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Progression
My mum got diagnosed with PSP just last October,but that took 18 months .She is now in a residential home ,but I fell so guilty I couldn't keep her at home 😞 The PSP has progressed so quickly Her slight is problematic,falling alot,her speech has become very bad over the last month . Thankfully her
My mum got diagnosed with PSP just last October,but that took 18 months .She is now in a residential home ,but I fell so guilty I couldn't keep her at home 😞 The PSP has progressed so quickly Her slight is problematic,falling alot,her speech has become very bad over the last month . Thankfully her
Blitzford72
in
PSP Association
2 months ago
Detecting undiagnosed AF
I'm a stroke lived-experience person since 2016 and, I've had atrial fibrillation / flutter that started years before that. Intially paroxymal, later becoming permanent. I was the subject of a paper (available on the Internet) on pulmonary toxicity (aka cryptogenic organising pnuemonia) secondary to
I'm a stroke lived-experience person since 2016 and, I've had atrial fibrillation / flutter that started years before that. Intially paroxymal, later becoming permanent. I was the subject of a paper (available on the Internet) on pulmonary toxicity (aka cryptogenic organising pnuemonia) secondary to
john-boy-92
in
Atrial Fibrillation Support
2 months ago
HRT Raises Rheumatoid Arthritis Risk …
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
Batty1
in
Thyroid UK
4 months ago
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Mr Geoff Lloyd
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Churchman123
in
Advanced Prostate Cancer
7 months ago
Ablation or Not?
I'm currently waiting for an ablation and have been for over 6 months. When I first developed AF I was quite badly affected by it. I would: Get out of breath just walking a short distance Keep falling asleep Found climbing stairs and carrying 'heavy' things more difficult than they should Occasionally
I'm currently waiting for an ablation and have been for over 6 months. When I first developed AF I was quite badly affected by it. I would: Get out of breath just walking a short distance Keep falling asleep Found climbing stairs and carrying 'heavy' things more difficult than they should Occasionally
Peakoverload
in
Atrial Fibrillation Support
2 months ago
thyroid results
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Horsemadlindy21
in
Thyroid UK
4 months ago
MTHFR and Lupus
I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block and was implanted with a Pacemaker/defibulator. I have always felt that if the MTHFR was diagnosed before all the other autoimmune diseases, I
I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block and was implanted with a Pacemaker/defibulator. I have always felt that if the MTHFR was diagnosed before all the other autoimmune diseases, I
DogHospiceMom
in
LUPUS UK
2 months ago
Arrhythmia Checklist
Do you or a family member experience unexplained chest pain, a rapid or irregular pulse, breathlessness, or light-headedness, these are all symptoms that should not be ignored and could be the early warning signs of an underlying heart rhythm disorder/ For further guidance, download the Arrhythmia
Do you or a family member experience unexplained chest pain, a rapid or irregular pulse, breathlessness, or light-headedness, these are all symptoms that should not be ignored and could be the early warning signs of an underlying heart rhythm disorder/ For further guidance, download the Arrhythmia
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
2 months ago
What were your first symptoms?
Over the last couple of months I've been getting pain in my fingers and toes, it happens several times a day but only lasts a minute or two at a time at the moment. I have autoimmune thyroid disease, and suspected autoimmune cause for my early menopause, and I'm acutely aware that autoimmune diseases
Over the last couple of months I've been getting pain in my fingers and toes, it happens several times a day but only lasts a minute or two at a time at the moment. I have autoimmune thyroid disease, and suspected autoimmune cause for my early menopause, and I'm acutely aware that autoimmune diseases
WitchingHour2point0
in
NRAS
4 months ago
Nebivolol 2.5mg
I started Nebivolol for my AFIB about one month ago for my heart rate! I like the drug but seem to have a lot of gas on my stomach! Has anyone else had this problem?
I started Nebivolol for my AFIB about one month ago for my heart rate! I like the drug but seem to have a lot of gas on my stomach! Has anyone else had this problem?
BaileyC57
in
Atrial Fibrillation Support
2 months ago
PSA Risen in Last 6 months
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Hidden
in
Advanced Prostate Cancer
7 months ago
PSA Rising
Asking for a friend of my father this time. He had surgery in december 2022 and everything was removed including glands. Gleason 4+5. His PSA has risen från 0.1 to 0.14 in 12 months. His doctor says to do nothing until it hits 0.2. But shouldn’t he do more? Maybe he doesn’t have advanced cancer yet.
Asking for a friend of my father this time. He had surgery in december 2022 and everything was removed including glands. Gleason 4+5. His PSA has risen från 0.1 to 0.14 in 12 months. His doctor says to do nothing until it hits 0.2. But shouldn’t he do more? Maybe he doesn’t have advanced cancer yet.
TheTopBanana
in
Advanced Prostate Cancer
7 months ago
Lipid results
Since my last post regarding elevated finger prick sample for cholesterol, I am now in receipt of my formal blood test results for lipid profile which are borderline and need to speak to Doctor. I do have a GP follow up next week to discuss these but wondered if anyone on here can interpret them and
Since my last post regarding elevated finger prick sample for cholesterol, I am now in receipt of my formal blood test results for lipid profile which are borderline and need to speak to Doctor. I do have a GP follow up next week to discuss these but wondered if anyone on here can interpret them and
Maynan17
in
Thyroid UK
2 months ago
Predicting AF 30 mins before it happens
Researchers at the University of Luxembourg (LCSB) have developed an AI which is able to predict an episode of afib 30 minutes ahead of time with around 80% accuracy. https://www.sciencedaily.com/releases/2024/04/240422120707.htm [i]Prof. Jorge Goncalves, head of the Systems Control group at
Researchers at the University of Luxembourg (LCSB) have developed an AI which is able to predict an episode of afib 30 minutes ahead of time with around 80% accuracy. https://www.sciencedaily.com/releases/2024/04/240422120707.htm [i]Prof. Jorge Goncalves, head of the Systems Control group at
Barny12
in
Atrial Fibrillation Support
2 months ago
After Transplant
I had my transplant 9 weeks ago I can’t believe the difference it has had. I sleep all night, no boiling up in the night, my breathing is better I use breathe so loud I think it was all the fluids inside me I was struggling to breathe I feel like I’m 20 years old again and I’m 50 . My mind is so much
I had my transplant 9 weeks ago I can’t believe the difference it has had. I sleep all night, no boiling up in the night, my breathing is better I use breathe so loud I think it was all the fluids inside me I was struggling to breathe I feel like I’m 20 years old again and I’m 50 . My mind is so much
lonmallin50
in
British Liver Trust
7 months ago
drug induced lupus
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Denny39
in
LUPUS UK
4 months ago
accidental overdose of thyroxine
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
Tjqui00
in
Thyroid UK
7 months ago
Advice
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
elainenorman
in
Lung Conditions Community Forum
4 months ago
Skin ulcers
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
lupus_paradise
in
LUPUS UK
4 months ago
1 Year out Radiation treatment
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
rickyfish56
in
Advanced Prostate Cancer
7 months ago
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