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What other tests
Hi all. Other than ANA which obviously indicates an autoimmune condition (I'm highly positive) And I have many symptoms of what I feel is Lupus. I'm just wondering what tests are available once referred to rheumatology. So I am armed with Knowledge and don't get fobbed off. Is there anything further
Hi all. Other than ANA which obviously indicates an autoimmune condition (I'm highly positive) And I have many symptoms of what I feel is Lupus. I'm just wondering what tests are available once referred to rheumatology. So I am armed with Knowledge and don't get fobbed off. Is there anything further
JCM1992
in
LUPUS UK
4 months ago
Do you know your pulse?
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
3 months ago
Just one chilli flake!
I am having my first face to face meeting with the cardiologist next month, but he has been working closely with my GP and advising on medication for the past few months. Following a 24 hour ECG my Verapamil dose was increased at the end of last week and I feel so much better. My heart is calm, my
I am having my first face to face meeting with the cardiologist next month, but he has been working closely with my GP and advising on medication for the past few months. Following a 24 hour ECG my Verapamil dose was increased at the end of last week and I feel so much better. My heart is calm, my
Ilovedogs12
in
Atrial Fibrillation Support
3 months ago
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New research
Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it. https://lens.monash.edu/@medicine-health/2024/02/06/1386418/breakthrough-heralds-immune-personalised-medicine-for-lupus?amp=1
Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it. https://lens.monash.edu/@medicine-health/2024/02/06/1386418/breakthrough-heralds-immune-personalised-medicine-for-lupus?amp=1
EllsBells591
in
LUPUS UK
4 months ago
Does Flecainide Work for Persistent Afib
Hello. In February, I had a cardioversion after being in persistent afib for 5 months. While I was in NSR, I saw my cardiologist and he took me off of metoprolol and prescribed Ditilizem and Flecainide. Several days after I saw him, I went back into persistent afib, but had not yet started taking
Hello. In February, I had a cardioversion after being in persistent afib for 5 months. While I was in NSR, I saw my cardiologist and he took me off of metoprolol and prescribed Ditilizem and Flecainide. Several days after I saw him, I went back into persistent afib, but had not yet started taking
DogLover9987
in
Atrial Fibrillation Support
3 months ago
Australian research - possible cure?
I don’t like raising false hope among our community about ‘cures’ toted in the media, but I found this article interesting. It’s about the T-cells, which many of us already know is involved in autoimmune activity: https://www.sbs.com.au/news/podcast-episode/australian-researchers-develop-world-first-method-of-treating-lupus
I don’t like raising false hope among our community about ‘cures’ toted in the media, but I found this article interesting. It’s about the T-cells, which many of us already know is involved in autoimmune activity: https://www.sbs.com.au/news/podcast-episode/australian-researchers-develop-world-first-method-of-treating-lupus
MusicalFurbaby
in
LUPUS UK
4 months ago
Ramipril Or Reflux - Unsure What Is Causing My Cough
Hi I had a heart attack followed by an angioplasty last month, and I am on the meds listed at the end of this message. In general terms I feel really good since the stent was fitted, and five weeks in I’m walking as much as I used to, but am still taking it easy in terms of strenuous activity. Have
Hi I had a heart attack followed by an angioplasty last month, and I am on the meds listed at the end of this message. In general terms I feel really good since the stent was fitted, and five weeks in I’m walking as much as I used to, but am still taking it easy in terms of strenuous activity. Have
Bhunabhoy
in
British Heart Foundation
8 months ago
NZ made nutrient rescue.
Facebook keeps recommending this product to me. It’s made in NZ so might give it a shot as todays story was about a guy from NZ who has Parkinson’s and lives here in Christchurch! https://nutrientrescue.nz/ingredients “ When I was diagnosed 10 years ago, I was referred to a specialist in Oregon. Dr
Facebook keeps recommending this product to me. It’s made in NZ so might give it a shot as todays story was about a guy from NZ who has Parkinson’s and lives here in Christchurch! https://nutrientrescue.nz/ingredients “ When I was diagnosed 10 years ago, I was referred to a specialist in Oregon. Dr
LAJ12345
in
Cure Parkinson's
7 months ago
Pip claim
Hi can you get pip for anxiety as well as fibromyalgia and angina.Thanjs
Hi can you get pip for anxiety as well as fibromyalgia and angina.Thanjs
Tazandoldie
in
Fibromyalgia Action UK
3 months ago
Good news
Evening ..some if you may know I've been on this site for a couple of years..I was on and off a drinker wine etc ..normal for spain.Anyway 2.5 years ago during the pandemic I knew that I wasn't right had a blood test ..not good . Fast tracked specialist apt . Different tests set up ..fatty liver diagnosed
Evening ..some if you may know I've been on this site for a couple of years..I was on and off a drinker wine etc ..normal for spain.Anyway 2.5 years ago during the pandemic I knew that I wasn't right had a blood test ..not good . Fast tracked specialist apt . Different tests set up ..fatty liver diagnosed
Spiff
in
British Liver Trust
7 months ago
I am waiting to find out if I have Lupus but I haven’t got my ANA result back yet and I want to know if people think this could be lupus
Hi, I have been having concerns for over a year about me having Lupus. I had a blood test last year which everything came back normal and the ANA was negative however I am experiencing more symptoms this year and I have taken another blood test and so far the bloods again are normal but I have currently
Hi, I have been having concerns for over a year about me having Lupus. I had a blood test last year which everything came back normal and the ANA was negative however I am experiencing more symptoms this year and I have taken another blood test and so far the bloods again are normal but I have currently
katiepops2004
in
LUPUS UK
4 months ago
Ramipril or Reflux - hard to tell why I have this cough
Hi I had a heart attack followed by an angioplasty last month, and I am on the meds listed at the end of this message. In general terms I feel really good since the stent was fitted, and five weeks in I’m walking as much as I used to, but am still taking it easy in terms of strenuous activity. Have
Hi I had a heart attack followed by an angioplasty last month, and I am on the meds listed at the end of this message. In general terms I feel really good since the stent was fitted, and five weeks in I’m walking as much as I used to, but am still taking it easy in terms of strenuous activity. Have
Bhunabhoy
in
British Heart Foundation
8 months ago
Morningside liothyronine 5mcg supply issues
I'm having problems to get Morningside liothyronine 5mcg. I have a regular script specifying Morningside Liothyronine 5mg which I take twice daily. Boots has been unable to get hold of it this month and their supplier is sending Viatris brand instead, which has mannitol that caused me serious problems
I'm having problems to get Morningside liothyronine 5mcg. I have a regular script specifying Morningside Liothyronine 5mg which I take twice daily. Boots has been unable to get hold of it this month and their supplier is sending Viatris brand instead, which has mannitol that caused me serious problems
KCFryer
in
Thyroid UK
3 months ago
FREE Arthritis Self-Management Event
I thought some of you may be interested in this event on Wed 6th March, 6.00pm (GMT); its aimed at young people or anyone supporting a young person with arthritis. Tickets can be booked here: https://www.eventbrite.co.uk/e/arthritis-me-tickets-811392285167 Ann Arthritis Action Comms Team,
I thought some of you may be interested in this event on Wed 6th March, 6.00pm (GMT); its aimed at young people or anyone supporting a young person with arthritis. Tickets can be booked here: https://www.eventbrite.co.uk/e/arthritis-me-tickets-811392285167 Ann Arthritis Action Comms Team,
arthritis_action
Partner
in
Arthritis Action
4 months ago
Stopping Bisoprolol & ramipril
Long story short! I’ve been on 2.5 of each now for over two years & im over 18months clear in sinus rhythm after a successful ablation in feb 22 I’ve recently had an eco which shows heart in full health, I’ve been through the genetics route which concluded no heart disease or family history to worry
Long story short! I’ve been on 2.5 of each now for over two years & im over 18months clear in sinus rhythm after a successful ablation in feb 22 I’ve recently had an eco which shows heart in full health, I’ve been through the genetics route which concluded no heart disease or family history to worry
GM1987
in
Atrial Fibrillation Support
3 months ago
Boston Scientific I/v cardioverter) defibrillator question
Hi looking for first experiences of having the above device fitted. I'm one week on from the implant and the soreness from the operation is settling down. I am still sleeping on my right side which is fine. But when I am lying flat the box starts firing off, I guess in cardioverter mode. It's set
Hi looking for first experiences of having the above device fitted. I'm one week on from the implant and the soreness from the operation is settling down. I am still sleeping on my right side which is fine. But when I am lying flat the box starts firing off, I guess in cardioverter mode. It's set
Chinkoflight
in
Atrial Fibrillation Support
3 months ago
holter monitor
hi has anyone any experience of waiting times for holter monitor results I had a 48hr holter monitor and echocardiogram 5 weeks ago this was recommended by the arrythmia clinic at my local hospital I have not seen anyone from the clinic before or after these tests and no results given yet was just wondering
hi has anyone any experience of waiting times for holter monitor results I had a 48hr holter monitor and echocardiogram 5 weeks ago this was recommended by the arrythmia clinic at my local hospital I have not seen anyone from the clinic before or after these tests and no results given yet was just wondering
Deltrot53
in
Atrial Fibrillation Support
3 months ago
AF & Bradycardia
Hi everyone, I am wondering if you can help me, I have AF which I am in permanent and have and 31% ventricular fraction, I am waiting for a date for a cardio version with Barts, I brought a Kardia mobile, and I have been monitoring my heart rate as bpm since February, The bpms have been fluctuating
Hi everyone, I am wondering if you can help me, I have AF which I am in permanent and have and 31% ventricular fraction, I am waiting for a date for a cardio version with Barts, I brought a Kardia mobile, and I have been monitoring my heart rate as bpm since February, The bpms have been fluctuating
Flippy1
in
Atrial Fibrillation Support
3 months ago
Low saturation with PV and Jakavi 20
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
Quitojohn
in
MPN Voice
3 months ago
Low Volume Low PSA Metastatic PC.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
NDJIM
in
Advanced Prostate Cancer
7 months ago
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