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Darolutamide and scan question (2nd UPDATE 1/15/22) RESULTS of Pylarify scan Anyone have any thoughts or advice? Questions we should ask?
My husband has a rapidly rising PSA (from 1.28 on Oct 18th to 5.9 on Dec 10th) and he was scheduled to get a Pylarify scan on Jan 6th but with newest PSA reading doc wants to start darolutamide now and not wait for scan. He's never been shown to be metastatic and we are disappointed to not be getting
My husband has a rapidly rising PSA (from 1.28 on Oct 18th to 5.9 on Dec 10th) and he was scheduled to get a Pylarify scan on Jan 6th but with newest PSA reading doc wants to start darolutamide now and not wait for scan. He's never been shown to be metastatic and we are disappointed to not be getting
SuppWife
in
Advanced Prostate Cancer
3 years ago
Docetaxel/Taxotere stopped after 1st Infusion & Radiation
After chemo went radiation therapy within few days to treat tumor in spine shown MRI. The PSA went from 24 prior to chemo to 33 after 3 weeks after chemo. Fatigue was off charts and neuropathy/ numbness in feet / legs became worse after chemo/ radiation. Considering Xofigo infusions to treat tumors
After chemo went radiation therapy within few days to treat tumor in spine shown MRI. The PSA went from 24 prior to chemo to 33 after 3 weeks after chemo. Fatigue was off charts and neuropathy/ numbness in feet / legs became worse after chemo/ radiation. Considering Xofigo infusions to treat tumors
Back2future
in
Advanced Prostate Cancer
3 years ago
Decision making of a patient with stage 4 glioblastoma
I want to know if a person with a stage 4 glioblastoma who has had radiation therapy is capable of deciding if family members can be updated on his condition? What info can a doctor share with the personal representative if the patient objects?
I want to know if a person with a stage 4 glioblastoma who has had radiation therapy is capable of deciding if family members can be updated on his condition? What info can a doctor share with the personal representative if the patient objects?
LoveBallad
in
Glioblastoma Support
3 years ago
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Immunotherapy together with Abraxane
Dear All, I am starting Immunotherapy together with Abraxane on Friday 17.12.21. I am scared of side effects of treatment. I was diagnosed July 2019. Stage 4 BBC. I was put on Ibrance and letrozol. Had Masectomy August 2020 & Radiotherapy. Medication stopped working. Tumours now on chest and liver.
Dear All, I am starting Immunotherapy together with Abraxane on Friday 17.12.21. I am scared of side effects of treatment. I was diagnosed July 2019. Stage 4 BBC. I was put on Ibrance and letrozol. Had Masectomy August 2020 & Radiotherapy. Medication stopped working. Tumours now on chest and liver.
strong1t
in
SHARE Metastatic Breast Cancer
3 years ago
Luthetium 177
Hello, my father cancer spreading to his bones . Part of him wants to give up but a part still has some fight in him ! Had radiation therapy when there were only 4 spots but now there are spreading all over his bones . Wondered about the luthetium 177 therapy in Germany or Austria . ( arrangements, costs
Hello, my father cancer spreading to his bones . Part of him wants to give up but a part still has some fight in him ! Had radiation therapy when there were only 4 spots but now there are spreading all over his bones . Wondered about the luthetium 177 therapy in Germany or Austria . ( arrangements, costs
Tyny
in
Advanced Prostate Cancer
3 years ago
Here we go again
Hi all, Well 19 months since I had my right lung removed and we are off again 😔 a 25m area on the lining where my right lung was has lit up 😔 a biopsy is not possible so they are just going to go ahead and treat it with 5 rounds og radiotherapy (sabo) has anyone had any experience with this? Trying
Hi all, Well 19 months since I had my right lung removed and we are off again 😔 a 25m area on the lining where my right lung was has lit up 😔 a biopsy is not possible so they are just going to go ahead and treat it with 5 rounds og radiotherapy (sabo) has anyone had any experience with this? Trying
Eglingham
in
The Roy Castle Lung Cancer Foundation
3 years ago
Post Radiotherapy Side Effects
Now for a week I've had a serious cough. Have been given Antibiotics but no improvement. All I want to do is sleep to do is sleep plus have no appetite Are these normal side effects? What can I do about the cough, it's making me feel ill?
Now for a week I've had a serious cough. Have been given Antibiotics but no improvement. All I want to do is sleep to do is sleep plus have no appetite Are these normal side effects? What can I do about the cough, it's making me feel ill?
Beatless
in
The Roy Castle Lung Cancer Foundation
3 years ago
Chemotherapy Maintenance
I have now just started chemotherapy maintenance with Pemetrexed. Hopefully the side effects won't be as bad as the combination I've just finished. Still on the Prednisolone for the inflammation of my right lung due to Radiotherapy side effects. On a reducing scale now but stopped for a couple of days
I have now just started chemotherapy maintenance with Pemetrexed. Hopefully the side effects won't be as bad as the combination I've just finished. Still on the Prednisolone for the inflammation of my right lung due to Radiotherapy side effects. On a reducing scale now but stopped for a couple of days
Ollie13
in
The Roy Castle Lung Cancer Foundation
3 years ago
Radiotherapy Side Effects -- Bad cough!
This has developed since finishing the 20 sessions. Is this normal? How long does it last? Thanks
This has developed since finishing the 20 sessions. Is this normal? How long does it last? Thanks
Beatless
in
The Roy Castle Lung Cancer Foundation
3 years ago
Metastatic prostate cancer chronic lower back and pelvic pain which gets much, much worse at night.
Hi everyone! I have metastatic prostate cancer which has got into my bones. I’m currently on Zoladex long term hormone therapy following a 10 month course of chemotherapy which was not that successful so we’re looking at other options. FYI I have noted quite a lot of muscle wastage as a result of long
Hi everyone! I have metastatic prostate cancer which has got into my bones. I’m currently on Zoladex long term hormone therapy following a 10 month course of chemotherapy which was not that successful so we’re looking at other options. FYI I have noted quite a lot of muscle wastage as a result of long
RobbieSELDN
in
Advanced Prostate Cancer
3 years ago
Patients located in France?? In urgent need of advice!!!
My father is getting a lot worse, all chemos failed, hormone therapy did not work either, genetic testing revealed no mutation and he now has very painful metastasis all over his spine ( no organs). PSA is 1900 and alcalina phosphates are high also. My father has an appointment on Thursday next week
My father is getting a lot worse, all chemos failed, hormone therapy did not work either, genetic testing revealed no mutation and he now has very painful metastasis all over his spine ( no organs). PSA is 1900 and alcalina phosphates are high also. My father has an appointment on Thursday next week
Lousab
in
Advanced Prostate Cancer
3 years ago
Medscape» The Hidden Cost of Prostatectomy: Patient Regret
Article in Dec 3 Medscape. I believe it's a subscription only site, so am including a copy below. Comments from doctors have been generally in agreement. https://www.medscape.com/viewarticle/963971?uac=407306BN&faf=1&sso=true&impID=3845549&src=WNL_dne4_211203_MSCPEDIT#vp_1 «quote» The Hidden Cost of
Article in Dec 3 Medscape. I believe it's a subscription only site, so am including a copy below. Comments from doctors have been generally in agreement. https://www.medscape.com/viewarticle/963971?uac=407306BN&faf=1&sso=true&impID=3845549&src=WNL_dne4_211203_MSCPEDIT#vp_1 «quote» The Hidden Cost of
BerkshireBear
in
Advanced Prostate Cancer
3 years ago
Immunotherapy Schedule
I'm being put forward for Immunotherapy after very successful Chemo & Radiotherapy. Understand that the procedure will be every 3 weeks, but what happens if there is a clash with other events? For instance I intend to book a few holidays in 2022, would it be allowed to postpone treatments if they clashed
I'm being put forward for Immunotherapy after very successful Chemo & Radiotherapy. Understand that the procedure will be every 3 weeks, but what happens if there is a clash with other events? For instance I intend to book a few holidays in 2022, would it be allowed to postpone treatments if they clashed
Beatless
in
The Roy Castle Lung Cancer Foundation
3 years ago
Chemo & Radiotherapy Complete - Good News But!
Finished Radiotherapy today, 20 sessions, after 6 cycles of Chemo. Oncologist showed me the Planning Scan results, after Chemo but before Radiotherapy. Result is that cancer has gone! But:- He advises I have Immunotherapy (Keytruda). Got to ask why? What will it do?
Finished Radiotherapy today, 20 sessions, after 6 cycles of Chemo. Oncologist showed me the Planning Scan results, after Chemo but before Radiotherapy. Result is that cancer has gone! But:- He advises I have Immunotherapy (Keytruda). Got to ask why? What will it do?
Beatless
in
The Roy Castle Lung Cancer Foundation
3 years ago
NCCN re-revises low-risk guidelines
This is probably a tempest in a teapot. NCCN, one of the top organizations that establishes the standard-of-care in the US, has once again changed its low-risk guidelines. It caused a bit of a storm earlier this year when they removed the word "[i]preferred[/i]" after "active surveillance" for low-risk
This is probably a tempest in a teapot. NCCN, one of the top organizations that establishes the standard-of-care in the US, has once again changed its low-risk guidelines. It caused a bit of a storm earlier this year when they removed the word "[i]preferred[/i]" after "active surveillance" for low-risk
Tall_Allen
in
Prostate Cancer Network
3 years ago
Darolutamide & Simvastatin?
New cell study from Japan below (1). It has been known for a century that solid tumor cells have an increased uptake of cholesterol. In PCa, higher cellular cholesterol levels are associated with a poorer prognosis. From 2004: "
Involvement of cholesterol-rich lipid rafts in interleukin-6-induced
New cell study from Japan below (1). It has been known for a century that solid tumor cells have an increased uptake of cholesterol. In PCa, higher cellular cholesterol levels are associated with a poorer prognosis. From 2004: "
Involvement of cholesterol-rich lipid rafts in interleukin-6-induced
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Radiotherapy Mask Fitting Today.
Hello everyone, hope all feeling positive, it's hard though all the time. Went to Salford Royal today for mask fitting. They soften the stuff they use and moulded it to my face, if you suffer from panic attacks I would think it's quite scary, because it's locked to the CT scan couch! They asked me to
Hello everyone, hope all feeling positive, it's hard though all the time. Went to Salford Royal today for mask fitting. They soften the stuff they use and moulded it to my face, if you suffer from panic attacks I would think it's quite scary, because it's locked to the CT scan couch! They asked me to
Hidden
in
The Roy Castle Lung Cancer Foundation
3 years ago
Radiotherapy Planning Scan
Do Oncologists get any information regarding size reduction from this process/scan?
Do Oncologists get any information regarding size reduction from this process/scan?
Beatless
in
The Roy Castle Lung Cancer Foundation
3 years ago
radiotherapy to the prostate if metastasized out side of the prostate.
It would seem this procedure is not recommended as it is also for radical. Is there any reason a doctor would recommend this? Seems the horse is out of the barn.
It would seem this procedure is not recommended as it is also for radical. Is there any reason a doctor would recommend this? Seems the horse is out of the barn.
totom
in
Advanced Prostate Cancer
3 years ago
Losing my determination
I was diagnosed with NSCLC in mid 2019 after extensive tests at a hospital with a specialist dept for diagnosis and forward treatment. One primary tumour in each lung and 2 lymph. They passed me over to the Oncology dept once diagnosis was complete. First was Pembrolizumab which gave a tangible improvement
I was diagnosed with NSCLC in mid 2019 after extensive tests at a hospital with a specialist dept for diagnosis and forward treatment. One primary tumour in each lung and 2 lymph. They passed me over to the Oncology dept once diagnosis was complete. First was Pembrolizumab which gave a tangible improvement
MacColl
in
The Roy Castle Lung Cancer Foundation
3 years ago
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