Experiences with

Creutzfeldt-Jakob disease (CJD)

Hi everyone, I Just wondering, does anyone take fish oil omega 3 supplements? I have read that it is very good for inflammation and has many other benefits. Has anyone tried it, if so have you noticed any benefits or adverse affects from taking it? I would appreciate your thoughts. Thanks

Following an aortic valve replacement (AVR) July 2024, tissue valve, I went into persistent Afib by August 2024, back into normal sinus rhythm (NSR) following a Cardioversion in December 2024. Experienced some supraventricular ectopy and premature ventricular contractions but so far so good, stayed in

Hello! I have AFib that was diagnosed in July of 2024. I am a 50 year old male (49 at the time of AFib episode) I am on 50 mg of Metoprolol XL twice a day. I was on Amiodarone and Eliquis as well but the Electro Cardiologist doctor took me off these. He said the Amiodarone isn’t needed and if I need

Rare Disease Day 2025 countdown, one week to go! Equity in a rare disease like vasculitis is not only about fair and equal access to diagnosis, treatment and healthcare; it is also about the equal opportunity to achieve the highest possible level of physical, emotional and mental wellbeing! #vasculitis

I'm being investigated for a possible lung disorder. Since my Gp suggested I buy a pulse oximeter I also bought a smart watch. I've been having coughing spasms during the night and last night I checked my O2 on my watch, I was lying on my side. I was surprised to see it was 81, I checked a few times

Hi Unfortunately my amazing Dad died back in April last year 2024. He had a cardio version 3 months before he died as he was experiencing fast heart rhythm to the point it was overheating and doctor said he needs a cardio version. On the night my Dad died, he showed jo symptons. Had a full meal, had

Update on my story: so after having a Watchman put in (in December) to block my Left Atrial Appendage and reduce my stroke risk (necessary as I can’t take blood thinners), today I have been signed off and the aspirin removed from my pill regime - still on ramipril and low dose of bisoprolol. The cardiologist

[i]Cholesterol levels are frequently found to be elevated in patients who have PBC. This can be very unsettling as they feel it's 'one more thing' associated with their PBC.[/i] [i]It is the 'good (HDL)' cholesterol that is elevated in those with PBC. It is not the kind of cholesterol associated

Hello, 50 yr old fit healthy male. I’ve recently been told I’m suffering from AF. Basically went out on my MTB on Friday 14/02/25. One of my usual routes that I do, started to struggle on some of the hills that I normally get up. No energy then slight chest pain which increased the steeper the hill got

Hi all Has aNYONE BEEN IN CONSTANT AF FOR A LONG TIME IE MORE THAN 12 MONTHS? HOW DANGEROUS IS IT TO BE IN IT ALL THE TIME. BEEN SCHEDULED FOR SURGERY BUT OVERWEIGHT AND FINDING IT HARD TO SHIFT. MY BODY HAS SEEMED TO HAVE ADJUSTED TO THE AF AND I ONLY NOTICE IT WHEN IM RUNNING AROUND UP AND DOWN HILLS

I've posted on this forum before about my bradycardia, which hovers between 48 and 55 when I wake up in the morning and which, I believe, is the cause of my lightheadedness and difficulty walking. (I could be wrong), but anyway, I have an appt with my cardiologist this week and I would like to know what

Hello forum members; I've had afib for close to 35 years now and it seems as I get older symptoms seem to be getting worse. This morning I went into afib and I did my usual chores then I took my blood pressure and it was 100/48. When I saw that it freaked me out BAD, so I called the VA nurse hotline

24 hour holter reported 6,060 ectopic beats in 24 hours and 684 couplets. Echo cardio gram reported mild MR. Symptoms shortness of breath, coughing when short of breath, fatigue, heart thumping like missing a beat. Had to push GP hard for a cardiology referral as I feel so awful. 10 week wait for

I am new to this site. My first question has to do with readings on my 6-lead Kardia mobile and an upper arm bp cuff from Omicron. I take readings on them each morning. My bp, with meds, is normal, and the rate is consistently in the low 50's or 40's. I have been an athlete and my activity is not

Does anyone else get this. I have Paroxysmal AFib and get at least two attacks a week usually lasting 18 - 23hrs. In the past few weeks, I have felt as if in AFib for a couple of days but my Kardimobile says no, although the ECG graph does show more activity, than when in Normal Sinus Rhythm sorry

I frequently hear QOL mentioned on this site and am looking for your opinions. I have had the symptoms of Paroxysmal AF for about 10 years but was only diagnosed 3 years ago. After my diagnosis I was put on Edoxaban 60mg and Bisoprolol 2.5mg, each one once daily. In the early days I was only aware

Hello all, I'm only 5.5 months on from being diagnosed with constant Afib & HF. I've seen posts on this forum that have mentioned rhythm control drugs & chemical cardioversions, which has naturally led me to wonder why none of the 7 drugs I'm told I need to take include an anti-arrhythmia drug. Are

Can having an Afib attack with high heart rate of 140 cause chest pain? I had this last night and it lasted about a hour. The pain was pretty severe, but once my heart rate slowed down, the pain went away. I’ve been wearing a holter monitor for two weeks now so I’m hoping the monitor will be able to

Afib for past three years with three Cardioversions. Last one lasted only two weeks Changed to new Physician and had an Ablation with no issues in September. Felt better than I had in a long time. Fecainade Lopressor and Eliquis. (I am 84) Back in afib in early January. I am scheduled for a Cardioversion

Hi Ladies I am currently being treated for first recurrence and are getting Carbo/Doxil and Keytruda. I recently had an echocardiogram and it showed a lot of pericardial effusion. I was immediately rushed to ER and then off to radiology intervention to insert a drain. I was admitted to critical care