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CLL and Numb Chin Syndrome
Hi everyone. I am 40 year old male in the UK and was diagnosed with CLL in Feb 2019. I have been on w&w for the entire time. I have had no real symptoms with the exception of swolen glands and fatigue. Also my Spleen is swollen. Over the last few days I'e noticed that the righ side of chin feels numb
Hi everyone. I am 40 year old male in the UK and was diagnosed with CLL in Feb 2019. I have been on w&w for the entire time. I have had no real symptoms with the exception of swolen glands and fatigue. Also my Spleen is swollen. Over the last few days I'e noticed that the righ side of chin feels numb
Devans81
in
CLL Support
4 years ago
Progesterone withdrawal?
I started bleeding last Sunday at 16dp5dt after a BFP (had hCG tests and a confirmed loss on wed 19th) it seemed to stop yesterday but today I’ve had another heavy bleed. Will this be a withdrawal bleed from stopping the progesterone do you think? My last dose was on Tuesday night. I’m just trying to
I started bleeding last Sunday at 16dp5dt after a BFP (had hCG tests and a confirmed loss on wed 19th) it seemed to stop yesterday but today I’ve had another heavy bleed. Will this be a withdrawal bleed from stopping the progesterone do you think? My last dose was on Tuesday night. I’m just trying to
Alwaysbelieving
in
Fertility Network UK
3 years ago
CLL Specialist
Hi. I am new to this group, and newly diagnosed. My CLL was a blaring red flag since 2017 and went undiagnosed until now (another story)......... But, I have read a few posts on this forum that recommended seeing a Hematologist that specializes in CLL, and I can't Thank you enough! While awaiting the
Hi. I am new to this group, and newly diagnosed. My CLL was a blaring red flag since 2017 and went undiagnosed until now (another story)......... But, I have read a few posts on this forum that recommended seeing a Hematologist that specializes in CLL, and I can't Thank you enough! While awaiting the
Tracibfine
in
CLL Support
4 years ago
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Low sodium with Afib and heart failure
How can i improve my salt levels ?I do not think i should be loading my food with salt. Any ideas or knowledge please would be helpful.
How can i improve my salt levels ?I do not think i should be loading my food with salt. Any ideas or knowledge please would be helpful.
10gingercats
in
AF Association
4 years ago
FET - 4+4 ... nervous AF coming ?
I am now 4+4 after testing positive on 4+1 (HcG of 105). I have not had any symptoms other than tiredness in the tww. Today I start to feel my tummy could be giving me AF symptoms, and I am getting so nervous. Am i imagining AF and maybe rather pregnancy symptoms ? I can’t do new bloodtest as not near
I am now 4+4 after testing positive on 4+1 (HcG of 105). I have not had any symptoms other than tiredness in the tww. Today I start to feel my tummy could be giving me AF symptoms, and I am getting so nervous. Am i imagining AF and maybe rather pregnancy symptoms ? I can’t do new bloodtest as not near
Jenny246
in
Fertility Network UK
3 years ago
Confirmed - the bad news we were expecting
I started bleeding 16dp5dt and had been having quite bad period-like cramps but as you do, we clung on to anything we could think of (or find on google that worked in our favour), desperate for an explanation and for everything to be fine. I had my second blood test today which confirms my hcg is decreasing
I started bleeding 16dp5dt and had been having quite bad period-like cramps but as you do, we clung on to anything we could think of (or find on google that worked in our favour), desperate for an explanation and for everything to be fine. I had my second blood test today which confirms my hcg is decreasing
Alwaysbelieving
in
Fertility Network UK
3 years ago
13Q Deletion and ATM Mutation
Hi All, While I wait for my appointment to see a specialist at Dana Farber (June 1) and have only been seen by a local to me Hematologist ( Diagnosed in January 21) I understand that the 13Q is the better of the the Marks but that the Loss of ATM ( 11? ) is not good. I read that having the ATM mutation
Hi All, While I wait for my appointment to see a specialist at Dana Farber (June 1) and have only been seen by a local to me Hematologist ( Diagnosed in January 21) I understand that the 13Q is the better of the the Marks but that the Loss of ATM ( 11? ) is not good. I read that having the ATM mutation
controlsct
in
CLL Support
4 years ago
Vaccines and CLL/SLL plus
Can people with CLL and an active SLL but also with other chronic conditions like Mast Cell activation syndrome,CFS and Hashimoto take the Pfizer vaccine, along with multiple allergies to foods and medicines, could take the vaccine ? What about if the Lymphatic system is congested with little tumors?
Can people with CLL and an active SLL but also with other chronic conditions like Mast Cell activation syndrome,CFS and Hashimoto take the Pfizer vaccine, along with multiple allergies to foods and medicines, could take the vaccine ? What about if the Lymphatic system is congested with little tumors?
CarmenLuisa
in
CLL Support
4 years ago
Watch & Wait versus the risk of Richter’s
I am newly diagnosed. No “B symptoms”. I have probably had this for a few years already given that my lymphocytes have been sufficiently high to “qualify”. So time to play Tevye (forgive the brief intrusion by Michael Buble): On the one hand, so long as I am feelin’ good, I can continue to W&W. On the
I am newly diagnosed. No “B symptoms”. I have probably had this for a few years already given that my lymphocytes have been sufficiently high to “qualify”. So time to play Tevye (forgive the brief intrusion by Michael Buble): On the one hand, so long as I am feelin’ good, I can continue to W&W. On the
Luap001
in
CLL Support
4 years ago
Reassuring Advice?
Hi ladies - need some reassurance. I finally had by BFP after a frozen embryo transfer. I had blood hcg tests 9 days post transfer (300+) and 11 days post transfer (800+) of which my clinic said were good numbers. On Thursday I have my first scan but I don’t think they are checking hcg again. Is this
Hi ladies - need some reassurance. I finally had by BFP after a frozen embryo transfer. I had blood hcg tests 9 days post transfer (300+) and 11 days post transfer (800+) of which my clinic said were good numbers. On Thursday I have my first scan but I don’t think they are checking hcg again. Is this
MelissaS6
in
Fertility Network UK
3 years ago
Pregnancy Unknown Location- your stories
Hi All Last Wednesday I found out I was pregnancy via a blood test, by Friday my numbers had doubled and I was told by my old fertility consultant to go to the early pregnancy unit (epu) as soon as possible, as I’ve had brown watery bleeding from when my period was due to arrive. Today, I am 5 weeks
Hi All Last Wednesday I found out I was pregnancy via a blood test, by Friday my numbers had doubled and I was told by my old fertility consultant to go to the early pregnancy unit (epu) as soon as possible, as I’ve had brown watery bleeding from when my period was due to arrive. Today, I am 5 weeks
London1978
in
Fertility Network UK
3 years ago
Blood work suddenly normal
Hello everyone, I was just diagnosed this Feb as stage 0 and on watch and wait. When I had my first follow up appointment with my Hematologist last week, the blood work wasn’t ready. We have a program at the hospital where I can see the blood work as soon as it’s ready and I was really shocked. My Abs
Hello everyone, I was just diagnosed this Feb as stage 0 and on watch and wait. When I had my first follow up appointment with my Hematologist last week, the blood work wasn’t ready. We have a program at the hospital where I can see the blood work as soon as it’s ready and I was really shocked. My Abs
Can2021
in
CLL Support
4 years ago
Bhcg levels
I am 5+2 weeks pregnant. I have had some pain and a history of 2 ectopic pregnancies so I went to my local hospital for a scan and bhcg levels. My hcg levels have gone from 10,593 to 20,396. I’m worried that my levels are too high? Can anyone help! Thank you xx
I am 5+2 weeks pregnant. I have had some pain and a history of 2 ectopic pregnancies so I went to my local hospital for a scan and bhcg levels. My hcg levels have gone from 10,593 to 20,396. I’m worried that my levels are too high? Can anyone help! Thank you xx
muststayhopeful
in
Fertility Network UK
3 years ago
Adenonyosis and IVF
Hey, Just wondered if anyone else has gone through IVF whilst having Adenomyosis. I was only diagnosed with it a year ago by a private consultant via ultrasound however none of my most recent ultrasounds have picked up on anything via the NHS. I am currently 15dp3dt and have started bleeding and cramping
Hey, Just wondered if anyone else has gone through IVF whilst having Adenomyosis. I was only diagnosed with it a year ago by a private consultant via ultrasound however none of my most recent ultrasounds have picked up on anything via the NHS. I am currently 15dp3dt and have started bleeding and cramping
IVFNewbie21
in
Fertility Network UK
3 years ago
Positive stories pls: Brown spotting, bloods confirm BFP - worrying and nearly 43 (in shock!)
Hello All I am in shock and I need some advice or any positive stories please, as I am nearly 43 and just found out I am pregnant (@ 5 weeks). I have tried OE IVF four times and last month I decided to throw caution to the wind and do at home insemination with a donor (April 20th) - I know this is not
Hello All I am in shock and I need some advice or any positive stories please, as I am nearly 43 and just found out I am pregnant (@ 5 weeks). I have tried OE IVF four times and last month I decided to throw caution to the wind and do at home insemination with a donor (April 20th) - I know this is not
London1978
in
Fertility Network UK
3 years ago
*sensitive* The first trimester is worse agony than the 2WW for me 😩
I went if for my approximate 7 week viability scan on Monday...and the FS said that it was good news to tell me! Embabie was implanted in the right place and we have a good heartbeat! He said he put me between 6-7 weeks pregnant. Obviously this was overwhelming as we stared at that little flickering
I went if for my approximate 7 week viability scan on Monday...and the FS said that it was good news to tell me! Embabie was implanted in the right place and we have a good heartbeat! He said he put me between 6-7 weeks pregnant. Obviously this was overwhelming as we stared at that little flickering
Belangalo
in
Fertility Network UK
3 years ago
9DPFET ... 5 day blastocyst, HCG at 7 on today’s test. my heart died a little bit.
I have done everything I could this time, ERA, immune suppressant, claxane, metformin, asprin, p4 oil shots. And yet, the HCG says 7. Doctor told me not to be too hopeful.
I have done everything I could this time, ERA, immune suppressant, claxane, metformin, asprin, p4 oil shots. And yet, the HCG says 7. Doctor told me not to be too hopeful.
islwyn
in
Fertility Network UK
3 years ago
low rising HCG
Hi, I had HCG test done on mon and it was 117, 2 days later it’s only gone up to 162. Anyone got any experience of this? Is it ectopic or miscarriage? Or any chance it will work out? I think i’m about 4 and a half weeks pregnant. Thanks
Hi, I had HCG test done on mon and it was 117, 2 days later it’s only gone up to 162. Anyone got any experience of this? Is it ectopic or miscarriage? Or any chance it will work out? I think i’m about 4 and a half weeks pregnant. Thanks
mandp82
in
Fertility Network UK
3 years ago
CLLAN/ALAN´s joint webinar on COVID-19 vaccination and immune challenges for leukemia - 11 Feb 2021
For those of you that are interested in the immune response in CLL. This is a joint webinar held on 11/2/2021 by CLL Advocates Network and the Acute Leukaemia Advocates Network so not exclusively CLL. Lots of good information here which is CORRECT AS OF DATE OF WEBINAR 11 Feb 2021. It appears from
For those of you that are interested in the immune response in CLL. This is a joint webinar held on 11/2/2021 by CLL Advocates Network and the Acute Leukaemia Advocates Network so not exclusively CLL. Lots of good information here which is CORRECT AS OF DATE OF WEBINAR 11 Feb 2021. It appears from
Jm954
Administrator
in
CLL Support
4 years ago
hcg levels
Hi, I had IUI 18 days ago and had blood test today that says i’m pregnant and HCG level is 117. I’m worried that is too low. I’m retesting on Wed but wondering if anyone has experience of things working out when the number was that low on day 18. thanks!
Hi, I had IUI 18 days ago and had blood test today that says i’m pregnant and HCG level is 117. I’m worried that is too low. I’m retesting on Wed but wondering if anyone has experience of things working out when the number was that low on day 18. thanks!
mandp82
in
Fertility Network UK
3 years ago
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