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New to the group, diagnosed in May '16
I'm glad to have found this group. I began feeling ill in early April '16 and was diagnosed with PC in late May '16 with a PSA of 3275, Gleason 9, at age 51. Did six rounds of Docetaxel plus Lupron and Casodex until PSA rose from 0.06 to 40ish in March '17. Now on Zytiga and had a PSA of 0.94 in September
I'm glad to have found this group. I began feeling ill in early April '16 and was diagnosed with PC in late May '16 with a PSA of 3275, Gleason 9, at age 51. Did six rounds of Docetaxel plus Lupron and Casodex until PSA rose from 0.06 to 40ish in March '17. Now on Zytiga and had a PSA of 0.94 in September
Joeinwis
in
Advanced Prostate Cancer
7 years ago
Xtandi experiences
First diagnosised with Prostate Cancer at age 49 in Oct 2002. Had radical prostatectomy in Nov 2002; followed by 37 treatments of beam radiation and 5 quarterly injections of Lupron and daily casodex pill beginning in Feb 2004. Went into remission until about 3 years ago; began casodex last year started
First diagnosised with Prostate Cancer at age 49 in Oct 2002. Had radical prostatectomy in Nov 2002; followed by 37 treatments of beam radiation and 5 quarterly injections of Lupron and daily casodex pill beginning in Feb 2004. Went into remission until about 3 years ago; began casodex last year started
AnderB
in
Advanced Prostate Cancer
7 years ago
Blood clots and blood in urine (no radiation)
My husband had a TURP 8/4/17 (in history below) but has not had any other surgery. Had second round of taxotere last week...next one in two weeks. He's had mild blood in urine since two days after first chemo. A few small clots. Onc says to keep an eye on it. He's away for business this week and just
My husband had a TURP 8/4/17 (in history below) but has not had any other surgery. Had second round of taxotere last week...next one in two weeks. He's had mild blood in urine since two days after first chemo. A few small clots. Onc says to keep an eye on it. He's away for business this week and just
pakb
in
Advanced Prostate Cancer
7 years ago
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No end to Docetaxel?
After a stage 4 diagnosis at end of July, MO immediately started me on lupron, short term casodex for the flair (now done), zometa for bones, and docetaxel for chemo. My initial PSA was 11.5 and mets had already spread extensively in spine. Now after chemo round four today, PSA is already down to 0.3
After a stage 4 diagnosis at end of July, MO immediately started me on lupron, short term casodex for the flair (now done), zometa for bones, and docetaxel for chemo. My initial PSA was 11.5 and mets had already spread extensively in spine. Now after chemo round four today, PSA is already down to 0.3
BigM62
in
Advanced Prostate Cancer
7 years ago
Hadi1954
I am 63 years old. in Feb 2014, I was diagnosed with Prostate Cancer, Gleason Score 4+3 and preneural invasion. PSA was 4.18 . I had Radical Prostectomy in June 2014, . Pathological report showed all leanph nodes and seminal vesicles were intact. 50 days after surgery PSA detected 0.01 then it went
I am 63 years old. in Feb 2014, I was diagnosed with Prostate Cancer, Gleason Score 4+3 and preneural invasion. PSA was 4.18 . I had Radical Prostectomy in June 2014, . Pathological report showed all leanph nodes and seminal vesicles were intact. 50 days after surgery PSA detected 0.01 then it went
Hadi1954
in
Advanced Prostate Cancer
7 years ago
Liver Enzymes up
My profile info is below... In our visit for chemo yesterday his bloodwork came back with elevated ALT/AST/BUN-Creatinine ratio- you can see numbers below. Thankfully PSA is going in the right direction. The oncologist wants us to go off of all supplements to get a baseline. We both take some herbal
My profile info is below... In our visit for chemo yesterday his bloodwork came back with elevated ALT/AST/BUN-Creatinine ratio- you can see numbers below. Thankfully PSA is going in the right direction. The oncologist wants us to go off of all supplements to get a baseline. We both take some herbal
pakb
in
Advanced Prostate Cancer
7 years ago
Are there any options s being tried bypassing the ADT resistant first route?
I am currently 50. Diagnosed at 42. Prostate removed, chemo, radiation, Casodex about 4 years ago (also made me miserable) Now on Lupron. I am miserable, the hot flashes are borderline painful, gaining weight even though I ride my bike hard in the upper cardio zone 1,000 miles a month. Since my PSA
I am currently 50. Diagnosed at 42. Prostate removed, chemo, radiation, Casodex about 4 years ago (also made me miserable) Now on Lupron. I am miserable, the hot flashes are borderline painful, gaining weight even though I ride my bike hard in the upper cardio zone 1,000 miles a month. Since my PSA
FSMBeerMan
in
Advanced Prostate Cancer
7 years ago
Have tried many different drugs....
Greetings: I am now getting treated with PROVENGE, as I am Stage 4 with mets to lymph nodes and one bone (hip). I have posted my whole history since initial diagnose in 2008, on the www.cyberknife.com website (in the "patient forum" section, then look for "prostate" posts, then look for my posts under
Greetings: I am now getting treated with PROVENGE, as I am Stage 4 with mets to lymph nodes and one bone (hip). I have posted my whole history since initial diagnose in 2008, on the www.cyberknife.com website (in the "patient forum" section, then look for "prostate" posts, then look for my posts under
RonPavluvcik
in
Advanced Prostate Cancer
7 years ago
mets to lungs now stage four
good evening all! I am at the Mayo Clinic Rochester, mn. I have had a week of tests, scans and other stuff. My pet scan showed lung involement. Had 4-5 polyps removed - benign! But todays pleuroscopy showed cancer in and on lungs as well as on my diaphragm. Stage four. I learn hopefully this Friday course
good evening all! I am at the Mayo Clinic Rochester, mn. I have had a week of tests, scans and other stuff. My pet scan showed lung involement. Had 4-5 polyps removed - benign! But todays pleuroscopy showed cancer in and on lungs as well as on my diaphragm. Stage four. I learn hopefully this Friday course
bjorner3
in
Advanced Prostate Cancer
7 years ago
Introducing myself ..
I am grateful to all the people who posted their stories and something positive that I could hang on to. You supported me a lot by sharing those stories! My dad was diagnosed with metastatic prostate cancer in May 2017 and currently undergoing ADT (both daily Casodex and Zoladex injection every three
I am grateful to all the people who posted their stories and something positive that I could hang on to. You supported me a lot by sharing those stories! My dad was diagnosed with metastatic prostate cancer in May 2017 and currently undergoing ADT (both daily Casodex and Zoladex injection every three
NG17
in
Advanced Prostate Cancer
7 years ago
Raising PSA now 0.20 - Next Move?
Hello All: My name is Larry and I follow this site from time to time. A little background on me; 65 years old. Dx 12/21/15 psa 5.3 had 12 core biopsy, with all 12 cores cancereous. Gleason (6 cores 7) (4 cores 8) (2 cores 9). Bone, CT and PET scans all negative. Placed on Casodex 50 mg 1/1/16
Hello All: My name is Larry and I follow this site from time to time. A little background on me; 65 years old. Dx 12/21/15 psa 5.3 had 12 core biopsy, with all 12 cores cancereous. Gleason (6 cores 7) (4 cores 8) (2 cores 9). Bone, CT and PET scans all negative. Placed on Casodex 50 mg 1/1/16
Lawrencee
in
Advanced Prostate Cancer
7 years ago
Robertleeb
I was diagnosed with prostate cancer in May 2017. 3 weeks ago I received the Lupron shot along with Casodex pill, 50mg a day. middle of Sept I will have radiation treatment for 8 weeks. I also smoke cannabis to reduce the hot flashes and not having a appetite ,It seems to be working for both,no more
I was diagnosed with prostate cancer in May 2017. 3 weeks ago I received the Lupron shot along with Casodex pill, 50mg a day. middle of Sept I will have radiation treatment for 8 weeks. I also smoke cannabis to reduce the hot flashes and not having a appetite ,It seems to be working for both,no more
Robertleeb
in
Advanced Prostate Cancer
7 years ago
Little Help from my Friends
Hello everyone, To fill you in I am 59 and had robotics surgery to remove prostate. It was in my rectum but on second biopsy they got clean margins. I just got back lymph results and my Dr said it did enter a small segment of one. I'm taking casodex for last 3 months and will start radiation in another
Hello everyone, To fill you in I am 59 and had robotics surgery to remove prostate. It was in my rectum but on second biopsy they got clean margins. I just got back lymph results and my Dr said it did enter a small segment of one. I'm taking casodex for last 3 months and will start radiation in another
spm58
in
Advanced Prostate Cancer
7 years ago
Failed all gold standard treatments and both Chemos? Whats next?
Hello everyone and sorry we are all here. I wish everyone the best. I have a question in case someone is in the same situation as myself. Started with Gleason 4+5 and PSA 108 4years ago. Have failed all gold standard treatments, Lupron, casodex, Zytiga, Xtandi, Taxotere, cabazitaxel, etc. was about
Hello everyone and sorry we are all here. I wish everyone the best. I have a question in case someone is in the same situation as myself. Started with Gleason 4+5 and PSA 108 4years ago. Have failed all gold standard treatments, Lupron, casodex, Zytiga, Xtandi, Taxotere, cabazitaxel, etc. was about
sinjonn
in
Advanced Prostate Cancer
7 years ago
Diagnosis + 18 years; update since Xofigo
I finished Xofigo last October. My experience with it was good. Minimal side effects, no complications. Pain relief from multiple bone mets started after about 6 weeks on Xofigo. PSA was .66 on completion of Xofigo treatments. Unfortunately in January I fractured my T7 & T8 vertebrae in a fall. Fortunately
I finished Xofigo last October. My experience with it was good. Minimal side effects, no complications. Pain relief from multiple bone mets started after about 6 weeks on Xofigo. PSA was .66 on completion of Xofigo treatments. Unfortunately in January I fractured my T7 & T8 vertebrae in a fall. Fortunately
chascri
in
Advanced Prostate Cancer
7 years ago
New to Lupron
Hi, just got my advanced prostate cancer with bone(pelvic) and some lymph involvement a few months ago(I'm 60 y.o.)...and started Lupron a little over two months ago. It's NOT a party. I'm such an "up" person...but I now realize that a lot of what makes a person who they are IS controlled by hormones
Hi, just got my advanced prostate cancer with bone(pelvic) and some lymph involvement a few months ago(I'm 60 y.o.)...and started Lupron a little over two months ago. It's NOT a party. I'm such an "up" person...but I now realize that a lot of what makes a person who they are IS controlled by hormones
greatjohn
in
Advanced Prostate Cancer
7 years ago
SENATE RULING
my husband is being treated by the VA due to his Agent Orange status. does anyone know what this Senate ruling that is supposed to allow us to request drugs still in trial as a last ditch attempt at survival means for us? my husband has flunked casodex, zytiga, and enzolutamide, docetaxel and another
my husband is being treated by the VA due to his Agent Orange status. does anyone know what this Senate ruling that is supposed to allow us to request drugs still in trial as a last ditch attempt at survival means for us? my husband has flunked casodex, zytiga, and enzolutamide, docetaxel and another
wifeofvet
in
Advanced Prostate Cancer
7 years ago
My father diagnosed with Stage IV prostate cancer mets to lymph nodes supraclavicular
Hi everyone, just chiming in on all the discussions. My father 78 yrs old diagnosed with PC in 2014, radical prostatectomy (robotics) 10 of 12 nodes positive. Radiation, Lupron treatment for 9 months PSA undetectable till November 2016. PET scan at Mayo in 2016 negative (choline) repeated when PSA >3.4
Hi everyone, just chiming in on all the discussions. My father 78 yrs old diagnosed with PC in 2014, radical prostatectomy (robotics) 10 of 12 nodes positive. Radiation, Lupron treatment for 9 months PSA undetectable till November 2016. PET scan at Mayo in 2016 negative (choline) repeated when PSA >3.4
Daddysdaughter
in
Advanced Prostate Cancer
7 years ago
Zytiga while hormone sensitive
We met with Dr. Schulz in L.A. He's given us the green light to start Zytiga while still hormone sensitive. So my husband is taking casodex, Lupron, zytiga and about to finish his last cycle of Docetaxel. 🤞
We met with Dr. Schulz in L.A. He's given us the green light to start Zytiga while still hormone sensitive. So my husband is taking casodex, Lupron, zytiga and about to finish his last cycle of Docetaxel. 🤞
Blair77
in
Advanced Prostate Cancer
7 years ago
Introduction
Hello! After lurkng for a while I figured an introduction would be in order. I was diagnosed with metastatic prostate cancer last year on my 58th birthday (April 2016). I had been experiencing severe back pain for several years which I thought was normal for my profession (I own a brewery). My psa had
Hello! After lurkng for a while I figured an introduction would be in order. I was diagnosed with metastatic prostate cancer last year on my 58th birthday (April 2016). I had been experiencing severe back pain for several years which I thought was normal for my profession (I own a brewery). My psa had
blindsided
in
Advanced Prostate Cancer
7 years ago
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