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New NHS Endocrinologist tomorrow for ‘Second Opinion’. Help with bloods please!
Hello! I finally have my ‘Second Opinion’ NHS Endocrinology Consultant tomorrow after it was put back a few weeks. The first Endocrinologist (who I’ve been sent to a few times now) utterly disagrees with me taking T3, and has made her displeasure clear in person and in her letters to my GP. I am
Hello! I finally have my ‘Second Opinion’ NHS Endocrinology Consultant tomorrow after it was put back a few weeks. The first Endocrinologist (who I’ve been sent to a few times now) utterly disagrees with me taking T3, and has made her displeasure clear in person and in her letters to my GP. I am
Abi-Abster
in
Thyroid UK
10 months ago
T3 Help!
Hi everyone, I need some help. I am newly started on T3. Finely got to see an endo 7/9/23 and he said my T4 was too high and my T3 low. I have never been well on T4 and was diagnosed with ME/CFS. I have been on T4 for 20 years. I also had low B12. I self inject for that. I have enlarged red blood
Hi everyone, I need some help. I am newly started on T3. Finely got to see an endo 7/9/23 and he said my T4 was too high and my T3 low. I have never been well on T4 and was diagnosed with ME/CFS. I have been on T4 for 20 years. I also had low B12. I self inject for that. I have enlarged red blood
Katherine123
in
Thyroid UK
10 months ago
Statins and B12 deficiency
During a Lung Health check recently, lungs were fine but I was found to have coronary artery calcification- which meant that I had to see a GP. I do not know the extent or severity of the calcification. Her advice was to start taking statins. I managed to get her to request some blood tests first.
During a Lung Health check recently, lungs were fine but I was found to have coronary artery calcification- which meant that I had to see a GP. I do not know the extent or severity of the calcification. Her advice was to start taking statins. I managed to get her to request some blood tests first.
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
10 months ago
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Methylmalonic Acid Test
Can anyone tell me whether the MMA test can be obtained through the NHS? I saw a GP yesterday (I am still dizzy following falling backwards again a week ago) I am going for my blood test on Thursday to see if my folate level has improved after taking a folate /B12 supplement for 4 months on instruction
Can anyone tell me whether the MMA test can be obtained through the NHS? I saw a GP yesterday (I am still dizzy following falling backwards again a week ago) I am going for my blood test on Thursday to see if my folate level has improved after taking a folate /B12 supplement for 4 months on instruction
LynneG
in
Pernicious Anaemia Society
10 months ago
Use-by dates for B12
I posted recently about a three month decline and symptom return as my B12 batch approached its December expiry date. When I tealised what the problem might be I began injecting EOD with a new batch with a 2025 expiry and I'm feeling much better already. Just a cautionary tale about expiry dates. In
I posted recently about a three month decline and symptom return as my B12 batch approached its December expiry date. When I tealised what the problem might be I began injecting EOD with a new batch with a 2025 expiry and I'm feeling much better already. Just a cautionary tale about expiry dates. In
Orchard33
in
Pernicious Anaemia Society
10 months ago
Vitamin/supplements
Can I ask what vitamins would be useful to try to support healthy thyroid function. I know iron, and vitamin B12 are important, I wondered if a specific Thyriod supplement was useful. I found this one, does anyone else take this? https://heynutrition.com/products/thyroid-complex?_gl=1*1d25mkn*_gcl_aw
Can I ask what vitamins would be useful to try to support healthy thyroid function. I know iron, and vitamin B12 are important, I wondered if a specific Thyriod supplement was useful. I found this one, does anyone else take this? https://heynutrition.com/products/thyroid-complex?_gl=1*1d25mkn*_gcl_aw
Fee52
in
Thyroid UK
10 months ago
Writing a lot here.
I am aware I am writing a lot here. I am also aware others are doing the important work of disseminating information to those who are suffering and I am not doing that work. I mean no disrespect to those in the throes of B12 deficiency. I write as it is helpful to me and others indicate it may be helpful
I am aware I am writing a lot here. I am also aware others are doing the important work of disseminating information to those who are suffering and I am not doing that work. I mean no disrespect to those in the throes of B12 deficiency. I write as it is helpful to me and others indicate it may be helpful
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
Sweating
Hi also does anyone sweat at night after injecting B12
Hi also does anyone sweat at night after injecting B12
Mozza127
in
Pernicious Anaemia Society
10 months ago
Medichecks advanced thyroid rest
Hi all, The instructions for my medichecks test says to stop B12 for two whole weeks before testing! Do others follow this advice? I know from this forum that I have to stop any biotin containing supplements for 7 days before any blood test.
Hi all, The instructions for my medichecks test says to stop B12 for two whole weeks before testing! Do others follow this advice? I know from this forum that I have to stop any biotin containing supplements for 7 days before any blood test.
Cassav
in
Thyroid UK
10 months ago
B12 deficiency
I have been dealing with insomnia(never seem to get sleepy enough to fall asleep and hard to stay asleep as well) muscle twitching, vision issues(blurry especiallyat a distance), anxiety and palpitations for some time now. My b12 was recently checked at level of 274. I'm also working on a vitamin d deficiency
I have been dealing with insomnia(never seem to get sleepy enough to fall asleep and hard to stay asleep as well) muscle twitching, vision issues(blurry especiallyat a distance), anxiety and palpitations for some time now. My b12 was recently checked at level of 274. I'm also working on a vitamin d deficiency
Bama_86
in
Thyroid UK
10 months ago
Riboflavin (b2) supplementation is a no-brainer for Parkinsons
Riboflavin (b2) is a complete no-brainer. 0 side effects and dirt cheap. Especially if your second and third toes any toenails are full of fungus/athletes foot. The Chinese believe that your second and third toe is a place where toxins leave the body. The Chinese believe PD is “stuck” in fight or
Riboflavin (b2) is a complete no-brainer. 0 side effects and dirt cheap. Especially if your second and third toes any toenails are full of fungus/athletes foot. The Chinese believe that your second and third toe is a place where toxins leave the body. The Chinese believe PD is “stuck” in fight or
38yroldmale
in
Cure Parkinson's
7 months ago
Evaluating
This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg methylcobalamin and .25 mg hydroxocobalamin with 6 mg adenosylcobalamin SL. Which led to consistent improvement weekly. Evaluating the effects of
This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg methylcobalamin and .25 mg hydroxocobalamin with 6 mg adenosylcobalamin SL. Which led to consistent improvement weekly. Evaluating the effects of
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
Clunking, Fading and Sleep
This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg methylcobalamin and .25 mg hydroxocobalamin with 6 mg adenosylcobalamin SL. Which lead to consistent improvement weekly. I am well aware that I or
This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg methylcobalamin and .25 mg hydroxocobalamin with 6 mg adenosylcobalamin SL. Which lead to consistent improvement weekly. I am well aware that I or
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
Found some research from the 1960s re alternative to injecting B12... Warning! Probably too much info before breakfast - Suppositories!
I am really struggling with injections no matter where, how and with help or not. Seriously interested in alternatives that could help. https://journals.sagepub.com/doi/10.3181/00379727-123-31527?icid=int.sj-abstract.similar-articles.3#:~:text=It%20was%20found%20that%20vit,m%CE%BCg%20per%20rectum%20was
I am really struggling with injections no matter where, how and with help or not. Seriously interested in alternatives that could help. https://journals.sagepub.com/doi/10.3181/00379727-123-31527?icid=int.sj-abstract.similar-articles.3#:~:text=It%20was%20found%20that%20vit,m%CE%BCg%20per%20rectum%20was
f1ddle_st1cks
in
Pernicious Anaemia Society
10 months ago
Manufacturer recommendations
I’ve just read and compared the manufacturer instructions for Hevert and Pascoe. Hevert - first few weeks 1ml (500mcg) twice weekly followed by 100mcg per month. Discard remaining b12 in ampoule. Pascoe initially 1500mcg twice weekly, also followed by monthly dose of 100mcg. So 1/15th of an ampoule
I’ve just read and compared the manufacturer instructions for Hevert and Pascoe. Hevert - first few weeks 1ml (500mcg) twice weekly followed by 100mcg per month. Discard remaining b12 in ampoule. Pascoe initially 1500mcg twice weekly, also followed by monthly dose of 100mcg. So 1/15th of an ampoule
MorningMist
in
Pernicious Anaemia Society
10 months ago
Need Help with understanding blood test.
Hello you wonderful people, I’m just wondering if anyone can help me understand these results, I’m not sure if they are good or not so good, I asked my GP for further blood tests ie TPO antibodies, vit D3 as on previous blood tests these weren’t done, he was ok with that & said he would stick on a
Hello you wonderful people, I’m just wondering if anyone can help me understand these results, I’m not sure if they are good or not so good, I asked my GP for further blood tests ie TPO antibodies, vit D3 as on previous blood tests these weren’t done, he was ok with that & said he would stick on a
PassionFruit-xxx
in
Thyroid UK
10 months ago
The cause of my B12 deficiency.
The most likely reason for my B12 deficiency is my body uses B12 faster than is normal for reasons unknown and unstudied other than me as far as I know. This is why self treatment that increases the frequency which was at first based on more B12 was effective. To inject more B12 I coincidentally injected
The most likely reason for my B12 deficiency is my body uses B12 faster than is normal for reasons unknown and unstudied other than me as far as I know. This is why self treatment that increases the frequency which was at first based on more B12 was effective. To inject more B12 I coincidentally injected
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
Blood result and raised MCV
Hi everyone. I had a recent blood test as I've been supplementing with gentle iron, general A-Z vits and B12 since the spring. I particularly wanted to check up on my iron/ferritin status. I've never had a positive diagnosis of PA, or even of B12 deficiency as my levels have always been 'in range'.
Hi everyone. I had a recent blood test as I've been supplementing with gentle iron, general A-Z vits and B12 since the spring. I particularly wanted to check up on my iron/ferritin status. I've never had a positive diagnosis of PA, or even of B12 deficiency as my levels have always been 'in range'.
KBird01
in
Pernicious Anaemia Society
10 months ago
Metformin alternatives
Hi all,Can anyone tell me what the recommend alternative drug for type2 diabetes is, other than Metformin. I'm recently diagnosed T2 diabetic and doctor wants me to take Metformin. I understand it can block b12 absorption. Many thanks
Hi all,Can anyone tell me what the recommend alternative drug for type2 diabetes is, other than Metformin. I'm recently diagnosed T2 diabetic and doctor wants me to take Metformin. I understand it can block b12 absorption. Many thanks
doityourself
in
Pernicious Anaemia Society
10 months ago
Please can you comment on my results.
Taken just after 0930 no medication or food and drink previously CRP HS 1.830 mg/L (Range: < 3) Ferritin 279.00 ug/L (Range: 30 - 650) Folate - Serum 12.6 nmol/L (Range: 8.83 - 60.8) Vitamin B12 - Active 113.0 pmol/L (Range: 37.5 - 188) Vitamin D 115.0 nmol/L (Range: 50 - 250) TSH 0.346
Taken just after 0930 no medication or food and drink previously CRP HS 1.830 mg/L (Range: < 3) Ferritin 279.00 ug/L (Range: 30 - 650) Folate - Serum 12.6 nmol/L (Range: 8.83 - 60.8) Vitamin B12 - Active 113.0 pmol/L (Range: 37.5 - 188) Vitamin D 115.0 nmol/L (Range: 50 - 250) TSH 0.346
Dizzy938
in
Thyroid UK
10 months ago
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