Been on Calquence for 4 months and have itchin... - CLL Support

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Been on Calquence for 4 months and have itching and hives

helenolton profile image
8 Replies

Been on Calquence for 4 months and have itching and hives. My counts are almost normal except for my platelets. I still have side effects of my ears ringing. I just broke out with rosacea on my face for the second time. I was wondering if this could be caused by a fungus. I think Calquence can cause a fungus. Has anyone been having this problem. If you did have a fungus, what test did they give you, can this be checked by a blood test. My dermatologist gave me steroid cream , but I read if it is a fungus, steroids can be bad for you.

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helenolton
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8 Replies
Curling123 profile image
Curling123

I have the same problem, red face here and there, blotchy and itching a lot, especially during the night. Dermatologist gave me cortisone, but hasn’t helped much. Never thought of a fungus. Have a rash upper arms and back, but not too bad and getting better. Been on Calquence for six months. Itching and rash started two months ago. Started a facial cleanser today CeraVe suggested by the dermatologist. Will see how that goes.

helenolton profile image
helenolton in reply to Curling123

I am on steroids, not helping much. I am using CerVe, nothing seems to work. I will be seeing my MD tomorrow. My oncologist, said they may change my medicine.

LeoPa profile image
LeoPa in reply to helenolton

Try coconut oil. It has antiviral antibacterial and antifungal properties due to the lauric acid content. If it doesn't help you can eat what's left 😊

helenolton profile image
helenolton in reply to Curling123

Thank you

Provence profile image
Provence

I had. bad rashes of different kinds after a few months of being on Ibrutinib. They went away when my daily dose was lowered, so you may want to ask about that possibility.

CLL-CKDman80 profile image
CLL-CKDman80

I have been on lower dose acalabrutinib (because of CKD) for 18 months and the most prominent side effect has been diarrhea, followed by continuing hot flashes and easy bruising. I am taking 4 100 mg per week and will be working to get that to 7 per week (once per day) as my white blood/lymphocytes are still a bit high.

Shepherd777 profile image
Shepherd777 in reply to CLL-CKDman80

what is CKD?

CLL-CKDman80 profile image
CLL-CKDman80

Chronic kidney disease. My kidneys won't excrete the drug normally and it stays in my body longer so I need less. Apparently I need more than I am currently taking, however.

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