Search
Search
About
Log in
Join
Experiences with
Coats plus syndrome
Posts
Communities
3,296 public posts
Filter results
Gabapentin
I've suffered with rls for over 30 years which has gradually got worse and worse. I'm now 74. After taking dopamine agonists for years, then tramadol, codeine and trying Kratom nothing was working and my doctor and neurologist would and could not prescribe anything else. In the past I had tried Pregabalin
I've suffered with rls for over 30 years which has gradually got worse and worse. I'm now 74. After taking dopamine agonists for years, then tramadol, codeine and trying Kratom nothing was working and my doctor and neurologist would and could not prescribe anything else. In the past I had tried Pregabalin
Coeso
in
Restless Legs Syndrome
5 months ago
Cold Turkey Update
Some of you are familiar with my story so far so I will make this brief. Three years ago I was taking 6mg Pramepexole. It took me nearly three years to taper the dose down to 1.25. My idiotic Neurologist said he would no longer treat me unless I stoped taking Pramipexole. He writes my prescriptions
Some of you are familiar with my story so far so I will make this brief. Three years ago I was taking 6mg Pramepexole. It took me nearly three years to taper the dose down to 1.25. My idiotic Neurologist said he would no longer treat me unless I stoped taking Pramipexole. He writes my prescriptions
welschrispy
in
Restless Legs Syndrome
5 months ago
Raynauds and Hypermobility
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Boudica78
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
How much more can I take ?
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Huntingleroy
in
Restless Legs Syndrome
5 months ago
Infection back again.
Been out of hospital for a week now after pneumonia and finding out I have a heart problem now. Ejection Fraction. Never heard of it before. Anyway, got home, started new meds for heart and now chest infection back. Feeling rather sorry for myself it's been ongoing about 9 weeks. I do like this forum
Been out of hospital for a week now after pneumonia and finding out I have a heart problem now. Ejection Fraction. Never heard of it before. Anyway, got home, started new meds for heart and now chest infection back. Feeling rather sorry for myself it's been ongoing about 9 weeks. I do like this forum
Cosychair
in
Asthma Community Forum
8 months ago
taking trazodone with Gabapentin
First of all, I am so thankful for this community and the information I have found on here. I am finally getting relief from my RLS by taking gabapentin. My doctor has been way too conservative, starting me at 100mg and only increasing 100mg every week or two weeks. I am finally at a dosage of 1200mg
First of all, I am so thankful for this community and the information I have found on here. I am finally getting relief from my RLS by taking gabapentin. My doctor has been way too conservative, starting me at 100mg and only increasing 100mg every week or two weeks. I am finally at a dosage of 1200mg
Tbone87
in
Restless Legs Syndrome
5 months ago
PLMD and withdrawal
Three weeks ago I stopped (after tapering slowly) gabapentin. I have also been reducing morphine sulphate from 8mg by .01mL every 5 days for the last three weeks. PLMD off the charts. I take 2mg lunesta every 3 nights -- and not more -- in the hopes of not getting addicted. Those nights are better
Three weeks ago I stopped (after tapering slowly) gabapentin. I have also been reducing morphine sulphate from 8mg by .01mL every 5 days for the last three weeks. PLMD off the charts. I take 2mg lunesta every 3 nights -- and not more -- in the hopes of not getting addicted. Those nights are better
wantokporo
in
Restless Legs Syndrome
5 months ago
Pregabalin doseage
Hi, so i have now been on 150mg/day and i'm still experiencing very acute pain in my legs (quads mostly and calves) I have to get up and take ibruprofen plus co-codamol. As I am a PT and train a lot, it can be hard to separate what might be RLS vs training soreness. I first went on Ropinirole after
Hi, so i have now been on 150mg/day and i'm still experiencing very acute pain in my legs (quads mostly and calves) I have to get up and take ibruprofen plus co-codamol. As I am a PT and train a lot, it can be hard to separate what might be RLS vs training soreness. I first went on Ropinirole after
bluffpt
in
Restless Legs Syndrome
5 months ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
6 months ago
Dental work and alendronate
I need a tooth extraction after a tooth has completely collapsed and became infected. The dentist has tried root canal treatment with the hope of adding a crown but it is still infected in the gum and he says it must come out due to a sepsis risk. He sent me to my consultant for permission as I have
I need a tooth extraction after a tooth has completely collapsed and became infected. The dentist has tried root canal treatment with the hope of adding a crown but it is still infected in the gum and he says it must come out due to a sepsis risk. He sent me to my consultant for permission as I have
Pawscat11
in
PMRGCAuk
8 months ago
How to switch from pramipexole to pregabalin?
How to switch from pramipexole to pregabalin?I have been taking 0.7 mg of pramipexole 2 hours before bedtime for a long time without it helping particularly well. Now so plagued by augmentation that I actually can't sleep at night. Is plagued by both pain and restlessness in the legs and feet. During
How to switch from pramipexole to pregabalin?I have been taking 0.7 mg of pramipexole 2 hours before bedtime for a long time without it helping particularly well. Now so plagued by augmentation that I actually can't sleep at night. Is plagued by both pain and restlessness in the legs and feet. During
Gibbel
in
Restless Legs Syndrome
6 months ago
When should I take gabapentin and buprenorphine ?
I am planning on starting to withdraw from pramipexole. I have been prescribed gabapentin on a daily dose of 3 x 600mg daily to start taking as I withdraw off pramipexole. Should I start with 600mg for a few days, then add another 600mg dose say a week later, and then an additional 600mg a week after
I am planning on starting to withdraw from pramipexole. I have been prescribed gabapentin on a daily dose of 3 x 600mg daily to start taking as I withdraw off pramipexole. Should I start with 600mg for a few days, then add another 600mg dose say a week later, and then an additional 600mg a week after
Kejimkujik
in
Restless Legs Syndrome
6 months ago
Cystic hygroma in baby
Hi,I don't know why I am writing this but probably going through the worst week of my life. I am pregnant 12+5 weeks, my second pregnancy, however first pregnancy in UK so I went to visit my doctor in Turkey who delivered my first born and followed all my pregnancy. I am in utter shock now, because he
Hi,I don't know why I am writing this but probably going through the worst week of my life. I am pregnant 12+5 weeks, my second pregnancy, however first pregnancy in UK so I went to visit my doctor in Turkey who delivered my first born and followed all my pregnancy. I am in utter shock now, because he
Eldaadatoz
in
Pregnancy and Parenting Support
8 months ago
Update on first visit with Neurologist
Well, finally landed on my feet with this neurologist. Her name is Dr.Phillips, she is in Dartmouth, Nova Scotia, Canada for anyone out here seeking a neurologist. For those not familiar with the health system structure in Canada, one can ONLY get in to see a Neurologist with a referral form a first
Well, finally landed on my feet with this neurologist. Her name is Dr.Phillips, she is in Dartmouth, Nova Scotia, Canada for anyone out here seeking a neurologist. For those not familiar with the health system structure in Canada, one can ONLY get in to see a Neurologist with a referral form a first
Kejimkujik
in
Restless Legs Syndrome
6 months ago
Has the Pulsed Field Ablation technique increased success rate?
Although Flecainide 50mg bid has kept AF episodes to a much lower frequency, 6 in ‘23, I’d like to hear from a few more of you who have undergone this new procedure. What are the results; is the blanking period shorter; anyone had it done at Royal Bournemouth Hospital? I hear reports that it’s much
Although Flecainide 50mg bid has kept AF episodes to a much lower frequency, 6 in ‘23, I’d like to hear from a few more of you who have undergone this new procedure. What are the results; is the blanking period shorter; anyone had it done at Royal Bournemouth Hospital? I hear reports that it’s much
Racquet
in
Atrial Fibrillation Support
6 months ago
ropinirole for travel?
Until last July I had been taking 1mg of ropinirole 3 x daily. Since then I have successfully weaned myself off 2 mg during the day and only take 1 mg at night. Three months ago I began seeing a specialist and she has me on 75 mg 3x a day. My question: I am taking a trip to Europe in May and am worried
Until last July I had been taking 1mg of ropinirole 3 x daily. Since then I have successfully weaned myself off 2 mg during the day and only take 1 mg at night. Three months ago I began seeing a specialist and she has me on 75 mg 3x a day. My question: I am taking a trip to Europe in May and am worried
MountainWanderer
in
Restless Legs Syndrome
6 months ago
Completely lost
I’m 72 & in general good health (I think) except for Osteopenia and that I inherited Restless Legs from my mum. I started on .25mg Ropinirole 7 years ago which was like magic but it’s slowly increased to 3x.25mg per night. Perhaps not a big dose but I learned via this site it’s best to switch from Ropinirole
I’m 72 & in general good health (I think) except for Osteopenia and that I inherited Restless Legs from my mum. I started on .25mg Ropinirole 7 years ago which was like magic but it’s slowly increased to 3x.25mg per night. Perhaps not a big dose but I learned via this site it’s best to switch from Ropinirole
BoojaBooja
in
Restless Legs Syndrome
6 months ago
Pregabalin
Could someone please provide me with a link for the Mayo Clinic for up to date information on RLS. I have found one Mayo Clinic document that uses Pramipexole and Ropinirole as treatment for RLS. I thought these meds were not used anymore? Thank you.
Could someone please provide me with a link for the Mayo Clinic for up to date information on RLS. I have found one Mayo Clinic document that uses Pramipexole and Ropinirole as treatment for RLS. I thought these meds were not used anymore? Thank you.
Keith1231
in
Restless Legs Syndrome
6 months ago
Magnesium and Lavender
I take Magnesium capsules at night to sleep and since starting, I rarely feel RLS. If I'm particularly exhausted, I do feel it, in which case, I use Feather and Down Sleep butter. It stops it in seconds. It is lavender-based. There is a version that also has a dose of Magnesium in it. I'd surmise that
I take Magnesium capsules at night to sleep and since starting, I rarely feel RLS. If I'm particularly exhausted, I do feel it, in which case, I use Feather and Down Sleep butter. It stops it in seconds. It is lavender-based. There is a version that also has a dose of Magnesium in it. I'd surmise that
27yrsncounting
in
Restless Legs Syndrome
6 months ago
Advise on taking Mirtazapine
been to visit Gp today with very low mood , I did ask for Bupropion, they would not prescribe and have given me Mirtazapine, over the last few days I have managed to reduce my pramipexole by half and have been taking , codeine phosphorus along with paracetamol, the RLS has not gotten any worse , but
been to visit Gp today with very low mood , I did ask for Bupropion, they would not prescribe and have given me Mirtazapine, over the last few days I have managed to reduce my pramipexole by half and have been taking , codeine phosphorus along with paracetamol, the RLS has not gotten any worse , but
Hidden
in
Restless Legs Syndrome
6 months ago
1
...
8
9
10
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1451 results
Fertility Network UK
360 results
PMRGCAuk
135 results
View top 10 communities
Sort by
Most Relevant
Newest