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Flip flopping TSH and recommendations for private endo please
Hello I've been hypo for 23 years. I rarely stay level for too long. October my TSH was 0.21, meds were tweaked from 125mcg mon-fri & 150 at weekends to 125mcg 7 days. January my TSH 5.05 but told stay on 125mcg for anther couple months. As i'm sure the reason most of us are on here, you understand
Hello I've been hypo for 23 years. I rarely stay level for too long. October my TSH was 0.21, meds were tweaked from 125mcg mon-fri & 150 at weekends to 125mcg 7 days. January my TSH 5.05 but told stay on 125mcg for anther couple months. As i'm sure the reason most of us are on here, you understand
Princesspeach128
in
Thyroid UK
6 months ago
Decipher question
First post. Age 67. Unfavorable intermediate PCa. 4+3 in 4 cores/20; 3+4 in 6 cores/20. Simple cribriform. Some PI in 2 cores. PSMA pet scan shows no evidence of meta. .66 Decipher score. Decipher says that with this score, I have an 8.6% risk of metastasis in 10 years if treated with RT or RP
First post. Age 67. Unfavorable intermediate PCa. 4+3 in 4 cores/20; 3+4 in 6 cores/20. Simple cribriform. Some PI in 2 cores. PSMA pet scan shows no evidence of meta. .66 Decipher score. Decipher says that with this score, I have an 8.6% risk of metastasis in 10 years if treated with RT or RP
gualala
in
Prostate Cancer Network
6 months ago
PSA rising, rapidly
Well, it looks like my honeymoons of ADT are over. I was (and still am) on a tripple therapy along the lines of the ARASENS trial (Docetaxel, Lupron and NUBEQA) for about 2 years. My PSA started rising six months ago, at first slowly, but now very rapidly. It went from 0.04 to 0.05 then 0.17 (in three
Well, it looks like my honeymoons of ADT are over. I was (and still am) on a tripple therapy along the lines of the ARASENS trial (Docetaxel, Lupron and NUBEQA) for about 2 years. My PSA started rising six months ago, at first slowly, but now very rapidly. It went from 0.04 to 0.05 then 0.17 (in three
Oldie68
in
Advanced Prostate Cancer
6 months ago
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Cardiovascular disease in men with pc
Men with pc are more likely to get cvd than non sufferers, is this due to ADT when advanced pc is treated or are there other reasons
Men with pc are more likely to get cvd than non sufferers, is this due to ADT when advanced pc is treated or are there other reasons
pd63
in
Prostate Cancer Network
6 months ago
just need to know I’m not alone
I’m 61 years old, divorced, and have had a horrible year of anxiety and depression. It started in my late teens, but this has been the worst bout I’ve ever experienced. It all started when I went to the ER with symptoms of a stroke. Well in the ER I found out it was side effects of a psych med Rexulti
I’m 61 years old, divorced, and have had a horrible year of anxiety and depression. It started in my late teens, but this has been the worst bout I’ve ever experienced. It all started when I went to the ER with symptoms of a stroke. Well in the ER I found out it was side effects of a psych med Rexulti
Toots62
in
Anxiety and Depression Support
11 months ago
Zytiga , prednesone , Options ?
Hello All , I just hit the 2 yr. mark of Eligard , Zytiga and pred. Im Stage 4 N1 , Had SBRT to prostate 2015 , then 7 yrs later PSMA-Pet saw 1 tumor in my pelvic lymph node Had SBRT on that . I have a heart doctor for heart murmur . The question is according to a study , per Tall Allen , Stampede
Hello All , I just hit the 2 yr. mark of Eligard , Zytiga and pred. Im Stage 4 N1 , Had SBRT to prostate 2015 , then 7 yrs later PSMA-Pet saw 1 tumor in my pelvic lymph node Had SBRT on that . I have a heart doctor for heart murmur . The question is according to a study , per Tall Allen , Stampede
reconjj
in
Advanced Prostate Cancer
7 months ago
PSMA-Addition Trial can give access to Pluvicto for DeNovo or mHSPC
The range of access to Pluvicto (Lu177-PSMA-617) radionuclide treatment is expanding. Great news. The PSMA-Fore trial recently showed that it iis very beneficial before docetaxel chemotherapy in mCRPC. Now a worldwide trial is exploring it in metastatic hormone sensitive PC, including de novo metastatic
The range of access to Pluvicto (Lu177-PSMA-617) radionuclide treatment is expanding. Great news. The PSMA-Fore trial recently showed that it iis very beneficial before docetaxel chemotherapy in mCRPC. Now a worldwide trial is exploring it in metastatic hormone sensitive PC, including de novo metastatic
MateoBeach
in
Advanced Prostate Cancer
7 months ago
Erleada/ADT
hey so when are the side effects are supposed to kick in… started ADT in Mid October and Erleada mid January. Thanks in advance.
hey so when are the side effects are supposed to kick in… started ADT in Mid October and Erleada mid January. Thanks in advance.
Leaffan57
in
Advanced Prostate Cancer
7 months ago
perimenopause, hormones & RA flare..
just here for a moan really.. feel like Ivd been hit by a truck last few days, pain everywhere, immense fatigue, then not sleeping.. I’m now 46, and been diagnosed with RA about 16 months ago.. currently on Leflunomide but is not really working, but having done 12 months on MTX which affected my MH
just here for a moan really.. feel like Ivd been hit by a truck last few days, pain everywhere, immense fatigue, then not sleeping.. I’m now 46, and been diagnosed with RA about 16 months ago.. currently on Leflunomide but is not really working, but having done 12 months on MTX which affected my MH
Sapphire1701
in
NRAS
7 months ago
Testosterone too high?
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
JPnSD
in
Advanced Prostate Cancer
7 months ago
Thyroid/post viral fatigue/perimenopause/CFS - help!
Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme
Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme
Dahliasanddaisies
in
Thyroid UK
7 months ago
ADT Holiday?
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
RunnerBiker
in
Advanced Prostate Cancer
7 months ago
Use hormone therapy or not with Proton therapy
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
jbsnv
in
Prostate Cancer Network
7 months ago
Failing ADT
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
jfoesq
in
Advanced Prostate Cancer
7 months ago
Improved thyroid levels since HRT ?
hi has anyone been down this road please? - Taking bio identical hormones via Louise Newson to gp & now from the nhs, & my sub clinical thyroid numbers (& after years of taking levothyroxine doses without conversion improvement or drop in tsh). On taking hrt i went from TSH 5 to 1.1!!! In a very
hi has anyone been down this road please? - Taking bio identical hormones via Louise Newson to gp & now from the nhs, & my sub clinical thyroid numbers (& after years of taking levothyroxine doses without conversion improvement or drop in tsh). On taking hrt i went from TSH 5 to 1.1!!! In a very
Cup-cake7
in
Thyroid UK
7 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
7 months ago
mHSPCa with undetectable PSA - chemo-only?
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Purple-Bike
in
Advanced Prostate Cancer
7 months ago
Menopause/HRT Question.
I recently changed over to the Evorel 50 HRT patches from oral HRT tablets, well what a waste of time, they are absolutely useless. They wont stay on even though I put a sticky plaster and surgical tape on over the top. I used 4 in a week! They are definitely not for me. I had a consult today with a
I recently changed over to the Evorel 50 HRT patches from oral HRT tablets, well what a waste of time, they are absolutely useless. They wont stay on even though I put a sticky plaster and surgical tape on over the top. I used 4 in a week! They are definitely not for me. I had a consult today with a
Sparklingsunshine
in
Thyroid UK
7 months ago
Bleeding on prostab
Hi anyone in a similar situation would be helpful to me right now, I have been on prostab injections for 11 months with everoll hrt patches, in November I started having a flare up of pain and it hasn't settled down, now I am bleeding and in alot of pain. I think the injections have stopped working
Hi anyone in a similar situation would be helpful to me right now, I have been on prostab injections for 11 months with everoll hrt patches, in November I started having a flare up of pain and it hasn't settled down, now I am bleeding and in alot of pain. I think the injections have stopped working
Deedee112345
in
Endometriosis UK
7 months ago
Heavy news today
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
SoulJourney
in
SHARE Metastatic Breast Cancer
7 months ago
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