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Jevtana (Cabazitaxel) before Xofigo (Radium 223)
Hi I was speaking to an Oncology nurse last week who suggested that after Docetaxel, Oncolgists were inclined to prescribe Jevtana before Xofigo. This apparently is because it is less effective the other way round. I have to say my instinct was to try radiotherapy before going back to chemo. The Docetaxel
Hi I was speaking to an Oncology nurse last week who suggested that after Docetaxel, Oncolgists were inclined to prescribe Jevtana before Xofigo. This apparently is because it is less effective the other way round. I have to say my instinct was to try radiotherapy before going back to chemo. The Docetaxel
Finlay66
in
Advanced Prostate Cancer
1 year ago
Halfway through chemo, new scans, seeking advice
Have now completed 4 of 6 Docetaxel/Carboplatin treatments and went to Mayo in Rochester for PSMA Pet scan (Ga-68, see results below). My PSA remains undetectable (<0.05), which, given my historically low PSA, is probably not the Most reliable indicator but I assume means the Lupron and Nubeqa might
Have now completed 4 of 6 Docetaxel/Carboplatin treatments and went to Mayo in Rochester for PSMA Pet scan (Ga-68, see results below). My PSA remains undetectable (<0.05), which, given my historically low PSA, is probably not the Most reliable indicator but I assume means the Lupron and Nubeqa might
Skifanatic
in
Advanced Prostate Cancer
1 year ago
Getting Xeloda delivered Wednesday
Yesterday I got a phone call from a specialty pharmacist who will be sending my first round of Xeloda out on Monday. She had questions for me and told me I will be on a 3 week schedule, 2 weeks taking Xeloda twice a day and then 1 week off. They will phone me to see how I am doing and then send me
Yesterday I got a phone call from a specialty pharmacist who will be sending my first round of Xeloda out on Monday. She had questions for me and told me I will be on a 3 week schedule, 2 weeks taking Xeloda twice a day and then 1 week off. They will phone me to see how I am doing and then send me
PJBinMI
in
SHARE Metastatic Breast Cancer
1 year ago
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QoL and personal decision-making
I came across this article, which was published in a general interest magazine, written by a noted researcher in Medical Ethics who is also a long time practicing oncologist. The title given to the article was the publication's and the author made pains in an interview to say it is somewhat misleading
I came across this article, which was published in a general interest magazine, written by a noted researcher in Medical Ethics who is also a long time practicing oncologist. The title given to the article was the publication's and the author made pains in an interview to say it is somewhat misleading
maggiedrum
in
Advanced Prostate Cancer
1 year ago
can I have micro blading whilst on Avastin and Olaparib?
dear ladies, I have stage 4 OC and having completed 7 cycles chemo in November and debulking surgery in September am now on Avastin and Olaparib since December. Hair is starting to grow back and eyebrows still quite scrappy! I know that when recursnce happens I’ll be back on chemo so feel this is my
dear ladies, I have stage 4 OC and having completed 7 cycles chemo in November and debulking surgery in September am now on Avastin and Olaparib since December. Hair is starting to grow back and eyebrows still quite scrappy! I know that when recursnce happens I’ll be back on chemo so feel this is my
Belindajw
in
My Ovacome
1 year ago
Taking Niraparib but getting aching thighs in muscles is this normal
I had ovarian cancer in 2002 I had surgery and Chemo but it returned after 19 years in 2021 in the Peritoneum high grade 3c. After 6 sessions of Chemo I am now taking Niraparib for 6 months without any side effects until about 3 weeks ago when I started with pains in my thigh Muscles and find they get
I had ovarian cancer in 2002 I had surgery and Chemo but it returned after 19 years in 2021 in the Peritoneum high grade 3c. After 6 sessions of Chemo I am now taking Niraparib for 6 months without any side effects until about 3 weeks ago when I started with pains in my thigh Muscles and find they get
babs1120
in
My Ovacome
1 year ago
3rd surgery
Hi everyone, I am 3c low grade and happy to say after debulking and 1 round of chemo last year, I was Ned. I have had a small nodule underneath one of my laparoscopy scars so going back in on Monday for it to be taken away. I know this is a much smaller op than the other two and I shouldn’t be worrying
Hi everyone, I am 3c low grade and happy to say after debulking and 1 round of chemo last year, I was Ned. I have had a small nodule underneath one of my laparoscopy scars so going back in on Monday for it to be taken away. I know this is a much smaller op than the other two and I shouldn’t be worrying
Mrs_Thomas
in
My Ovacome
1 year ago
worried
I’m feeling a little bit lost at the moment, I was diagnosed with HGSOC last June.. I’m brca positive, after my debulking and chemo I’ve been given the all clear.. and no further treatment apart get 3 monthly blood tests… I’m so frightened of what’s to come as o was informed I do not require Parps?..
I’m feeling a little bit lost at the moment, I was diagnosed with HGSOC last June.. I’m brca positive, after my debulking and chemo I’ve been given the all clear.. and no further treatment apart get 3 monthly blood tests… I’m so frightened of what’s to come as o was informed I do not require Parps?..
Des1953
in
My Ovacome
1 year ago
Erratic PSA on jevannta
Started (cab) in September of 2022, on 3 month elgard, next one is February along with xgeva and my 9th infusion. This is my PSA history. 8/19/2022 - 49.8 9/13/2022 - 30.2 - first infusion - had the eligard and xgeva shots 10/5/2022 - 27.3 10/26/2022 - 26.0 11/16/2022 - 35.0 - freaked out, this was done
Started (cab) in September of 2022, on 3 month elgard, next one is February along with xgeva and my 9th infusion. This is my PSA history. 8/19/2022 - 49.8 9/13/2022 - 30.2 - first infusion - had the eligard and xgeva shots 10/5/2022 - 27.3 10/26/2022 - 26.0 11/16/2022 - 35.0 - freaked out, this was done
Muffin2019
in
Advanced Prostate Cancer
1 year ago
genetic testing and circulating cell free dna
Mastectomy,
chemotherapy
, radiotherapy plus 15 yrs of oestrogen suppressing medication. 2022 big shock, mets in bones, liver & lungs. On ibrance 100g & letrazole. First scan showed a good reduction everywhere. Obviously things have moved on enormously since my initial diagnosis in 2001.
Mastectomy,
chemotherapy
, radiotherapy plus 15 yrs of oestrogen suppressing medication. 2022 big shock, mets in bones, liver & lungs. On ibrance 100g & letrazole. First scan showed a good reduction everywhere. Obviously things have moved on enormously since my initial diagnosis in 2001.
Sweep16
in
SHARE Metastatic Breast Cancer
2 years ago
Price of chemo meds pills 💊
WTF! $1900 copay for 21 day round. Tired of calling around for grants, etc. I am very angry and disgusted!
WTF! $1900 copay for 21 day round. Tired of calling around for grants, etc. I am very angry and disgusted!
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
1 year ago
Apalutamide (Erleada) Only Lasted 6-7 Months! What Next?
After being on Apalutamide, Lupron, & Xgeva, since April of 2022, & PSA drop from 7.3 (extensive bone mets.) & a drop to 0.1 (for 2 mons.), PSA rose to 0.6 over 3 mon. w/o lab work because doing so well. So, don't know exactly when it started to rise but the rate of increase is geometric! MO wanted
After being on Apalutamide, Lupron, & Xgeva, since April of 2022, & PSA drop from 7.3 (extensive bone mets.) & a drop to 0.1 (for 2 mons.), PSA rose to 0.6 over 3 mon. w/o lab work because doing so well. So, don't know exactly when it started to rise but the rate of increase is geometric! MO wanted
john4803
in
Advanced Prostate Cancer
1 year ago
Just checking to be sure 6 month break after 5 week radiation treatment is the next best step?
I hope everyone here is finding success and positive moments in this journey as we make our way through this new year ♥️ Hoping to ask for an opinion here just to do my part in making sure my dad gets the best shot at success with this. I will be updating my BIO again this week for anyone with a similar
I hope everyone here is finding success and positive moments in this journey as we make our way through this new year ♥️ Hoping to ask for an opinion here just to do my part in making sure my dad gets the best shot at success with this. I will be updating my BIO again this week for anyone with a similar
FormulaRob
in
Advanced Prostate Cancer
1 year ago
3 Years After Stage IV Diagnosis
Then he did
chemotherapy
(Docetaxel) along with an immunotherapy drug as part of a Phase 2 clinical trial. He did infusions of the immunotherapy drug (Opdivo) for 8 months and then was pulled out of the trial because of adverse side effects.
Then he did
chemotherapy
(Docetaxel) along with an immunotherapy drug as part of a Phase 2 clinical trial. He did infusions of the immunotherapy drug (Opdivo) for 8 months and then was pulled out of the trial because of adverse side effects.
Avanat
in
Advanced Prostate Cancer
1 year ago
update after pet scan
I had my pet scan 3 days ago after an increase in ca125 but with clear scans-I have to mention that I am brca1 positive and I had been in olaparib for 27 months….my pet showed a reoccurrence-so what’s next?my doctor says chemo-I am afraid-disappointed and not in the mood to do anything-I am tired of
I had my pet scan 3 days ago after an increase in ca125 but with clear scans-I have to mention that I am brca1 positive and I had been in olaparib for 27 months….my pet showed a reoccurrence-so what’s next?my doctor says chemo-I am afraid-disappointed and not in the mood to do anything-I am tired of
Roulasim
in
My Ovacome
1 year ago
How long off Olaporib before starting Carbo/Caelyx for a recurrence?
I have just got off the phone to my oncologist who, after having put me on 8 weekly scans for a recurrence for a few months now, has said its time to come off my Avastin/Olaporib combination of maintenance and onto Carbo/Caelyx. Not great to hear, but I've known its coming sometime. Its slowly coming
I have just got off the phone to my oncologist who, after having put me on 8 weekly scans for a recurrence for a few months now, has said its time to come off my Avastin/Olaporib combination of maintenance and onto Carbo/Caelyx. Not great to hear, but I've known its coming sometime. Its slowly coming
Loorunner
in
My Ovacome
1 year ago
4-th line of chemo
Hello brave ladies. I would appreciate your experience concerning chemo protocol: Gemzar+ Oxaliplatine. Unefortunately and despite the inhibitor PARP (NIraparib) taken from 7 weeks now, my marker goes up rapidly and I will be facing the 4-th round of chemo called "gemox". At the same time I've developped
Hello brave ladies. I would appreciate your experience concerning chemo protocol: Gemzar+ Oxaliplatine. Unefortunately and despite the inhibitor PARP (NIraparib) taken from 7 weeks now, my marker goes up rapidly and I will be facing the 4-th round of chemo called "gemox". At the same time I've developped
Reksio77
in
My Ovacome
1 year ago
Worried daughter needing some positive stories
Hi everyone, I’m new here. My mum has recently been diagnosed with ovarian cancer that has spread to her omentum. It’s high grade serous. I’m going out of my mind with worry, this has come as such a shock, so far she has had 4 chemo sessions and her CA-125 marker was down to 31 after 3 sessions. I was
Hi everyone, I’m new here. My mum has recently been diagnosed with ovarian cancer that has spread to her omentum. It’s high grade serous. I’m going out of my mind with worry, this has come as such a shock, so far she has had 4 chemo sessions and her CA-125 marker was down to 31 after 3 sessions. I was
Shorty18
in
My Ovacome
1 year ago
Doing home hospice now
I am sure that Enhertu may work well for many other women. I am not so sure that it was the medication itself, but rather the way it was administered and whether or not they considered all the medication I was already on. I went ballistic on my onco. Because I never had chemo before. I had this ONE
I am sure that Enhertu may work well for many other women. I am not so sure that it was the medication itself, but rather the way it was administered and whether or not they considered all the medication I was already on. I went ballistic on my onco. Because I never had chemo before. I had this ONE
kearnan
in
SHARE Metastatic Breast Cancer
1 year ago
Desperate! where can I go for private help for ILMD?
I have recently been diagnosed with stage 4 cancer with 12 months to live. I have severe ILMD which has become much worse since starting chemo. I only had my first one last week. Since then my legs will start jumping at any time of the day and night and drive me mad. Chemo makes me very tired so I need
I have recently been diagnosed with stage 4 cancer with 12 months to live. I have severe ILMD which has become much worse since starting chemo. I only had my first one last week. Since then my legs will start jumping at any time of the day and night and drive me mad. Chemo makes me very tired so I need
Ruffabug
in
Restless Legs Syndrome
1 year ago
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