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High risk Decipher score, what now?
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Surfer33
in
Prostate Cancer Network
1 month ago
ADT effectiveness duration for 80 plus age ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
Tinkudi
in
Advanced Prostate Cancer
1 month ago
Has anyone heard of trial DB-1311-O-1001?
Hi all, I’m wondering whether anybody has heard of the above trial? My Dad had been put forward for this and was advised yesterday he got through onto the trial but the paperwork says “first trial on humans”. They aren’t sure of the side effects and we are all feeling a bit apprehensive… My Dad has
Hi all, I’m wondering whether anybody has heard of the above trial? My Dad had been put forward for this and was advised yesterday he got through onto the trial but the paperwork says “first trial on humans”. They aren’t sure of the side effects and we are all feeling a bit apprehensive… My Dad has
Stefciaa
in
Advanced Prostate Cancer
1 month ago
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HRT and fatigue
I'm quite interested to see if this resonates with anyone else .Was diagnosed with RA 2018, and been on methotrexate and Hydroxychloroquine ever since. Once the dose settled it's controlled the RA swelling. But the fatigue has been awful and constant. I assumed a result of the RA and side effects of
I'm quite interested to see if this resonates with anyone else .Was diagnosed with RA 2018, and been on methotrexate and Hydroxychloroquine ever since. Once the dose settled it's controlled the RA swelling. But the fatigue has been awful and constant. I assumed a result of the RA and side effects of
Spaniellady
in
NRAS
1 month ago
Death from other-than PCa is not a "success"
A tongue-in-cheek stated goal by many here with PCa (including myself for the past 17 years since dianosis) has been to live to die of "anything other" than prostate cancer. Of course that does not bear up to close scrutiny. Many alternative causes of death, including the "big 4" of Cardiovascular Disease
A tongue-in-cheek stated goal by many here with PCa (including myself for the past 17 years since dianosis) has been to live to die of "anything other" than prostate cancer. Of course that does not bear up to close scrutiny. Many alternative causes of death, including the "big 4" of Cardiovascular Disease
MateoBeach
in
Fight Prostate Cancer
1 month ago
MCAS and LEVOTHYROXINE Nightmare
MCAS AND MEDS MCAS strikes again I can't take tablet or liquid levothyroxine as I've had the worst histamine flare even at 25mcg. Been in bed 4 days now crashing headache, body pains, inflammation, dizziness, fatigue all from 1 tiny dose of 25mcg liquid levothyroxine. What can I do ? I desperately
MCAS AND MEDS MCAS strikes again I can't take tablet or liquid levothyroxine as I've had the worst histamine flare even at 25mcg. Been in bed 4 days now crashing headache, body pains, inflammation, dizziness, fatigue all from 1 tiny dose of 25mcg liquid levothyroxine. What can I do ? I desperately
CGH123
in
Thyroid UK
1 month ago
ADT Side Effects and Supplements.
Ok I just read some comments about Lupron and ADT side effects and felt I had to ask the members a question. Yesterday I saw my urologist for my 6 month routine follow up. He looked at my labs and commented on how good they were for a guy on adt for two years. When he got to my kidney function his comment
Ok I just read some comments about Lupron and ADT side effects and felt I had to ask the members a question. Yesterday I saw my urologist for my 6 month routine follow up. He looked at my labs and commented on how good they were for a guy on adt for two years. When he got to my kidney function his comment
Professorgary
in
Advanced Prostate Cancer
1 month ago
Covid
Hi all I have a dilemma facing me . As you know , I have had covid in the last few weeks and still getting over it . My sons girlfriend is having a party with about 90 people ! . My son is going to propose, which we couldn't be more happier. She had no idea . I have not said for sure I will go, they
Hi all I have a dilemma facing me . As you know , I have had covid in the last few weeks and still getting over it . My sons girlfriend is having a party with about 90 people ! . My son is going to propose, which we couldn't be more happier. She had no idea . I have not said for sure I will go, they
Stavrou1
in
CLL Support
6 months ago
sertraline
Hi all, I’m been on Hrt about 18 months now but my anxiety is still extremely high, as it’s relentles. I’ve tried anti depressants flouxetine and Mirtazipine that haven’t really helped. I’m thinking of trying sertraline next, and was wondering if it has helped anyone with menapausal anxiety please.
Hi all, I’m been on Hrt about 18 months now but my anxiety is still extremely high, as it’s relentles. I’ve tried anti depressants flouxetine and Mirtazipine that haven’t really helped. I’m thinking of trying sertraline next, and was wondering if it has helped anyone with menapausal anxiety please.
BjAli
in
Menopause and Perimenopause Support
1 month ago
Zoladex injection
I began the zoladex injection in January of this year, I then had a laparoscopy in March which diagnosed my endometriosis. I had light bleeding for a couple of weeks after and then it completely stopped. Since then, I've had 2 episodes of heavy bleeding lasting 10 is days. No hormonal treatment has helped
I began the zoladex injection in January of this year, I then had a laparoscopy in March which diagnosed my endometriosis. I had light bleeding for a couple of weeks after and then it completely stopped. Since then, I've had 2 episodes of heavy bleeding lasting 10 is days. No hormonal treatment has helped
CornwallHenleygirl
in
Endometriosis UK
1 month ago
Could heart pain be related to peri menopause?
Hi everyone. I’ve just recently stopped taking HRT patches as I felt nearly suicidal for two weeks every month. I have been having pains like a stitch in my heart on and off for weeks. Was wondering if any of you have ever experienced anything like this and if it was related to peri menopause
Hi everyone. I’ve just recently stopped taking HRT patches as I felt nearly suicidal for two weeks every month. I have been having pains like a stitch in my heart on and off for weeks. Was wondering if any of you have ever experienced anything like this and if it was related to peri menopause
Ktez
in
Menopause and Perimenopause Support
1 month ago
stitch pains in heart
I’ve recently been told I have Left Ventricle Non Compaction and I also have the dilated cardiomyopathy gene but no symptoms of that yet. My EF is 52 and consultant not too concerned for now. The strange thing is, almost within a day or two or learning this new information, I’ve been having small
I’ve recently been told I have Left Ventricle Non Compaction and I also have the dilated cardiomyopathy gene but no symptoms of that yet. My EF is 52 and consultant not too concerned for now. The strange thing is, almost within a day or two or learning this new information, I’ve been having small
Ktez
in
British Heart Foundation
1 month ago
Ped5i/Tadalafil etc as a benefit to SE of ADT?
Tadalafil , etc is prescribed for ED, BPH and PAH (pulmonary arterial hypertension). It is pretty much agreed upon that Tadalafil increases insulin sensitivity thus improving lean body mass, particularly around the gut, improves Testosterone/estrogen relationship and is good for heart and vascular health
Tadalafil , etc is prescribed for ED, BPH and PAH (pulmonary arterial hypertension). It is pretty much agreed upon that Tadalafil increases insulin sensitivity thus improving lean body mass, particularly around the gut, improves Testosterone/estrogen relationship and is good for heart and vascular health
pj1121
in
Advanced Prostate Cancer
1 month ago
Forgetfulness on ADT
Are there any ways to help with the side effect of forgetfulness / mild cognitive impairment while on ADT? My Dad (stage 4 PC) started on ADT 2 only months ago, but there have been a few moments of mild cognitive impairment since starting - forgetting shopping list, trying to return stuff at the wrong
Are there any ways to help with the side effect of forgetfulness / mild cognitive impairment while on ADT? My Dad (stage 4 PC) started on ADT 2 only months ago, but there have been a few moments of mild cognitive impairment since starting - forgetting shopping list, trying to return stuff at the wrong
LDC2024
in
Advanced Prostate Cancer
1 month ago
Clonazepam
looking for advice. I’ve been taking 1mg Clonazepam to help sleep but I e read quite a few horror stories about it so it’s making me nervous about taking it. I’ve not slept for six months and my tinnitus has become rea tube to virtually every sound you can think of. I believe it become my nervous system
looking for advice. I’ve been taking 1mg Clonazepam to help sleep but I e read quite a few horror stories about it so it’s making me nervous about taking it. I’ve not slept for six months and my tinnitus has become rea tube to virtually every sound you can think of. I believe it become my nervous system
Lakeshiker
in
Tinnitus UK
1 month ago
Well, three years in…..
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
FulThrotl
in
Advanced Prostate Cancer
1 month ago
Vitamins with ADT?
Hi Tall_Allen, You do not recommend vitamins when on ADT? I am on daily Casodex, has been for several years, and I am taking - Multivitamins, C-, D-, K- vitamins and magnesium daily. Should I stop this? Can you elaborate a bit on why you do not recommend taking vitamins? Thanks in advance!
Hi Tall_Allen, You do not recommend vitamins when on ADT? I am on daily Casodex, has been for several years, and I am taking - Multivitamins, C-, D-, K- vitamins and magnesium daily. Should I stop this? Can you elaborate a bit on why you do not recommend taking vitamins? Thanks in advance!
PCPatient
in
Advanced Prostate Cancer
1 month ago
To those newly diagnosed! There is hope!
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
38yroldmale
in
Cure Parkinson's
9 months ago
Disgusted with Healthcare
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
Vangogh1961
in
Advanced Prostate Cancer
1 month ago
Low Testosterone Linked With Mortality Risk in Aging Men - by Jeff Minerd , Contributing Writer, MedPage Today May 13, 2024
No way to know if this is applicable to those on ADT, but it would seem to be relevant for consideration. The highlighted portion is a useful guide on male sex hormone targets for those testing them. These results might also add support for Morgentaler's [i]"Saturation Model"[/i] for testosterone. Full
No way to know if this is applicable to those on ADT, but it would seem to be relevant for consideration. The highlighted portion is a useful guide on male sex hormone targets for those testing them. These results might also add support for Morgentaler's [i]"Saturation Model"[/i] for testosterone. Full
cujoe
in
Fight Prostate Cancer
1 month ago
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