effective in treating your pain, stiffness, dyskinesias? Did it have any affect with freezing? I find myself taking more and more meds, and new treatments are taking to long to get here.
Was
DBS
effective in treating your pain, stiffness, dyskinesias? Did it have any affect with freezing? I find myself taking more and more meds, and new treatments are taking to long to get here.
cjCardio53
in
Cure Parkinson's
1 year ago
"BREAKTHROUGH" device approved by FDA for PD
Food and Drug Administration (FDA) has granted breakthrough device designation to Inbrain Neuroelectronics’ neural platform for its potential to provide more effective deep brain stimulation (
DBS
) as an [i]
add-on Parkinson’s treatment.
Food and Drug Administration (FDA) has granted breakthrough device designation to Inbrain Neuroelectronics’ neural platform for its potential to provide more effective deep brain stimulation (
DBS
) as an [i]
add-on Parkinson’s treatment.
PDWarrior1900
in
Cure Parkinson's
11 months ago
DBS scars after one week
Hi everyone. Here’s how it looks after a week. I look a bit startled in this don’t I ? Probably astonished that the sun is shining in the U.K.
Hi everyone. Here’s how it looks after a week. I look a bit startled in this don’t I ? Probably astonished that the sun is shining in the U.K.
jeeves19
in
Cure Parkinson's
1 year ago
swelling around DBS battery 5 weeks after surgery
It’s been 5 weeks since my battery placement surgery and when I woke up this morning my battery site is puffy. The incision has healed and looks fine. No redness or fever either. I’m not sure what caused this. I called my surgeon and sent pictures and they are going to see me Monday morning. But they
It’s been 5 weeks since my battery placement surgery and when I woke up this morning my battery site is puffy. The incision has healed and looks fine. No redness or fever either. I’m not sure what caused this. I called my surgeon and sent pictures and they are going to see me Monday morning. But they
Nurse7
in
Cure Parkinson's
11 months ago
Which DBS system?
At my last appointment they asked me which
DBS
system I would choose. This is at Bristol in the UK. Sayeth I , 'errrrrrrrrrrrr.........................dunno...................Id better go and ask my mates'. So my ever helpful community! Over to you! 😂 Thanks in advance.
At my last appointment they asked me which
DBS
system I would choose. This is at Bristol in the UK. Sayeth I , 'errrrrrrrrrrrr.........................dunno...................Id better go and ask my mates'. So my ever helpful community! Over to you! 😂 Thanks in advance.
jeeves19
in
Cure Parkinson's
1 year ago
Tinnitus
Btw:
DBS
on the 23rd. Be interesting to see if this has any impact on it.
Btw:
DBS
on the 23rd. Be interesting to see if this has any impact on it.
jeeves19
in
Cure Parkinson's
1 year ago
DBS stimulator pros and cons
Can you turn
DBS
stimulator Off and control it with medication as before surgery?
Can you turn
DBS
stimulator Off and control it with medication as before surgery?
surdug1
in
Cure Parkinson's
1 year ago
DBS lead placement options.
Morning all. I had a zoom meeting with my neurosurgeon the other day. I’m pretty sure that she stated she was going for the STN as the site for leads. In my typical blokey way I just nodded along accepted whatever she said. But reading up on lead placing, I’m getting the distinct impression that for
Morning all. I had a zoom meeting with my neurosurgeon the other day. I’m pretty sure that she stated she was going for the STN as the site for leads. In my typical blokey way I just nodded along accepted whatever she said. But reading up on lead placing, I’m getting the distinct impression that for
jeeves19
in
Cure Parkinson's
1 year ago
OFF time but so much more!
There is a clear description of the different
DBS
devices available. This guy made my neurologist look like an amateur. https://youtu.be/TunPzh2Lw3U
There is a clear description of the different
DBS
devices available. This guy made my neurologist look like an amateur. https://youtu.be/TunPzh2Lw3U
PalmSprings
in
Cure Parkinson's
1 year ago
DBS levadopa challenge. Glad its over, but it does raise a question.
The question that came to mind was if the
DBS
once fitted, for some reason stopped working. What would happen if i was driving and im suddenly dropped straight into the horrible state i was at this morning or worse? Has anyone had experience of
DBS
failure?
The question that came to mind was if the
DBS
once fitted, for some reason stopped working. What would happen if i was driving and im suddenly dropped straight into the horrible state i was at this morning or worse? Has anyone had experience of
DBS
failure?
gingerj
in
Cure Parkinson's
1 year ago
I vont to be alone…………
8 years in,
DBS
on Wednesday. You know you’re sick when you’re actually looking forward to brain 🧠 surgery eh? 😂. I was thinking last night how much I rely on my wife these days.
8 years in,
DBS
on Wednesday. You know you’re sick when you’re actually looking forward to brain 🧠 surgery eh? 😂. I was thinking last night how much I rely on my wife these days.
jeeves19
in
Cure Parkinson's
1 year ago
1
2
3
4
...
53
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
798 results
IBS Network
40 results
Restless Legs Syndrome
31 results
View top 10 communities
Sort by
Most Relevant
Newest