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Coronary vasospastic disease
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stress related relapse?
Hi All. Down to 6mgs Pred for GCA/ PMR. was doing well with rest and exercise and then hubby had double bypass operation just over two weeks ago. Am now getting the odd sharp pain in the temples about once a day. Really sharp. Wondering if I should go back up to 10 mgs for a week or two. Really hate
Hi All. Down to 6mgs Pred for GCA/ PMR. was doing well with rest and exercise and then hubby had double bypass operation just over two weeks ago. Am now getting the odd sharp pain in the temples about once a day. Really sharp. Wondering if I should go back up to 10 mgs for a week or two. Really hate
CathyMeg
in
PMRGCAuk
4 months ago
relief from arthritis while taking apaxiban
reccomendations to relieve arthritis in lower back and hips - I’m taking apaxiban and have been advised against ibuprofen - many thanks Michael John
reccomendations to relieve arthritis in lower back and hips - I’m taking apaxiban and have been advised against ibuprofen - many thanks Michael John
Spinbiker
in
Arthritis Action
5 months ago
Nose sores
Good morning, Can anyone tell me what you do for nose sores. I've had one at the inside tip for weeks. They come and go but when they come they last for weeks. They've been coming more frequently too. I'm at a loss of how to heal this. I was diagnosed with Lupus SLE, Sjogren's and MCTD. Is it
Good morning, Can anyone tell me what you do for nose sores. I've had one at the inside tip for weeks. They come and go but when they come they last for weeks. They've been coming more frequently too. I'm at a loss of how to heal this. I was diagnosed with Lupus SLE, Sjogren's and MCTD. Is it
Tessie62
in
NRAS
5 months ago
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Can Anyone Please Advise On B12 Related Tests To Have If Normal B12 Testing is in range.
Can Anyone Please Advise On B12 related tests to have If Normal B12 Testing is in range. My daughter is having numerous issues including IBS which she had for nearly 20 years and the last 18 months undiagnosed urology issues, mostly infections that often come back as no issues and has been on numerous
Can Anyone Please Advise On B12 related tests to have If Normal B12 Testing is in range. My daughter is having numerous issues including IBS which she had for nearly 20 years and the last 18 months undiagnosed urology issues, mostly infections that often come back as no issues and has been on numerous
thyreoidea
in
Pernicious Anaemia Society
5 months ago
Can Someone be in the normal TSH range but still be suffering from Hypothyroidism
My daughter has been suffering multiple symptoms, reoccurring urology issues, aches and pains, IBS to name but a few. Her GP’s have only ever tested for TSH which has always been in the middle of the range. As I have autoimmune hypothyroidism as well as an autoimmune blood disorder should they be
My daughter has been suffering multiple symptoms, reoccurring urology issues, aches and pains, IBS to name but a few. Her GP’s have only ever tested for TSH which has always been in the middle of the range. As I have autoimmune hypothyroidism as well as an autoimmune blood disorder should they be
thyreoidea
in
Thyroid UK
5 months ago
Levothyroxine
does anyone know if Levothyroxine is definitely gluten free as I’m coeliac and unsure if it’s not helping with my immune system.
does anyone know if Levothyroxine is definitely gluten free as I’m coeliac and unsure if it’s not helping with my immune system.
1Cass
in
Thyroid UK
5 months ago
Stent after Ross Konno procedures
hi! Im 41, and have had a major heart ops (13 years ago with Ross Konno procedures). Unfortunately my heart is leaking and staged moderate. Monitored annually, carefully. Has anyone had Ross Konno procedures and what kind of stent did you had for your leaky heart? How long your stent lasts for? Will
hi! Im 41, and have had a major heart ops (13 years ago with Ross Konno procedures). Unfortunately my heart is leaking and staged moderate. Monitored annually, carefully. Has anyone had Ross Konno procedures and what kind of stent did you had for your leaky heart? How long your stent lasts for? Will
Welshlady82
in
British Heart Foundation
8 months ago
Levothyroxine and coeliac disease
would someone please be kind enough to inform me if Levothyroxine is definitely gluten free with no traces of gluten and the brand name is Mand.
would someone please be kind enough to inform me if Levothyroxine is definitely gluten free with no traces of gluten and the brand name is Mand.
1Cass
in
Gluten Free Guerrillas
5 months ago
Dapagliflozin side effects
I had a heart attack and stent fitted over Christmas 2022 and have been on a cocktail of drugs since then but feel in good health. I went for a follow up angioplasty a couple of months ago and it was found that the heart attack had caused permanent damage to my heart (apparently now only 30% efficient
I had a heart attack and stent fitted over Christmas 2022 and have been on a cocktail of drugs since then but feel in good health. I went for a follow up angioplasty a couple of months ago and it was found that the heart attack had caused permanent damage to my heart (apparently now only 30% efficient
SuperSanta
in
British Heart Foundation
8 months ago
Cholesterol, pred and PMR?
Hi. I recently joined "Our Future Health" it's a project to get DNA profiles of 5 million people in UK , in order to get a detailed picture.of the nation's health...put in very simple terms. Joining involves completing a questionnaire and an appointment wher you are weighed, measured, BP, heart rate
Hi. I recently joined "Our Future Health" it's a project to get DNA profiles of 5 million people in UK , in order to get a detailed picture.of the nation's health...put in very simple terms. Joining involves completing a questionnaire and an appointment wher you are weighed, measured, BP, heart rate
MamaBeagle
in
PMRGCAuk
4 months ago
PS to Periodontal Abscess and Prednisone
Thanks to everyone who took the time to reply to my post about gum/tooth infections and prednisone. All the replies were helpful! I did manage to generate one last question. Did any of you who had tooth extractions go on to have dental implants? I am leaning against due to cost and issues related to
Thanks to everyone who took the time to reply to my post about gum/tooth infections and prednisone. All the replies were helpful! I did manage to generate one last question. Did any of you who had tooth extractions go on to have dental implants? I am leaning against due to cost and issues related to
Donna5658
in
PMRGCAuk
5 months ago
Parkinson's wife
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
veronicacoath
in
Cure Parkinson's
7 months ago
PBC - liver transplant donors and blood group questions
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Cascade35
in
PBC Foundation
7 months ago
Elevated LDH
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
leahleah
in
CLL Support
7 months ago
Treatment Update IMRT with ADT 18 months later
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Mischa1111111
in
Advanced Prostate Cancer
7 months ago
Very low blood pressure
Hi again, I went for a recorder loop implant today, which I was quite relaxed in doing. I did go by taxi just in case, but felt quite unsteady in walking to reception. This was no worse than the Saturday just gone, when I checked in at A&E as I felt pretty unsteady also ( they found nothing by the
Hi again, I went for a recorder loop implant today, which I was quite relaxed in doing. I did go by taxi just in case, but felt quite unsteady in walking to reception. This was no worse than the Saturday just gone, when I checked in at A&E as I felt pretty unsteady also ( they found nothing by the
Quovadisuk
in
Atrial Fibrillation Support
4 months ago
Lupus diagnosis yesterday
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
BonnyB
in
LUPUS UK
5 months ago
Vacation from Lupron/Zytiga - Temporary or Permanent!
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
groth12345
in
Advanced Prostate Cancer
7 months ago
Are you joining us for our Patient Day in Baltimore, taking place on Saturday March 02?
There is still time to register for this
FREE
event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as atrial fibrillation and much more! You will also have the chance
There is still time to register for this
FREE
event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as atrial fibrillation and much more! You will also have the chance
TracyAdmin
Partner
in
AF Association
4 months ago
Are you joining us for our Patient Day in Baltimore, taking place on Saturday March 02?
There is still time to register for this FREE event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as supraventricular, atrial fibrillation and much more! You will also
There is still time to register for this FREE event, so do not delay and miss out on the unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as supraventricular, atrial fibrillation and much more! You will also
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
4 months ago
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