Search
Search
About
Log in
Join
Experiences with
Calquence
Posts
Communities
262 public posts
Filter results
CLL / SLL & Autoimmune Disease ???
But couldn't these things have something to do with the fact I have malignant small b cells and take a powerful drug (
Calquence
) to control them? Confused. 😔
But couldn't these things have something to do with the fact I have malignant small b cells and take a powerful drug (
Calquence
) to control them? Confused. 😔
Amberesque
in
CLL Support
9 months ago
What a start with V+O
General FYI--I was started on
calquence
last Oct and my numbers tanked in just 4 weeks . Anc went to .14. Treatment was stopped. WBC also went from 23 to 3.6? I pray I am able to take the V+O treatment!🙏🙏 Happy Father's Day!
General FYI--I was started on
calquence
last Oct and my numbers tanked in just 4 weeks . Anc went to .14. Treatment was stopped. WBC also went from 23 to 3.6? I pray I am able to take the V+O treatment!🙏🙏 Happy Father's Day!
Rico49
in
CLL Support
1 year ago
Calquence / acalabrutinib and Brukinsa / zanubrutinib Adverse Event Comparison for Chronic Lymphocytic Leukaemia / CLL from clinical trials
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
AussieNeil
Partner
in
CLL Support
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
tumor necrosis
Saw some info about Paxlovid and
Calquence
, and needing to stop
Calquence
if Paxlovid needed. Also if people found immunity worse on
Calquence
? I have to travel in 3 weeks. Worried about Covid and getting a plan in place, and if I’ll still feel crappy. Thanks for any help!
Saw some info about Paxlovid and
Calquence
, and needing to stop
Calquence
if Paxlovid needed. Also if people found immunity worse on
Calquence
? I have to travel in 3 weeks. Worried about Covid and getting a plan in place, and if I’ll still feel crappy. Thanks for any help!
Islandjewel23
in
CLL Support
1 year ago
Possibly Failing Calquence - what’s next?
The ones in abdomen were causing the most problems, so
calquence
was started.
Calquence
lowered wbc to normal levels and shrunk nodes initially.
The ones in abdomen were causing the most problems, so
calquence
was started.
Calquence
lowered wbc to normal levels and shrunk nodes initially.
ReneeSusan
in
CLL Support
1 year ago
Debilitating Stomach Pain
After much discussion with my doctor, he changed the drug to
Calquence
, but the same issues have continued.
After much discussion with my doctor, he changed the drug to
Calquence
, but the same issues have continued.
MorganHardy
in
CLL Support
5 months ago
Been on Calquence for 4 months and have itching and hives
Been on
Calquence
for 4 months and have itching and hives. My counts are almost normal except for my platelets. I still have side effects of my ears ringing. I just broke out with rosacea on my face for the second time. I was wondering if this could be caused by a fungus.
Been on
Calquence
for 4 months and have itching and hives. My counts are almost normal except for my platelets. I still have side effects of my ears ringing. I just broke out with rosacea on my face for the second time. I was wondering if this could be caused by a fungus.
helenolton
in
CLL Support
1 year ago
sll/slightly elevated bilirubin
Any idea if this could be related to the disease or the
Calquence
medication?
Any idea if this could be related to the disease or the
Calquence
medication?
Tofa80
in
CLL Support
1 year ago
When is it time?
Dr in NC started me on
Calquence
. When I got back to Florida I went to Moffitt in Nov and Dr Pinilla basically said I was started too soon. Dr Pinilla stopped my treatment immediately as my ANC had crashed to 0.14 in only one month.
Dr in NC started me on
Calquence
. When I got back to Florida I went to Moffitt in Nov and Dr Pinilla basically said I was started too soon. Dr Pinilla stopped my treatment immediately as my ANC had crashed to 0.14 in only one month.
Rico49
in
CLL Support
1 year ago
Still having side effects from Calquence
I am getting numbness in my hands and feet, as well as pain, I am on one pill a day, but it is not helping. I will be going to Ohio State on April, 19 th and probably be starting Zantibrutinib. Also, I still have the hives. I have been having good blood counts except for my RDW and Platelets.
I am getting numbness in my hands and feet, as well as pain, I am on one pill a day, but it is not helping. I will be going to Ohio State on April, 19 th and probably be starting Zantibrutinib. Also, I still have the hives. I have been having good blood counts except for my RDW and Platelets.
helenolton
in
CLL Support
1 year ago
A simple life with Acalabrutinib?
Does anyone know what percentage of folk being treated with acalabrutinib (
Calquence
) live nice undisturbed lives without side effects which require emergency hospitalisation during their treatment period?
Does anyone know what percentage of folk being treated with acalabrutinib (
Calquence
) live nice undisturbed lives without side effects which require emergency hospitalisation during their treatment period?
Fogey
in
CLL Support
6 months ago
Advice Needed for Hand Tremors
She was diagnosed with CLL 7 years ago and has been on
Calquence
for the last 4 years. She has other health issues, but I am learning that rheumatoid arthritis (RA) is a potential consequence of having CLL. RA is an autoimmune disease; perhaps her recent hand trembling is unrelated to CLL.
She was diagnosed with CLL 7 years ago and has been on
Calquence
for the last 4 years. She has other health issues, but I am learning that rheumatoid arthritis (RA) is a potential consequence of having CLL. RA is an autoimmune disease; perhaps her recent hand trembling is unrelated to CLL.
BaseballGardener
in
CLL Support
1 year ago
Update on failing Calquence - Pirtobrutinib is Next
I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions are for those in clinical trials for pirtobrutinib. Any feedback is much appreciated as this will be my 5th treatment regimen and I’m a little
I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions are for those in clinical trials for pirtobrutinib. Any feedback is much appreciated as this will be my 5th treatment regimen and I’m a little
ReneeSusan
in
CLL America Support
1 year ago
Is anyone taking Zetia and Calquence? Have your cholesterol counts (LDL) gone down?
Calquence
and Zetia
Calquence
and Zetia
Newny
in
CLL Support
1 year ago
One and Done?? Next up!
My Dr said it won't be
calquence
. I think the big difference is if you do the venetoclax + you may be in treatment for a year but then you may be in remission for 2-3 years before having to start another plan? That vs being on Zanabrutitnib indefinitely.
My Dr said it won't be
calquence
. I think the big difference is if you do the venetoclax + you may be in treatment for a year but then you may be in remission for 2-3 years before having to start another plan? That vs being on Zanabrutitnib indefinitely.
Rico49
in
CLL Support
1 year ago
Has anyone had Increased Anxiety while taking Calquence?
I experienced extreme anxiety and depression while taking
Calquence
. I would notice a decrease in my general anxiety when I wasn't taking the drug during the 2 year period before achieving a remission from CLL. I was off the drug for several minor operations: colonoscopy, dental surgery.
I experienced extreme anxiety and depression while taking
Calquence
. I would notice a decrease in my general anxiety when I wasn't taking the drug during the 2 year period before achieving a remission from CLL. I was off the drug for several minor operations: colonoscopy, dental surgery.
dontruminate
in
CLL Support
1 year ago
Restarting Calquence
Has anyone had to get off a BTK inhibitor/
Calquence
and did you restart with some side effects or is this just me?
Has anyone had to get off a BTK inhibitor/
Calquence
and did you restart with some side effects or is this just me?
schmooth97
in
CLL Support
1 year ago
Zona vaccine for CLL patients on Alcalabrutinib (CALQUENCE)
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
unairdefamille
in
CLL Support
11 months ago
Calquence now Capsule
Why did they change from Capsule to tablet? Has anyone noticed a difference in side effects or potency?
Why did they change from Capsule to tablet? Has anyone noticed a difference in side effects or potency?
Shepherd777
in
CLL Support
2 years ago
safe decongestant
does anyone out there know of a decongestant that can safely be taken while on
Calquence
?? My head is incredibly full of congestion from what seems to be the flu…. Thank you so very much…
does anyone out there know of a decongestant that can safely be taken while on
Calquence
?? My head is incredibly full of congestion from what seems to be the flu…. Thank you so very much…
Faith-5
in
CLL Support
2 years ago
1
...
3
4
5
...
14
Next page
10
Filter results
Clear filters
Posted in
All communities
CLL Support
248 results
CLL America Support
6 results
Non Hodgkin's Lymphoma Friends
6 results
View top 10 communities
Sort by
Most Relevant
Newest