Experiences with

Creutzfeldt-Jakob disease (CJD)

Hello, This has been a great board for anecdotal advice. I got real lucky and caught the beginning of a heart attack on a treadmill test so I can no longer take Flecainide. Flec at 75mg twice a day kept me out of AF for 8 years. As an additional PIP it stopped 2 afib episodes in 15min and 2hrs.

2.5 weeks ago I had a catheter ablation (pulse) as a day procedure. I had an allergic reaction immediately after and was given steroids, cleared it up. Then had a bleed from the puncture site, that was stemmed & redressed. Discharged same day, in the evening puncture site bled spectacularly, spoke to

hi everyone, I’m new today so forgive me if something like this has been on plenty times before. A couple of months ago I was diagnosed with bacterial pneumonia, luckily I didn’t need to stay in hospital. I went back for another chest x-ray and the dr has said it hasn’t cleared up as much as was expected

I am 69 - so now I've been told I am stage 3 CKD. I have had all the typical symptoms (high BP, anemia, always freezing (i live in FL), gastro, low energy, ...) I am innodated with many suggestions on how to slow the progression with diet, suppliments, special tea.... I am already on meds for BP, A-fib

Hello, Was diagnosed with AFib in December 2024 but I suspect i had this for quite a while before the diagnosis. Am on anticoagulants (Apixaban) and Betablockers (Bisoprolol). Bisoprolol makes me feel unwell, total exhaustion and no energy at all. The EP cardiologist i saw privately (to avoid the long

Had consultation with electrophysiologist (EP) re: Pulsed Field Ablation (PFA). I asked: "Will you be doing the ablation? And only you?" Answer: "This is a teaching hospital. There will be a trainee present and the trainee will work on you." This causes me concern. Is it normal to have a trainee work

My husband has been advised to have open heart surgery, for valve replacement and aortic root aneurysm graft. It is recommended to be done within the next three months. Though he has a growing aneurysm the surgeons were mostly concerned about the severe aortic valve regurgitation. The longer the valve

Hello from Canada. I’m reaching out about my 81-year-old mother, who has had atrial fibrillation (AFib) for about 15 years. We’ve managed it with medications like Metoprolol and others, but in July 2024, she had an ablation. Since then, things have gone downhill. She had to start taking Amiodarone, which

My husband is going to begin taking Orgovyx. He takes high blood medication, both Amlodipine and Metoprolol. He takes them each at approx 830 am each morning. We have asked his doctors if he should space out his blood pressure meds and the Orgovyx, but the doctors don’t seem to have an opinion on that

I have just had a cholesterol test with a reading of 6.5. The Doctor hasn't contacted me about it , but I eat a very healthy, low fat diet. Can Pred & a lot of worry/stress ( which i have in bucketfulls at the moment) affect our cholesterol readings?

A friend of mine (you know who you are) sent me an article where a registered dietician addresses the "rumors" that lectins are an anti-nutrient, meaning that they can interfere with how well your body absorbs nutrients from food or that they can increase gut permeability and drive autoimmune diseases

I have had PAF for about 13 months. Had EP consult end of Feb. An area we didn't really end up discussing - we somehow managed to digress and didn't come back to - was DOACs. Just received the clinic letter. This says that my CHADS2VAsc score is 1: as a consequence of having had MI (which seems to

Hi, has anyone else been on 5mg of bisoprolol and 50mg of flecainide? I'm just wondering if your heart rate got to low and how you felt in general? Thanks for your time 🙏

Hello everyone I hope everyone is well and getting support from this site which is a great help. I have recently been diagnosed with AFib after an irregular heartbeat picked up on an ECG, although I guess it is still very much early days on the diagnosis, as it was only a week ago. I see a lot on

Does anyone else have this? One possible cause seems to be if you have an extra cervical rib. I have a cousin who does, so possible I might well have too. I am hypermobile, hypo and have a tendency to having clicky, clunky clavicles on occasion throughout my life. One extra 1st cervical rib, I imagine

Do you or a family member or friend have Arrhythmogenic Cardiomyopathy? You are invited to participate in a study to identify the unmet health-related needs of patients with a genetic form of Arrhythmogenic Cardiomyopathy in order to improve the quality of their care. Objectives and course of the

Do you or a family member or friend have Arrhythmogenic Cardiomyopathy? You are invited to participate in a study to identify the unmet health-related needs of patients with a genetic form of Arrhythmogenic Cardiomyopathy in order to improve the quality of their care. Objectives and course of the

hey everyone, I’m new to the BHF forum. I’m 51 years old and recently (3 weeks ago) I went to my local A&E and was advised I’d had a heart attack. This was a complete shock to me and one that I’m still trying to process. Whilst at the hospital I also had an angiogram which was unfortunately unccessfull

Hi all, Some brief history: I had a stroke in July 2022, as a result of which I was diagnosed with AF and HF (EF 25-30%). Following the usual drugs, in March 2023 I had a successful cardioversion, which brought my EF up to a normal 63% (so no more HF). I was put on the waiting list for an ablation,

Greetings; 73 years old from the US. Had a heart attack late November out of the blue. Since been diagnosed with kidney disease severe. Have to stop smoking cigars. Smoked cigarettes from 16 to 28 years of age and quit cold. Around 50 started smoking cigars, thought they were not bad for you. So for