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My Journey so far...
My diagnosis goes back to June 1st, 2009. I was 42. Biopsy showed all 12 sectors with 4=3=7 Gleason. July 23 had prostate removed. The pathology came back with Stage IV (pT4 N1 MX) PSA did drop to .2 after surgery though. Because of my younger age the treatment plan was Chemo 1st, then radiation
My diagnosis goes back to June 1st, 2009. I was 42. Biopsy showed all 12 sectors with 4=3=7 Gleason. July 23 had prostate removed. The pathology came back with Stage IV (pT4 N1 MX) PSA did drop to .2 after surgery though. Because of my younger age the treatment plan was Chemo 1st, then radiation
FSMBeerMan
in
Advanced Prostate Cancer
7 years ago
Zytiga in the hormone sensitive setting
Today our oncologist mentioned that he had been trying to get his hormone sensitive patients to have Zytiga in place of Casodex. He said that insurance was denying everyone. He said he was certain Zytiga would work better then Casodex. So I'm thinking of buying it in Canada? Thoughts/ ideas?
Today our oncologist mentioned that he had been trying to get his hormone sensitive patients to have Zytiga in place of Casodex. He said that insurance was denying everyone. He said he was certain Zytiga would work better then Casodex. So I'm thinking of buying it in Canada? Thoughts/ ideas?
Blair77
in
Advanced Prostate Cancer
7 years ago
Possible castrate resistance already?
My newly diagnosed father just has his first follow up appointment. He started Lupron and casodex in May. His bone pain has persisted. The ro seemed to think there might be explanations for this but the mo was less hopeful. He said my dad's symptoms should be alleviated and that if the Lupron isn't working
My newly diagnosed father just has his first follow up appointment. He started Lupron and casodex in May. His bone pain has persisted. The ro seemed to think there might be explanations for this but the mo was less hopeful. He said my dad's symptoms should be alleviated and that if the Lupron isn't working
Stumpgirl
in
Advanced Prostate Cancer
7 years ago
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Help - Zytiga (Abiraterone) with Lupron & anything else you would recommend.
Hi All, I am 56 years old, have been on board with you since April. I was dx in February 2017 with pca, GS 8, PSA 8.8, spreading to left seminal vesicle and two bone mets, one in right pelvis and one in right femur. I have been on Lupron with Casodex (50 mgs daily) and feel a million times better
Hi All, I am 56 years old, have been on board with you since April. I was dx in February 2017 with pca, GS 8, PSA 8.8, spreading to left seminal vesicle and two bone mets, one in right pelvis and one in right femur. I have been on Lupron with Casodex (50 mgs daily) and feel a million times better
Stickingaround1
in
Advanced Prostate Cancer
7 years ago
Adding Casodex
Saw an oncologist the other day and he is adding casodex in addition to the Eligard I've been on since 12/16. I am having a new bone scan and CT scan at the end of this month.
Saw an oncologist the other day and he is adding casodex in addition to the Eligard I've been on since 12/16. I am having a new bone scan and CT scan at the end of this month.
Towneford
in
Advanced Prostate Cancer
7 years ago
Taking it one day at a time!
Hello, I'm 54yo, and was diagnosed with stage 3/Gleason 9/Psa 36, prostate cancer in 2013. I ended up having a prostatectomy that same year. After surgery my Psa went down to 0.164 and slowly made a climb back up to 3.2 by the end of 2014. After doing some extensive reading, in 2015 I became experimental
Hello, I'm 54yo, and was diagnosed with stage 3/Gleason 9/Psa 36, prostate cancer in 2013. I ended up having a prostatectomy that same year. After surgery my Psa went down to 0.164 and slowly made a climb back up to 3.2 by the end of 2014. After doing some extensive reading, in 2015 I became experimental
kepster
in
Advanced Prostate Cancer
7 years ago
Favorable Casodex withdrawal
Just thought I would share this, might help someone. I started out with a psa at 850. I immediately went on Casodex, month later started Lupron injections. It took my psa down to 400. A month later I started 6 rounds of Docetaxel. The chemo helped take my psa down to 0.06. It went up to 0.1 and stayed
Just thought I would share this, might help someone. I started out with a psa at 850. I immediately went on Casodex, month later started Lupron injections. It took my psa down to 400. A month later I started 6 rounds of Docetaxel. The chemo helped take my psa down to 0.06. It went up to 0.1 and stayed
Hidden
in
Advanced Prostate Cancer
7 years ago
Introduction
I am new to the group and had a question about Lupron. I am 61 I am stage 4 with Bone metastasis PSA 134 Quality of life poor What to do next? I really don't know. I am on my first script of casodex and they are wanting me to go on Lupron. However, I am highly resistant to go on it due to all of the
I am new to the group and had a question about Lupron. I am 61 I am stage 4 with Bone metastasis PSA 134 Quality of life poor What to do next? I really don't know. I am on my first script of casodex and they are wanting me to go on Lupron. However, I am highly resistant to go on it due to all of the
Oscar-
in
Advanced Prostate Cancer
7 years ago
My Journey
My name is Ken, I am currently 70 years old. I was diagnosed back in 2012 with Stage IV PCa. It was found completely by accident. I had a MRI investigating a spinal stenosis issue, and my spine doc noticed some issues with my groin area. She sent me to a urologist. Subsequently, a blood test showed my
My name is Ken, I am currently 70 years old. I was diagnosed back in 2012 with Stage IV PCa. It was found completely by accident. I had a MRI investigating a spinal stenosis issue, and my spine doc noticed some issues with my groin area. She sent me to a urologist. Subsequently, a blood test showed my
kjscobel
in
Advanced Prostate Cancer
7 years ago
Xtandi is costly in the Philippines
Hi im a newbie here, my dad is diagnosed with PCa stage 4, with bone mets, castration resistant since March of 2015, initially with PSA 500 and Gleason 9. He already had Casodex initially and Lupron injections and was eventually given Zytiga for more than a 1 year, which worked well with no marked side
Hi im a newbie here, my dad is diagnosed with PCa stage 4, with bone mets, castration resistant since March of 2015, initially with PSA 500 and Gleason 9. He already had Casodex initially and Lupron injections and was eventually given Zytiga for more than a 1 year, which worked well with no marked side
HannaMD
in
Advanced Prostate Cancer
7 years ago
Testosterone level rising toward end of Lupron cycle
Hi everyone, I am a 56 year old male with bone mets in hip and femur. (Gleason - 8, 11 of 12 cores cancerous). I went on Casodex two weeks prior to my 3 month Lupron injection almost three months ago. After just over a month, my PSA level dropped from 8.8 to 1.0, and my testosterone level dropped
Hi everyone, I am a 56 year old male with bone mets in hip and femur. (Gleason - 8, 11 of 12 cores cancerous). I went on Casodex two weeks prior to my 3 month Lupron injection almost three months ago. After just over a month, my PSA level dropped from 8.8 to 1.0, and my testosterone level dropped
Stickingaround1
in
Advanced Prostate Cancer
7 years ago
Choice of treatment: lupron with casodex or degarelix?
Choline PET scan shows PC in one spot of the prostate bed. PSA at 2.47. I am about to begin a course of hormone therapy for 2-3 months prior to 8 weeks of radiation to the prostate bed and continued hormone therapy. The recommended agents for the hormone therapy by the three oncology radiologists
Choline PET scan shows PC in one spot of the prostate bed. PSA at 2.47. I am about to begin a course of hormone therapy for 2-3 months prior to 8 weeks of radiation to the prostate bed and continued hormone therapy. The recommended agents for the hormone therapy by the three oncology radiologists
Jackleh
in
Advanced Prostate Cancer
7 years ago
Ranolazine + Xtandi
New study below [1]. Anyone here suffer from angina? Ranolazine might really improve PCa therapy. I have mentioned a few times that PCa cells do not switch to glucose for energy, but continue to favor fatty acids, particularly palmitic acid. "We have found that deficient lipid oxidation via carnitine
New study below [1]. Anyone here suffer from angina? Ranolazine might really improve PCa therapy. I have mentioned a few times that PCa cells do not switch to glucose for energy, but continue to favor fatty acids, particularly palmitic acid. "We have found that deficient lipid oxidation via carnitine
pjoshea13
in
Advanced Prostate Cancer
7 years ago
Progress Stalled , what to do ?
Hi all, DX in oct of 2016, Gleason 9 or 8 in all 8 samples from detailed 3D MRI guided biopsy. Grade of T3b l1 m0 , considered inoperable due to size & seminal vesicle involvement as well as Hydronephrosis in right Kidney. PSA at DX was 7.3, started 50mg Casodex immediately & then Eligard shots. Dec
Hi all, DX in oct of 2016, Gleason 9 or 8 in all 8 samples from detailed 3D MRI guided biopsy. Grade of T3b l1 m0 , considered inoperable due to size & seminal vesicle involvement as well as Hydronephrosis in right Kidney. PSA at DX was 7.3, started 50mg Casodex immediately & then Eligard shots. Dec
Billash
in
Advanced Prostate Cancer
7 years ago
How to determine a true and pristine psa doubling time and use it to manage therapy.
I am casodex 150 mg and avodart .5 mg and has been bouncing around between 3 and 5 for about a yr and a nurse told me about 5yr. doubling time. But now its been going up around .6 every month for the past 3 months. Psa is now 5,83. Had 3d conformal beam r.t. so i I still have a prostate and a high testosterone
I am casodex 150 mg and avodart .5 mg and has been bouncing around between 3 and 5 for about a yr and a nurse told me about 5yr. doubling time. But now its been going up around .6 every month for the past 3 months. Psa is now 5,83. Had 3d conformal beam r.t. so i I still have a prostate and a high testosterone
rococo
in
Advanced Prostate Cancer
7 years ago
Where I'm At Now and Thanks
Age 46, initial diagnosis in February 2016, PSA of 286, Gleason 9 (5+4) Stage 4 metastasized to lymph nodes. Bulky disease showing in pelvic and abdominal lymph nodes in CT scans and bone scan clean. Immediately placed on Lupron and Casodex. Did 6 rounds of chemotherapy which consisted of docetaxel while
Age 46, initial diagnosis in February 2016, PSA of 286, Gleason 9 (5+4) Stage 4 metastasized to lymph nodes. Bulky disease showing in pelvic and abdominal lymph nodes in CT scans and bone scan clean. Immediately placed on Lupron and Casodex. Did 6 rounds of chemotherapy which consisted of docetaxel while
Dayatatime
in
Advanced Prostate Cancer
7 years ago
Living to get my life back...
Hi, I was diagnosed with Stage 4 Prostate Cancer right before my 55 birthday. I was diagnosed in Sep. 2015. My PSA was 206 and my Gleason score was 9. 11 of 12 Biopsy cores were positive. The PC was also listed as metastatic in my hips. I have switched my original Oncologist in Tulsa OK to another
Hi, I was diagnosed with Stage 4 Prostate Cancer right before my 55 birthday. I was diagnosed in Sep. 2015. My PSA was 206 and my Gleason score was 9. 11 of 12 Biopsy cores were positive. The PC was also listed as metastatic in my hips. I have switched my original Oncologist in Tulsa OK to another
CoachPTK
in
Advanced Prostate Cancer
7 years ago
New to the group and new to Advanced Prostate Cancer
Hello everyone, I just found out in late February that I had advanced prostate cancer so I'm still adjusting to the "new reality". I went in February for bone pain in my lower back, hips, legs, shoulders and ribs. The pain was just getting worse and worse. After a CT, bone scan and bone biopsy, they
Hello everyone, I just found out in late February that I had advanced prostate cancer so I'm still adjusting to the "new reality". I went in February for bone pain in my lower back, hips, legs, shoulders and ribs. The pain was just getting worse and worse. After a CT, bone scan and bone biopsy, they
Hidden
in
Advanced Prostate Cancer
7 years ago
PSA Decline
Original PSA 1044 at diagnosis 1/25 Casodex started 2/3 Lupron 2/17 PSA 103 on 3/28 PSA 34 on 4/19 Is there a calculation I can use to figure out the rate of decline? The first PSA was drawn after 53 days on treatment and then the 2nd PSA was drawn an additional 22 days later. I feel like the number
Original PSA 1044 at diagnosis 1/25 Casodex started 2/3 Lupron 2/17 PSA 103 on 3/28 PSA 34 on 4/19 Is there a calculation I can use to figure out the rate of decline? The first PSA was drawn after 53 days on treatment and then the 2nd PSA was drawn an additional 22 days later. I feel like the number
Blair77
in
Advanced Prostate Cancer
7 years ago
Saw a newly diagnosed man's PSA go from 400+ to .61.
I recently met a newly-diagnosed man in a nearby Prostate Cancer Support Group. Already metastatic to many bones, and with pelvic area bone pains. He took Casodex to prevent a "flare" and started Lupron. Also had one Zometa infusion. Then, per the CHAARTED trial results (favoring earlier rather than
I recently met a newly-diagnosed man in a nearby Prostate Cancer Support Group. Already metastatic to many bones, and with pelvic area bone pains. He took Casodex to prevent a "flare" and started Lupron. Also had one Zometa infusion. Then, per the CHAARTED trial results (favoring earlier rather than
ctarleton
in
Advanced Prostate Cancer
7 years ago
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