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Any info or experience with light headedness and circulation issues with PD?
My husband has PD, 9 years in, He had
DBS
surgery a year ago and that has been a miraculous positive change, however he has this symptom of getting really lightheaded when going from sitting to standing or any quick movements, ( he passed out a while ago and hit his head) or happens like playing pickleball
My husband has PD, 9 years in, He had
DBS
surgery a year ago and that has been a miraculous positive change, however he has this symptom of getting really lightheaded when going from sitting to standing or any quick movements, ( he passed out a while ago and hit his head) or happens like playing pickleball
whitdemo
in
Cure Parkinson's
4 months ago
Does deep brain stimulation help with cognitive problems in Parkinson's disease? Theta frequency STN-DBS boosts working memory
Theta frequency STN-
DBS
boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
Theta frequency STN-
DBS
boosts working memory, a key cognitive process often impaired in PD. https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awad433/7513222?login=false
nednedned
in
Cure Parkinson's
7 months ago
University of Kentucky NIH funded trials-DBS Plus
https://medicine.uky.edu/news/nih-funds-uks-groundbreaking-
dbs
-plus-trial-2024-08-15t08-39-01
https://medicine.uky.edu/news/nih-funds-uks-groundbreaking-
dbs
-plus-trial-2024-08-15t08-39-01
MidMoMom
in
Cure Parkinson's
17 hours ago
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pain?
Was diagnosed in 2016, had
DBS
in December, med regime is mucuna and amino acids (currently tapering down).
Was diagnosed in 2016, had
DBS
in December, med regime is mucuna and amino acids (currently tapering down).
ottercat
in
Cure Parkinson's
6 months ago
#1 Symptom Reducer
B1, Fish Oil, CDP Choline, Infrared, FUS,
DBS
etc.
B1, Fish Oil, CDP Choline, Infrared, FUS,
DBS
etc.
staceysack
in
Cure Parkinson's
6 months ago
Collagen powder and increased stiffness?
We couldn't figure out why this was happening because we haven't changed anything with medication or setting on his
DBS
device. We called his neurologist and she recommended adding Azilect.
We couldn't figure out why this was happening because we haven't changed anything with medication or setting on his
DBS
device. We called his neurologist and she recommended adding Azilect.
1rocketman
in
Cure Parkinson's
6 months ago
AAV-GAD Gene Therapy
Infusion of the gene is much like
DBS
. Any information or thoughts would be helpful. Thanks
Infusion of the gene is much like
DBS
. Any information or thoughts would be helpful. Thanks
JohnP65
in
Cure Parkinson's
8 months ago
Treatment for severe OCD
I don't exactly know what it is said about
DBS
in FDA's guidelines, but they consider this surgery as an exception if no other method helps.
I don't exactly know what it is said about
DBS
in FDA's guidelines, but they consider this surgery as an exception if no other method helps.
languageteacher
in
My OCD Community
8 months ago
The problematic 2nd dose of the day
The second thought is really bad: after my first dose I go badly off (it’s been getting worse as the life of the
DBS
goes on, but this is only 5 months old. Surely I should still be in the honeymoon period now?!) and take 350 mg. But it’s always a challenge to know if it’s going to work or not.
The second thought is really bad: after my first dose I go badly off (it’s been getting worse as the life of the
DBS
goes on, but this is only 5 months old. Surely I should still be in the honeymoon period now?!) and take 350 mg. But it’s always a challenge to know if it’s going to work or not.
jeeves19
in
Cure Parkinson's
6 months ago
i know this is going to sound weird but…….
Ever since I had the
DBS
I’ve had rhinitis, itchy eyes, itchy skin. I assumed that I needed to hoover up etc, get my dogs bedding changed etc. I’ve done all of these but I’m still symptomatic. I thought to myself the other day: this started pretty soon after the
DBS
.
Ever since I had the
DBS
I’ve had rhinitis, itchy eyes, itchy skin. I assumed that I needed to hoover up etc, get my dogs bedding changed etc. I’ve done all of these but I’m still symptomatic. I thought to myself the other day: this started pretty soon after the
DBS
.
jeeves19
in
Cure Parkinson's
10 months ago
DBS update
For those in the U.K. considering FUS v
DBS
: FUS sounds good but costs £25000 for each side if I understand that correctly.
DBS
, available on the NHS. What’s not to like?
For those in the U.K. considering FUS v
DBS
: FUS sounds good but costs £25000 for each side if I understand that correctly.
DBS
, available on the NHS. What’s not to like?
jeeves19
in
Cure Parkinson's
9 months ago
No more earwax
Dx 8 years ago,
DBS
1/2023, only take c/l
Dx 8 years ago,
DBS
1/2023, only take c/l
Lbi1608
in
Cure Parkinson's
10 months ago
DBS stopped working
I’m looking to see if anyone has experienced similar
DBS
results, I had my
DBS
(GPI) surgery on 7/31 and immediately had positive results before the switch on. It felt like I was cured but I knew that this was the honeymoon phase.
I’m looking to see if anyone has experienced similar
DBS
results, I had my
DBS
(GPI) surgery on 7/31 and immediately had positive results before the switch on. It felt like I was cured but I knew that this was the honeymoon phase.
robclem
in
Cure Parkinson's
9 months ago
Kinder , Gentler and harmless Alternative of DBS
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Seeking a kinder, gentler alternative, researchers from Korea's Yonsei University created minuscule magnets tagged with antibodies. The devices are known as nanoscale magnetic force actuators, or m-Torquers. These m-Torquers were injected into the subthalamic nucleus of mice with early- and late-stage
Farooqji
in
Cure Parkinson's
7 months ago
DBS should I or should I not??
I went for my assessment for
dbs
this week in Southmead Hospital,Bristol. I went through the test and just kept on thinking to myself is my condition severe enough to have brain surgery!!
I went for my assessment for
dbs
this week in Southmead Hospital,Bristol. I went through the test and just kept on thinking to myself is my condition severe enough to have brain surgery!!
MARC1
in
Cure Parkinson's
10 months ago
Has anyone tried “compassionate use” or “right to try” laws?
Due to his cognitive decline, he’s not eligible for
DBS
, FUS, most trials, and my guess is even stem cell therapies would cause him trouble as tiny increases in dopamine make him crazy, Curious your thoughts?
Due to his cognitive decline, he’s not eligible for
DBS
, FUS, most trials, and my guess is even stem cell therapies would cause him trouble as tiny increases in dopamine make him crazy, Curious your thoughts?
LeharLover62
in
Cure Parkinson's
8 months ago
DBS switch on news.
So with no
dbs
: I get meds that work, but with
dbs
, they don’t? Bit weird. Last night I was totally exhausted. I went to bed at about 9 and woke up at 8 without any sleeping aids whatsoever. Took a couple of Madopar but they don’t seem to have worked, at least with bradykinesia.
So with no
dbs
: I get meds that work, but with
dbs
, they don’t? Bit weird. Last night I was totally exhausted. I went to bed at about 9 and woke up at 8 without any sleeping aids whatsoever. Took a couple of Madopar but they don’t seem to have worked, at least with bradykinesia.
jeeves19
in
Cure Parkinson's
11 months ago
Foslevodopa-Foscarbidopa (Vyalev)
or potential to replace
DBS
? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
or potential to replace
DBS
? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
bcjlynne
in
Cure Parkinson's
11 months ago
DBS energy
I keep reading about people who -post
DBS
- went and ran a marathon etc and appear to have gallons of energy. Should I be feeling this? No, I don’t think that they’ve got the program right yet but running a marathon? Ay ay ay
I keep reading about people who -post
DBS
- went and ran a marathon etc and appear to have gallons of energy. Should I be feeling this? No, I don’t think that they’ve got the program right yet but running a marathon? Ay ay ay
jeeves19
in
Cure Parkinson's
11 months ago
DBS journey
Anyway, things were awful the last two days: I was slurring and couldn’t organise my sentences and so I spoke to the
DBS
nurse this afternoon: she suggested that i take the power down a couple of notches on either side. Worked out so well.
Anyway, things were awful the last two days: I was slurring and couldn’t organise my sentences and so I spoke to the
DBS
nurse this afternoon: she suggested that i take the power down a couple of notches on either side. Worked out so well.
jeeves19
in
Cure Parkinson's
11 months ago
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